TSF HCP Caregivers - Family Caregivers
2026-10-11 12:00 - 13:00 (America/New_York) | Virtual: Global
The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe, inclusive space for family members, partners, siblings, children, and loved ones to connect, share, and be heard. Led by our dedicated Caregiver Ambassadors, who bring their own lived experience and empathy to the conversation, participants can expect heartfelt conversations, mutual support, and practical insights into the caregiving journey. Whether you’re navigating the emotional, physical, or logistical challenges of caregiving, this group is designed to uplift and empower you through community, compassion, and connection.

Comprendiendo el anticuerpo AQP4 en NMOSD
2026-10-15 18:00 - 19:00 (America/New_York) | Virtual: Global
¿Usted o un ser querido vive con NMOSD?
Lo invitamos a acompañarnos en un webinar especial titulado **”Comprendiendo el anticuerpo AQP4 en NMOSD”**, con la Dra. Pilar Perachino, de Argentina.
En esta sesión, la Dra. Perachino explicará qué es el anticuerpo AQP4, cuál es su papel en el NMOSD, cómo contribuye al diagnóstico de la enfermedad y por qué es tan importante para comprender su evolución y tratamiento.
Además, quienes se conecten en vivo tendrán la oportunidad de hacer sus preguntas a la Dra. Perachino en tiempo real.
¡Esperamos contar con su participación en esta conversación informativa e interactiva!

TSF x IPMSSG's Research Update & Networking Evening
2026-10-20 17:30 - 2026-10-21 22:00 (America/New_York)
Join TSF and IPMSSG on October 20, 2026, on the 22nd floor of the SickKids Patient Support Centre for an exclusive evening connecting global leaders in neuroimmunology. Enjoy an inspiring setting above Toronto’s skyline while engaging in meaningful conversations, collaboration and networking.
This special event will feature simultaneous research update sessions focused on adult and pediatric neuroimmunology, presented by internationally recognized experts. Following the presentations, attendees will enjoy time to socialize while enjoying a gorgeous view of Toronto.
Capacity is limited, and advance registration is required. Food and beverages will be served. https://www.eventbrite.com/e/tsf-x-ipmssgs-research-update-networking-evening-tickets-1994679754842
—
A note about the program format: The adult and pediatric neuroimmunology research updates will run concurrently, allowing attendees to participate in the session most relevant to their area of interest. Throughout the evening, both communities will come together during refreshment breaks and the networking reception to foster collaboration, exchange ideas, and build connections across the global neuroimmunology community.
The Sumaira Foundation’s Research Update & Award Ceremony
Join internationally recognized experts for an engaging update on the latest advances in rare neuroimmunology, including diagnostics, clinical trials, patient registries, industry innovations and global neurology initiatives. We’ll also hear from ECTRIMS-MEDEN Fellows as they present updates on their research projects and emerging work in the field. The program will conclude with the presentation of TSF’s 2026 Global Rare Trailblazer Award, recognizing an individual whose exceptional contributions have advanced research, advocacy and care for the rare neuroimmune disease community.
IPMSSG’s Research Update
Join members of the IPMSSG for an interactive session highlighting the latest advances in pediatric neuroimmunology. The program will feature updates from ongoing research studies, presentation and discussion of survey results introduced at the IPMSSG 2025 Meeting, and collaborative conversations on future research priorities and goals. Attendees will also have the opportunity to learn about recruitment for new IPMSSG Steering Committee members and contribute to discussions on the future of a stand-alone IPMSSG meeting.

NMOSD & MOGAD: Global Challenges
2026-10-21 19:00 - 21:00 (America/New_York)
Are you a clinician, researcher, fellow, resident or trainee interested in NMOSD, MOGAD and related neuroimmunological disorders?

Join us for an evening of discussion, mentorship and networking with leading experts from around the world. Held alongside MSToronto 2026, this special event will bring together clinicians, researchers, trainees and patient advocacy leaders to explore the challenges and opportunities shaping the future of rare neuroimmunology.
The evening will begin with a moderated fireside discussion:
Overcoming Global Challenges in NMOSD and MOGAD Care and Research
The conversation will explore emerging therapeutic strategies, global disparities in diagnosis and treatment, collaborative research priorities and mentorship for the next generation of neuroimmunology professionals.
Featured Speakers

Dr. Jacqueline Palace (University of Oxford, UK)
Dr. Sara Mariotto (University of Verona, Italy)
Dr. Kazuo Fujihara (Fukushima Medical University, Japan)

Moderator

Dr. Dalia Rotstein (University of Toronto, Canada)

Following the discussion, guests are invited to stay for an informal networking reception designed to foster mentorship, collaboration and meaningful connections among clinicians, researchers, fellows, residents and trainees working in NMOSD, MOGAD and related demyelinating disorders.
This event offers a unique opportunity to engage with colleagues from across the globe, exchange ideas, and strengthen partnerships between academia, clinical practice, research and patient advocacy.
Organized by

Dr. Courtney Casserly (Western University)
Dr. Jonathan Krett (University of Calgary)
Dr. Dalia Rotstein (University of Toronto)

In partnership with The Sumaira Foundation.
Presented by
The University of Calgary, The Sumaira Foundation, University of Toronto, and Western University.
Please note: This independent event is not included in the MSToronto2026 accredited program.

TSF's Human Collective Project Meetings
2026-11-12 20:00 - 21:00, 2026-12-10 20:00 - 21:00 (America/New_York) | Virtual: United States, United States
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. Since 2020, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh, cry, vent, share wins, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.

TSF HCP Caregivers - Caregiving with Dignity
2026-11-15 11:00 - 12:00 (America/New_York) | Virtual: Global

Journée patients 2026 – Maladies auto-immunes et auto-inflammatoires rares
2026-11-21 09:00 - 17:00 (Europe/Paris) | Lille, Hauts-de-France, 97 Place Saint Hubert, Lille, 59800, France
À tous les patients et aidants touchés par des maladies auto-immunes et auto-inflammatoires rares en France et en Belgique !

Vous ou l’un de vos proches est touché par : la NMOSD, une maladie aux IgG4, la Myasthénie, la maladie de Basedow ou la MOGAD ? Vous êtes les bienvenus à notre événement le samedi 21 novembre.
Rejoignez-nous pour une journée d’information, de partage et de divertissement pour :

Rencontrer des patients, des aidants et des soignants de France et de Belgique ainsi que nos partenaires
Poser toutes vos questions en direct à des experts sur la gestion des symptômes, les traitements et thérapies, les comorbidités et bien plus encore
Découvrir les dernières avancées en matière de recherche

L’après-midi, des ateliers et des discussions ont été spécifiquement prévus avec des professionnels de santé et des intervenants pour chaque maladie.
Cet événement est organisé en collaboration avec le professeur Hélène Zéphir (HU de Lille) et en partenariat avec les associations AFR-IgG4, AMIS, et le groupe Myasthénie de l’AFM-Téléthon.
https://www.eventbrite.com/e/1992136024476?aff=oddtdtcreator
L’inscription est gratuite et un repas sera servi. Nous avons hâte de vous retrouver !
L’équipe de The Sumaira Foundation France et Belgique

LA Patient Day for Rare Neuroinflammatory and Related Disorders
2026-12-05 10:00 - 17:00 (America/Los_Angeles)
We’re coming to Los Angeles!
TSF is inviting patients and caregivers impacted by rare neuroinflammatory & related disorders from California & the west coast!
Are you or your loved one impacted by: AE*, CIDP*, MG*, MOGAD*, neurosarcoidosis, or NMOSD*? You’re invited to our event on Saturday, December 5th.
Join us for a day of education, community and fun to:

Meet local patients, partners, care-partners and clinicians
Ask experts questions in real time about symptom management, treatments and therapies, comorbidities and more
Learn about updates on the latest research and findings from local key opinion leaders

This event is being organized in collaboration with Dr. Lilyana Amezcua and Dr. Masoud Majed (USC).
Registration is free and lunch will be served.
https://www.eventbrite.com/e/la-patient-day-for-rare-neuroinflammatory-related-disorders-tickets-1989963571611?aff=oddtdtcreator
We can’t wait to see you in LA!
The Sumaira Foundation team
—
AE stands for autoimmune encephalitis
CIDP stands for chronic inflammatory demyelinating polyneuropathy
MG stands for myasthenia gravis
MOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorder
NMOSD stands for neuromyelitis optica spectrum disorder

TSF HCP Caregivers - Medication Management
2026-12-13 11:00 - 12:00 (America/New_York) | Virtual: Global
