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X-WR-CALDESC:Events for The Sumaira Foundation
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UID:22154-1794740400-1794744000@www.sumairafoundation.org
SUMMARY:TSF HCP Caregivers - Caregiving with Dignity
DESCRIPTION:The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation\, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe\, inclusive space for family members\, partners\, siblings\, children\, and loved ones to connect\, share\, and be heard. Led by our dedicated Caregiver Ambassadors\, who bring their own lived experience and empathy to the conversation\, participants can expect heartfelt conversations\, mutual support\, and practical insights into the caregiving journey. Whether you’re navigating the emotional\, physical\, or logistical challenges of caregiving\, this group is designed to uplift and empower you through community\, compassion\, and connection.
URL:https://www.sumairafoundation.org/event/tsf-hcp-caregivers-caregiving-with-dignity/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/04/HCP-Caregiver-Visual-.png
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DTSTART;TZID=America/Los_Angeles:20261205T100000
DTEND;TZID=America/Los_Angeles:20261205T170000
DTSTAMP:20260729T203806Z
CREATED:20260729T203459Z
LAST-MODIFIED:20260729T203806Z
UID:23059-1796464800-1796490000@www.sumairafoundation.org
SUMMARY:LA Patient Day for Rare Neuroinflammatory and Related Disorders
DESCRIPTION:We’re coming to Los Angeles! \nTSF is inviting patients and caregivers impacted by rare neuroinflammatory & related disorders from California & the west coast! \nAre you or your loved one impacted by: AE*\, CIDP*\, MG*\, MOGAD*\, neurosarcoidosis\, or NMOSD*? You’re invited to our event on Saturday\, December 5th. \nJoin us for a day of education\, community and fun to: \n\nMeet local patients\, partners\, care-partners and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, comorbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis event is being organized in collaboration with Dr. Lilyana Amezcua and Dr. Masoud Majed (USC). \nRegistration is free and lunch will be served. \nhttps://www.eventbrite.com/e/la-patient-day-for-rare-neuroinflammatory-related-disorders-tickets-1989963571611?aff=oddtdtcreator \nWe can’t wait to see you in LA! \nThe Sumaira Foundation team \n— \nAE stands for autoimmune encephalitis \nCIDP stands for chronic inflammatory demyelinating polyneuropathy \nMG stands for myasthenia gravis \nMOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorder \nNMOSD stands for neuromyelitis optica spectrum disorder
URL:https://www.sumairafoundation.org/event/la-patient-day-for-rare-neuroinflammatory-and-related-disorders/
CATEGORIES:Community Event,Patient Days,TSF Patient Day
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/07/1920-x-1080-LA.png
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DTSTART;TZID=America/New_York:20261210T200000
DTEND;TZID=America/New_York:20261210T210000
DTSTAMP:20260502T160845Z
CREATED:20260502T160845Z
LAST-MODIFIED:20260502T160845Z
UID:21962-1796932800-1796936400@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. Since 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-57/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/05/HCP_America.png
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DTSTART;TZID=America/New_York:20261213T110000
DTEND;TZID=America/New_York:20261213T120000
DTSTAMP:20260522T092417Z
CREATED:20260522T092417Z
LAST-MODIFIED:20260522T092417Z
UID:22156-1797159600-1797163200@www.sumairafoundation.org
SUMMARY:TSF HCP Caregivers - Medication Management
DESCRIPTION:The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation\, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe\, inclusive space for family members\, partners\, siblings\, children\, and loved ones to connect\, share\, and be heard. Led by our dedicated Caregiver Ambassadors\, who bring their own lived experience and empathy to the conversation\, participants can expect heartfelt conversations\, mutual support\, and practical insights into the caregiving journey. Whether you’re navigating the emotional\, physical\, or logistical challenges of caregiving\, this group is designed to uplift and empower you through community\, compassion\, and connection.
URL:https://www.sumairafoundation.org/event/tsf-hcp-caregivers-medication-management/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/04/HCP-Caregiver-Visual-.png
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