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SUMMARY:TSF'S Human Collective Project (HCP) | North America
DESCRIPTION:TSF’S Human Collective Project (HCP) | North America \nThe Human Collective Project (HCP) is TSF’s peer support program for individuals living with or impacted by rare neuroimmune and related conditions\, including: \n– Autoimmune encephalitis (AE)\n– Chronic inflammatory demyelinating polyneuropathy (CIDP)\n– CNS vasculitis\n– IgG4-related disease (IgG4-RD)\n– Myasthenia gravis (MG)\n– Multifocal motor neuropathy (MMN)\n– Myelin oligodendrocyte glycoprotein antibody-associated disease (MOGAD)\n– Neurosarcoidosis\n– Neuromyelitis optica spectrum disorder (NMOSD)\n– Thyroid eye disease (TED)\n– Transverse myelitis (TM)\n– Stiff person syndrome (SPS) \nLaunched in 2020 during the COVID-19 pandemic\, HCP was created to help people feel less isolated and more connected to others who understand their experiences. \nToday\, HCP provides a welcoming\, supportive space to share experiences\, celebrate wins\, vent\, laugh\, cry\, and connect with others who understand the challenges of living with these conditions. Sessions are led by TSF Patient and Caregiver Ambassadors and are open to anyone impacted by the conditions listed above. \nYou can register HERE.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-57/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group
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DTSTART;TZID=America/New_York:20261213T110000
DTEND;TZID=America/New_York:20261213T120000
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CREATED:20260522T092417Z
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SUMMARY:TSF HCP Caregivers - Medication Management
DESCRIPTION:The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation\, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe\, inclusive space for family members\, partners\, siblings\, children\, and loved ones to connect\, share\, and be heard. Led by our dedicated Caregiver Ambassadors\, who bring their own lived experience and empathy to the conversation\, participants can expect heartfelt conversations\, mutual support\, and practical insights into the caregiving journey. Whether you’re navigating the emotional\, physical\, or logistical challenges of caregiving\, this group is designed to uplift and empower you through community\, compassion\, and connection.
URL:https://www.sumairafoundation.org/event/tsf-hcp-caregivers-medication-management/
LOCATION:Virtual: Global
CATEGORIES:Support Group
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