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X-ORIGINAL-URL:https://www.sumairafoundation.org
X-WR-CALDESC:Events for The Sumaira Foundation
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BEGIN:VEVENT
DTSTART;TZID=Europe/Berlin:20241002T100000
DTEND;TZID=Europe/Berlin:20241002T170000
DTSTAMP:20260531T234306
CREATED:20240812T134906Z
LAST-MODIFIED:20240812T134906Z
UID:17708-1727863200-1727888400@www.sumairafoundation.org
SUMMARY:NEMOS Patient:innentag 2024
DESCRIPTION:Expert:innen informieren über Diagnose und Therapie derNMOSD (Neuromyelitis optica-Spektrum-Erkrankungen) und MOGAD\n(MOG-Antikörpervermittelte Erkrankungen). \nNatürlich besteht ausgiebig Möglichkeit für Fragen und für den Austausch mit anderen Betroffenen.
URL:https://www.sumairafoundation.org/event/nemos-patientinnentag-2024/
LOCATION:Frankfurt am Main\, Otto-Fleck-Schneise 4\, 60528 Frankfurt am Main\, Germany
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/08/Untitled-design.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241005T110000
DTEND;TZID=America/New_York:20241005T170000
DTSTAMP:20260531T234306
CREATED:20241003T145652Z
LAST-MODIFIED:20241003T145652Z
UID:17873-1728126000-1728147600@www.sumairafoundation.org
SUMMARY:TSF's Miami Patient Day for NMOSD & MOGAD
DESCRIPTION:TSF is coming to Miami! \n\nAre you an NMOSD/MOGAD patient\, caregiver\, clinician\, nurse\, researcher and/or advocate in Florida? You’re invited to our event on Saturday\, October 5th at 11 AM at Margaritaville Hollywood Beach Resort. \n  \nJoin us for a day of education\, community\, and fun to: \n\nMeet local NMOSD & MOGAD patients\, caregivers and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, co-morbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\nPLUS! We’ll have an educational and interactive session in Spanish led by local experts.\n\n  \nThis in-person event is free and lunch will be served. We can’t wait to see you in Miami! \nThe Sumaira Foundation team
URL:https://www.sumairafoundation.org/event/tsfs-miami-patient-day-for-nmosd-mogad/
LOCATION:Margaritaville Hollywood Beach Resort\, 1111 N Ocean Dr\, Hollywood\, 33019\, United States
CATEGORIES:Community Event,TSF Patient Day
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2024/10/457129813_495847449743087_1970028794632479223_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20241009T193000
DTEND;TZID=Europe/Amsterdam:20241009T203000
DTSTAMP:20260531T234306
CREATED:20241009T180130Z
LAST-MODIFIED:20241009T180130Z
UID:17887-1728502200-1728505800@www.sumairafoundation.org
SUMMARY:TSF Plauderstunde | HCP Germany
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/tsf-plauderstunde-hcp-germany-15/
LOCATION:Virtual: Germany\, Germany
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/10/Germany.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241010T200000
DTEND;TZID=America/New_York:20241010T210000
DTSTAMP:20260531T234306
CREATED:20241009T181513Z
LAST-MODIFIED:20241009T183716Z
UID:17900-1728590400-1728594000@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-35/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/10/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20241022T180000
DTEND;TZID=Africa/Johannesburg:20241022T190000
DTSTAMP:20260531T234306
CREATED:20241009T200240Z
LAST-MODIFIED:20241009T200240Z
UID:17912-1729620000-1729623600@www.sumairafoundation.org
SUMMARY:Human Collective Project | South Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/human-collective-project-south-africa-5/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/04/South-Africa.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241023T190000
DTEND;TZID=America/New_York:20241023T200000
DTSTAMP:20260531T234306
CREATED:20241009T201457Z
LAST-MODIFIED:20241009T201457Z
UID:17926-1729710000-1729713600@www.sumairafoundation.org
SUMMARY:Navigating NMOSD & MOGAD: Exploring the LGBTQIA+ Experience
DESCRIPTION:In celebration of LGBT History Month\, The Sumaira Foundation invites you to participate in our upcoming webinar\, “Navigating NMOSD & MOGAD: Exploring the LGBTQIA+ Experience\,” featuring Dr. William Conte\, head of the MS Center at Methodist Hospitals and Assistant Professor of Neurology at Indiana University\, Nicolas Overton\, NMOSD patient and TSF Ambassador of Florida and Avery Allmond\, MOGAD patient and TSF Ambassador of Oklahoma. \nJoin this important conversation!
URL:https://www.sumairafoundation.org/event/navigating-nmosd-mogad-exploring-the-lgbtqia-experience/
LOCATION:Virtual: United States\, United States
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/10/Exploring-the-LGBTQIA-Experience-in-NMOSDMOGAD.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20241025T163000
DTEND;TZID=Europe/Paris:20241025T173000
DTSTAMP:20260531T234306
CREATED:20241009T202215Z
LAST-MODIFIED:20241009T202814Z
UID:17930-1729873800-1729877400@www.sumairafoundation.org
SUMMARY:Recent Findings on Retinal Changes in AQP4-NMOSD\, MOGAD & DS cases
DESCRIPTION:TSF is pleased to provide the Iranian neurology community around the globe with another lecture and case discussion: Recent Findings on Retinal Changes in AQP4-NMOSD\, MOGAD & DS cases led by Dr. Frederike Cosima Oertel\, neuroimmunologist and NMOSD/MOGAD expert from Charité-Universitätsmedizin Berlin\, Germany. \nWe invite clinicians & researchers from all over the world to join this important discussion. \nThis series is being organized by Prof. Mohammad Ali Sahraian (Tehran University of Medical Sciences) and Dr. Sara Samadzadeh (Charité Universitätsmedizin Berlin).
URL:https://www.sumairafoundation.org/event/iranian-insights-iranian-insights-recent-findings-on-retinal-changes-in-aqp4-nmosd-mogad-ds-cases/
LOCATION:Virtual: Global
CATEGORIES:Case Discussion + Lecture
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2024/10/462608430_524240960237069_5635395659284592719_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20241031T200000
DTEND;TZID=Europe/Paris:20241031T210000
DTSTAMP:20260531T234306
CREATED:20241009T195245Z
LAST-MODIFIED:20241009T195245Z
UID:17908-1730404800-1730408400@www.sumairafoundation.org
SUMMARY:Le Projet Collectif Humain (HCP) | Français
DESCRIPTION:The Human Collective Project (HCP) est la réunion du groupe de soutien de TSF offerte à toute personne affectée par la NMOSD ou la MOGAD. Le programme a vu le jour au plus fort de la pandémie de COVID-19 en 2020\, lorsque la plupart des patients NMOSD/MOGAD se sentaient particulièrement isolés et vulnérables au coronavirus en tant que patient dit “vulnérable” de part son traitement contre ma maladie.\nL’isolement que beaucoup d’entre nous avons vécu a révélé un grand besoin et une opportunité pour nous de nous connecter de manière significative pour nous offrir notre soutien les uns aux autres. \nDepuis 2020\, nous avons élargi le programme pour offrir plus de sessions dans plusieurs zones géographiques afin de garantir que tous les membres des communautés NMOSD/MOGAD se sentent accueillis et inclus. Comme nous le disons toujours\, HCP est un excellent moyen de rencontrer d’autres personnes dans des circonstances similaires dans cette communauté rare; c’est un espace sûr pour rire\, pleurer\, évacuer\, partager les victoires\, etc. Ce programme est piloté et dirigé par les patients et soignants ambassadeurs de TSF dans le monde entier.
URL:https://www.sumairafoundation.org/event/le-projet-collectif-humain-hcp-francais-2/
LOCATION:Virtual: France\, France
CATEGORIES:Support Group,TSF France
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/02/French-2.png
END:VEVENT
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