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BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20230915T200000
DTEND;TZID=Europe/Paris:20230915T210000
DTSTAMP:20260405T175955
CREATED:20230320T165158Z
LAST-MODIFIED:20230320T165158Z
UID:13349-1694808000-1694811600@www.sumairafoundation.org
SUMMARY:Le Projet Collectif Humain
DESCRIPTION:The Human Collective Project (HCP) est la réunion du groupe de soutien de TSF offerte à toute personne affectée par la NMOSD ou la MOGAD. Le programme a vu le jour au plus fort de la pandémie de COVID-19 en 2020\, lorsque la plupart des patients NMOSD/MOGAD se sentaient particulièrement isolés et vulnérables au coronavirus en tant que patient dit “vulnérable” de part son traitement contre ma maladie.\nL’isolement que beaucoup d’entre nous avons vécu a révélé un grand besoin et une opportunité pour nous de nous connecter de manière significative pour nous offrir notre soutien les uns aux autres. \nDepuis 2020\, nous avons élargi le programme pour offrir plus de sessions dans plusieurs zones géographiques afin de garantir que tous les membres des communautés NMOSD/MOGAD se sentent accueillis et inclus. Comme nous le disons toujours\, HCP est un excellent moyen de rencontrer d’autres personnes dans des circonstances similaires dans cette communauté rare; c’est un espace sûr pour rire\, pleurer\, évacuer\, partager les victoires\, etc. Ce programme est piloté et dirigé par les patients et soignants ambassadeurs de TSF dans le monde entier.
URL:https://www.sumairafoundation.org/event/le-projet-collectif-humain-6/
LOCATION:Virtual: France\, France
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/03/France-The-Human-Collective-Project-169-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230919
DTEND;VALUE=DATE:20230921
DTSTAMP:20260405T175955
CREATED:20230131T193033Z
LAST-MODIFIED:20230131T193033Z
UID:12572-1695081600-1695254399@www.sumairafoundation.org
SUMMARY:2023 RARE Patient Advocacy Summit
DESCRIPTION:Each year\, Global Genes convenes one of the world’s largest gatherings of rare disease patients\, caregivers\, advocates\, healthcare professionals\, researchers\, partners\, and allies at the RARE Patient Advocacy Summit.
URL:https://www.sumairafoundation.org/event/2023-rare-patient-advocacy-summit/
CATEGORIES:Partner Events,Summits
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/01/Global-Advocacy-Alliance-600px-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20230920T190000
DTEND;TZID=Europe/Amsterdam:20230920T200000
DTSTAMP:20260405T175955
CREATED:20230912T140131Z
LAST-MODIFIED:20230912T140131Z
UID:14672-1695236400-1695240000@www.sumairafoundation.org
SUMMARY:TSF’s Human Collective Project | Danmark
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-danmark-3/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/01/Denmark-The-Human-Collective-Project-Facebook-Cover-4.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20230926T180000
DTEND;TZID=Africa/Johannesburg:20230926T190000
DTSTAMP:20260405T175955
CREATED:20230530T133217Z
LAST-MODIFIED:20230530T133217Z
UID:13813-1695751200-1695754800@www.sumairafoundation.org
SUMMARY:HCP South Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/hcp-south-africa-6/
LOCATION:Virtual: South Africa\, South Africa
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/04/SOUTH-AFRICA-The-Human-Collective-Project-Facebook-Cover-1200-×-676-px.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230928T200000
DTEND;TZID=America/New_York:20230928T210000
DTSTAMP:20260405T175955
CREATED:20230116T195343Z
LAST-MODIFIED:20230207T174410Z
UID:12492-1695931200-1695934800@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-20/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231012T200000
DTEND;TZID=America/New_York:20231012T210000
DTSTAMP:20260405T175955
CREATED:20230116T195408Z
LAST-MODIFIED:20230207T174459Z
UID:12494-1697140800-1697144400@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-21/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231014T100000
DTEND;TZID=America/New_York:20231014T110000
DTSTAMP:20260405T175955
CREATED:20230731T192413Z
LAST-MODIFIED:20230731T192445Z
UID:14265-1697277600-1697281200@www.sumairafoundation.org
SUMMARY:Coaching Klatch: How to Keep Medical Information Organized & Be Your Best Advocate in Healthcare
DESCRIPTION:“Coaching Klatch: Moving You Forward” is a 3-part program designed to bring patients and caregivers together in a supportive community to: \n\nlearn & apply coaching concepts\nacquire tools to strengthen self-advocacy\nEnhance quality of day-to-day lived experiences\nmove forward in your life despite living with a rare disease\n\n  \nLed by Dr. Maggie Kang*\, this 3-part coaching program is virtual and free of charge to patients and caregivers\, no matter where in the world you are or what your diagnosis is! \n  \nJoin us for our upcoming sessions: \n\nSession 1 | “Pain vs. Suffering” – Saturday\, August 5th at 10 AM EST / 4 PM CET / 7:30 PM IST\nSession 2 | “A New Way to Think About Change” – Saturday\, September 9th at 10 AM EST / 4 PM CET / 7:30 PM IST\nSession 3 | “How to Keep Medical Information Organized & Be Your Best Advocate in Healthcare” – Saturday\, October 14th at 10 AM EST / 4 PM CET / 7:30 PM IST\n\n  \nTo register\, visit https://tinyurl.com/TSFCoachingKlatch \n  \n*Dr. Maggie Kang is a life coach\, speaker\, rare disease advocate and physician. Dr. Kang became an advocate for rare diseases after her then 9-year old daughter was diagnosed with neuromyelitis optica spectrum disorder (NMOSD) in 2018.
URL:https://www.sumairafoundation.org/event/how-to-keep-medical-information-organized-be-your-best-advocate-in-healthcare/
LOCATION:Virtual: United States\, United States
CATEGORIES:Coaching Klatch,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/07/Coaching-Klatch-Moving-You-Forward.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Madrid:20231024T180000
DTEND;TZID=Europe/Madrid:20231024T190000
DTSTAMP:20260405T175955
CREATED:20230920T161439Z
LAST-MODIFIED:20230920T161631Z
UID:14774-1698170400-1698174000@www.sumairafoundation.org
SUMMARY:La importancia de un acercamiento multidisciplinar en NMOSD y MOGAD
DESCRIPTION:Está invitado a asistir a la videoconferencia: “La importancia de un acercamiento multidisciplinar en NMOSD y MOGAD”\, el Martes 24 de Octubre a las 18:00 hora en España\, con el Dr. Alvaro Cobo\, Neurológo del Centro de Esclerosis Múltiple de Catalunya (Cemcat)\, Hospital Universitario Vall d’Hebrón\, Barcelona\, España \nTras la presentación inicial de 25 minutos\, se llevará a cabo una serie de preguntas por la paciente afecta de neuromielitis óptica y colaboradora de la fundación Sumaira Foundation Gabriela Pineda- Molina. \nEste seminario web es posible gracias al apoyo de Horizon Therapeutics. El patrocinio de este programa se utilizará únicamente para apoyar los esfuerzos educativos y de investigación de la Fundación Sumaira. El Cemcat participa gratuitamente sin coste ni coste alguno.
URL:https://www.sumairafoundation.org/event/la-importancia-de-un-acercamiento-multidisciplinar-en-nmosd-y-mogad/
LOCATION:Virtual: Spain\, Barcelona\, Spain
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/09/Alvaro-Cobo-Calvo-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Warsaw:20231026T150000
DTEND;TZID=Europe/Warsaw:20231026T160000
DTSTAMP:20260405T175955
CREATED:20231006T151219Z
LAST-MODIFIED:20231006T151433Z
UID:14929-1698332400-1698336000@www.sumairafoundation.org
SUMMARY:MOGAD - Pytania Pacjentów - Odpowiedzi Specjalisty
DESCRIPTION:Po raz pierwszy w Polsce na pytania pacjentów dotyczące MOGAD odpowie dr hab. Maciej Juryńczyk\, Ordynator Oddziału Neurologicznego w Szpitalu Wolskim w Warszawie\, neurolog specjalizujący się w leczeniu tej rzadkiej choroby neurologicznej. Zapraszamy serdecznie do wysłuchania naszej rozmowy wszystkich zainteresowanych\, a w szczególności osoby borykające się z objawami neurologicznymi i szukające diagnozy. Program ten jest możliwy dzięki wsparciu Horizon Therapeutics.
URL:https://www.sumairafoundation.org/event/mogad-pytania-pacjentow-odpowiedzi-specjalisty/
LOCATION:Virtual: Poland\, Poland
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2023/10/Maciej-Jurynczyk.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20231026T190000
DTEND;TZID=Europe/Amsterdam:20231026T200000
DTSTAMP:20260405T175955
CREATED:20231018T173046Z
LAST-MODIFIED:20231018T173046Z
UID:14975-1698346800-1698350400@www.sumairafoundation.org
SUMMARY:HCP DK with participation of dr. Nasrin Asgari
DESCRIPTION:Kære NMOSD og MOGAD patienter og pårørende. \n  \nVi er glade for at invitere dig til et særligt Zoom-møde med den ansete professor-neurolog af syddansk Universitet\, Dr. Nasrin Asgari. \n  \nDr. Nasrin Asgari\, en fremtrædende neurolog med omfattende ekspertise i NMOSD og MOGAD\, slutter sig til os som en særlig gæst. Hendes værdifulde indsigt og erfaringer vil blive delt under mødet\, og det giver en fantastisk mulighed for at lære af en af ​​feltets førende fagfolk. \n  \nDenne virtuelle samling har til formål at give støtte\, information og inspiration til dem\, der er ramt af NMOSD eller MOGAD \n  \nVi opfordrer alle deltager til dele deres egne erfaringer\, udveksle tips og tilbyde støtte til hinanden. Det bliver et sikkert rum\, hvor vi alle kan mødes\, lære og vokse som et fællesskab.
URL:https://www.sumairafoundation.org/event/hcp-dk-with-participation-of-dr-nasrin-asgari/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/10/Denmark-The-Human-Collective-Project-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231026T200000
DTEND;TZID=America/New_York:20231026T210000
DTSTAMP:20260405T175955
CREATED:20230116T195434Z
LAST-MODIFIED:20230207T174616Z
UID:12496-1698350400-1698354000@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-22/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20231028
DTEND;VALUE=DATE:20231029
DTSTAMP:20260405T175955
CREATED:20231019T171421Z
LAST-MODIFIED:20231019T173956Z
UID:15022-1698451200-1698537599@www.sumairafoundation.org
SUMMARY:Dia de la NMO 2023: Argentina
DESCRIPTION:La Asociación de Lucha contra la Esclerosis Múltiple (ALCEM)\, La Fundación Sumaira y NMO Argentina convocan a la actividad a realizarse el 28 de octubre de manera virtual y con inscripción previa. Su finalidad es ampliar información sobre esta rara patología y proporcionar formación sobre el tema. Está dirigido a profesionales de la salud\, pacientes y público interesado. \nEste evento será coordinado por los neurólogos Edgar Carnero Contentti y Verónica Tkachuk\, expertos en trastorno del espectro NMO. Además\, contará con la participación de profesionales argentinos especializados e invitados internacionales\, quienes abordarán temas relacionados con el diagnóstico\, tratamiento de síntomas\, nuevos tratamientos y futuro de la enfermedad\, entre otros. \nLa neuromielitis óptica es una patología desmielinizante autoinmune que afecta a los nervios ópticos y a la médula espinal mediante inflamación. El neurólogo francés Eugene Devic fue quien la describió inicialmente en el año 1894 en la ciudad de Lyon\, en su honor\, se conmemora esta enfermedad el 24 de octubre\, fecha de su nacimiento. \nEntre los síntomas más frecuentes se encuentran: disminución de la agudeza visual\, dolor crónico\, trastorno del sueño\, fatiga\, déficit neurológico\, trastornos sexuales\, entre otros. \nDesde ALCEM acompañan a pacientes con este tipo de enfermedades y resaltan la importancia de brindar información y capacitación sobre este tipo de patologías neurológicas\, ya que un diagnóstico oportuno puede permitir a los pacientes tener una buena calidad de vida.
URL:https://www.sumairafoundation.org/event/dia-de-la-nmo-2023-argentina/
CATEGORIES:Community Event,Partner Events,Patient Days
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2023/10/RjrvaKQN5jEC9GZ565nXzGg93G2e2QsSz9BW8uEX.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231029T110000
DTEND;TZID=America/New_York:20231029T170000
DTSTAMP:20260405T175955
CREATED:20230921T194947Z
LAST-MODIFIED:20230921T194947Z
UID:14795-1698577200-1698598800@www.sumairafoundation.org
SUMMARY:TSF's New York City Patient Day for NMOSD & MOGAD
DESCRIPTION:The Sumaira Foundation is pleased to invite you to TSF’s New York City Patient Day\, a day exclusively dedicated to NMOSD & MOGAD patients\, caregivers and clinicians. \nJoin us for a day of education\, community\, and fun where you’ll \n\nMeet local NMOSD & MOGAD patients\, caregivers and clinicians from and around New York City\nAsk experts questions in real time about symptom management\, treatments and therapies\, comorbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\nMake connections and engage in meaningful discussions with the local NMOSD/MOGAD community\n\nPLUS! We’ll be joined by special guest and celebrity chef\, Christine Ha! Christine was diagnosed with NMOSD after experiencing severe vision loss in 2003. Christine was the first blind contestant to ever appear on MasterChef and the winner of its third season in 2012. In 2023\, Christine is a proud chef\, writer\, TV host and NMOSD advocate. \nThis is a free event brought to you by The Sumaira Foundation in collaboration with the Siegel Rare Neuroimmune Association (SRNA). Lunch and hugs will be served! \nWe’re excited to meet you! \nThe Sumaira Foundation team
URL:https://www.sumairafoundation.org/event/tsfs-new-york-city-patient-day-for-nmosd-mogad/
LOCATION:Low Memorial Library\, 535 W. 116th St\, New York\, New York\, 10027\, United States
CATEGORIES:Community Event,Patient Days
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/09/NYC-Patient-Day.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20231031T180000
DTEND;TZID=Africa/Johannesburg:20231031T190000
DTSTAMP:20260405T175955
CREATED:20231019T151950Z
LAST-MODIFIED:20231019T151950Z
UID:14991-1698775200-1698778800@www.sumairafoundation.org
SUMMARY:HCP South Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/hcp-south-africa-7/
LOCATION:Virtual: South Africa\, South Africa
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/04/SOUTH-AFRICA-The-Human-Collective-Project-Facebook-Cover-1200-×-676-px.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20231103T200000
DTEND;TZID=Europe/Paris:20231103T210000
DTSTAMP:20260405T175955
CREATED:20231031T192851Z
LAST-MODIFIED:20231031T192851Z
UID:15242-1699041600-1699045200@www.sumairafoundation.org
SUMMARY:Le Projet Collectif Humain
DESCRIPTION:The Human Collective Project (HCP) est la réunion du groupe de soutien de TSF offerte à toute personne affectée par la NMOSD ou la MOGAD. Le programme a vu le jour au plus fort de la pandémie de COVID-19 en 2020\, lorsque la plupart des patients NMOSD/MOGAD se sentaient particulièrement isolés et vulnérables au coronavirus en tant que patient dit “vulnérable” de part son traitement contre ma maladie.\nL’isolement que beaucoup d’entre nous avons vécu a révélé un grand besoin et une opportunité pour nous de nous connecter de manière significative pour nous offrir notre soutien les uns aux autres. \nDepuis 2020\, nous avons élargi le programme pour offrir plus de sessions dans plusieurs zones géographiques afin de garantir que tous les membres des communautés NMOSD/MOGAD se sentent accueillis et inclus. Comme nous le disons toujours\, HCP est un excellent moyen de rencontrer d’autres personnes dans des circonstances similaires dans cette communauté rare; c’est un espace sûr pour rire\, pleurer\, évacuer\, partager les victoires\, etc. Ce programme est piloté et dirigé par les patients et soignants ambassadeurs de TSF dans le monde entier.
URL:https://www.sumairafoundation.org/event/le-projet-collectif-humain-7/
LOCATION:Virtual: France\, France
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/03/France-The-Human-Collective-Project-169-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231104T110000
DTEND;TZID=America/New_York:20231104T120000
DTSTAMP:20260405T175955
CREATED:20231031T195919Z
LAST-MODIFIED:20231031T195919Z
UID:15256-1699095600-1699099200@www.sumairafoundation.org
SUMMARY:HCP India
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD or MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD and MOGAD patients felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. Since launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies and languages to ensure that everyone in the NMOSD and MOGAD community feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world.
URL:https://www.sumairafoundation.org/event/hcp-india-2/
LOCATION:Virtual: India\, India
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/08/HCP-India.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20231106T173000
DTEND;TZID=Europe/Rome:20231106T183000
DTSTAMP:20260405T175955
CREATED:20231031T200124Z
LAST-MODIFIED:20231031T200124Z
UID:15258-1699291800-1699295400@www.sumairafoundation.org
SUMMARY:HCP Italia
DESCRIPTION:The Human Collective Project (HCP) è l’incontro del gruppo di supporto di TSF offerto a chiunque sia stato colpito/colpito da NMOSD/MOGAD. Il programma è nato durante il culmine della pandemia di COVID-19 nel 2020\, quando la maggior parte dei NMOSD/MOGAD si sentiva particolarmente isolata e vulnerabile al coronavirus come membri della società immunosoppressi/immunocompromessi. L’isolamento che molti di noi hanno vissuto ha svelato un grande bisogno e un’opportunità per noi di connetterci in modo significativo per offrire il nostro sostegno reciproco. \nDal 2020\, abbiamo ampliato il programma per offrire più sessioni in più aree geografiche per garantire che tutti nelle comunità NMOSD/MOGAD si sentano accolti e inclusi. Come diciamo sempre\, HCP è un ottimo modo per incontrare altri in circostanze simili in questa rara comunità; è uno spazio sicuro per ridere\, piangere\, sfogarsi\, condividere vittorie\, ecc. Questo programma è guidato e guidato dagli ambasciatori di pazienti e caregiver di TSF in tutto il mondo.
URL:https://www.sumairafoundation.org/event/hcp-italia-6/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/04/unnamed.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20231108T193000
DTEND;TZID=Europe/Amsterdam:20231108T203000
DTSTAMP:20260405T175955
CREATED:20230116T190030Z
LAST-MODIFIED:20231031T200311Z
UID:12416-1699471800-1699475400@www.sumairafoundation.org
SUMMARY:TSF Plauderstunde | HCP Germany
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/tsf-plauderstunde-hcp-germany-8/
LOCATION:Virtual: Germany\, Germany
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/12/2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Bogota:20231108T193000
DTEND;TZID=America/Bogota:20231108T203000
DTSTAMP:20260405T175955
CREATED:20231101T122828Z
LAST-MODIFIED:20231101T122828Z
UID:15273-1699471800-1699475400@www.sumairafoundation.org
SUMMARY:El Proyecto Colectivo Humano
DESCRIPTION:El Human Collective Project (HCP) es la reunión del grupo de apoyo de TSF que se ofrece a cualquier persona que haya sido afectada/impactada por NMOSD/MOG-AD. El programa nació durante el apogeo de la pandemia de COVID-19 en 2020\, cuando la mayoría de los NMOSD/MOG-AD se sentían particularmente aislados y vulnerables al coronavirus como miembros de la sociedad inmunodeprimidos/inmunodeprimidos. El aislamiento que muchos de nosotros experimentamos reveló una gran necesidad y oportunidad para conectarnos de una manera significativa y ofrecernos apoyo unos a otros. \nDesde 2020\, hemos ampliado el programa para ofrecer más sesiones en múltiples geografías para garantizar que todos en las comunidades NMOSD/MOG-AD se sientan bienvenidos e incluidos. Como siempre decimos\, HCP es una excelente manera de conocer a otras personas en circunstancias similares en esta rara comunidad; es un espacio seguro para reír\, llorar\, desahogarse\, compartir victorias\, etc. Este programa está impulsado y dirigido por pacientes y cuidadores embajadores de TSF en todo el mundo.
URL:https://www.sumairafoundation.org/event/el-proyecto-colectivo-humano/
LOCATION:Virtual: Colombia\, Colombia
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/11/Human-Collective-Registration-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231109T200000
DTEND;TZID=America/New_York:20231109T210000
DTSTAMP:20260405T175955
CREATED:20230116T195458Z
LAST-MODIFIED:20230207T174658Z
UID:12498-1699560000-1699563600@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-23/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20231118T090000
DTEND;TZID=Europe/Rome:20231118T150000
DTSTAMP:20260405T175955
CREATED:20231025T200739Z
LAST-MODIFIED:20231025T200739Z
UID:15176-1700298000-1700319600@www.sumairafoundation.org
SUMMARY:Giornata dedicata ai pazienti con NMOSD\, MOGAD ed encefalite - Verona
DESCRIPTION:TSF è lieta di invitare tutti i pazienti italiani con NMOSD\, MOGAD o encefalite\, i loro caregivers\, ed i medici interessati a queste patologie a partecipare a questa giornata di formazione\, unione e divertimento. \n  \nIn collaborazione con la Dr.ssa Sara Mariotto dell’ Università di Verona\, The Sumaira Foundation è lieta di invitarvi alla Giornata per pazienti\, caregivers e clinici dedicata a NMOSD\, MOGAD ed encefalite. \nQuesto evento a libera iscrizione vi permetterà di: \n  \n\nIncontrare pazienti italiani con NMOSD\, MOGAD o encefalite\, i loro caregivers ed i clinici esperti di queste patologie\n\n\nPorre domande agli esperti in diretta relative alla gestione dei sintomi\, le terapie\, le comorbidità e molto altro\n\n\nAggiornarvi in merito alle ultime ricerche scientifiche con l’aiuto di medici esperti italiani\n\n\nFare rete e instaurare connessioni con la comunità locale dedicata a NMOSD\, MOGAD ed encefalite\n\nIl pranzo e il calore di TSF sono inclusi! \n  \nDopo l’evento\, siete tutti invitati a partecipare alla partita di calcio della nazionale italiana artisti TV vs Life Ritorno alla Vita presso lo Stadio di Via Sogare 9c di Verona\, una partita di beneficenza per la ricerca in Neuroimmunologia il cui ingresso è a offerta libera. \n  \nNon vediamo l’ora di incontrarvi! \n  \nThe Sumaira Foundation team \n  \nL’evento è reso possibile grazie al supporto di UCB.
URL:https://www.sumairafoundation.org/event/giornata-dedicata-ai-pazienti-con-nmosd-mogad-ed-encefalite-verona/
LOCATION:Best Western Plus Hotel Expo\, Via Portogallo\, 1p\, Verona\, Italy
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/10/Verona-Patient-Day-presentation-mode.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20231120T180000
DTEND;TZID=Europe/Paris:20231120T190000
DTSTAMP:20260405T175955
CREATED:20231106T153821Z
LAST-MODIFIED:20231106T153821Z
UID:15405-1700503200-1700506800@www.sumairafoundation.org
SUMMARY:Nouveautés de la Recherches: ECTRIMS 2023
DESCRIPTION:TSF France vous invite à rejoindre notre prochain webinaire mettant en vedette le Pr. Romain Marignier et Dr Julie Pique\, neurologues à Hospices Civils de Lyon | Hôpital Neurologique. \nLes experts présenteront les derniers résultats et développements de la recherche sur le NMOSD et le MOGAD lors de l’ECTRIMS 2023\, la plus grande conférence sur la SEP\, le NMOSD et le MOGAD au monde. \nCet événement est rendu possible grâce au parrainage de l’éducation des patients et au soutien d’Horizon Therapeutics.
URL:https://www.sumairafoundation.org/event/nouveautes-de-la-recherches-ectrims-2023/
LOCATION:Virtual: France\, France
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/11/ECTRIMS-2023.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231123T200000
DTEND;TZID=America/New_York:20231123T210000
DTSTAMP:20260405T175955
CREATED:20230116T195537Z
LAST-MODIFIED:20230207T174747Z
UID:12500-1700769600-1700773200@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-24/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20231128T180000
DTEND;TZID=Africa/Johannesburg:20231128T190000
DTSTAMP:20260405T175955
CREATED:20231031T200620Z
LAST-MODIFIED:20231031T200620Z
UID:15260-1701194400-1701198000@www.sumairafoundation.org
SUMMARY:HCP South Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/hcp-south-africa-8/
LOCATION:Virtual: South Africa\, South Africa
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/04/SOUTH-AFRICA-The-Human-Collective-Project-Facebook-Cover-1200-×-676-px.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20231130T190000
DTEND;TZID=Europe/Amsterdam:20231130T200000
DTSTAMP:20260405T175955
CREATED:20231031T201025Z
LAST-MODIFIED:20231031T201300Z
UID:15262-1701370800-1701374400@www.sumairafoundation.org
SUMMARY:Online lotgenotencontact voor mensen met NMOSD of MOGAD
DESCRIPTION:We wisselen ervaringen en tips uit om zo elkaar in een veilige omgeving te ondersteunen. Onderdeel van de “Human Collective Project (HCP) Meetings” van de Sumaira Foundation. Deze lotgenotencontacten worden in verschillende talen aangeboden.\n\nAanmelden voor deze bijeenkomst kan via: ZOOM
URL:https://www.sumairafoundation.org/event/online-lotgenotencontact-voor-mensen-met-nmosd-of-mogad/
LOCATION:Virtual: Amsterdam\, Netherlands
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/10/6800bd24-6a5c-480e-beac-171c63739d9f-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231201T083000
DTEND;TZID=America/New_York:20231201T093000
DTSTAMP:20260405T175955
CREATED:20231108T183046Z
LAST-MODIFIED:20231108T183046Z
UID:15443-1701419400-1701423000@www.sumairafoundation.org
SUMMARY:Demystifying NMOSD & MOGAD: An Expert Perspective for Patients
DESCRIPTION:Have you or any of your loved ones been diagnosed with NMOSD or MOGAD and you’re looking for answers? \nNMOSD and MOGAD are rare autoimmune diseases involving demyelination or inflammation of the central nervous system. They are often misdiagnosed as multiple sclerosis but are distinct diseases and require different treatment approaches. \nJoin Dr. Lekha Pandit\, internationally recognized expert specializing in these diseases\, as she breaks down NMOSD and MOGAD for patients and answers their questions live. \nThis first-of-its-kind webinar for Indian patients\, is brought to you by The Sumaira Foundation\, and was made possible through a patient education grant by Horizon Therapeutics. \nThis webinar will be recorded and available for replay on TSF’s Multimedia Library and YouTube channel.
URL:https://www.sumairafoundation.org/event/demystifying-nmosd-mogad-an-expert-perspective-for-patients/
LOCATION:Virtual: India\, India
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/11/Lekha-Pandit.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20231201T190000
DTEND;TZID=Europe/Paris:20231201T200000
DTSTAMP:20260405T175955
CREATED:20231031T193004Z
LAST-MODIFIED:20231031T193004Z
UID:15244-1701457200-1701460800@www.sumairafoundation.org
SUMMARY:Le Projet Collectif Humain
DESCRIPTION:The Human Collective Project (HCP) est la réunion du groupe de soutien de TSF offerte à toute personne affectée par la NMOSD ou la MOGAD. Le programme a vu le jour au plus fort de la pandémie de COVID-19 en 2020\, lorsque la plupart des patients NMOSD/MOGAD se sentaient particulièrement isolés et vulnérables au coronavirus en tant que patient dit “vulnérable” de part son traitement contre ma maladie.\nL’isolement que beaucoup d’entre nous avons vécu a révélé un grand besoin et une opportunité pour nous de nous connecter de manière significative pour nous offrir notre soutien les uns aux autres. \nDepuis 2020\, nous avons élargi le programme pour offrir plus de sessions dans plusieurs zones géographiques afin de garantir que tous les membres des communautés NMOSD/MOGAD se sentent accueillis et inclus. Comme nous le disons toujours\, HCP est un excellent moyen de rencontrer d’autres personnes dans des circonstances similaires dans cette communauté rare; c’est un espace sûr pour rire\, pleurer\, évacuer\, partager les victoires\, etc. Ce programme est piloté et dirigé par les patients et soignants ambassadeurs de TSF dans le monde entier.
URL:https://www.sumairafoundation.org/event/le-projet-collectif-humain-8/
LOCATION:Virtual: France\, France
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/03/France-The-Human-Collective-Project-169-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231207T200000
DTEND;TZID=America/New_York:20231207T210000
DTSTAMP:20260405T175955
CREATED:20230116T195638Z
LAST-MODIFIED:20230207T174833Z
UID:12502-1701979200-1701982800@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-25/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20231216
DTEND;VALUE=DATE:20231218
DTSTAMP:20260405T175955
CREATED:20230921T193524Z
LAST-MODIFIED:20231031T120656Z
UID:14790-1702684800-1702857599@www.sumairafoundation.org
SUMMARY:Journée des patients et aidants pour NMOSD & MOGAD - Paris
DESCRIPTION:Vous êtes invités à rejoindre la 1ère Journée Patients NMOSD & MOGAD de TSF France à Paris!\n\n\nVenez rencontrer des experts\, suivre nos ateliers\, rencontrer les différents acteurs de NMOSD et de MOGAD. Venez mettre en lumière la NMOSD et la MOGAD avec Sumaira et TSF France.\n\n\nPour vous inscrire\, visitez www.tinyurl.com/TSFParis\n\n\nÉvénement gratuit organisé par TSF France avec le soutien de Horizon Therapeutics\, Alexion Pharmaceuticals et UCB.\n\n\nÀ bientôt!\nThe Sumaira Foundation France (Bérengère\, Fatiha\, Elodie\, Nelly et Emma)
URL:https://www.sumairafoundation.org/event/journee-des-patients-et-aidants-pour-nmosd-mogad-paris/
LOCATION:Villa Lemons\, 5 Impasse Mousset\, Paris\, 75012\, France
CATEGORIES:Patient Days,TSF France
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2023/09/12.16.2023.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231221T200000
DTEND;TZID=America/New_York:20231221T210000
DTSTAMP:20260405T175955
CREATED:20230116T195658Z
LAST-MODIFIED:20230315T212402Z
UID:12504-1703188800-1703192400@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-26/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
END:VCALENDAR