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BEGIN:VEVENT
DTSTART;VALUE=DATE:20230501
DTEND;VALUE=DATE:20230504
DTSTAMP:20260505T090556
CREATED:20230131T192742Z
LAST-MODIFIED:20230131T192742Z
UID:12565-1682899200-1683158399@www.sumairafoundation.org
SUMMARY:Rare Drug Development Symposium 2023: Collaborate: Go Farther\, Together
DESCRIPTION:Join us May 1-3\, 2023 in Philadelphia\, Pennsylvania for the RARE Drug Development Symposium 2023 \n\n\nCollaboration is the foundation of success in rare disease research.  Knowing who to work with\, what strategies to use\, and how to prepare for discussions can help you overcome barriers posed by small populations and limited funding.\n\nAt the Rare Drug Development Symposium (RDDS) 2023\, a partnership between Global Genes and the Orphan Disease Center of the University of Pennsylvania\, you’ll connect to  rare disease advocacy leaders\, researchers\, clinicians\, industry professionals and policy developers who will share their experience and provide you with models to help your community push forward. This 2-day\, in-person only event includes dynamic presentations\, followed by workshops and expert office hours that will enable you to:\nCreate A Comprehensive Research Strategy\nUnderstand the end-to-end process of drug discovery and development for rare disease and participate in a workshop where you’ll analyze your community’s potential and needs. \nLeverage the Power of Data\nWhat makes data valid and reliable? Once you have invested in a registry\, what partnership models can  help you move the needle toward translational research? \nUse AI for Drug Discovery and Repurposing\nFind out how artificial intelligence is being used to transform an often complex\, decades-long-mission into a more efficient process\, reducing the timeline and cost to bring therapies to patients. \nUnderstand Regulatory Considerations\nWhether your organization is local or global\, regulatory guidelines must be taken into account at each step. Learn how to navigate the requirements through case studies and expert advice. \nWho should attend: \n\nPatient Advocacy Group leaders\nPatients\nMembers of the rare disease community who want to learn more about the drug development process\, the unique ways this applies to the development of therapeutics for rare diseases\, and how they can engage with the process\nClinicians and researchers focused on rare disease therapeutic targets\n\nView 2022 Highlights \nTo learn more about the 2022 Symposium\, read the summary report here. We look forward to seeing you at the 2023 Symposium. \nA Year-Long Initiative in Rare Drug Development\nIn addition to activities surrounding the RARE Drug Development Symposium in June\, Global Genes is providing educational resources to help advocates and organizations become better equipped to work with researchers and industry partners throughout the drug development process. This includes: \n \nRare Research Roadmap: This toolkit was designed to help advocates\, individuals\, families\, and organizations better understand some of the potential routes to treatment and some of the key concepts that are part of these processes to work with researchers and industry partners throughout the drug development process. \n\n\n\nDownload Your Copy Of The Rare Research Roadmap And Toolkit\n\nWatch webinars and videos of experts that happened before and after the 2022 RARE Drug Development Symposium. \n\n2022 Webinar 1\n\n\n2022 Webinar 2\n\n\n2022 Webinar 3\n\n\nRDDS 2022: Value Of Collaboration\n\n\nRDDS 2022: Challenges For Rare Disease
URL:https://www.sumairafoundation.org/event/rare-drug-development-symposium-2023-collaborate-go-farther-together/
LOCATION:Sheraton Downtown\, 201 N 17th St\, Philadelphia\, PA\, 19103\, United States
CATEGORIES:Partner Events
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/01/Global-Advocacy-Alliance-600px-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20230502T173000
DTEND;TZID=Europe/Rome:20230502T183000
DTSTAMP:20260505T090556
CREATED:20230428T172836Z
LAST-MODIFIED:20230428T172836Z
UID:13648-1683048600-1683052200@www.sumairafoundation.org
SUMMARY:HCP Italia
DESCRIPTION:The Human Collective Project (HCP) è l’incontro del gruppo di supporto di TSF offerto a chiunque sia stato colpito/colpito da NMOSD/MOGAD. Il programma è nato durante il culmine della pandemia di COVID-19 nel 2020\, quando la maggior parte dei NMOSD/MOGAD si sentiva particolarmente isolata e vulnerabile al coronavirus come membri della società immunosoppressi/immunocompromessi. L’isolamento che molti di noi hanno vissuto ha svelato un grande bisogno e un’opportunità per noi di connetterci in modo significativo per offrire il nostro sostegno reciproco. \nDal 2020\, abbiamo ampliato il programma per offrire più sessioni in più aree geografiche per garantire che tutti nelle comunità NMOSD/MOGAD si sentano accolti e inclusi. Come diciamo sempre\, HCP è un ottimo modo per incontrare altri in circostanze simili in questa rara comunità; è uno spazio sicuro per ridere\, piangere\, sfogarsi\, condividere vittorie\, ecc. Questo programma è guidato e guidato dagli ambasciatori di pazienti e caregiver di TSF in tutto il mondo.
URL:https://www.sumairafoundation.org/event/hcp-italia/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/04/unnamed.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230504
DTEND;VALUE=DATE:20230508
DTSTAMP:20260505T090556
CREATED:20230131T192051Z
LAST-MODIFIED:20230131T192051Z
UID:12563-1683158400-1683503999@www.sumairafoundation.org
SUMMARY:EMSP Annual Conference 2023
DESCRIPTION:We are glad to invite you to save the date for the EMSP Annual Conference 2023\, to be held under the theme of Social Policies between 4-7 May 2023 in Helsinki\, Finland. \nHeld as an in-person event co-hosted by the Finnish MS Society (Neuroliito)\, the conference will offer the latest MS developments\, expert insights\, and networking with the community. \nIf interested\, please pencil the following dates into your calendar: \nThursday\, 4th May 2023 – EMSP Annual General Meeting\nFriday\, 5th May 2023 – EMSP Annual Conference – Day 1\nSaturday\, 6th May 2023 – Day 2\nSunday\, 7th May 2023 – Young People’s Festival
URL:https://www.sumairafoundation.org/event/emsp-annual-conference-2023/
CATEGORIES:Partner Events
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/01/EMSP_LOGO_CMYK_square.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230506T100000
DTEND;TZID=America/New_York:20230506T110000
DTSTAMP:20260505T090556
CREATED:20230116T191046Z
LAST-MODIFIED:20230207T172935Z
UID:12425-1683367200-1683370800@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project | Global Meetings
DESCRIPTION:These meetings are a safe space led by the community for the community. No judgment; only love & support. (This meeting will be conducted in English) \nThe Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \n 
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-global-meetings-5/
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/01/HCP-Global.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20230510T193000
DTEND;TZID=Europe/Amsterdam:20230510T203000
DTSTAMP:20260505T090556
CREATED:20230116T185858Z
LAST-MODIFIED:20230207T173020Z
UID:12410-1683747000-1683750600@www.sumairafoundation.org
SUMMARY:TSF Plauderstunde | HCP Germany
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/tsf-plauderstunde-hcp-germany-5/
LOCATION:Virtual: Germany\, Germany
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/12/2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230511T200000
DTEND;TZID=America/New_York:20230511T210000
DTSTAMP:20260505T090556
CREATED:20230116T194803Z
LAST-MODIFIED:20230207T173109Z
UID:12470-1683835200-1683838800@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-10/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20230516T190000
DTEND;TZID=Europe/Amsterdam:20230516T200000
DTSTAMP:20260505T090556
CREATED:20230511T174754Z
LAST-MODIFIED:20230511T175929Z
UID:13724-1684263600-1684267200@www.sumairafoundation.org
SUMMARY:Het Human Collective Project
DESCRIPTION:Op dinsdag 16 mei om 19:00 organiseert de Sumaira Foundation de eerste Nederlands en Vlaamse online bijeenkomst voor mensen met NMOSD of MOGAD en hun familieleden en/of dierbaren.\n\nU bent van harte welkom om deel te nemen en ervaringen uit te wisselen en elkaar te ondersteunen in een veilige omgeving.\n\nAanmelden voor deze bijeenkomst kan via: ZOOM
URL:https://www.sumairafoundation.org/event/het-human-collective-project-2/
LOCATION:Virtual: Amsterdam\, Netherlands
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2023/05/HCP-Dutch1.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20230519T200000
DTEND;TZID=Europe/Paris:20230519T210000
DTSTAMP:20260505T090556
CREATED:20230320T164926Z
LAST-MODIFIED:20230320T164926Z
UID:13341-1684526400-1684530000@www.sumairafoundation.org
SUMMARY:Le Projet Collectif Humain
DESCRIPTION:The Human Collective Project (HCP) est la réunion du groupe de soutien de TSF offerte à toute personne affectée par la NMOSD ou la MOGAD. Le programme a vu le jour au plus fort de la pandémie de COVID-19 en 2020\, lorsque la plupart des patients NMOSD/MOGAD se sentaient particulièrement isolés et vulnérables au coronavirus en tant que patient dit “vulnérable” de part son traitement contre ma maladie.\nL’isolement que beaucoup d’entre nous avons vécu a révélé un grand besoin et une opportunité pour nous de nous connecter de manière significative pour nous offrir notre soutien les uns aux autres. \nDepuis 2020\, nous avons élargi le programme pour offrir plus de sessions dans plusieurs zones géographiques afin de garantir que tous les membres des communautés NMOSD/MOGAD se sentent accueillis et inclus. Comme nous le disons toujours\, HCP est un excellent moyen de rencontrer d’autres personnes dans des circonstances similaires dans cette communauté rare; c’est un espace sûr pour rire\, pleurer\, évacuer\, partager les victoires\, etc. Ce programme est piloté et dirigé par les patients et soignants ambassadeurs de TSF dans le monde entier.
URL:https://www.sumairafoundation.org/event/le-projet-collectif-humain-2/
LOCATION:Virtual: France\, France
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/03/France-The-Human-Collective-Project-169-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230525T200000
DTEND;TZID=America/New_York:20230525T210000
DTSTAMP:20260505T090556
CREATED:20230116T194823Z
LAST-MODIFIED:20230207T173147Z
UID:12472-1685044800-1685048400@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-11/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20230530T180000
DTEND;TZID=Africa/Johannesburg:20230530T190000
DTSTAMP:20260505T090556
CREATED:20230530T132405Z
LAST-MODIFIED:20230530T132405Z
UID:13805-1685469600-1685473200@www.sumairafoundation.org
SUMMARY:HCP South Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/hcp-south-africa-2/
LOCATION:Virtual: South Africa\, South Africa
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/04/SOUTH-AFRICA-The-Human-Collective-Project-Facebook-Cover-1200-×-676-px.png
END:VEVENT
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