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UID:19144-1749380400-1749402000@www.sumairafoundation.org
SUMMARY:TSF's Washington DC Patient Day
DESCRIPTION:TSF is coming to the DMV area! \nAre you an NMOSD/MOGAD patient\, caregiver\, clinician\, nurse\, researcher and/or advocate in the Washington D.C./Baltimore area? You’re invited to our event on Sunday\, June 8th\, at 11 AM at the Georgetown University Conference Center. \nJoin us for a day of education\, community\, and fun to: \n\nMeet local NMOSD & MOGAD patients\, caregivers and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, co-morbidities and more\n\n\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis in-person event is free and lunch will be served. We can’t wait to see you in the capital of the United States! \nThe Sumaira Foundation team
URL:https://www.sumairafoundation.org/event/tsfs-washington-dc-patient-day/
LOCATION:Leavey Center\, 560 Tondorf Road\, Washington\, DC\, 20057\, United States
CATEGORIES:TSF Patient Day
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250612T200000
DTEND;TZID=America/New_York:20250612T210000
DTSTAMP:20260510T184942
CREATED:20250505T160423Z
LAST-MODIFIED:20250505T160423Z
UID:19265-1749758400-1749762000@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-43/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
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BEGIN:VEVENT
DTSTART;TZID=America/Mexico_City:20250619T180000
DTEND;TZID=America/Mexico_City:20250619T190000
DTSTAMP:20260510T184942
CREATED:20250522T123220Z
LAST-MODIFIED:20250522T123220Z
UID:19399-1750356000-1750359600@www.sumairafoundation.org
SUMMARY:Hacer ejercicio con una enfermedad autoimmune
DESCRIPTION:¿Sabías que el ejercicio puede ser un aliado poderoso en la gestión de enfermedades autoinmunes? En este webinar\, exploraremos cómo el deporte puede ayudar a mejorar la calidad de vida. \n  \nÚnase a nosotros el 5 de junio para una presentación y discusión con la Dra. Araceli Reyes Cuayahuitl. Haga clic aquí para registrarse: https://us02web.zoom.us/webinar/register/WN_DeOIgA_qTemWu61Y3RWVJg \n  \nTemas a cubrir: \n• Breve introducción a las enfermedades desmielinizantes \n• Síntomas físicos comunes \n• Importancia de la actividad física en general \n• Evidencia científica del impacto del ejercicio en enfermedades desmielinizantes \n• Tipos de ejercicio recomendados \n  \n¿Qué esperar en el webinar? \n• Información basada en evidencia científica \n• Oportunidad para hacer preguntas e interactuar con expertos \n  \nEste programa es posible gracias al apoyo de Amgen.
URL:https://www.sumairafoundation.org/event/hacer-ejercicio-con-una-enfermedad-autoimmune/
LOCATION:Virtual: Mexico
CATEGORIES:From The Experts
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DTSTART;TZID=America/New_York:20250619T200000
DTEND;TZID=America/New_York:20250619T210000
DTSTAMP:20260510T184942
CREATED:20250617T154328Z
LAST-MODIFIED:20250617T154328Z
UID:19569-1750363200-1750366800@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings [Pride Edition]
DESCRIPTION:Pride is more than just a month. We recognize the unique challenges faced by those navigating both an LGBTQIA+ identity and a rare disease diagnosis\, and we’re here to ensure you don’t have to face them alone. The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by Acute disseminated encephalomyelitis (ADEM)\, Autoimmune encephalitis (AE)\, Multiple sclerosis (MS)\, Myelin oligodendrocyte glycoprotein antibody-associated disease (MOGAD)\, Neuromyelitis optica spectrum disorder (NMOSD)\, Optic neuritis (ON) or Transverse myelitis (TM). Please join us to offer support to one another and meet others who truly understand our journeys. \nTogether\, we can create a compassionate community that understands and supports the unique experiences of living with ADEM\, AE\, MOGAD\, MS\, NMOSD\, ON\, and TM as an LGBTQIA+ individual. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-pride-edition/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
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BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20250625T190000
DTEND;TZID=Africa/Johannesburg:20250625T200000
DTSTAMP:20260510T184942
CREATED:20250617T154622Z
LAST-MODIFIED:20250617T154622Z
UID:19574-1750878000-1750881600@www.sumairafoundation.org
SUMMARY:Human Collective Project | Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/human-collective-project-africa-2/
CATEGORIES:Support Group
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