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DTSTART;TZID=Europe/Amsterdam:20230301T190000
DTEND;TZID=Europe/Amsterdam:20230301T200000
DTSTAMP:20260415T085405
CREATED:20230116T192112Z
LAST-MODIFIED:20230222T204910Z
UID:12437-1677697200-1677700800@www.sumairafoundation.org
SUMMARY:TSF’s Human Collective Project | Danmark
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/hcp-danmark-3/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/01/Denmark-The-Human-Collective-Project-Facebook-Cover-4.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20230308T193000
DTEND;TZID=Europe/Amsterdam:20230308T203000
DTSTAMP:20260415T085405
CREATED:20230116T185727Z
LAST-MODIFIED:20230207T171209Z
UID:12406-1678303800-1678307400@www.sumairafoundation.org
SUMMARY:TSF Plauderstunde | HCP Germany
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/tsf-plauderstunde-hcp-germany-3/
LOCATION:Virtual: Germany\, Germany
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/12/2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230311T100000
DTEND;TZID=America/New_York:20230311T110000
DTSTAMP:20260415T085405
CREATED:20230116T190947Z
LAST-MODIFIED:20230303T202616Z
UID:12421-1678528800-1678532400@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project | Global Meetings
DESCRIPTION:We’re excited to bring NMOSD/MOGAD patients + caregivers from around the globe together for our global support group meeting in 2023! \nThese meetings are a safe space led by the community for the community. No judgment; only love & support. (This meeting will be conducted in English) \nThe Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \n 
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-global-meetings-3/
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/01/HCP-Global.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20230314T180000
DTEND;TZID=Europe/Paris:20230314T193000
DTSTAMP:20260415T085405
CREATED:20230216T183958Z
LAST-MODIFIED:20230216T183958Z
UID:12936-1678816800-1678822200@www.sumairafoundation.org
SUMMARY:Les MOGAD et NMOSD chez l’enfant et adolescent
DESCRIPTION:Rejoignez-nous le mardi 14 mars pour le prochain webinaire “From the Experts” de TSF en français avec Dr. Kumaran DEIVA\, neuro-pédiatre à Paris\, qui parlera et répondra aux questions sur la NMOSD pédiatrique et la MOGAD. \nLes participants auront la possibilité de poser des questions au Dr Deiva en direct et en français. Le webinaire sera enregistré et disponible pour répondre sur le site Web et la chaîne YouTube de TSF. \nCet événement est soutenu par la subvention d’Horizon Therapeutics pour l’éducation des patients.
URL:https://www.sumairafoundation.org/event/les-mogad-et-nmosd-chez-lenfant-et-adolescent/
LOCATION:Virtual: France\, France
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/02/2023-From-the-Experts-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230314T190000
DTEND;TZID=America/New_York:20230314T200000
DTSTAMP:20260415T085405
CREATED:20230131T161203Z
LAST-MODIFIED:20230306T233104Z
UID:12547-1678820400-1678824000@www.sumairafoundation.org
SUMMARY:TSF Book Club | "Shifting Into High Gear" by Kyle Bryant
DESCRIPTION:You’re invited to join TSF’s next book club meeting on March 14th \, during which we’ll discuss “Shifting Into High Gear” by Kyle Bryant.\n\n\nShifting Into High Gear charts the course of Kyle Bryant’s transformation as he journeys on a recumbent tricycle across the United States in the throes of Friedreich’s ataxia\, a life-shortening and disabling disease. Full of humor and reflection\, it’s a heroic journey of a man driven to reframe the language of disease through action and service. \nAs you travel with Kyle during two cross-country bike rides through the American West\, Texas\, the Southern States\, and finally to the shores of the Atlantic Ocean\, the grueling rides become a compelling backdrop for a series of lessons and ruminations which embrace an alternative worldview and provide practical solutions to everyday problems. A thrilling adventure story\, yes\, Shifting Into High Gear is also ultimately about helping readers reinterpret the conditions of their lives and learning how positive thinking\, purposeful connection\, and deliberate actions can help anyone reach beyond their limits and live a bolder and bigger life no matter what the circumstance.\n\nDeeply passionate and compassionate\, Kyle uses his amazing story to teach readers how to replace the handicapping language of “disability” with the agency to build a thriving and hopeful life. He bravely exposes the shadow-side of using disabling language and asks us to commit to a collective goal of understanding disease and its emotional impact and embrace the disabled population as equal individuals. In telling his story\, Kyle’s desire is that instead of viewing disease as a deficit\, we would see it as another state of being—simply as a life which strikes out on a different path.
URL:https://www.sumairafoundation.org/event/tsf-book-club-shifting-into-high-gear/
LOCATION:Virtual: United States\, United States
CATEGORIES:TSF Book Club,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/01/March-2023-Book-Club-FB-EVENT-COVER_.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230316T200000
DTEND;TZID=America/New_York:20230316T210000
DTSTAMP:20260415T085405
CREATED:20230116T194549Z
LAST-MODIFIED:20230315T213219Z
UID:12464-1678996800-1679000400@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-7/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Brussels:20230317T200000
DTEND;TZID=Europe/Brussels:20230317T210000
DTSTAMP:20260415T085405
CREATED:20230228T122223Z
LAST-MODIFIED:20230228T122223Z
UID:13084-1679083200-1679086800@www.sumairafoundation.org
SUMMARY:NMOSD\, MOGAD en MS: Overeenkomsten en Verschillen
DESCRIPTION:Neem vrijdag 17 maart van 20.00-21.00 uur deel aan het allereerste Nederlandstalige webinar “In gesprek met deskundigen” (“From the Experts”). Dit webinar wordt georganiseerd door de Sumaira Foundation.\nDr Barbara Willekens zal spreken over overeenkomsten en verschillen tussen NMOSD\, MOGAD en MS. \nDr. Willekens is als neurologe verbonden aan het UZA\, het Universitair Ziekenhuis Antwerpen. Ze is gespecialiseerd in Multiple Sclerose (MS) en ontstekingsziekten van het zenuwstelsel. \nDeelnemers krijgen tijdens deze LIVE presentatie de mogelijkheid om vragen te stellen aan Dr. Willekens. Het webinar zal worden opgenomen en is later te bekijken via www.sumairafoundation.org en via het YouTubekanaal van de Sumaira Foundation. \nDit gratis webinar wordt mogelijk gemaakt door subsidie van het “patient education grant” programma van Horizon Therapeutics.
URL:https://www.sumairafoundation.org/event/nmosd-mogad-en-ms-overeenkomsten-en-verschillen/
LOCATION:Virtual: Global
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/02/Barbara-Willekens.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20230324T200000
DTEND;TZID=Europe/Paris:20230324T210000
DTSTAMP:20260415T085405
CREATED:20230320T153617Z
LAST-MODIFIED:20230320T153617Z
UID:13337-1679688000-1679691600@www.sumairafoundation.org
SUMMARY:Le Projet Collectif Humain
DESCRIPTION:The Human Collective Project (HCP) est la réunion du groupe de soutien de TSF offerte à toute personne affectée par la NMOSD ou la MOGAD. Le programme a vu le jour au plus fort de la pandémie de COVID-19 en 2020\, lorsque la plupart des patients NMOSD/MOGAD se sentaient particulièrement isolés et vulnérables au coronavirus en tant que patient dit “vulnérable” de part son traitement contre ma maladie.\nL’isolement que beaucoup d’entre nous avons vécu a révélé un grand besoin et une opportunité pour nous de nous connecter de manière significative pour nous offrir notre soutien les uns aux autres. \nDepuis 2020\, nous avons élargi le programme pour offrir plus de sessions dans plusieurs zones géographiques afin de garantir que tous les membres des communautés NMOSD/MOGAD se sentent accueillis et inclus. Comme nous le disons toujours\, HCP est un excellent moyen de rencontrer d’autres personnes dans des circonstances similaires dans cette communauté rare; c’est un espace sûr pour rire\, pleurer\, évacuer\, partager les victoires\, etc. Ce programme est piloté et dirigé par les patients et soignants ambassadeurs de TSF dans le monde entier.
URL:https://www.sumairafoundation.org/event/le-projet-collectif-humain/
LOCATION:Virtual: France\, France
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/03/France-The-Human-Collective-Project-169-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230329
DTEND;VALUE=DATE:20230330
DTSTAMP:20260415T085405
CREATED:20230131T173430Z
LAST-MODIFIED:20230327T143330Z
UID:12556-1680048000-1680134399@www.sumairafoundation.org
SUMMARY:2023 Virtual Legislative Lobby Day
DESCRIPTION:Join autoimmune patient advocates nationwide on March 29\, 2023\, for the National Coalition of Autoimmune Patient Groups’ first virtual Congressional Fly-in Day. Advocates will meet virtually with legislators and staff to discuss important issues\, including improving patient access and research funding. Whether you’re a veteran advocate or looking to get involved in legislative advocacy for the first time\, this is an incredible opportunity to make a difference for the autoimmune patient community. \nWe will be calling upon Congress to establish an Office of Autoimmunity within the Office of the Director of the National Institutes of Health. Read the letter we sent to the Senate and House Appropriations Committee encouraging them to include this in the FY2023 Appropriations bill. \nFrequently Asked Questions\nWhat is a Lobby Day? \nA fly-in or lobby day is when constituents from across the country come together to advocate to their congressional lawmakers on behalf of a common cause or interest. \nWho should participate?\nAutoimmune patients\, care partners\, family and friends\, health care professionals\, medical and scientific professionals\, and anyone with an interest in and passion for changing the future of autoimmune disease is encouraged to participate and become an advocate. \nIs there a cost to participate? \nThere is no cost to participate. \nHow will we meet with legislators and staff? \nAll virtual meetings will be conducted via Zoom or another video conference platform. \nDo I need previous advocacy experience? \nDefinitely not! We will provide training and talking points. \nHow can I prepare? \nPrior to the event\, we will hold a training session with participants. The training session will help advocates better understand how to speak to elected leaders to get their point across and will use role-playing to demonstrate. Remember: a convincing and compelling case will gain more traction than a shouting match any day. \nWe will also provide talking points and key messages as guidance. \n 
URL:https://www.sumairafoundation.org/event/2023-virtual-legislative-lobby-day/
LOCATION:Virtual: United States\, United States
CATEGORIES:Partner Events
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2022/07/autoimmune-association-logo-small-square-1-e1657117688685.jpg
ORGANIZER;CN="Autoimmune Association":MAILTO:hello@autoimmune.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230330T200000
DTEND;TZID=America/New_York:20230330T210000
DTSTAMP:20260415T085405
CREATED:20230329T004912Z
LAST-MODIFIED:20230329T004912Z
UID:13439-1680206400-1680210000@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-6/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20230331T190000
DTEND;TZID=Europe/Amsterdam:20230331T200000
DTSTAMP:20260415T085405
CREATED:20230321T203954Z
LAST-MODIFIED:20230324T174500Z
UID:13361-1680289200-1680292800@www.sumairafoundation.org
SUMMARY:Het Human Collective Project
DESCRIPTION:Op dinsdag 31 maart om 19:00 organiseert de Sumaira Foundation de eerste Nederlands en Vlaamse online bijeenkomst voor mensen met NMOSD of MOGAD en hun familieleden en/of dierbaren.\n\nU bent van harte welkom om deel te nemen en ervaringen uit te wisselen en elkaar te ondersteunen in een veilige omgeving.\n\nAanmelden voor deze bijeenkomst kan via: ZOOM
URL:https://www.sumairafoundation.org/event/het-human-collective-project/
LOCATION:Virtual: Amsterdam\, Netherlands
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/03/HCP-Dutch-1.png
END:VEVENT
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