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BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20230801T173000
DTEND;TZID=Europe/Rome:20230801T183000
DTSTAMP:20260414T175956
CREATED:20230530T143735Z
LAST-MODIFIED:20230530T143735Z
UID:13821-1690911000-1690914600@www.sumairafoundation.org
SUMMARY:HCP Italia
DESCRIPTION:The Human Collective Project (HCP) è l’incontro del gruppo di supporto di TSF offerto a chiunque sia stato colpito/colpito da NMOSD/MOGAD. Il programma è nato durante il culmine della pandemia di COVID-19 nel 2020\, quando la maggior parte dei NMOSD/MOGAD si sentiva particolarmente isolata e vulnerabile al coronavirus come membri della società immunosoppressi/immunocompromessi. L’isolamento che molti di noi hanno vissuto ha svelato un grande bisogno e un’opportunità per noi di connetterci in modo significativo per offrire il nostro sostegno reciproco. \nDal 2020\, abbiamo ampliato il programma per offrire più sessioni in più aree geografiche per garantire che tutti nelle comunità NMOSD/MOGAD si sentano accolti e inclusi. Come diciamo sempre\, HCP è un ottimo modo per incontrare altri in circostanze simili in questa rara comunità; è uno spazio sicuro per ridere\, piangere\, sfogarsi\, condividere vittorie\, ecc. Questo programma è guidato e guidato dagli ambasciatori di pazienti e caregiver di TSF in tutto il mondo.
URL:https://www.sumairafoundation.org/event/hcp-italia-4/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/04/unnamed.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230803T200000
DTEND;TZID=America/New_York:20230803T210000
DTSTAMP:20260414T175956
CREATED:20230116T195149Z
LAST-MODIFIED:20230207T173848Z
UID:12484-1691092800-1691096400@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-16/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230805T100000
DTEND;TZID=America/New_York:20230805T110000
DTSTAMP:20260414T175956
CREATED:20230731T191511Z
LAST-MODIFIED:20230731T191626Z
UID:14258-1691229600-1691233200@www.sumairafoundation.org
SUMMARY:Coaching Klatch: Pain vs. Suffering
DESCRIPTION:“Coaching Klatch: Moving You Forward” is a 3-part program designed to bring patients and caregivers together in a supportive community to: \n\nlearn & apply coaching concepts\nacquire tools to strengthen self-advocacy\nEnhance quality of day-to-day lived experiences\nmove forward in your life despite living with a rare disease\n\n  \nLed by Dr. Maggie Kang*\, this 3-part coaching program is virtual and free of charge to patients and caregivers\, no matter where in the world you are or what your diagnosis is! \n  \nJoin us for our upcoming sessions: \n\nSession 1 | “Pain vs. Suffering” – Saturday\, August 5th at 10 AM EST / 4 PM CET / 7:30 PM IST\nSession 2 | “A New Way to Think About Change” – Saturday\, September 9th at 10 AM EST / 4 PM CET / 7:30 PM IST\nSession 3 | “How to Keep Medical Information Organized & Be Your Best Advocate in Healthcare” – Saturday\, October 14th at 10 AM EST / 4 PM CET / 7:30 PM IST\n\n  \nTo register\, visit https://tinyurl.com/TSFCoachingKlatch \n  \n*Dr. Maggie Kang is a life coach\, speaker\, rare disease advocate and physician. Dr. Kang became an advocate for rare diseases after her then 9-year old daughter was diagnosed with neuromyelitis optica spectrum disorder (NMOSD) in 2018.
URL:https://www.sumairafoundation.org/event/coaching-klatch-pain-vs-suffering/
LOCATION:Virtual: United States\, United States
CATEGORIES:Coaching Klatch,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/07/Coaching-Klatch-Moving-You-Forward.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230815T110000
DTEND;TZID=America/New_York:20230815T120000
DTSTAMP:20260414T175956
CREATED:20230814T121641Z
LAST-MODIFIED:20230814T121753Z
UID:14370-1692097200-1692100800@www.sumairafoundation.org
SUMMARY:HCP India
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD or MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD and MOGAD patients felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. Since launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies and languages to ensure that everyone in the NMOSD and MOGAD community feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world.
URL:https://www.sumairafoundation.org/event/hcp-india/
LOCATION:Virtual: India\, India
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/08/HCP-India.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20230817T190000
DTEND;TZID=Europe/Amsterdam:20230817T200000
DTSTAMP:20260414T175956
CREATED:20230814T122501Z
LAST-MODIFIED:20230814T122501Z
UID:14377-1692298800-1692302400@www.sumairafoundation.org
SUMMARY:TSF’s Human Collective Project | Danmark
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-danmark-2/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/01/Denmark-The-Human-Collective-Project-Facebook-Cover-4.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230817T200000
DTEND;TZID=America/New_York:20230817T210000
DTSTAMP:20260414T175956
CREATED:20230116T195211Z
LAST-MODIFIED:20230207T174022Z
UID:12486-1692302400-1692306000@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-17/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20230818T200000
DTEND;TZID=Europe/Paris:20230818T210000
DTSTAMP:20260414T175956
CREATED:20230320T165132Z
LAST-MODIFIED:20231031T192709Z
UID:13347-1692388800-1692392400@www.sumairafoundation.org
SUMMARY:Le Projet Collectif Humain
DESCRIPTION:The Human Collective Project (HCP) est la réunion du groupe de soutien de TSF offerte à toute personne affectée par la NMOSD ou la MOGAD. Le programme a vu le jour au plus fort de la pandémie de COVID-19 en 2020\, lorsque la plupart des patients NMOSD/MOGAD se sentaient particulièrement isolés et vulnérables au coronavirus en tant que patient dit “vulnérable” de part son traitement contre ma maladie.\nL’isolement que beaucoup d’entre nous avons vécu a révélé un grand besoin et une opportunité pour nous de nous connecter de manière significative pour nous offrir notre soutien les uns aux autres. \nDepuis 2020\, nous avons élargi le programme pour offrir plus de sessions dans plusieurs zones géographiques afin de garantir que tous les membres des communautés NMOSD/MOGAD se sentent accueillis et inclus. Comme nous le disons toujours\, HCP est un excellent moyen de rencontrer d’autres personnes dans des circonstances similaires dans cette communauté rare; c’est un espace sûr pour rire\, pleurer\, évacuer\, partager les victoires\, etc. Ce programme est piloté et dirigé par les patients et soignants ambassadeurs de TSF dans le monde entier.
URL:https://www.sumairafoundation.org/event/le-projet-collectif-humain-5/
LOCATION:Virtual: France\, France
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/03/France-The-Human-Collective-Project-169-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Mexico_City:20230825T160000
DTEND;TZID=America/Mexico_City:20230825T170000
DTSTAMP:20260414T175956
CREATED:20230731T213316Z
LAST-MODIFIED:20230731T213316Z
UID:14267-1692979200-1692982800@www.sumairafoundation.org
SUMMARY:Cómo Elegimos el Tratamiento de NMOSD en LATAM Considerando el Acceso de los Pacientes
DESCRIPTION:Está invitado a asistir a la videoconferencia “Cómo Elegimos el Tratamiento de NMOSD en LATAM Considerando el Acceso de los Pacientes” el viernes 25 de agosto a las 7:00 pm hora Argentina // 4:00 pm hora central México\, con el Dr. Edgar Carnero Contentti\, Neurólogo\, Profesor de Neurología de la Universidad de Buenos Aires\, Unidad de Neuroinmunología\, Departamento de Neurociencias\, Hospital Alemán\, Buenos Aires\, Argentina. \nLos asistentes conectados a la videoconferencia tendrán la oportunidad de hacer preguntas en vivo al Dr. Carnero Contentti. Esta conferencia web se grabará y estará disponible para su reproducción\, tanto en la biblioteca multimedia\, como en el canal de YouTube de The Sumaira Foundation. \nEste evento educativo es posible gracias a una subvención para la educación del paciente de Horizon Therapeutics.
URL:https://www.sumairafoundation.org/event/como-elegimos-el-tratamiento-de-nmosd-en-latam-considerando-el-acceso-de-los-pacientes/
CATEGORIES:From The Experts,TSF Programming
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2023/07/Edgar-Contentti.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20230829T160000
DTEND;TZID=Europe/Rome:20230829T170000
DTSTAMP:20260414T175956
CREATED:20230718T123707Z
LAST-MODIFIED:20230718T123707Z
UID:14185-1693324800-1693328400@www.sumairafoundation.org
SUMMARY:Trattamenti per NMOSD e MOGAD in Italia
DESCRIPTION:Partecipa al nostro prossimo Webinar dal titolo: Trattamenti per NMOSD e MOGAD in Italia – martedì 27 agosto alle 16:00 con il dott. Raffaele Iorio\, neurologo del Policlinico Gemelli. \nChi parteciperà di persona potrà porre le proprie domande alla dr. Iorio. Il webinar verrà registrato e lo troverete sul canale YouTube della Sumaira Foundation (TSF)\, su Facebook e tra i video del sito TSF. \nL’evento è supportato da Horizon Therapeutics.
URL:https://www.sumairafoundation.org/event/trattamenti-per-nmosd-e-mogad-in-italia/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/07/Raffaele-Iorio.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20230829T180000
DTEND;TZID=Africa/Johannesburg:20230829T190000
DTSTAMP:20260414T175956
CREATED:20230530T133051Z
LAST-MODIFIED:20230530T133051Z
UID:13811-1693332000-1693335600@www.sumairafoundation.org
SUMMARY:HCP South Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/hcp-south-africa-5/
LOCATION:Virtual: South Africa\, South Africa
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/04/SOUTH-AFRICA-The-Human-Collective-Project-Facebook-Cover-1200-×-676-px.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230831T200000
DTEND;TZID=America/New_York:20230831T210000
DTSTAMP:20260414T175956
CREATED:20230116T195241Z
LAST-MODIFIED:20230207T174201Z
UID:12488-1693512000-1693515600@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-18/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
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