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X-WR-CALDESC:Events for The Sumaira Foundation
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BEGIN:DAYLIGHT
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BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20230208T193000
DTEND;TZID=Europe/Amsterdam:20230208T203000
DTSTAMP:20260403T141633
CREATED:20230116T185626Z
LAST-MODIFIED:20230207T165313Z
UID:12404-1675884600-1675888200@www.sumairafoundation.org
SUMMARY:TSF Plauderstunde | HCP Germany
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/tsf-plauderstunde-hcp-germany-2/
LOCATION:Virtual: Germany\, Germany
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/12/2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20230208T190000
DTEND;TZID=Europe/Amsterdam:20230208T200000
DTSTAMP:20260403T141633
CREATED:20230116T192049Z
LAST-MODIFIED:20230207T164924Z
UID:12435-1675882800-1675886400@www.sumairafoundation.org
SUMMARY:TSF’s Human Collective Project | Danmark
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/hcp-danmark-2/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/01/Denmark-The-Human-Collective-Project-Facebook-Cover-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230202T200000
DTEND;TZID=America/New_York:20230202T210000
DTSTAMP:20260403T141633
CREATED:20221220T140720Z
LAST-MODIFIED:20230127T164807Z
UID:12099-1675368000-1675371600@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-4/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Brussels:20230126T170000
DTEND;TZID=Europe/Brussels:20230126T180000
DTSTAMP:20260403T141633
CREATED:20230109T005119Z
LAST-MODIFIED:20230109T005119Z
UID:12320-1674752400-1674756000@www.sumairafoundation.org
SUMMARY:Young People’s Webinar | Connecting MS\, NMOSD & MOGAD: Sharing Knowledge and Experiences to Strengthen Our Communities
DESCRIPTION:There are a number of different autoimmune disorders with similar features to Multiple Sclerosis (MS)\, such as neuromyelitis optica spectrum disorder (NMOSD) and myelin oligodendrocyte glycoprotein antibody disorder (MOGAD). \nThese diseases share striking similarities that ultimately affect the way in which our communities understand and manage the diagnosis. Hence\, it is of utmost importance for young people with MS to learn more about them as well as connect with the communities as they share similar experiences and questions for the future. \nThe webinar will focus on:\n– Sharing Knowledge\, where Dr. Sara Mariotto‬ will introduce NMOSD & MOGAD as well as describe the similarities and differences between MS\, NMOSD & MOGAD from an expert perspective.\n– Sharing Experiences\, where Sumaira Ahmed will share her own NMOSD story and how she built communities of support for patients and their caregivers by developing the Sumaira Foundation.
URL:https://www.sumairafoundation.org/event/young-peoples-webinar-connecting-ms-nmosd-mogad-sharing-knowledge-and-experiences-to-strengthen-our-communities/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:Partner Events
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2023/01/322736761_852812212465443_6239819172966124272_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20230125T190000
DTEND;TZID=Europe/Amsterdam:20230125T200000
DTSTAMP:20260403T141633
CREATED:20230116T193923Z
LAST-MODIFIED:20230116T193937Z
UID:12434-1674673200-1674676800@www.sumairafoundation.org
SUMMARY:TSF’s Human Collective Project | Danmark
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-danmark/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:Support Group,TSF Events/Fundraisers
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/01/Denmark-The-Human-Collective-Project-Facebook-Cover-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230119T200000
DTEND;TZID=America/New_York:20230119T210000
DTSTAMP:20260403T141633
CREATED:20221220T140602Z
LAST-MODIFIED:20230116T194153Z
UID:12097-1674158400-1674162000@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-3/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:Support Group,TSF Events/Fundraisers
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230114T100000
DTEND;TZID=America/New_York:20230114T110000
DTSTAMP:20260403T141633
CREATED:20230112T225228Z
LAST-MODIFIED:20230112T225228Z
UID:12367-1673690400-1673694000@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Global Meetings
DESCRIPTION:We’re excited to bring NMOSD/MOGAD patients + caregivers from around the globe together for our 1st global support group meeting of 2023! \nThese meetings are a safe space led by the community for the community. No judgment; only love & support. (This meeting will be conducted in English) \nThe Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \n 
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-global-meetings/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:Support Group,TSF Events/Fundraisers
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/01/HCP-Global.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20230111T193000
DTEND;TZID=Europe/Amsterdam:20230111T203000
DTSTAMP:20260403T141633
CREATED:20221220T133906Z
LAST-MODIFIED:20230103T151137Z
UID:12079-1673465400-1673469000@www.sumairafoundation.org
SUMMARY:TSF Plauderstunde | HCP Germany
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOG-AD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOG-AD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOG-AD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/tsf-plauderstunde-hcp-germany/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:Support Group,TSF Events/Fundraisers
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/12/2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230106T090000
DTEND;TZID=America/New_York:20230106T100000
DTSTAMP:20260403T141633
CREATED:20221221T125746Z
LAST-MODIFIED:20230103T151615Z
UID:12206-1672995600-1672999200@www.sumairafoundation.org
SUMMARY:Understanding Clinical Trials for MOGAD & the Importance of Patient Participation
DESCRIPTION:You’re invited to join TSF’s 1st live webinar of 2023 – Understanding Clinical Trials for MOGAD & the Importance of Patient Participation – on Friday\, January 6th featuring Dr. Michael Levy who will share updates about ongoing clinical trials for patients living with MOGAD. Additionally\, we will discuss the importance and value of patient participation in clinical research and trials for novel therapies. Attendees will have the opportunity to ask Dr. Levy questions in real time. \nThis webinar will be recorded and available for replay on TSF’s Facebook and YouTube libraries. \nThis webinar is sponsored by UCB.
URL:https://www.sumairafoundation.org/event/understanding-clinical-trials-for-mogad-the-importance-of-patient-participation/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2022/12/320019904_674636397736521_7721156511967542261_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230105T200000
DTEND;TZID=America/New_York:20230105T210000
DTSTAMP:20260403T141633
CREATED:20221220T140515Z
LAST-MODIFIED:20221220T140515Z
UID:12094-1672948800-1672952400@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOG-AD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOG-AD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOG-AD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-2/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:Support Group,TSF Events/Fundraisers
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221222T200000
DTEND;TZID=America/New_York:20221222T210000
DTSTAMP:20260403T141633
CREATED:20221220T140430Z
LAST-MODIFIED:20221220T140430Z
UID:12084-1671739200-1671742800@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOG-AD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOG-AD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOG-AD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:Support Group,TSF Events/Fundraisers
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221214T120000
DTEND;TZID=America/New_York:20221214T133000
DTSTAMP:20260403T141633
CREATED:20221212T210453Z
LAST-MODIFIED:20221220T142055Z
UID:11827-1671019200-1671024600@www.sumairafoundation.org
SUMMARY:SM\, NMOSD e MOGAD: Somiglianze e Differenze
DESCRIPTION:Unisciti a noi mercoledì 14 dicembre per il 1° webinar italiano della Fondazione Sumaira con la dott.ssa Sara Mariotto\, neurologa ed esperta di NMOSD/MOGAD che discuterà e risponderà alle domande sulle somiglianze e le differenze tra NMOSD e MOGAD. \nI partecipanti avranno l’opportunità di porre domande alla Dr. ssa Mariotto dal vivo ed in italiano. Il webinar sarà registrato e sarà disponibile per essere rivisto sul canale YouTube e Facebook di TSF. \nQuesto evento è reso possibile da una sponsorizzazione per la formazione ed il supporto ai pazienti di Horizon Therapeutics.
URL:https://www.sumairafoundation.org/event/sm-nmosd-e-mogad-somiglianze-e-differenze/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2022/12/315004859_2505543582953404_5586759427257825187_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221213T200000
DTEND;TZID=America/New_York:20221213T210000
DTSTAMP:20260403T141633
CREATED:20221212T211117Z
LAST-MODIFIED:20221220T142019Z
UID:11821-1670961600-1670965200@www.sumairafoundation.org
SUMMARY:TSF Book Club | "Being Mortal" by Atul Gawande
DESCRIPTION:You’re invited to join TSF’s next book club meeting on November 29th\, during which we’ll discuss “Being Mortal” by Dr. Atul Gawande.\nFrom Atul Gawande\, a book that has the potential to change medicine – and lives.\n\n\nThrough eye-opening research and gripping stories of his own patients and family\, Gawande reveals the suffering this dynamic has produced. Nursing homes\, devoted above all to safety\, battle with residents over the food they can eat and the choices they are allowed to make. Doctors\, uncomfortable discussing patients’ anxieties about death\, fall back on false hopes and treatments that shorten lives instead of improving them. And families go along with all of it.
URL:https://www.sumairafoundation.org/event/tsf-book-club-being-mortal-by-atul-gawande/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:TSF Book Club
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221203T120000
DTEND;TZID=America/New_York:20221203T170000
DTSTAMP:20260403T141633
CREATED:20221212T211210Z
LAST-MODIFIED:20221212T211210Z
UID:11866-1670068800-1670086800@www.sumairafoundation.org
SUMMARY:SRNA Young Adults Group Meeting
DESCRIPTION:Join us for an online social hour hosted by Aidan M. for those in their 20’s and 30’s with ADEM\, AFM\, MOGAD\, NMOSD\, ON\, or TM! Connect with others and discuss what it’s like living with a rare neuroimmune disorder during the transitions of young adulthood. Ask questions\, share your stories\, or just listen – everyone is welcome. \nPlease think of this as a virtual coffee hour\, where we will have informal conversations and create community among younger folks with disorders under the SRNA umbrella. Come connect with others and discuss what it’s like living with a rare neuroimmune disorder. Ask questions\, share your stories\, or just listen – everyone is welcome.
URL:https://www.sumairafoundation.org/event/srna-young-adults-group-meeting/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:Partner Events,Support Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221203T100000
DTEND;TZID=America/New_York:20221203T110000
DTSTAMP:20260403T141633
CREATED:20221212T211443Z
LAST-MODIFIED:20221220T141945Z
UID:11864-1670061600-1670065200@www.sumairafoundation.org
SUMMARY:NMOSD/MOGAD Global Support Group Meeting
DESCRIPTION:We are excited to launch TSF’s first-ever global Human Collective Project meeting! Join us on Saturday\, December 3rd at 10 AM EST / 4 PM CET for a support group meeting with NMOSD/MOGAD patients and caregivers from all over the world.\nThis special monthly group will be hosted by\, Candice Galvan\, NMOSD Caregiver\, Colorado Ambassador\, and HCP Program Manager. This meeting will be conducted in English.\nTo register\, visit https://tinyurl.com/TSFHCPglobal
URL:https://www.sumairafoundation.org/event/tsfs-first-ever-global-human-collective-project-meeting/
CATEGORIES:Support Group
END:VEVENT
END:VCALENDAR