Approved NMOSD Therapies
2024-06-21 12:00 - 13:00 (America/New_York) | Virtual: Global
In 2014, there were 0 FDA-approved therapies for patients living with neuromyelitis optica spectrum disorder (NMOSD). In 2024, there are 4 efficacious, FDA-approved therapies available for patients living with NMOSD.
You’re invited to “Approved NMOSD Therapies” a live webinar during which Dr. Sean Pittock* of the Mayo Clinic will provide overviews (pharmacology, drug delivery method, dosing, frequency, side effects, reduction in relapse rates, antibody criteria, etc.) of each approved therapy.
We invite patients, caregivers, clinicians, researchers, advocates, industry professionals or anyone interested in NMOSD to join this educational program. Live attendees will have the opportunity to ask Dr. Pittock questions in real time.
This webinar will be recorded and made available for replay on TSF’s YouTube channel and global website.
*Sean J. Pittock, M.D.
Consultant, Department of Neurology
Professor of Neurology
Marilyn A Park and Moon S. Park, M.D. Director of the Mayo Clinic’s Center for Multiple Sclerosis and Autoimmune Neurology,
Applebaum Family Professor of Neurosciences

Human Collective Project | South Africa
2024-06-25 18:00 - 19:00, 2024-07-30 18:00 - 19:00, 2024-09-24 18:00 - 19:00, 2024-10-22 18:00 - 19:00 (Africa/Johannesburg) | ON
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.

Le Projet Collectif Humain
2024-06-27 20:00 - 21:00 (Europe/Paris) | Virtual: France, France
The Human Collective Project (HCP) est la réunion du groupe de soutien de TSF offerte à toute personne affectée par la NMOSD ou la MOGAD. Le programme a vu le jour au plus fort de la pandémie de COVID-19 en 2020, lorsque la plupart des patients NMOSD/MOGAD se sentaient particulièrement isolés et vulnérables au coronavirus en tant que patient dit “vulnérable” de part son traitement contre ma maladie.
L’isolement que beaucoup d’entre nous avons vécu a révélé un grand besoin et une opportunité pour nous de nous connecter de manière significative pour nous offrir notre soutien les uns aux autres.
Depuis 2020, nous avons élargi le programme pour offrir plus de sessions dans plusieurs zones géographiques afin de garantir que tous les membres des communautés NMOSD/MOGAD se sentent accueillis et inclus. Comme nous le disons toujours, HCP est un excellent moyen de rencontrer d’autres personnes dans des circonstances similaires dans cette communauté rare; c’est un espace sûr pour rire, pleurer, évacuer, partager les victoires, etc. Ce programme est piloté et dirigé par les patients et soignants ambassadeurs de TSF dans le monde entier.

Mi enfermedad ¿Tierra o Sol?
2024-07-04 19:00 - 20:00 (America/Bogota) | Virtual: Colombia, Colombia
Convivir con un diagnóstico médico puede representar desafíos en diferentes áreas, pero ¿Eso significa necesariamente que se convierte en el sol alrededor del que todos los planos de mi vida giran? ¿Qué hay de si también planteamos la posibilidad de que podría ser como el planeta Tierra?, que si bien tiene al Sol como referencia para moverse, tiene vida propia más allá de él.
En julio, queremos hablar de la salud mental. La psicóloga Silvia Guzmán nos lleva a un espacio reflexivo para cavilar sobre estas preguntas y conocer cómo los procesos psicológicos como el pensamiento, la motivación y la emoción, influyen en la convivencia con la enfermedad. Al final, podrás responderte: “mi enfermedad ¿Tierra o Sol?. Acompáñanos el próximo 4 de julio a las 7 pm COT.

Il progetto collettivo umano (HCP) | Italia
2024-07-08 18:30 - 19:30 (Europe/Rome) | Virtual: Italy, Italy
The Human Collective Project (HCP) è l’incontro del gruppo di supporto di TSF offerto a chiunque sia stato colpito/colpito da NMOSD/MOGAD. Il programma è nato durante il culmine della pandemia di COVID-19 nel 2020, quando la maggior parte dei NMOSD/MOGAD si sentiva particolarmente isolata e vulnerabile al coronavirus come membri della società immunosoppressi/immunocompromessi. L’isolamento che molti di noi hanno vissuto ha svelato un grande bisogno e un’opportunità per noi di connetterci in modo significativo per offrire il nostro sostegno reciproco.
Dal 2020, abbiamo ampliato il programma per offrire più sessioni in più aree geografiche per garantire che tutti nelle comunità NMOSD/MOGAD si sentano accolti e inclusi. Come diciamo sempre, HCP è un ottimo modo per incontrare altri in circostanze simili in questa rara comunità; è uno spazio sicuro per ridere, piangere, sfogarsi, condividere vittorie, ecc. Questo programma è guidato e guidato dagli ambasciatori di pazienti e caregiver di TSF in tutto il mondo.

TSF's Human Collective Project Meetings
2024-07-11 20:00 - 21:00, 2024-08-08 20:00 - 21:00, 2024-09-12 20:00 - 21:00, 2024-10-10 20:00 - 21:00 (America/New_York) | Virtual: United States, United States
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
Since 2020, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh, cry, vent, share wins, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.

10 Years of TSF
2024-07-18 19:00 - 23:00 (America/New_York) | Nikolai’s Roof, 255 Courtland Street, Atlana, GA, 30303, United States
You’re invited to celebrate 10 years of TSF!
Join us on Thursday, July 18th at 7:00 PM for an evening of music, dancing, food/drinks and nostalgia as we commemorate a decade of impact while raising funds to support NMOSD and MOGAD research around the world. This social event will take place at Nikolai’s Roof (at Hilton Atlanta) the night before AAN’s Summer Conference dedicated to Autoimmune Neurology commences.
Don’t miss out on this special evening with friends, colleagues and supporters from all over the globe. Let’s raise a toast to the next ten years of rare disease advocacy and research!
Early-bird tickets are available until June 30, 2024. Prices go up on July 1st.
See you soon
The Sumaira Foundation

TSF's Atlanta Patient Day for NMOSD & MOGAD
2024-07-21 11:00 - 17:00 (America/New_York) | Emory Brain Health Center, 12 Executive Park Dr NE, Atlana, 30329, United States
Are you an NMOSD/MOGAD patient, caregiver, clinician, nurse, researcher and/or advocate in or around Georgia? You’re invited to our special day on Sunday, July 21st at 11 AM at Emory Brain Health Center.
In collaboration with Dr. Grace Gombolay & Dr. Spencer Hutto (Emory) and Dr. Mitzi Joi Williams (Joi Life Wellness), The Sumaira Foundation is pleased to invite you to TSF’s Atlanta Patient Day, a special day dedicated to NMOSD & MOGAD patients, caregivers, clinicians and researchers.
Join us for a day of education, community, and fun to:

Meet local NMOSD & MOGAD patients, caregivers and clinicians
Ask experts questions in real time about symptom management, treatments and therapies, co-morbidities and more

Learn about updates on the latest research and findings from local key opinion leaders

This is a free event and lunch will be served. We’re excited to see you in Atlanta!
The Sumaira Foundation team

Iranian Insights: Treatment Strategy for MOGAD: Acute & Maintenance Therapy
2024-07-26 18:30 - 19:30 (Asia/Tehran) | Virtual: Global
TSF is pleased to provide the Iranian neurology community around the globe with another lecture and case discussion: Treatment Strategy for MOGAD: Acute & Maintenance Therapy led by Dr. Sara Mariotto, neuroimmunologist and global NMOSD/MOGAD expert.
We invite clinicians & researchers from all over the world to join this important discussion.
This series is being organized by Dr. Sara Samadzadeh (Charité Universitätsmedizin Berlin), Dr. Masoud Majed (Keck School of Medicine of USC), and Dr. Mohammad Ali Sahraian ( Tehran University of Medical Sciences).

TSF Plauderstunde | HCP Germany
2024-08-14 19:30 - 20:30, 2024-09-11 19:30 - 20:30, 2024-10-09 19:30 - 20:30 (Europe/Amsterdam) | Virtual: Germany, Germany
The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
Since launching in 2020, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh, cry, vent, share wins, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world.

HCP Turkey
2024-08-20 15:00 - 16:00 (Europe/Istanbul) | virtual: Turkey, Turkey
Ağustos nmo-sd/mog-ad toplantimiza tüm NMO-sd hastalarini ve aile fertleri davetlidir.
zoom toplantimizda dr.Rabia ve dr.Meral Nmo ile ilgili sorulari cevaplayacaktir.
aşağıdaki belirtilmis olan linkten kaydinizi oluşturabilirsiniz

saygılarımla
Sumaira Türkiye
Fatih Şen

Tratamientos para el NMOSD
2024-08-21 18:00 - 19:00 (America/Bogota) | Virtual: Colombia, Colombia
El jueves 21 de agosto a las 6pm hora Colombia, el Dr Carlos Navas de Colombia y el Dr Edgar Carnero de Argentina nos contarán los tratamientos para NMOSD. ¡¡Acompáñanos!!

Verständnis von MOGAD und der Bedeutung der Patientenbeteiligung an klinischen Studien
2024-08-23 14:00 - 15:00 (America/New_York) | ON
TSF Deutschland lädt deutschsprachige MOGAD-Patienten, Pflegekräfte und Kliniker ein, an unserem kommenden Live-Webinar “Verständnis von MOGAD und der Bedeutung der Patientenbeteiligung an klinischen Studien – mit Professor Friedemann Paul, Neuroimmunologe an der Charité – Universitätsmedizin Berlin” teilzunehmen.
Live-Teilnehmer haben die Möglichkeit, Prof. Paul in Echtzeit Fragen zu stellen.
Diese Sitzung wird aufgezeichnet und kann danach auf dem YouTube-Kanal von TSF wiedergegeben werden.
Dieses Programm wurde mit Unterstützung von UCB ermöglicht.

TSF's Exclusive TEEN & Young Adult HCP Meeting
2024-08-29 19:00 - 20:00 (America/New_York) | Virtual: Global
Are you a teen or young adult affected by rare neuroimmune disorders such as NMOSD or MOGAD? All are welcome between the ages of 13-25.
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
Since 2020, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh, cry, vent, share wins, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.

Le Projet Collectif Humain (HCP) | Français
2024-08-29 20:00 - 21:00, 2024-09-26 20:00 - 21:00 (Europe/Paris) | Virtual: France, France

Iranian Insights: Diagnostic Assays
2024-08-30 18:00 - 19:00 (Asia/Tehran) | Virtual: Iran, Iran, Islamic Republic of
TSF is pleased to provide the Iranian neurology community around the globe with another lecture and case discussion: Diagnostic Assays led by Prof. Patrick Waters from the University of Oxford.
We invite clinicians & researchers from all over the world to join this important discussion.
This series is being organized by Dr. Sara Samadzadeh (Charité Universitätsmedizin Berlin), Dr. Masoud Majed (Keck School of Medicine of USC), and Dr. Mohammad Ali Sahraian ( Tehran University of Medical Sciences).

TSF's 7th Annual Gala
2024-09-17 19:00 - 22:00 (Europe/Copenhagen) | National Aquarium of Denmark, Jacob Fortlingsvej 1, 2770 Kastrup, Denmark
Are you attending ECTRIMS in Copenhagen? You’re invited to attend The Sumaira Foundation’s 7th Annual Gala!
Join us for a memorable evening in Copenhagen filled with elegance, entertainment, and giving back. TSF’s first international hala will take place on Tuesday, September 17th at 7:00 PM at the National Aquarium Denmark, Europe’s largest aquarium.
Proceeds from this fundraiser will enable TSF to continue funding research and fellowships around the globe. Tax-deductible tickets are available until September 16th.
Get ready to dress to impress and enjoy a night of celebration for a great cause. This event is black-tie optional. Because this is TSF’s first international gala, we are encouraging our attendees to dress in formal attire from their country or favorite part of the world.
We can’t wait to illuminate NMOSD & MOGAD under the sea with you!

ECTRIMS Patient Community Day
2024-09-20 15:00 - 18:00 (Europe/Copenhagen) | Bella Center Copenhagen, Entrance B0, Emma Gads Vej 43, 2300 Copenhagen S, Copenhagen, Denmark
Join us on 20 September 2024 for ECTRIMS Patient Community Day – an exclusive, free event designed for individuals living with MOGAD, MS, NMOSD and related neurological conditions.

Patient Community Day is an opportunity to learn about the latest research advancements directly impacting your ongoing care and treatment options. The programme will include engaging roundtable discussions led by international experts, insightful Q&A sessions, and a multilingual experience ensuring accessibility for all.

This event is FREE to attend. Pre-registration is required. It will be held in English, with live translations in 50+ languages!

Have a research question about your condition that you would like answered during the event? As part of the interactive nature of the event, we invite you to actively participate in our #ECTRIMS4me campaign. Your questions and concerns will shape the agenda, making this event a true reflection of community-driven support and advocacy.

Send in your question https://bit.ly/4562FhC

Join us as we push the boundaries of knowledge and forge a stronger path toward collective support and well-being.

Iranian Insights: NMOSD Treatments
2024-09-27 09:00 - 10:00 (Europe/Paris) | Virtual: Global
TSF is pleased to provide the Iranian neurology community around the globe with another lecture and case discussion: NMOSD Treatments led by Prof. Romain Marignier, neuroimmunologist and global NMOSD/MOGAD expert.
We invite clinicians & researchers from all over the world to join this important discussion.
This series is being organized by Prof. Mohammad Ali Sahraian (Tehran University of Medical Sciences), Dr. Sara Samadzadeh (Charité Universitätsmedizin Berlin) and Dr. Masoud Majed (Keck School of Medicine of USC).

NEMOS Patient:innentag 2024
2024-10-02 10:00 - 17:00 (Europe/Berlin) | Frankfurt am Main, Otto-Fleck-Schneise 4, 60528 Frankfurt am Main, Germany
Expert:innen informieren über Diagnose und Therapie derNMOSD (Neuromyelitis optica-Spektrum-Erkrankungen) und MOGAD
(MOG-Antikörpervermittelte Erkrankungen).
Natürlich besteht ausgiebig Möglichkeit für Fragen und für den Austausch mit anderen Betroffenen.

TSF's Miami Patient Day for NMOSD & MOGAD
2024-10-05 11:00 - 17:00 (America/New_York) | Margaritaville Hollywood Beach Resort, 1111 N Ocean Dr, Hollywood, 33019, United States
TSF is coming to Miami!

Are you an NMOSD/MOGAD patient, caregiver, clinician, nurse, researcher and/or advocate in Florida? You’re invited to our event on Saturday, October 5th at 11 AM at Margaritaville Hollywood Beach Resort.

Join us for a day of education, community, and fun to:

Meet local NMOSD & MOGAD patients, caregivers and clinicians
Ask experts questions in real time about symptom management, treatments and therapies, co-morbidities and more
Learn about updates on the latest research and findings from local key opinion leaders
PLUS! We’ll have an educational and interactive session in Spanish led by local experts.

This in-person event is free and lunch will be served. We can’t wait to see you in Miami!
The Sumaira Foundation team
