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BEGIN:VEVENT
DTSTART;TZID=America/North_Dakota/Center:20230401T090000
DTEND;TZID=America/North_Dakota/Center:20230401T160000
DTSTAMP:20260405T135911
CREATED:20230307T134147Z
LAST-MODIFIED:20230329T223017Z
UID:13166-1680339600-1680364800@www.sumairafoundation.org
SUMMARY:TSF's Patient Day for NMOSD/MOGAD in Dallas
DESCRIPTION:TSF is inviting all NMOSD/MOGAD patients\, caregivers\, friends and family in Texas to join us for an exclusive meetup!\nIn collaboration with Dr. Benjamin Greenberg at UT Southwestern Medical Center\, The Sumaira Foundation is organizing a special event dedicated to NMOSD/MOGAD patients\, caregivers and clinicians on Saturday\, April 1st\, 2023 at the Marriott Dallas Uptown. \nPLUS! We’ll be joined by special guest and celebrity chef\, Christine Ha! Christine was diagnosed with NMOSD after experiencing severe vision loss in 2003. Christine was the first blind contestant on MasterChef and the winner of its third season in 2012. In 2023\, Christine is a proud chef\, writer and TV host. \nTSF’s goals for this event include: \n\nmeet local NMOSD/MOGAD patients\, caregivers and clinicians in the Texas region\nprovide updates on the latest research and findings\nfacilitate connections and meaningful discussions for the NMOSD/MOGAD community\nenable patients/caregivers to ask experts questions in real time\nlearn more about The Sumaira Foundation’s mission and ways to get involved to illuminate the darkness of NMOSD/MOGAD\n\nJoin us for a day of connection\, education and community. This is a free event with heavy hors d’oeuvres and an open bar. \nWe’re excited to meet you! \nHugs\, Sumaira
URL:https://www.sumairafoundation.org/event/tsfs-patient-day-for-nmosd-mogad-in-dallas/
LOCATION:Marriott Uptown Dallas\, 3033 Fairmount St\, Dallas\, TX\, 75201\, United States
CATEGORIES:Community Event,Patient Days
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/03/TSF-Patient-Day-for-NMOSDMOGAD-in-Dallas-April-1-2023.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20230405T190000
DTEND;TZID=Europe/Amsterdam:20230405T200000
DTSTAMP:20260405T135911
CREATED:20230116T192135Z
LAST-MODIFIED:20230222T205001Z
UID:12439-1680721200-1680724800@www.sumairafoundation.org
SUMMARY:TSF’s Human Collective Project | Danmark
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/hcp-danmark-4/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/01/Denmark-The-Human-Collective-Project-Facebook-Cover-4.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230412T120000
DTEND;TZID=America/New_York:20230412T130000
DTSTAMP:20260405T135911
CREATED:20230327T142954Z
LAST-MODIFIED:20230411T204646Z
UID:13426-1681300800-1681304400@www.sumairafoundation.org
SUMMARY:Pediatric MOGAD & NMOSD
DESCRIPTION:You’re invited to attend “Pediatric MOGAD & NMOSD” on Wednesday\, April 12th at 12:00 PM EDT featuring Dr. Brenda Banwell\, Chief of Child Neurology and Co-Director of the Neuroscience Center at the Children’s Hospital of Philadelphia\, Professor of Neurology and Pediatrics\, and Grace E. Loeb Chair in Neuroscience at the Perelman School of Medicine\, University of Pennsylvania. \nLive attendees will have the opportunity to ask Dr. Banwell questions in real time. This webinar will be recorded and available for replay on TSF’s Multimedia Library and YouTube channel. \nThis educational event is made possible through a patient education grant from Horizon Therapeutics.
URL:https://www.sumairafoundation.org/event/pediatric-mogad-nmosd/
LOCATION:Virtual: United States\, United States
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/03/Brenda-Banwell.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230412T190000
DTEND;TZID=America/New_York:20230412T203000
DTSTAMP:20260405T135911
CREATED:20230312T140038Z
LAST-MODIFIED:20230316T151900Z
UID:13212-1681326000-1681331400@www.sumairafoundation.org
SUMMARY:Meet the Author | Kyle Bryant\, "Shifting Into High Gear"
DESCRIPTION:TSF is pleased to invite you to an exclusive “Meet the Author” fireside chat between Sumaira and Kyle Bryant\, an author\, athlete\, speaker\, and spokesperson for Friedreich’s Ataxia Research Alliance (FARA). \n“Shifting Into High Gear” charts the course of Kyle’s transformation as he journeys on a recumbent tricycle across the United States in the throes of Friedreich’s ataxia\, a life-shortening and disabling disease. Full of humor and reflection\, it’s a heroic journey of a man driven to reframe the language of disease through action and service. \nAttendees will have the opportunity to ask Kyle questions in real-time. Registration is required.
URL:https://www.sumairafoundation.org/event/meet-the-author-kyle-bryant-shifting-into-high-gear/
LOCATION:Virtual: Global
CATEGORIES:Meet The Author
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/03/Meet-the-Author-March-2023-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20230412T193000
DTEND;TZID=Europe/Amsterdam:20230412T203000
DTSTAMP:20260405T135911
CREATED:20230116T185826Z
LAST-MODIFIED:20230207T172129Z
UID:12408-1681327800-1681331400@www.sumairafoundation.org
SUMMARY:TSF Plauderstunde | HCP Germany
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/tsf-plauderstunde-hcp-germany-4/
LOCATION:Virtual: Germany\, Germany
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/12/2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230413T200000
DTEND;TZID=America/New_York:20230413T210000
DTSTAMP:20260405T135911
CREATED:20230116T194622Z
LAST-MODIFIED:20230207T172228Z
UID:12466-1681416000-1681419600@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-8/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230415T100000
DTEND;TZID=America/New_York:20230415T110000
DTSTAMP:20260405T135911
CREATED:20230116T191016Z
LAST-MODIFIED:20230329T005008Z
UID:12423-1681552800-1681556400@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project | Global Meetings
DESCRIPTION:We’re excited to bring NMOSD/MOGAD patients + caregivers from around the globe together for our global support group meetings in 2023! \nThese meetings are a safe space led by the community for the community. No judgment; only love & support. (This meeting will be conducted in English) \nThe Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \n 
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-global-meetings-4/
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/01/HCP-Global.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20230421T200000
DTEND;TZID=Europe/Paris:20230421T213000
DTSTAMP:20260405T135911
CREATED:20230411T203920Z
LAST-MODIFIED:20230411T203920Z
UID:13545-1682107200-1682112600@www.sumairafoundation.org
SUMMARY:NMOSD et MOGAD: échanges autour de la vie intime\, affective et sexuelle
DESCRIPTION:Avec bienveillance\, ouverture d’esprit\, empathie\, venez échanger avec TSF France et Delphine Mutot sur ce qu’est pour vous la vie intime\, affective et sexuelle. Sentez-vous libre de poser toutes les questions que vous souhaitez\, et d’utiliser les mots avec lesquels vous êtes à l’aise. Pas de chichi entre nous! \nRetrouvez-nous le 21 avril 2023 à 20 heures. \nCet événement est soutenu par les subventions d’Horizon Therapeutics et Alexion pour l’éducation des patients.
URL:https://www.sumairafoundation.org/event/nmosd-et-mogad-echanges-autour-de-la-vie-intime-affective-et-sexuelle/
LOCATION:Virtual: France\, France
CATEGORIES:From The Experts,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/04/Delphine-Mutot.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230422T200000
DTEND;TZID=America/New_York:20230422T230000
DTSTAMP:20260405T135911
CREATED:20230118T163153Z
LAST-MODIFIED:20230207T175611Z
UID:12508-1682193600-1682204400@www.sumairafoundation.org
SUMMARY:6th Annual TSF Gala
DESCRIPTION:You are invited to attend The Sumaira Foundation’s \n6th Annual Gala\nSaturday\, April 22\, 2023 at 8 PM at The Newbury Boston\nThis event is black-tie optional. \nWe’ve set an ambitious goal to raise \n$375\,000\nClick here to view the research we’ve been able to fund thanks to you!
URL:https://www.sumairafoundation.org/event/6th-annual-tsf-gala/
LOCATION:The Newbury Boston\, 1 Newbury St\, Boston\, MA\, 02116\, United States
CATEGORIES:TSF Events/Fundraisers
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2023/01/TSF_GALA_POSTER_1620x924_Link.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20230425T180000
DTEND;TZID=Africa/Johannesburg:20230425T190000
DTSTAMP:20260405T135911
CREATED:20230418T220147Z
LAST-MODIFIED:20230424T182135Z
UID:13595-1682445600-1682449200@www.sumairafoundation.org
SUMMARY:HCP South Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/hcp-south-africa/
LOCATION:Virtual: South Africa\, South Africa
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/04/SOUTH-AFRICA-The-Human-Collective-Project-Facebook-Cover-1200-×-676-px.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20230425T200000
DTEND;TZID=Europe/Paris:20230425T213000
DTSTAMP:20260405T135911
CREATED:20230414T153146Z
LAST-MODIFIED:20230414T153146Z
UID:13587-1682452800-1682458200@www.sumairafoundation.org
SUMMARY:MOGAD : l'importance de la participation des patients aux essais cliniques
DESCRIPTION:Venez participer à notre prochain webinaire – MOGAD : l’importance de la participation des patients aux essais cliniques – le mardi 25 avril à 20 heures avec le docteur Romain Marignier\, professeur de neurologie et responsable du centre MIRCEM de Lyon. \nIl partagera avec nous les dernières actualités sur les essais cliniques en cours pour les patients vivant avec la MOGAD en direct de l’American Academy of Neurology. Nous discuterons avec lui de l’importance de la participation des patients à la recherche clinique et aux essais de nouvelles thérapies. \nVous pourrez poser des questions au Pr Marignier en direct.\nCe webinaire sera enregistré et pourra être retrouvé sur la chaîne YouTube de The Sumaira Foundation\, la bibliothèque Facebook et la galerie multimédia du site web de TSF. \nCe webinaire est rendu possible grâce au soutien institutionnel du laboratoire UCB.
URL:https://www.sumairafoundation.org/event/mogad-limportance-de-la-participation-des-patients-aux-essais-cliniques/
LOCATION:Virtual: France\, France
CATEGORIES:TSF France,TSF Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2023/04/unnamed.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230427T160000
DTEND;TZID=America/New_York:20230427T170000
DTSTAMP:20260405T135911
CREATED:20230411T200034Z
LAST-MODIFIED:20230411T204403Z
UID:13541-1682611200-1682614800@www.sumairafoundation.org
SUMMARY:NMOSD y MOGAD\, Perlas en el Diagnóstico y Opciones para el Tratamiento
DESCRIPTION:Está invitado a asistir a la videoconferencia “NMOSD y MOGAD\, Perlas en el Diagnóstico y Opciones para el Tratamiento” el viernes 27 de abril a las 2:00 pm México / 4:00 pm Venezuela / 5:00 pm Argentina. Médicos especialistas de 3 diferentes países de Latinoamérica unen esfuerzos para abordar temas de interés común para todos. \n“Perlas en el Diagnóstico Diferencial (EM\, NMOSD\, MOGAD)”\, Dr. Edgar Carnero Contentti. \n“Tratamiento con Eculizumab\, Satralizumab\, Inebilizumab en NMO”\, Dra. Sarah Vargas. \n“Impactos Socioeconómicos de la Enfermedad y Acceso Entre Fronteras”\, Dr. José Flores Rivera. \nLos asistentes conectados a la videoconferencia tendrán la oportunidad de hacer preguntas a los tres doctores en tiempo real. Esta conferencia web se grabará y estará disponible para su reproducción\, tanto en la biblioteca multimedia\, como en el canal de YouTube de The Sumaira Foundation. \nEste evento educativo es posible gracias a una subvención para la educación del paciente de Horizon Therapeutics.
URL:https://www.sumairafoundation.org/event/nmosd-y-mogad-perlas-en-el-diagnostico-y-opciones-para-el-tratamiento/
LOCATION:Virtual: Global
CATEGORIES:From The Experts,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/04/JFloresEContenttiSVargas.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230427T200000
DTEND;TZID=America/New_York:20230427T210000
DTSTAMP:20260405T135911
CREATED:20230116T194724Z
LAST-MODIFIED:20230207T172832Z
UID:12468-1682625600-1682629200@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-9/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230429T120000
DTEND;TZID=America/New_York:20230429T130000
DTSTAMP:20260405T135911
CREATED:20230131T163136Z
LAST-MODIFIED:20230424T185651Z
UID:12552-1682769600-1682773200@www.sumairafoundation.org
SUMMARY:Cabaret for A Cause
DESCRIPTION:In celebration of NMOSD & MOGAD Awareness Months\, TSF is pleased to present “Cabaret for a Cause\,” a dance class taught by professional choreographers / show girls from a world-renowned cabaret in Paris\, France. \nEmma Castel and Deborah Lettieri will be teaching the class for both standing and seated attendees! \n100% of proceeds will be donated towards research for neuromyelitis optica spectrum disorder (NMOSD) and myelin oligodendrocyte glycoprotein antibody disorder (MOGAD).
URL:https://www.sumairafoundation.org/event/cabaret-for-a-cause/
LOCATION:Virtual: Global
CATEGORIES:TSF Events/Fundraisers
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/01/2023-Cabaret-for-a-Cause-2.0-Eventbrite-2.png
END:VEVENT
END:VCALENDAR