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X-WR-CALDESC:Events for The Sumaira Foundation
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240808T200000
DTEND;TZID=America/New_York:20240808T210000
DTSTAMP:20260506T040802
CREATED:20240805T181324Z
LAST-MODIFIED:20240805T181324Z
UID:17612-1723147200-1723150800@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-33/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/08/America.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20240814T193000
DTEND;TZID=Europe/Amsterdam:20240814T203000
DTSTAMP:20260506T040802
CREATED:20240805T181747Z
LAST-MODIFIED:20240812T122207Z
UID:17617-1723663800-1723667400@www.sumairafoundation.org
SUMMARY:TSF Plauderstunde | HCP Germany
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/tsf-plauderstunde-hcp-germany-13/
LOCATION:Virtual: Germany\, Germany
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/12/2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Istanbul:20240820T150000
DTEND;TZID=Europe/Istanbul:20240820T160000
DTSTAMP:20260506T040802
CREATED:20240805T181632Z
LAST-MODIFIED:20240812T120327Z
UID:17615-1724166000-1724169600@www.sumairafoundation.org
SUMMARY:HCP Turkey
DESCRIPTION:Ağustos nmo-sd/mog-ad toplantimiza tüm NMO-sd hastalarini ve aile fertleri davetlidir.\nzoom toplantimizda dr.Rabia ve dr.Meral Nmo ile ilgili sorulari cevaplayacaktir.\naşağıdaki belirtilmis olan linkten kaydinizi oluşturabilirsiniz\n\nsaygılarımla\nSumaira Türkiye\nFatih Şen
URL:https://www.sumairafoundation.org/event/hcp-turkey-4/
LOCATION:virtual: Turkey\, Turkey
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/08/Turkey-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Bogota:20240821T180000
DTEND;TZID=America/Bogota:20240821T190000
DTSTAMP:20260506T040802
CREATED:20240726T190133Z
LAST-MODIFIED:20240730T130810Z
UID:17558-1724263200-1724266800@www.sumairafoundation.org
SUMMARY:Tratamientos para el NMOSD
DESCRIPTION:El jueves 21 de agosto a las 6pm hora Colombia\, el Dr Carlos Navas de Colombia y el Dr Edgar Carnero de Argentina nos contarán los tratamientos para NMOSD. ¡¡Acompáñanos!!
URL:https://www.sumairafoundation.org/event/tratamientos-para-el-nmosd/
LOCATION:Virtual: Colombia\, Colombia
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/07/NavasContentti.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240823T140000
DTEND;TZID=America/New_York:20240823T150000
DTSTAMP:20260506T040802
CREATED:20240807T192135Z
LAST-MODIFIED:20240807T192135Z
UID:17679-1724421600-1724425200@www.sumairafoundation.org
SUMMARY:Verständnis von MOGAD und der Bedeutung der Patientenbeteiligung an klinischen Studien
DESCRIPTION:TSF Deutschland lädt deutschsprachige MOGAD-Patienten\, Pflegekräfte und Kliniker ein\, an unserem kommenden Live-Webinar “Verständnis von MOGAD und der Bedeutung der Patientenbeteiligung an klinischen Studien – mit Professor Friedemann Paul\, Neuroimmunologe an der Charité – Universitätsmedizin Berlin” teilzunehmen. \nLive-Teilnehmer haben die Möglichkeit\, Prof. Paul in Echtzeit Fragen zu stellen. \nDiese Sitzung wird aufgezeichnet und kann danach auf dem YouTube-Kanal von TSF wiedergegeben werden. \nDieses Programm wurde mit Unterstützung von UCB ermöglicht.
URL:https://www.sumairafoundation.org/event/verstandnis-von-mogad-und-der-bedeutung-der-patientenbeteiligung-an-klinischen-studien/
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/08/GERMAN.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240829T190000
DTEND;TZID=America/New_York:20240829T200000
DTSTAMP:20260506T040802
CREATED:20240807T191148Z
LAST-MODIFIED:20240807T191148Z
UID:17674-1724958000-1724961600@www.sumairafoundation.org
SUMMARY:TSF's Exclusive TEEN & Young Adult HCP Meeting
DESCRIPTION:Are you a teen or young adult affected by rare neuroimmune disorders such as NMOSD or MOGAD? All are welcome between the ages of 13-25. \nThe Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-exclusive-teen-young-adult-hcp-meeting/
LOCATION:Virtual: Global
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/08/TEEN.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20240829T200000
DTEND;TZID=Europe/Paris:20240829T210000
DTSTAMP:20260506T040802
CREATED:20240216T153313Z
LAST-MODIFIED:20240805T232825Z
UID:16167-1724961600-1724965200@www.sumairafoundation.org
SUMMARY:Le Projet Collectif Humain (HCP) | Français
DESCRIPTION:The Human Collective Project (HCP) est la réunion du groupe de soutien de TSF offerte à toute personne affectée par la NMOSD ou la MOGAD. Le programme a vu le jour au plus fort de la pandémie de COVID-19 en 2020\, lorsque la plupart des patients NMOSD/MOGAD se sentaient particulièrement isolés et vulnérables au coronavirus en tant que patient dit “vulnérable” de part son traitement contre ma maladie.\nL’isolement que beaucoup d’entre nous avons vécu a révélé un grand besoin et une opportunité pour nous de nous connecter de manière significative pour nous offrir notre soutien les uns aux autres. \nDepuis 2020\, nous avons élargi le programme pour offrir plus de sessions dans plusieurs zones géographiques afin de garantir que tous les membres des communautés NMOSD/MOGAD se sentent accueillis et inclus. Comme nous le disons toujours\, HCP est un excellent moyen de rencontrer d’autres personnes dans des circonstances similaires dans cette communauté rare; c’est un espace sûr pour rire\, pleurer\, évacuer\, partager les victoires\, etc. Ce programme est piloté et dirigé par les patients et soignants ambassadeurs de TSF dans le monde entier.
URL:https://www.sumairafoundation.org/event/le-projet-collectif-humain-13/
LOCATION:Virtual: France\, France
CATEGORIES:Support Group,TSF France
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/02/French-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Tehran:20240830T180000
DTEND;TZID=Asia/Tehran:20240830T190000
DTSTAMP:20260506T040802
CREATED:20240812T175610Z
LAST-MODIFIED:20240822T182912Z
UID:17710-1725040800-1725044400@www.sumairafoundation.org
SUMMARY:Iranian Insights: Diagnostic Assays
DESCRIPTION:TSF is pleased to provide the Iranian neurology community around the globe with another lecture and case discussion: Diagnostic Assays led by Prof. Patrick Waters from the University of Oxford. \nWe invite clinicians & researchers from all over the world to join this important discussion. \nThis series is being organized by Dr. Sara Samadzadeh (Charité Universitätsmedizin Berlin)\, Dr. Masoud Majed (Keck School of Medicine of USC)\, and Dr. Mohammad Ali Sahraian ( Tehran University of Medical Sciences).
URL:https://www.sumairafoundation.org/event/iranian-insights-diagnostic-assays/
LOCATION:Virtual: Iran\, Iran\, Islamic Republic of
CATEGORIES:Case Discussion + Lecture
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/08/PWaters.png
END:VEVENT
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