HCP Turkey
2024-08-20 15:00 - 16:00 (Europe/Istanbul) | virtual: Turkey, Turkey
Ağustos nmo-sd/mog-ad toplantimiza tüm NMO-sd hastalarini ve aile fertleri davetlidir.
zoom toplantimizda dr.Rabia ve dr.Meral Nmo ile ilgili sorulari cevaplayacaktir.
aşağıdaki belirtilmis olan linkten kaydinizi oluşturabilirsiniz

saygılarımla
Sumaira Türkiye
Fatih Şen

Tratamientos para el NMOSD
2024-08-21 18:00 - 19:00 (America/Bogota) | Virtual: Colombia, Colombia
El jueves 21 de agosto a las 6pm hora Colombia, el Dr Carlos Navas de Colombia y el Dr Edgar Carnero de Argentina nos contarán los tratamientos para NMOSD. ¡¡Acompáñanos!!

Verständnis von MOGAD und der Bedeutung der Patientenbeteiligung an klinischen Studien
2024-08-23 14:00 - 15:00 (America/New_York)
TSF Deutschland lädt deutschsprachige MOGAD-Patienten, Pflegekräfte und Kliniker ein, an unserem kommenden Live-Webinar “Verständnis von MOGAD und der Bedeutung der Patientenbeteiligung an klinischen Studien – mit Professor Friedemann Paul, Neuroimmunologe an der Charité – Universitätsmedizin Berlin” teilzunehmen.
Live-Teilnehmer haben die Möglichkeit, Prof. Paul in Echtzeit Fragen zu stellen.
Diese Sitzung wird aufgezeichnet und kann danach auf dem YouTube-Kanal von TSF wiedergegeben werden.
Dieses Programm wurde mit Unterstützung von UCB ermöglicht.

TSF's Exclusive TEEN & Young Adult HCP Meeting
2024-08-29 19:00 - 20:00 (America/New_York) | Virtual: Global
Are you a teen or young adult affected by rare neuroimmune disorders such as NMOSD or MOGAD? All are welcome between the ages of 13-25.
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
Since 2020, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh, cry, vent, share wins, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.

Le Projet Collectif Humain (HCP) | Français
2024-08-29 20:00 - 21:00, 2024-09-26 20:00 - 21:00, 2024-10-31 20:00 - 21:00 (Europe/Paris) | Virtual: France, France
The Human Collective Project (HCP) est la réunion du groupe de soutien de TSF offerte à toute personne affectée par la NMOSD ou la MOGAD. Le programme a vu le jour au plus fort de la pandémie de COVID-19 en 2020, lorsque la plupart des patients NMOSD/MOGAD se sentaient particulièrement isolés et vulnérables au coronavirus en tant que patient dit “vulnérable” de part son traitement contre ma maladie.
L’isolement que beaucoup d’entre nous avons vécu a révélé un grand besoin et une opportunité pour nous de nous connecter de manière significative pour nous offrir notre soutien les uns aux autres.
Depuis 2020, nous avons élargi le programme pour offrir plus de sessions dans plusieurs zones géographiques afin de garantir que tous les membres des communautés NMOSD/MOGAD se sentent accueillis et inclus. Comme nous le disons toujours, HCP est un excellent moyen de rencontrer d’autres personnes dans des circonstances similaires dans cette communauté rare; c’est un espace sûr pour rire, pleurer, évacuer, partager les victoires, etc. Ce programme est piloté et dirigé par les patients et soignants ambassadeurs de TSF dans le monde entier.

Iranian Insights: Diagnostic Assays
2024-08-30 18:00 - 19:00 (Asia/Tehran) | Virtual: Iran, Iran, Islamic Republic of
TSF is pleased to provide the Iranian neurology community around the globe with another lecture and case discussion: Diagnostic Assays led by Prof. Patrick Waters from the University of Oxford.
We invite clinicians & researchers from all over the world to join this important discussion.
This series is being organized by Dr. Sara Samadzadeh (Charité Universitätsmedizin Berlin), Dr. Masoud Majed (Keck School of Medicine of USC), and Dr. Mohammad Ali Sahraian ( Tehran University of Medical Sciences).

TSF Plauderstunde | HCP Germany
2024-09-11 19:30 - 20:30, 2024-10-09 19:30 - 20:30, 2024-11-13 19:30 - 20:30 (Europe/Amsterdam) | Virtual: Germany, Germany
The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
Since launching in 2020, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh, cry, vent, share wins, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world.

TSF's Human Collective Project Meetings
2024-09-12 20:00 - 21:00, 2024-10-10 20:00 - 21:00, 2024-11-14 20:00 - 21:00 (America/New_York) | Virtual: United States, United States
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
Since 2020, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh, cry, vent, share wins, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.

TSF's 7th Annual Gala
2024-09-17 19:00 - 22:00 (Europe/Copenhagen) | National Aquarium of Denmark, Jacob Fortlingsvej 1, 2770 Kastrup, Denmark
Are you attending ECTRIMS in Copenhagen? You’re invited to attend The Sumaira Foundation’s 7th Annual Gala!
Join us for a memorable evening in Copenhagen filled with elegance, entertainment, and giving back. TSF’s first international hala will take place on Tuesday, September 17th at 7:00 PM at the National Aquarium Denmark, Europe’s largest aquarium.
Proceeds from this fundraiser will enable TSF to continue funding research and fellowships around the globe. Tax-deductible tickets are available until September 16th.
Get ready to dress to impress and enjoy a night of celebration for a great cause. This event is black-tie optional. Because this is TSF’s first international gala, we are encouraging our attendees to dress in formal attire from their country or favorite part of the world.
We can’t wait to illuminate NMOSD & MOGAD under the sea with you!

ECTRIMS Patient Community Day
2024-09-20 15:00 - 18:00 (Europe/Copenhagen) | Bella Center Copenhagen, Entrance B0, Emma Gads Vej 43, 2300 Copenhagen S, Copenhagen, Denmark
Join us on 20 September 2024 for ECTRIMS Patient Community Day – an exclusive, free event designed for individuals living with MOGAD, MS, NMOSD and related neurological conditions.

Patient Community Day is an opportunity to learn about the latest research advancements directly impacting your ongoing care and treatment options. The programme will include engaging roundtable discussions led by international experts, insightful Q&A sessions, and a multilingual experience ensuring accessibility for all.

This event is FREE to attend. Pre-registration is required. It will be held in English, with live translations in 50+ languages!

Have a research question about your condition that you would like answered during the event? As part of the interactive nature of the event, we invite you to actively participate in our #ECTRIMS4me campaign. Your questions and concerns will shape the agenda, making this event a true reflection of community-driven support and advocacy.

Send in your question https://bit.ly/4562FhC

Join us as we push the boundaries of knowledge and forge a stronger path toward collective support and well-being.

Human Collective Project | South Africa
2024-09-24 18:00 - 19:00, 2024-10-22 18:00 - 19:00, 2024-11-19 18:00 - 19:00 (Africa/Johannesburg)
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.

Iranian Insights: NMOSD Treatments
2024-09-27 09:00 - 10:00 (Europe/Paris) | Virtual: Global
TSF is pleased to provide the Iranian neurology community around the globe with another lecture and case discussion: NMOSD Treatments led by Prof. Romain Marignier, neuroimmunologist and global NMOSD/MOGAD expert.
We invite clinicians & researchers from all over the world to join this important discussion.
This series is being organized by Prof. Mohammad Ali Sahraian (Tehran University of Medical Sciences), Dr. Sara Samadzadeh (Charité Universitätsmedizin Berlin) and Dr. Masoud Majed (Keck School of Medicine of USC).

NEMOS Patient:innentag 2024
2024-10-02 10:00 - 17:00 (Europe/Berlin) | Frankfurt am Main, Otto-Fleck-Schneise 4, 60528 Frankfurt am Main, Germany
Expert:innen informieren über Diagnose und Therapie derNMOSD (Neuromyelitis optica-Spektrum-Erkrankungen) und MOGAD
(MOG-Antikörpervermittelte Erkrankungen).
Natürlich besteht ausgiebig Möglichkeit für Fragen und für den Austausch mit anderen Betroffenen.

TSF's Miami Patient Day for NMOSD & MOGAD
2024-10-05 11:00 - 17:00 (America/New_York) | Margaritaville Hollywood Beach Resort, 1111 N Ocean Dr, Hollywood, 33019, United States
TSF is coming to Miami!

Are you an NMOSD/MOGAD patient, caregiver, clinician, nurse, researcher and/or advocate in Florida? You’re invited to our event on Saturday, October 5th at 11 AM at Margaritaville Hollywood Beach Resort.

Join us for a day of education, community, and fun to:

Meet local NMOSD & MOGAD patients, caregivers and clinicians
Ask experts questions in real time about symptom management, treatments and therapies, co-morbidities and more
Learn about updates on the latest research and findings from local key opinion leaders
PLUS! We’ll have an educational and interactive session in Spanish led by local experts.

This in-person event is free and lunch will be served. We can’t wait to see you in Miami!
The Sumaira Foundation team

Navigating NMOSD & MOGAD: Exploring the LGBTQIA+ Experience
2024-10-23 19:00 - 20:00 (America/New_York) | Virtual: United States, United States
In celebration of LGBT History Month, The Sumaira Foundation invites you to participate in our upcoming webinar, “Navigating NMOSD & MOGAD: Exploring the LGBTQIA+ Experience,” featuring Dr. William Conte, head of the MS Center at Methodist Hospitals and Assistant Professor of Neurology at Indiana University, Nicolas Overton, NMOSD patient and TSF Ambassador of Florida and Avery Allmond, MOGAD patient and TSF Ambassador of Oklahoma.
Join this important conversation!

Recent Findings on Retinal Changes in AQP4-NMOSD, MOGAD & DS cases
2024-10-25 16:30 - 17:30 (Europe/Paris) | Virtual: Global
TSF is pleased to provide the Iranian neurology community around the globe with another lecture and case discussion: Recent Findings on Retinal Changes in AQP4-NMOSD, MOGAD & DS cases led by Dr. Frederike Cosima Oertel, neuroimmunologist and NMOSD/MOGAD expert from Charité-Universitätsmedizin Berlin, Germany.
We invite clinicians & researchers from all over the world to join this important discussion.
This series is being organized by Prof. Mohammad Ali Sahraian (Tehran University of Medical Sciences) and Dr. Sara Samadzadeh (Charité Universitätsmedizin Berlin).

Imaging Features of MOGAD & NMOSD
2024-11-15 16:00 - 17:00 (Europe/Berlin) | Virtual: Global
TSF is pleased to provide the Iranian neurology community around the globe with another lecture and case discussion: Imaging Features of MOGAD & NMOSD led by Dr. Eoin Flanagan, Professor of Neurology, Chair, Division of Multiple Sclerosis and Autoimmune Neurology, Program Director, Autoimmune Neurology Fellowship, Consultant, Departments of Neurology & Laboratory Medicine & Pathology at Mayo Clinic College of Medicine.
We invite clinicians & researchers from all over the world to join this important discussion.
This series is being organized by Prof. Mohammad Ali Sahraian ( Tehran University of Medical Sciences) and Dr. Sara Samadzadeh (Charité Universitätsmedizin Berlin).

डिमायेलिनेटिंग बीमारियों पर जागरूकता और मार्गदर्शन
2024-11-23 09:00 - 10:00 (Asia/Kolkata) | Virtual: Global
कृपया 23 नवम्बर को सुबह 9 बजे IST पर हमारे विशेष वेबिनार में सम्मिलित हों, जिसमें डॉ. पार्थवी रावत द्वारा डिमायेलिनेटिंग बीमारियों से प्रभावित रोगियों और उनके परिवारों को शिक्षित और सहायता प्रदान करने हेतु बहुमूल्य जानकारी और विशेषज्ञ मार्गदर्शन दिया जाएगा। लाइव वेबिनार में शामिल होने वाले प्रतिभागियों को डॉ. रावत से सीधे प्रश्न पूछने का अवसर मिलेगा। यह सत्र रिकॉर्ड किया जाएगा और TSF के यूट्यूब चैनल पर पुनः देखने के लिए उपलब्ध रहेगा। यह कार्यक्रम एमजेन के समर्थन से संभव हुआ है।

Le 2ème week-end des patients et aidants de la NMOSD & de la MOGAD - Paris
2024-11-23 13:00 - 2024-11-24 12:00 (Europe/Paris) | FIAP Paris, 30 Rue Cabanis, Paris, 75014, France
Suite au succès de notre 1ère Journée Patients NMOSD & MOGAD, nous renouvelons l’évènement les 23 et 24 novembre à Paris !
Venez rencontrer des experts, suivre nos ateliers, rencontrer les différents acteurs de la NMOSD et la MOGAD.
Venez mettre en lumière la NMOSD et la MOGAD avec Sumaira et TSF France.
À bientôt!
L’équipe TSF France (Anass, Bérengère, Elodie, Emma, Fatiha, Nelly et Selma)

Vécu, besoins et attentes des patient(e)s français
2024-12-04 20:00 - 21:00 (Europe/Paris) | Virtual: Global
Les résultats sont là ! Vous avez peut-être participé à l’enquête réalisée par Alexion en partenariat avec The Sumaira Foundation France intitulée “Vécu, besoins et attentes des patient(e)s atteint(e)s de NMOSD”.
En compagnie du Docteur Livia Lanotte, neurologue et présidente du réseau Alsacep, et Bérengère, ambassadrice TSF, nous reviendrons sur les résultats et les enseignements de cette enquête. TSF France a travaillé sur le questionnaire afin que la parole recueillie puisse servir le plus grand nombre. Nous pourrons nous appuyer sur les résultats de cette enquête pour porter un plaidoyer fort auprès des pouvoirs publics afin d’améliorer le quotidien des personnes touchées par une NMOSD ou une MOGAD.
Ce programme est rendu possible grâce au soutien de Alexion.

Comprender MOGAD y la importancia de la participación del paciente
2024-12-05 13:00 - 14:00 (America/New_York) | Virtual: Global
TSF lo invita a unirse a nuestro próximo seminario web en español sobre MOGAD y la importancia de la participación de los pacientes en los ensayos clínicos. Nos sentimos honrados de contar con el Dr. José Flores de México y la Dra. Lucienne Costa Frossard França de España. ¡Esperamos que se una a nosotros en esta importante discusión!

2° Giornata dedicata ai pazienti con NMOSD e MOGAD - Verona
2024-12-07 11:00 - 17:00 (Europe/Rome) | Crowne Plaza Verona – Fiera, 16 Via Belgio 37135, Verona, Italy
TSF è lieta di invitare tutti i pazienti italiani con NMOSD e MOGAD, i loro caregivers, ed i medici interessati a queste patologie a partecipare a questa giornata di formazione, unione e divertimento.
In collaborazione con la Dr.ssa Sara Mariotto dell’ Università di Verona, The Sumaira Foundation è lieta di invitarvi alla 2° Giornata per pazienti, caregivers e clinici dedicata a NMOSD e MOGAD.
Questo evento a libera iscrizione vi permetterà di:

Incontrare pazienti italiani con NMOSD e MOGAD, i loro caregivers ed i clinici esperti di queste patologie

Porre domande agli esperti in diretta relative alla gestione dei sintomi, le terapie, le comorbidità e molto altro

Aggiornarvi in merito alle ultime ricerche scientifiche con l’aiuto di medici esperti italiani

Fare rete e instaurare connessioni con la comunità locale dedicata a NMOSD e MOGAD

Il pranzo e il calore di TSF sono inclusi!
Non vediamo l’ora di incontrarvi!
TSF Italia
