TSF's Washington DC Patient Day
2025-06-08 11:00 - 17:00 (America/New_York) | Leavey Center, 560 Tondorf Road, Washington, DC, 20057, United States
TSF is coming to the DMV area!
Are you an NMOSD/MOGAD patient, caregiver, clinician, nurse, researcher and/or advocate in the Washington D.C./Baltimore area? You’re invited to our event on Sunday, June 8th, at 11 AM at the Georgetown University Conference Center.
Join us for a day of education, community, and fun to:

Meet local NMOSD & MOGAD patients, caregivers and clinicians
Ask experts questions in real time about symptom management, treatments and therapies, co-morbidities and more

Learn about updates on the latest research and findings from local key opinion leaders

This in-person event is free and lunch will be served. We can’t wait to see you in the capital of the United States!
The Sumaira Foundation team

TSF's Human Collective Project Meetings
2025-06-12 20:00 - 21:00 (America/New_York) | Virtual: United States, United States
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
Since 2020, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh, cry, vent, share wins, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.

Hacer ejercicio con una enfermedad autoimmune
2025-06-19 18:00 - 19:00 (America/Mexico_City) | Virtual: Mexico
¿Sabías que el ejercicio puede ser un aliado poderoso en la gestión de enfermedades autoinmunes? En este webinar, exploraremos cómo el deporte puede ayudar a mejorar la calidad de vida.

Únase a nosotros el 5 de junio para una presentación y discusión con la Dra. Araceli Reyes Cuayahuitl. Haga clic aquí para registrarse: https://us02web.zoom.us/webinar/register/WN_DeOIgA_qTemWu61Y3RWVJg

Temas a cubrir:
• Breve introducción a las enfermedades desmielinizantes
• Síntomas físicos comunes
• Importancia de la actividad física en general
• Evidencia científica del impacto del ejercicio en enfermedades desmielinizantes
• Tipos de ejercicio recomendados

¿Qué esperar en el webinar?
• Información basada en evidencia científica
• Oportunidad para hacer preguntas e interactuar con expertos

Este programa es posible gracias al apoyo de Amgen.

TSF's Human Collective Project Meetings [Pride Edition]
2025-06-19 20:00 - 21:00 (America/New_York) | Virtual: United States, United States
Pride is more than just a month. We recognize the unique challenges faced by those navigating both an LGBTQIA+ identity and a rare disease diagnosis, and we’re here to ensure you don’t have to face them alone. The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by Acute disseminated encephalomyelitis (ADEM), Autoimmune encephalitis (AE), Multiple sclerosis (MS), Myelin oligodendrocyte glycoprotein antibody-associated disease (MOGAD), Neuromyelitis optica spectrum disorder (NMOSD), Optic neuritis (ON) or Transverse myelitis (TM). Please join us to offer support to one another and meet others who truly understand our journeys.
Together, we can create a compassionate community that understands and supports the unique experiences of living with ADEM, AE, MOGAD, MS, NMOSD, ON, and TM as an LGBTQIA+ individual. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.

Human Collective Project | Africa
2025-06-25 19:00 - 20:00 (Africa/Johannesburg)
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
