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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231029T110000
DTEND;TZID=America/New_York:20231029T170000
DTSTAMP:20260405T193555
CREATED:20230921T194947Z
LAST-MODIFIED:20230921T194947Z
UID:14795-1698577200-1698598800@www.sumairafoundation.org
SUMMARY:TSF's New York City Patient Day for NMOSD & MOGAD
DESCRIPTION:The Sumaira Foundation is pleased to invite you to TSF’s New York City Patient Day\, a day exclusively dedicated to NMOSD & MOGAD patients\, caregivers and clinicians. \nJoin us for a day of education\, community\, and fun where you’ll \n\nMeet local NMOSD & MOGAD patients\, caregivers and clinicians from and around New York City\nAsk experts questions in real time about symptom management\, treatments and therapies\, comorbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\nMake connections and engage in meaningful discussions with the local NMOSD/MOGAD community\n\nPLUS! We’ll be joined by special guest and celebrity chef\, Christine Ha! Christine was diagnosed with NMOSD after experiencing severe vision loss in 2003. Christine was the first blind contestant to ever appear on MasterChef and the winner of its third season in 2012. In 2023\, Christine is a proud chef\, writer\, TV host and NMOSD advocate. \nThis is a free event brought to you by The Sumaira Foundation in collaboration with the Siegel Rare Neuroimmune Association (SRNA). Lunch and hugs will be served! \nWe’re excited to meet you! \nThe Sumaira Foundation team
URL:https://www.sumairafoundation.org/event/tsfs-new-york-city-patient-day-for-nmosd-mogad/
LOCATION:Low Memorial Library\, 535 W. 116th St\, New York\, New York\, 10027\, United States
CATEGORIES:Community Event,Patient Days
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/09/NYC-Patient-Day.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20231031T180000
DTEND;TZID=Africa/Johannesburg:20231031T190000
DTSTAMP:20260405T193555
CREATED:20231019T151950Z
LAST-MODIFIED:20231019T151950Z
UID:14991-1698775200-1698778800@www.sumairafoundation.org
SUMMARY:HCP South Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/hcp-south-africa-7/
LOCATION:Virtual: South Africa\, South Africa
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/04/SOUTH-AFRICA-The-Human-Collective-Project-Facebook-Cover-1200-×-676-px.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20231103T200000
DTEND;TZID=Europe/Paris:20231103T210000
DTSTAMP:20260405T193555
CREATED:20231031T192851Z
LAST-MODIFIED:20231031T192851Z
UID:15242-1699041600-1699045200@www.sumairafoundation.org
SUMMARY:Le Projet Collectif Humain
DESCRIPTION:The Human Collective Project (HCP) est la réunion du groupe de soutien de TSF offerte à toute personne affectée par la NMOSD ou la MOGAD. Le programme a vu le jour au plus fort de la pandémie de COVID-19 en 2020\, lorsque la plupart des patients NMOSD/MOGAD se sentaient particulièrement isolés et vulnérables au coronavirus en tant que patient dit “vulnérable” de part son traitement contre ma maladie.\nL’isolement que beaucoup d’entre nous avons vécu a révélé un grand besoin et une opportunité pour nous de nous connecter de manière significative pour nous offrir notre soutien les uns aux autres. \nDepuis 2020\, nous avons élargi le programme pour offrir plus de sessions dans plusieurs zones géographiques afin de garantir que tous les membres des communautés NMOSD/MOGAD se sentent accueillis et inclus. Comme nous le disons toujours\, HCP est un excellent moyen de rencontrer d’autres personnes dans des circonstances similaires dans cette communauté rare; c’est un espace sûr pour rire\, pleurer\, évacuer\, partager les victoires\, etc. Ce programme est piloté et dirigé par les patients et soignants ambassadeurs de TSF dans le monde entier.
URL:https://www.sumairafoundation.org/event/le-projet-collectif-humain-7/
LOCATION:Virtual: France\, France
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/03/France-The-Human-Collective-Project-169-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231104T110000
DTEND;TZID=America/New_York:20231104T120000
DTSTAMP:20260405T193555
CREATED:20231031T195919Z
LAST-MODIFIED:20231031T195919Z
UID:15256-1699095600-1699099200@www.sumairafoundation.org
SUMMARY:HCP India
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD or MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD and MOGAD patients felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. Since launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies and languages to ensure that everyone in the NMOSD and MOGAD community feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world.
URL:https://www.sumairafoundation.org/event/hcp-india-2/
LOCATION:Virtual: India\, India
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/08/HCP-India.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20231106T173000
DTEND;TZID=Europe/Rome:20231106T183000
DTSTAMP:20260405T193555
CREATED:20231031T200124Z
LAST-MODIFIED:20231031T200124Z
UID:15258-1699291800-1699295400@www.sumairafoundation.org
SUMMARY:HCP Italia
DESCRIPTION:The Human Collective Project (HCP) è l’incontro del gruppo di supporto di TSF offerto a chiunque sia stato colpito/colpito da NMOSD/MOGAD. Il programma è nato durante il culmine della pandemia di COVID-19 nel 2020\, quando la maggior parte dei NMOSD/MOGAD si sentiva particolarmente isolata e vulnerabile al coronavirus come membri della società immunosoppressi/immunocompromessi. L’isolamento che molti di noi hanno vissuto ha svelato un grande bisogno e un’opportunità per noi di connetterci in modo significativo per offrire il nostro sostegno reciproco. \nDal 2020\, abbiamo ampliato il programma per offrire più sessioni in più aree geografiche per garantire che tutti nelle comunità NMOSD/MOGAD si sentano accolti e inclusi. Come diciamo sempre\, HCP è un ottimo modo per incontrare altri in circostanze simili in questa rara comunità; è uno spazio sicuro per ridere\, piangere\, sfogarsi\, condividere vittorie\, ecc. Questo programma è guidato e guidato dagli ambasciatori di pazienti e caregiver di TSF in tutto il mondo.
URL:https://www.sumairafoundation.org/event/hcp-italia-6/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/04/unnamed.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20231108T193000
DTEND;TZID=Europe/Amsterdam:20231108T203000
DTSTAMP:20260405T193555
CREATED:20230116T190030Z
LAST-MODIFIED:20231031T200311Z
UID:12416-1699471800-1699475400@www.sumairafoundation.org
SUMMARY:TSF Plauderstunde | HCP Germany
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/tsf-plauderstunde-hcp-germany-8/
LOCATION:Virtual: Germany\, Germany
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/12/2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Bogota:20231108T193000
DTEND;TZID=America/Bogota:20231108T203000
DTSTAMP:20260405T193555
CREATED:20231101T122828Z
LAST-MODIFIED:20231101T122828Z
UID:15273-1699471800-1699475400@www.sumairafoundation.org
SUMMARY:El Proyecto Colectivo Humano
DESCRIPTION:El Human Collective Project (HCP) es la reunión del grupo de apoyo de TSF que se ofrece a cualquier persona que haya sido afectada/impactada por NMOSD/MOG-AD. El programa nació durante el apogeo de la pandemia de COVID-19 en 2020\, cuando la mayoría de los NMOSD/MOG-AD se sentían particularmente aislados y vulnerables al coronavirus como miembros de la sociedad inmunodeprimidos/inmunodeprimidos. El aislamiento que muchos de nosotros experimentamos reveló una gran necesidad y oportunidad para conectarnos de una manera significativa y ofrecernos apoyo unos a otros. \nDesde 2020\, hemos ampliado el programa para ofrecer más sesiones en múltiples geografías para garantizar que todos en las comunidades NMOSD/MOG-AD se sientan bienvenidos e incluidos. Como siempre decimos\, HCP es una excelente manera de conocer a otras personas en circunstancias similares en esta rara comunidad; es un espacio seguro para reír\, llorar\, desahogarse\, compartir victorias\, etc. Este programa está impulsado y dirigido por pacientes y cuidadores embajadores de TSF en todo el mundo.
URL:https://www.sumairafoundation.org/event/el-proyecto-colectivo-humano/
LOCATION:Virtual: Colombia\, Colombia
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/11/Human-Collective-Registration-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231109T200000
DTEND;TZID=America/New_York:20231109T210000
DTSTAMP:20260405T193555
CREATED:20230116T195458Z
LAST-MODIFIED:20230207T174658Z
UID:12498-1699560000-1699563600@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-23/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20231118T090000
DTEND;TZID=Europe/Rome:20231118T150000
DTSTAMP:20260405T193555
CREATED:20231025T200739Z
LAST-MODIFIED:20231025T200739Z
UID:15176-1700298000-1700319600@www.sumairafoundation.org
SUMMARY:Giornata dedicata ai pazienti con NMOSD\, MOGAD ed encefalite - Verona
DESCRIPTION:TSF è lieta di invitare tutti i pazienti italiani con NMOSD\, MOGAD o encefalite\, i loro caregivers\, ed i medici interessati a queste patologie a partecipare a questa giornata di formazione\, unione e divertimento. \n  \nIn collaborazione con la Dr.ssa Sara Mariotto dell’ Università di Verona\, The Sumaira Foundation è lieta di invitarvi alla Giornata per pazienti\, caregivers e clinici dedicata a NMOSD\, MOGAD ed encefalite. \nQuesto evento a libera iscrizione vi permetterà di: \n  \n\nIncontrare pazienti italiani con NMOSD\, MOGAD o encefalite\, i loro caregivers ed i clinici esperti di queste patologie\n\n\nPorre domande agli esperti in diretta relative alla gestione dei sintomi\, le terapie\, le comorbidità e molto altro\n\n\nAggiornarvi in merito alle ultime ricerche scientifiche con l’aiuto di medici esperti italiani\n\n\nFare rete e instaurare connessioni con la comunità locale dedicata a NMOSD\, MOGAD ed encefalite\n\nIl pranzo e il calore di TSF sono inclusi! \n  \nDopo l’evento\, siete tutti invitati a partecipare alla partita di calcio della nazionale italiana artisti TV vs Life Ritorno alla Vita presso lo Stadio di Via Sogare 9c di Verona\, una partita di beneficenza per la ricerca in Neuroimmunologia il cui ingresso è a offerta libera. \n  \nNon vediamo l’ora di incontrarvi! \n  \nThe Sumaira Foundation team \n  \nL’evento è reso possibile grazie al supporto di UCB.
URL:https://www.sumairafoundation.org/event/giornata-dedicata-ai-pazienti-con-nmosd-mogad-ed-encefalite-verona/
LOCATION:Best Western Plus Hotel Expo\, Via Portogallo\, 1p\, Verona\, Italy
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/10/Verona-Patient-Day-presentation-mode.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20231120T180000
DTEND;TZID=Europe/Paris:20231120T190000
DTSTAMP:20260405T193555
CREATED:20231106T153821Z
LAST-MODIFIED:20231106T153821Z
UID:15405-1700503200-1700506800@www.sumairafoundation.org
SUMMARY:Nouveautés de la Recherches: ECTRIMS 2023
DESCRIPTION:TSF France vous invite à rejoindre notre prochain webinaire mettant en vedette le Pr. Romain Marignier et Dr Julie Pique\, neurologues à Hospices Civils de Lyon | Hôpital Neurologique. \nLes experts présenteront les derniers résultats et développements de la recherche sur le NMOSD et le MOGAD lors de l’ECTRIMS 2023\, la plus grande conférence sur la SEP\, le NMOSD et le MOGAD au monde. \nCet événement est rendu possible grâce au parrainage de l’éducation des patients et au soutien d’Horizon Therapeutics.
URL:https://www.sumairafoundation.org/event/nouveautes-de-la-recherches-ectrims-2023/
LOCATION:Virtual: France\, France
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/11/ECTRIMS-2023.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231123T200000
DTEND;TZID=America/New_York:20231123T210000
DTSTAMP:20260405T193555
CREATED:20230116T195537Z
LAST-MODIFIED:20230207T174747Z
UID:12500-1700769600-1700773200@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-24/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20231128T180000
DTEND;TZID=Africa/Johannesburg:20231128T190000
DTSTAMP:20260405T193555
CREATED:20231031T200620Z
LAST-MODIFIED:20231031T200620Z
UID:15260-1701194400-1701198000@www.sumairafoundation.org
SUMMARY:HCP South Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/hcp-south-africa-8/
LOCATION:Virtual: South Africa\, South Africa
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/04/SOUTH-AFRICA-The-Human-Collective-Project-Facebook-Cover-1200-×-676-px.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20231130T190000
DTEND;TZID=Europe/Amsterdam:20231130T200000
DTSTAMP:20260405T193555
CREATED:20231031T201025Z
LAST-MODIFIED:20231031T201300Z
UID:15262-1701370800-1701374400@www.sumairafoundation.org
SUMMARY:Online lotgenotencontact voor mensen met NMOSD of MOGAD
DESCRIPTION:We wisselen ervaringen en tips uit om zo elkaar in een veilige omgeving te ondersteunen. Onderdeel van de “Human Collective Project (HCP) Meetings” van de Sumaira Foundation. Deze lotgenotencontacten worden in verschillende talen aangeboden.\n\nAanmelden voor deze bijeenkomst kan via: ZOOM
URL:https://www.sumairafoundation.org/event/online-lotgenotencontact-voor-mensen-met-nmosd-of-mogad/
LOCATION:Virtual: Amsterdam\, Netherlands
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/10/6800bd24-6a5c-480e-beac-171c63739d9f-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231201T083000
DTEND;TZID=America/New_York:20231201T093000
DTSTAMP:20260405T193555
CREATED:20231108T183046Z
LAST-MODIFIED:20231108T183046Z
UID:15443-1701419400-1701423000@www.sumairafoundation.org
SUMMARY:Demystifying NMOSD & MOGAD: An Expert Perspective for Patients
DESCRIPTION:Have you or any of your loved ones been diagnosed with NMOSD or MOGAD and you’re looking for answers? \nNMOSD and MOGAD are rare autoimmune diseases involving demyelination or inflammation of the central nervous system. They are often misdiagnosed as multiple sclerosis but are distinct diseases and require different treatment approaches. \nJoin Dr. Lekha Pandit\, internationally recognized expert specializing in these diseases\, as she breaks down NMOSD and MOGAD for patients and answers their questions live. \nThis first-of-its-kind webinar for Indian patients\, is brought to you by The Sumaira Foundation\, and was made possible through a patient education grant by Horizon Therapeutics. \nThis webinar will be recorded and available for replay on TSF’s Multimedia Library and YouTube channel.
URL:https://www.sumairafoundation.org/event/demystifying-nmosd-mogad-an-expert-perspective-for-patients/
LOCATION:Virtual: India\, India
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/11/Lekha-Pandit.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20231201T190000
DTEND;TZID=Europe/Paris:20231201T200000
DTSTAMP:20260405T193555
CREATED:20231031T193004Z
LAST-MODIFIED:20231031T193004Z
UID:15244-1701457200-1701460800@www.sumairafoundation.org
SUMMARY:Le Projet Collectif Humain
DESCRIPTION:The Human Collective Project (HCP) est la réunion du groupe de soutien de TSF offerte à toute personne affectée par la NMOSD ou la MOGAD. Le programme a vu le jour au plus fort de la pandémie de COVID-19 en 2020\, lorsque la plupart des patients NMOSD/MOGAD se sentaient particulièrement isolés et vulnérables au coronavirus en tant que patient dit “vulnérable” de part son traitement contre ma maladie.\nL’isolement que beaucoup d’entre nous avons vécu a révélé un grand besoin et une opportunité pour nous de nous connecter de manière significative pour nous offrir notre soutien les uns aux autres. \nDepuis 2020\, nous avons élargi le programme pour offrir plus de sessions dans plusieurs zones géographiques afin de garantir que tous les membres des communautés NMOSD/MOGAD se sentent accueillis et inclus. Comme nous le disons toujours\, HCP est un excellent moyen de rencontrer d’autres personnes dans des circonstances similaires dans cette communauté rare; c’est un espace sûr pour rire\, pleurer\, évacuer\, partager les victoires\, etc. Ce programme est piloté et dirigé par les patients et soignants ambassadeurs de TSF dans le monde entier.
URL:https://www.sumairafoundation.org/event/le-projet-collectif-humain-8/
LOCATION:Virtual: France\, France
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/03/France-The-Human-Collective-Project-169-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231207T200000
DTEND;TZID=America/New_York:20231207T210000
DTSTAMP:20260405T193555
CREATED:20230116T195638Z
LAST-MODIFIED:20230207T174833Z
UID:12502-1701979200-1701982800@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-25/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20231216
DTEND;VALUE=DATE:20231218
DTSTAMP:20260405T193555
CREATED:20230921T193524Z
LAST-MODIFIED:20231031T120656Z
UID:14790-1702684800-1702857599@www.sumairafoundation.org
SUMMARY:Journée des patients et aidants pour NMOSD & MOGAD - Paris
DESCRIPTION:Vous êtes invités à rejoindre la 1ère Journée Patients NMOSD & MOGAD de TSF France à Paris!\n\n\nVenez rencontrer des experts\, suivre nos ateliers\, rencontrer les différents acteurs de NMOSD et de MOGAD. Venez mettre en lumière la NMOSD et la MOGAD avec Sumaira et TSF France.\n\n\nPour vous inscrire\, visitez www.tinyurl.com/TSFParis\n\n\nÉvénement gratuit organisé par TSF France avec le soutien de Horizon Therapeutics\, Alexion Pharmaceuticals et UCB.\n\n\nÀ bientôt!\nThe Sumaira Foundation France (Bérengère\, Fatiha\, Elodie\, Nelly et Emma)
URL:https://www.sumairafoundation.org/event/journee-des-patients-et-aidants-pour-nmosd-mogad-paris/
LOCATION:Villa Lemons\, 5 Impasse Mousset\, Paris\, 75012\, France
CATEGORIES:Patient Days,TSF France
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2023/09/12.16.2023.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231221T200000
DTEND;TZID=America/New_York:20231221T210000
DTSTAMP:20260405T193555
CREATED:20230116T195658Z
LAST-MODIFIED:20230315T212402Z
UID:12504-1703188800-1703192400@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-26/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20231228T200000
DTEND;TZID=Europe/Paris:20231228T210000
DTSTAMP:20260405T193556
CREATED:20231222T130445Z
LAST-MODIFIED:20231222T130445Z
UID:15716-1703793600-1703797200@www.sumairafoundation.org
SUMMARY:Webinaire: Parler de la maladie à son entourage
DESCRIPTION:Comment parler de la maladie à son entourage? \nRejoignez TSF France pour son dernier webinaire de l’année le 28 décembre avec Emilie Leta\, Psychologue diplômée d’état. \nCe programme d’éducation des patients est rendu possible grâce au soutien d’Alexion Therapeutics.
URL:https://www.sumairafoundation.org/event/webinaire-parler-de-la-maladie-a-son-entourage/
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/12/emilie-LETA-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240104T200000
DTEND;TZID=America/New_York:20240104T210000
DTSTAMP:20260405T193556
CREATED:20231219T145413Z
LAST-MODIFIED:20231219T145413Z
UID:15642-1704398400-1704402000@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings | Cannabis
DESCRIPTION:We’re excited to kick off 2024 with a conversation that is of growing importance but a topic many people shy away from discussing publicly… CANNABIS! \nJoin Sumaira on Thursday\, January 4th at 8PM EST for an open and honest discussion about the use of medical cannabis in the setting of rare diseases. \nThis is a judgment-free safe space where we will learn from each others’ experiences. We invite patients\, caregivers\, clinicians and researchers to join this important conversation.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-cannabis/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2023/12/e06b7b4d-1528-4a98-a071-adde7e72f138.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20240105T190000
DTEND;TZID=Europe/Paris:20240105T200000
DTSTAMP:20260405T193556
CREATED:20231031T193107Z
LAST-MODIFIED:20231031T193107Z
UID:15247-1704481200-1704484800@www.sumairafoundation.org
SUMMARY:Le Projet Collectif Humain
DESCRIPTION:The Human Collective Project (HCP) est la réunion du groupe de soutien de TSF offerte à toute personne affectée par la NMOSD ou la MOGAD. Le programme a vu le jour au plus fort de la pandémie de COVID-19 en 2020\, lorsque la plupart des patients NMOSD/MOGAD se sentaient particulièrement isolés et vulnérables au coronavirus en tant que patient dit “vulnérable” de part son traitement contre ma maladie.\nL’isolement que beaucoup d’entre nous avons vécu a révélé un grand besoin et une opportunité pour nous de nous connecter de manière significative pour nous offrir notre soutien les uns aux autres. \nDepuis 2020\, nous avons élargi le programme pour offrir plus de sessions dans plusieurs zones géographiques afin de garantir que tous les membres des communautés NMOSD/MOGAD se sentent accueillis et inclus. Comme nous le disons toujours\, HCP est un excellent moyen de rencontrer d’autres personnes dans des circonstances similaires dans cette communauté rare; c’est un espace sûr pour rire\, pleurer\, évacuer\, partager les victoires\, etc. Ce programme est piloté et dirigé par les patients et soignants ambassadeurs de TSF dans le monde entier.
URL:https://www.sumairafoundation.org/event/le-projet-collectif-humain-9/
LOCATION:Virtual: France\, France
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/03/France-The-Human-Collective-Project-169-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20240202T140000
DTEND;TZID=Europe/Paris:20240202T150000
DTSTAMP:20260405T193556
CREATED:20240122T211206Z
LAST-MODIFIED:20240129T182738Z
UID:16025-1706882400-1706886000@www.sumairafoundation.org
SUMMARY:Les troubles urinaires dans les maladies neurologiques (SEP\, NMOSD\, MOGAD)
DESCRIPTION:Souffrez-vous de symptômes urinaires dus à votre pathologie neurologique? \nNous vous invitons à rejoindre notre prochain webinaire avec le Dr Sarah Gaillet (urologue – Assistance Publique Hôpitaux de Marseille) et Lucile DEVESA (infirmière). \nQuelle prise en charge de ces troubles? Quelles solutions possibles? Discutons – en avec nos spécialistes. \nCet événement est rendu possible grâce au parrainage de l’éducation des patients et au soutien d’Amgen et Alexion Pharmaceuticals.
URL:https://www.sumairafoundation.org/event/les-troubles-urinaires-dans-les-maladies-neurologiques-sep-nmosd-mogad/
LOCATION:Virtual: France\, France
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2024/01/Sarah-Gaillet-Lucile-DEVESA.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20240205T183000
DTEND;TZID=Europe/Rome:20240205T193000
DTSTAMP:20260405T193556
CREATED:20240204T003329Z
LAST-MODIFIED:20240204T003329Z
UID:16095-1707157800-1707161400@www.sumairafoundation.org
SUMMARY:HCP Italia
DESCRIPTION:The Human Collective Project (HCP) è l’incontro del gruppo di supporto di TSF offerto a chiunque sia stato colpito/colpito da NMOSD/MOGAD. Il programma è nato durante il culmine della pandemia di COVID-19 nel 2020\, quando la maggior parte dei NMOSD/MOGAD si sentiva particolarmente isolata e vulnerabile al coronavirus come membri della società immunosoppressi/immunocompromessi. L’isolamento che molti di noi hanno vissuto ha svelato un grande bisogno e un’opportunità per noi di connetterci in modo significativo per offrire il nostro sostegno reciproco. \nDal 2020\, abbiamo ampliato il programma per offrire più sessioni in più aree geografiche per garantire che tutti nelle comunità NMOSD/MOGAD si sentano accolti e inclusi. Come diciamo sempre\, HCP è un ottimo modo per incontrare altri in circostanze simili in questa rara comunità; è uno spazio sicuro per ridere\, piangere\, sfogarsi\, condividere vittorie\, ecc. Questo programma è guidato e guidato dagli ambasciatori di pazienti e caregiver di TSF in tutto il mondo.
URL:https://www.sumairafoundation.org/event/hcp-italia-7/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/04/unnamed.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Istanbul:20240205T193000
DTEND;TZID=Europe/Istanbul:20240205T193000
DTSTAMP:20260405T193556
CREATED:20240204T003936Z
LAST-MODIFIED:20240204T004026Z
UID:16097-1707161400-1707161400@www.sumairafoundation.org
SUMMARY:HCP Turkey
DESCRIPTION:Sumaira Foundation olarak düzenleyeceğimiz ilk toplantımıza sizi davet etmekten mutluluk youyuyoruz. Toplantı Tarihi: 5 Şubat\, Saat: 17:30 (Türkiye saati). Toplantı Zoom üzerinden gerçekleştirilecektir. Lütfen aşağıdaki bağlantıyı kullanarak katilin
URL:https://www.sumairafoundation.org/event/hcp-turkey/
LOCATION:virtual: Turkey\, Turkey
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/02/Turkiye-The-Human-Collective-Project-Facebook-Cover-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20240207T190000
DTEND;TZID=Europe/Amsterdam:20240207T200000
DTSTAMP:20260405T193556
CREATED:20240204T002254Z
LAST-MODIFIED:20240204T002254Z
UID:16089-1707332400-1707336000@www.sumairafoundation.org
SUMMARY:TSF’s Human Collective Project | Danmark
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-danmark-4/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/01/Denmark-The-Human-Collective-Project-Facebook-Cover-4.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Bogota:20240208T190000
DTEND;TZID=America/Bogota:20240208T200000
DTSTAMP:20260405T193556
CREATED:20240204T005542Z
LAST-MODIFIED:20240204T005542Z
UID:16103-1707418800-1707422400@www.sumairafoundation.org
SUMMARY:Pautas de rehabilitación después de una recaída de NMOSD
DESCRIPTION:Acompáñanos al primer webinar desde Colombia el próximo jueves 8 de febrero a las 7 pm COT. Jeimi Rodriguez fisioterapeuta y especialista en neuro rehabilitación\, nos contará las pautas\, desde el punto de vista de la fisioterapia\, después de una recaída de NMOSD. \nLos asistentes que se unan al seminario web en vivo tendrán la oportunidad de hacer preguntas. La sesión se grabará y estará disponible para su reproducción en el canal de YouTube y en el sitio web global de TSF. \nEste programa es posible gracias al apoyo de Amgen.
URL:https://www.sumairafoundation.org/event/pautas-de-rehabilitacion-despues-de-una-recaida-de-nmosd/
LOCATION:Virtual: Colombia\, Colombia
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/02/Jeimi-Rodriguez-Fisioterapeuta.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Tehran:20240211T190000
DTEND;TZID=Asia/Tehran:20240211T200000
DTSTAMP:20260405T193556
CREATED:20240130T170152Z
LAST-MODIFIED:20240130T170236Z
UID:16083-1707678000-1707681600@www.sumairafoundation.org
SUMMARY:Iranian Insights: NMOSD & MOGAD - Case discussions & lecture series
DESCRIPTION:TSF is pleased to launch Iranian Insights: NMOSD & MOGAD Case Discussion + Lecture Series.\nWe invite clinicians & researchers to join the discussions led by experts from Iran and around the world.\nThis series is being organized by Dr. Sara Samadzadeh\, Dr. Masoud Majed\, and Dr. Mohammad Ali Sahraian.
URL:https://www.sumairafoundation.org/event/iranian-insights-nmosd-mogad-case-discussions-lecture-series/
LOCATION:Virtual: Iran\, Iran\, Islamic Republic of
CATEGORIES:Case Discussion + Lecture
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/01/Illuminate-Insight-NMOSD-MOGAD-Iran.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20240214T193000
DTEND;TZID=Europe/Amsterdam:20240214T203000
DTSTAMP:20260405T193556
CREATED:20240204T002432Z
LAST-MODIFIED:20240204T002811Z
UID:16091-1707939000-1707942600@www.sumairafoundation.org
SUMMARY:TSF Plauderstunde | HCP Germany
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/tsf-plauderstunde-hcp-germany-9/
LOCATION:Virtual: Germany\, Germany
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/12/2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240215T200000
DTEND;TZID=America/New_York:20240215T210000
DTSTAMP:20260405T193556
CREATED:20231219T151407Z
LAST-MODIFIED:20231219T151407Z
UID:15658-1708027200-1708030800@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-29/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Bogota:20240219T193000
DTEND;TZID=America/Bogota:20240219T203000
DTSTAMP:20260405T193556
CREATED:20240204T004327Z
LAST-MODIFIED:20240204T004327Z
UID:16101-1708371000-1708374600@www.sumairafoundation.org
SUMMARY:El Proyecto Colectivo Humano
DESCRIPTION:El Human Collective Project (HCP) es la reunión del grupo de apoyo de TSF que se ofrece a cualquier persona que haya sido afectada/impactada por NMOSD/MOG-AD. El programa nació durante el apogeo de la pandemia de COVID-19 en 2020\, cuando la mayoría de los NMOSD/MOG-AD se sentían particularmente aislados y vulnerables al coronavirus como miembros de la sociedad inmunodeprimidos/inmunodeprimidos. El aislamiento que muchos de nosotros experimentamos reveló una gran necesidad y oportunidad para conectarnos de una manera significativa y ofrecernos apoyo unos a otros. \nDesde 2020\, hemos ampliado el programa para ofrecer más sesiones en múltiples geografías para garantizar que todos en las comunidades NMOSD/MOG-AD se sientan bienvenidos e incluidos. Como siempre decimos\, HCP es una excelente manera de conocer a otras personas en circunstancias similares en esta rara comunidad; es un espacio seguro para reír\, llorar\, desahogarse\, compartir victorias\, etc. Este programa está impulsado y dirigido por pacientes y cuidadores embajadores de TSF en todo el mundo.
URL:https://www.sumairafoundation.org/event/el-proyecto-colectivo-humano-2/
LOCATION:Virtual: Colombia\, Colombia
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/11/Human-Collective-Registration-1.png
END:VEVENT
END:VCALENDAR