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DTSTART;TZID=America/New_York:20260126T200000
DTEND;TZID=America/New_York:20260126T210000
DTSTAMP:20260403T180303
CREATED:20260126T221135Z
LAST-MODIFIED:20260126T221135Z
UID:21137-1769457600-1769461200@www.sumairafoundation.org
SUMMARY:Human Collective Project | Mental Health Mondays
DESCRIPTION:The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients\, caregivers\, and loved ones ride the rollercoaster of feelings throughout their daily lives\, from the moment of symptom onset. Often\, getting the proper diagnosis is a journey of its own\, and dealing with life’s difficulties after that can include stressors that only others in your situation may understand. These meetings will offer a safe space for people to come together\, share their stories\, and highlight how they are coping with everyday challenges. We will discuss a range of mental health topics and have occasional special guest speakers join our meetings. So\, whether you are newly diagnosed or a seasoned zebra\, we hope to provide a space to help guide personal growth.
URL:https://www.sumairafoundation.org/event/human-collective-project-mental-health-mondays-3/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/10/HCP-Master-169-Facebook-Cover-3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260212T200000
DTEND;TZID=America/New_York:20260212T210000
DTSTAMP:20260403T180303
CREATED:20260126T221353Z
LAST-MODIFIED:20260126T221512Z
UID:21140-1770926400-1770930000@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. Since 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-49/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2026/01/580539276_814407297887099_8833406591562928552_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20260128T190000
DTEND;TZID=Africa/Johannesburg:20260128T200000
DTSTAMP:20260403T180303
CREATED:20260127T151459Z
LAST-MODIFIED:20260127T151459Z
UID:21148-1769626800-1769630400@www.sumairafoundation.org
SUMMARY:HCP South Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.  Since 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the Rare Neuroimmune community feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide. \n 
URL:https://www.sumairafoundation.org/event/hcp-south-africa-12/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/01/HCP-Master-169-Facebook-Cover.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260126T200000
DTEND;TZID=America/New_York:20260126T210000
DTSTAMP:20260403T180303
CREATED:20260126T221135Z
LAST-MODIFIED:20260126T221135Z
UID:21137-1769457600-1769461200@www.sumairafoundation.org
SUMMARY:Human Collective Project | Mental Health Mondays
DESCRIPTION:The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients\, caregivers\, and loved ones ride the rollercoaster of feelings throughout their daily lives\, from the moment of symptom onset. Often\, getting the proper diagnosis is a journey of its own\, and dealing with life’s difficulties after that can include stressors that only others in your situation may understand. These meetings will offer a safe space for people to come together\, share their stories\, and highlight how they are coping with everyday challenges. We will discuss a range of mental health topics and have occasional special guest speakers join our meetings. So\, whether you are newly diagnosed or a seasoned zebra\, we hope to provide a space to help guide personal growth.
URL:https://www.sumairafoundation.org/event/human-collective-project-mental-health-mondays-3/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/10/HCP-Master-169-Facebook-Cover-3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260212T200000
DTEND;TZID=America/New_York:20260212T210000
DTSTAMP:20260403T180303
CREATED:20260126T221353Z
LAST-MODIFIED:20260126T221512Z
UID:21140-1770926400-1770930000@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. Since 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-49/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2026/01/580539276_814407297887099_8833406591562928552_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260126T200000
DTEND;TZID=America/New_York:20260126T210000
DTSTAMP:20260403T180303
CREATED:20260126T221135Z
LAST-MODIFIED:20260126T221135Z
UID:21137-1769457600-1769461200@www.sumairafoundation.org
SUMMARY:Human Collective Project | Mental Health Mondays
DESCRIPTION:The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients\, caregivers\, and loved ones ride the rollercoaster of feelings throughout their daily lives\, from the moment of symptom onset. Often\, getting the proper diagnosis is a journey of its own\, and dealing with life’s difficulties after that can include stressors that only others in your situation may understand. These meetings will offer a safe space for people to come together\, share their stories\, and highlight how they are coping with everyday challenges. We will discuss a range of mental health topics and have occasional special guest speakers join our meetings. So\, whether you are newly diagnosed or a seasoned zebra\, we hope to provide a space to help guide personal growth.
URL:https://www.sumairafoundation.org/event/human-collective-project-mental-health-mondays-3/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/10/HCP-Master-169-Facebook-Cover-3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20260128T190000
DTEND;TZID=Africa/Johannesburg:20260128T200000
DTSTAMP:20260403T180303
CREATED:20260127T151459Z
LAST-MODIFIED:20260127T151459Z
UID:21148-1769626800-1769630400@www.sumairafoundation.org
SUMMARY:HCP South Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.  Since 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the Rare Neuroimmune community feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide. \n 
URL:https://www.sumairafoundation.org/event/hcp-south-africa-12/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/01/HCP-Master-169-Facebook-Cover.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260212T200000
DTEND;TZID=America/New_York:20260212T210000
DTSTAMP:20260403T180303
CREATED:20260126T221353Z
LAST-MODIFIED:20260126T221512Z
UID:21140-1770926400-1770930000@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. Since 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-49/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2026/01/580539276_814407297887099_8833406591562928552_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20260128T190000
DTEND;TZID=Africa/Johannesburg:20260128T200000
DTSTAMP:20260403T180303
CREATED:20260127T151459Z
LAST-MODIFIED:20260127T151459Z
UID:21148-1769626800-1769630400@www.sumairafoundation.org
SUMMARY:HCP South Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.  Since 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the Rare Neuroimmune community feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide. \n 
URL:https://www.sumairafoundation.org/event/hcp-south-africa-12/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/01/HCP-Master-169-Facebook-Cover.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260126T200000
DTEND;TZID=America/New_York:20260126T210000
DTSTAMP:20260403T180303
CREATED:20260126T221135Z
LAST-MODIFIED:20260126T221135Z
UID:21137-1769457600-1769461200@www.sumairafoundation.org
SUMMARY:Human Collective Project | Mental Health Mondays
DESCRIPTION:The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients\, caregivers\, and loved ones ride the rollercoaster of feelings throughout their daily lives\, from the moment of symptom onset. Often\, getting the proper diagnosis is a journey of its own\, and dealing with life’s difficulties after that can include stressors that only others in your situation may understand. These meetings will offer a safe space for people to come together\, share their stories\, and highlight how they are coping with everyday challenges. We will discuss a range of mental health topics and have occasional special guest speakers join our meetings. So\, whether you are newly diagnosed or a seasoned zebra\, we hope to provide a space to help guide personal growth.
URL:https://www.sumairafoundation.org/event/human-collective-project-mental-health-mondays-3/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/10/HCP-Master-169-Facebook-Cover-3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260212T200000
DTEND;TZID=America/New_York:20260212T210000
DTSTAMP:20260403T180303
CREATED:20260126T221353Z
LAST-MODIFIED:20260126T221512Z
UID:21140-1770926400-1770930000@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. Since 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-49/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2026/01/580539276_814407297887099_8833406591562928552_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260126T200000
DTEND;TZID=America/New_York:20260126T210000
DTSTAMP:20260403T180303
CREATED:20260126T221135Z
LAST-MODIFIED:20260126T221135Z
UID:21137-1769457600-1769461200@www.sumairafoundation.org
SUMMARY:Human Collective Project | Mental Health Mondays
DESCRIPTION:The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients\, caregivers\, and loved ones ride the rollercoaster of feelings throughout their daily lives\, from the moment of symptom onset. Often\, getting the proper diagnosis is a journey of its own\, and dealing with life’s difficulties after that can include stressors that only others in your situation may understand. These meetings will offer a safe space for people to come together\, share their stories\, and highlight how they are coping with everyday challenges. We will discuss a range of mental health topics and have occasional special guest speakers join our meetings. So\, whether you are newly diagnosed or a seasoned zebra\, we hope to provide a space to help guide personal growth.
URL:https://www.sumairafoundation.org/event/human-collective-project-mental-health-mondays-3/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/10/HCP-Master-169-Facebook-Cover-3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20260128T190000
DTEND;TZID=Africa/Johannesburg:20260128T200000
DTSTAMP:20260403T180303
CREATED:20260127T151459Z
LAST-MODIFIED:20260127T151459Z
UID:21148-1769626800-1769630400@www.sumairafoundation.org
SUMMARY:HCP South Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.  Since 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the Rare Neuroimmune community feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide. \n 
URL:https://www.sumairafoundation.org/event/hcp-south-africa-12/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/01/HCP-Master-169-Facebook-Cover.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260620T110000
DTEND;TZID=America/Chicago:20260620T170000
DTSTAMP:20260403T180303
CREATED:20260403T162858Z
LAST-MODIFIED:20260403T162858Z
UID:21638-1781953200-1781974800@www.sumairafoundation.org
SUMMARY:Rochester Patient Day for Rare Neuroinflammatory & Related Disorders
DESCRIPTION:TSF is inviting patients and caregivers impacted by rare neuroinflammatory & related disorders from Minnesota and the upper Midwest region! \n\n\n\n\nWe’re coming to Rochester! \nAre you or your loved one impacted by: AE*\, CIDP*\, CNS Vasculitis*\, MG*\, MOGAD*\, neurosarcoidosis\, NMOSD*\, or SPS*? You’re invited to our event on Saturday\, June 20th. \nJoin us for a day of education\, community and fun to: \n\nMeet local patients\, partners\, care-partners and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, comorbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis event is being organized in collaboration with Dr. Eoin Flanigan (Mayo Clinic Rochester) and Dr. John Chen (Mayo Clinic Rochester) and in partnership with Autoimmune Encephalitis Alliance\, MG Holistic Society and The Stiff Person Syndrome Research Foundation. \nRegistration is free and lunch will be served. We can’t wait to see you in Rochester! \nhttps://www.eventbrite.com/e/rochester-patient-day-for-rare-neuroinflammatory-related-disorders-tickets-1986578610100 \nThe Sumaira Foundation team \n— \nAE stands for autoimmune encephalitis \nCIDP stands for chronic inflammatory demyelinating polyneuropathy \nCNS Vasculitis stands for central nervous system vasculitis \nMG stands for myasthenia gravis \nMOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorder \nNMOSD stands for neuromyelitis optica spectrum disorder \nSPS stands for stiff person syndrome
URL:https://www.sumairafoundation.org/event/rochester-patient-day-for-rare-neuroinflammatory-related-disorders/
LOCATION:Mayo Civic Center\, 30 Civic Center Drive Southeast\, Rochester\, MN\, 55904\, United States
CATEGORIES:Community Event,TSF Patient Day
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/04/1920-x-1080-MAYO-CLINIC-Patient-Day-2026-.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260212T200000
DTEND;TZID=America/New_York:20260212T210000
DTSTAMP:20260403T180303
CREATED:20260126T221353Z
LAST-MODIFIED:20260126T221512Z
UID:21140-1770926400-1770930000@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. Since 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-49/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2026/01/580539276_814407297887099_8833406591562928552_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20260128T190000
DTEND;TZID=Africa/Johannesburg:20260128T200000
DTSTAMP:20260403T180303
CREATED:20260127T151459Z
LAST-MODIFIED:20260127T151459Z
UID:21148-1769626800-1769630400@www.sumairafoundation.org
SUMMARY:HCP South Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.  Since 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the Rare Neuroimmune community feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide. \n 
URL:https://www.sumairafoundation.org/event/hcp-south-africa-12/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/01/HCP-Master-169-Facebook-Cover.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260126T200000
DTEND;TZID=America/New_York:20260126T210000
DTSTAMP:20260403T180303
CREATED:20260126T221135Z
LAST-MODIFIED:20260126T221135Z
UID:21137-1769457600-1769461200@www.sumairafoundation.org
SUMMARY:Human Collective Project | Mental Health Mondays
DESCRIPTION:The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients\, caregivers\, and loved ones ride the rollercoaster of feelings throughout their daily lives\, from the moment of symptom onset. Often\, getting the proper diagnosis is a journey of its own\, and dealing with life’s difficulties after that can include stressors that only others in your situation may understand. These meetings will offer a safe space for people to come together\, share their stories\, and highlight how they are coping with everyday challenges. We will discuss a range of mental health topics and have occasional special guest speakers join our meetings. So\, whether you are newly diagnosed or a seasoned zebra\, we hope to provide a space to help guide personal growth.
URL:https://www.sumairafoundation.org/event/human-collective-project-mental-health-mondays-3/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/10/HCP-Master-169-Facebook-Cover-3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260212T200000
DTEND;TZID=America/New_York:20260212T210000
DTSTAMP:20260403T180303
CREATED:20260126T221353Z
LAST-MODIFIED:20260126T221512Z
UID:21140-1770926400-1770930000@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. Since 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-49/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2026/01/580539276_814407297887099_8833406591562928552_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260429T200000
DTEND;TZID=America/New_York:20260429T210000
DTSTAMP:20260403T180303
CREATED:20260403T184548Z
LAST-MODIFIED:20260403T184548Z
UID:21648-1777492800-1777496400@www.sumairafoundation.org
SUMMARY:Viviendo con NMOSD en América Latina: Desafíos y barreras en Argentina\, Colombia y México
DESCRIPTION:¿Tú o un ser querido viven con NMOSD en Latinoamérica? Únete al equipo de LatAm de The Sumaira Foundation para un webinar especial dedicado a explorar los desafíos únicos que enfrentan los pacientes con NMOSD en Argentina\, Colombia y México. \nEste webinar en español reunirá a destacados neurólogos de los tres países para analizar la realidad del diagnóstico de NMOSD en la región\, incluyendo las tasas de incidencia en comparación con los datos globales\, el proceso diagnóstico y las barreras que con demasiada frecuencia retrasan un diagnóstico oportuno. \nPonentes Destacados: \n\nDra. Maria Eugenia Balbuena (Argentina)\nDr. Luis Alfonso Zarco (Colombia)\nDr. Jose Flores-Rivera (México)\n\nTambién escucharás un poderoso testimonio de primera mano de una Embajadora de NMOSD de TSF en México\, quien compartirá su experiencia personal en el camino hacia el diagnóstico. El webinar cerrará con una sesión abierta de preguntas y respuestas de 25 minutos\, brindando a los asistentes la oportunidad de hacer preguntas a nuestro panel de expertos en tiempo real. \nFecha: Martes\, 29 de abril de 2025 (90 minutos) \nHorarios Locales: \n\n🇲🇽 México: 7:00 PM CST\n🇨🇴 Colombia: 8:00 PM COT\n🇦🇷 Argentina: 10:00 PM ART\n\nhttps://us02web.zoom.us/webinar/register/WN_ODczM1smTO2YdIBfXGZ7iA  \nYa seas paciente\, cuidador o profesional de la salud\, este webinar es una oportunidad para obtener información valiosa sobre el estado de la atención del NMOSD en Latinoamérica y para conectar con una comunidad que trabaja para derribar barreras y mejorar los resultados para todos.
URL:https://www.sumairafoundation.org/event/viviendo-con-nmosd-en-america-latina-desafios-y-barreras-en-argentina-colombia-y-mexico/
LOCATION:Virtual: Colombia\, Colombia
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2026/04/LatAm_April-2026.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260429T200000
DTEND;TZID=Europe/Rome:20260429T210000
DTSTAMP:20260403T180303
CREATED:20260403T173821Z
LAST-MODIFIED:20260403T173821Z
UID:21645-1777492800-1777496400@www.sumairafoundation.org
SUMMARY:Per orientarsi: cognizione e sviluppo in pazienti pediatrici con MOGAD e NMOSD
DESCRIPTION:Il tuo bambino ha ricevuto una diagnosi di NMOSD o MOGAD? Ti stai chiedendo come la diagnosi potrebbe influire sul suo sviluppo cognitivo? \nUnisciti a noi martedì 29 aprile alle ore 20:00 CET per un webinar speciale con il Dott. Alberto Cossu\, neuropsichiatra infantile presso l’Azienda Ospedaliera Universitaria Integrata di Verona\, che approfondirà il rapporto tra cognizione e malattie neuroimmuni rare nei bambini.  https://us02web.zoom.us/webinar/register/WN_Q8_tN9ruSSCsezuPnDiixQ  \nIl Dott. Cossu condividerà la sua esperienza e sarà disponibile a rispondere alle vostre domande in tempo reale durante la sessione dal vivo. Il webinar sarà moderato da Viviana e Alice\, entrambe mamme di bambini con MOGAD. \nNon perdete questa opportunità di confrontarvi con un esperto e di entrare in contatto con una comunità che comprende il vostro percorso. \nQuesto programma è reso possibile grazie al supporto di Amgen e Alexion
URL:https://www.sumairafoundation.org/event/per-orientarsi-cognizione-e-sviluppo-in-pazienti-pediatrici-con-mogad-e-nmosd/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2026/04/Alberto-Cossu.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20260128T190000
DTEND;TZID=Africa/Johannesburg:20260128T200000
DTSTAMP:20260403T180303
CREATED:20260127T151459Z
LAST-MODIFIED:20260127T151459Z
UID:21148-1769626800-1769630400@www.sumairafoundation.org
SUMMARY:HCP South Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.  Since 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the Rare Neuroimmune community feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide. \n 
URL:https://www.sumairafoundation.org/event/hcp-south-africa-12/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/01/HCP-Master-169-Facebook-Cover.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260126T200000
DTEND;TZID=America/New_York:20260126T210000
DTSTAMP:20260403T180303
CREATED:20260126T221135Z
LAST-MODIFIED:20260126T221135Z
UID:21137-1769457600-1769461200@www.sumairafoundation.org
SUMMARY:Human Collective Project | Mental Health Mondays
DESCRIPTION:The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients\, caregivers\, and loved ones ride the rollercoaster of feelings throughout their daily lives\, from the moment of symptom onset. Often\, getting the proper diagnosis is a journey of its own\, and dealing with life’s difficulties after that can include stressors that only others in your situation may understand. These meetings will offer a safe space for people to come together\, share their stories\, and highlight how they are coping with everyday challenges. We will discuss a range of mental health topics and have occasional special guest speakers join our meetings. So\, whether you are newly diagnosed or a seasoned zebra\, we hope to provide a space to help guide personal growth.
URL:https://www.sumairafoundation.org/event/human-collective-project-mental-health-mondays-3/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/10/HCP-Master-169-Facebook-Cover-3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260412T110000
DTEND;TZID=America/New_York:20260412T120000
DTSTAMP:20260403T180303
CREATED:20260201T164201Z
LAST-MODIFIED:20260201T164501Z
UID:21207-1775991600-1775995200@www.sumairafoundation.org
SUMMARY:TSF HCP Caregivers - Coping with Caregiving Emotions
DESCRIPTION:The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation\, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe\, inclusive space for family members\, partners\, siblings\, children\, and loved ones to connect\, share\, and be heard. Led by our dedicated Caregiver Ambassadors\, who bring their own lived experience and empathy to the conversation\, participants can expect heartfelt conversations\, mutual support\, and practical insights into the caregiving journey. Whether you’re navigating the emotional\, physical\, or logistical challenges of caregiving\, this group is designed to uplift and empower you through community\, compassion\, and connection.
URL:https://www.sumairafoundation.org/event/tsf-hcp-caregivers-coping-with-caregiving-emotions/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/01/HCP-Caregiver-Visual-.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260212T200000
DTEND;TZID=America/New_York:20260212T210000
DTSTAMP:20260403T180303
CREATED:20260126T221353Z
LAST-MODIFIED:20260126T221512Z
UID:21140-1770926400-1770930000@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. Since 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-49/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2026/01/580539276_814407297887099_8833406591562928552_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260402T180000
DTEND;TZID=Europe/Rome:20260402T190000
DTSTAMP:20260403T180303
CREATED:20260317T185158Z
LAST-MODIFIED:20260317T185158Z
UID:21499-1775152800-1775156400@www.sumairafoundation.org
SUMMARY:Comprendere l’anticorpo AQP4 nella NMOSD
DESCRIPTION:L’AQP4 (Aquaporina-4) è una proteina presente nel cervello\, nel midollo spinale e nei nervi ottici che aiuta a regolare il movimento dell’acqua dentro e fuori dalle cellule. Nella NMOSD\, il sistema immunitario attacca per errore l’AQP4. Questo attacco può causare infiammazione nel midollo spinale e nei nervi ottici\, portando a sintomi come alterazioni della vista\, debolezza o intorpidimento. \nUnisciti a noi giovedì 2 aprile alle 18:00 (CET) per una presentazione e discussione approfondita sull’AQP4\, guidata dalla Dott.ssa Sara Mariotto\, neuroimmunologa presso l’Università di Verona. \nI partecipanti collegati in diretta avranno l’opportunità di porre domande alla Dott.ssa Mariotto in tempo reale. È richiesta la registrazione. https://us02web.zoom.us/webinar/register/WN_CDm8SEe2Rmea8yjKnZqVGg \nQuesto programma è reso possibile grazie al supporto di Amgen e Alexion.
URL:https://www.sumairafoundation.org/event/comprendere-lanticorpo-aqp4-nella-nmosd/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/03/Sara-Mariotto.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260126T200000
DTEND;TZID=America/New_York:20260126T210000
DTSTAMP:20260403T180303
CREATED:20260126T221135Z
LAST-MODIFIED:20260126T221135Z
UID:21137-1769457600-1769461200@www.sumairafoundation.org
SUMMARY:Human Collective Project | Mental Health Mondays
DESCRIPTION:The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients\, caregivers\, and loved ones ride the rollercoaster of feelings throughout their daily lives\, from the moment of symptom onset. Often\, getting the proper diagnosis is a journey of its own\, and dealing with life’s difficulties after that can include stressors that only others in your situation may understand. These meetings will offer a safe space for people to come together\, share their stories\, and highlight how they are coping with everyday challenges. We will discuss a range of mental health topics and have occasional special guest speakers join our meetings. So\, whether you are newly diagnosed or a seasoned zebra\, we hope to provide a space to help guide personal growth.
URL:https://www.sumairafoundation.org/event/human-collective-project-mental-health-mondays-3/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/10/HCP-Master-169-Facebook-Cover-3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260326T190000
DTEND;TZID=America/New_York:20260326T200000
DTSTAMP:20260403T180303
CREATED:20260302T170945Z
LAST-MODIFIED:20260313T133840Z
UID:21404-1774551600-1774555200@www.sumairafoundation.org
SUMMARY:Real-World Efficacy & Safety of NMOSD Treatments
DESCRIPTION:A recent study\, “Real‑World Efficacy and Safety of Neuromyelitis Optica Spectrum Disorder Disease‑Modifying Treatments\,” showed that in routine practice\, approved NMOSD therapies reduce relapse rates and offer better safety than older treatments\, reinforcing their value for patients. (Read the article here: https://pubmed.ncbi.nlm.nih.gov/41494145/) \nTo mark NMO Awareness Month 2026\, we’ll be joined by Dr. Shamik Bhattacharyya\, a lead author of this study\, who will discuss the benefits of FDA-approved NMOSD therapies versus non-approved first-line treatments. \nJoin us on Thursday\, March 26th at 4 PM PST / 7 PM EST. Attendees joining live will have the opportunity to participate in the live Q&A. \nThe webinar will be recorded and available for replay. Registration is required. \nThis educational program is made possible with support from Amgen and Alexion.
URL:https://www.sumairafoundation.org/event/real-world-efficacy-safety-of-nmosd-treatments/
LOCATION:Virtual: United States\, United States
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/03/Shamik-Bhattacharya.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20260128T190000
DTEND;TZID=Africa/Johannesburg:20260128T200000
DTSTAMP:20260403T180303
CREATED:20260127T151459Z
LAST-MODIFIED:20260127T151459Z
UID:21148-1769626800-1769630400@www.sumairafoundation.org
SUMMARY:HCP South Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.  Since 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the Rare Neuroimmune community feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide. \n 
URL:https://www.sumairafoundation.org/event/hcp-south-africa-12/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/01/HCP-Master-169-Facebook-Cover.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260324T130000
DTEND;TZID=America/New_York:20260324T140000
DTSTAMP:20260403T180303
CREATED:20260302T162110Z
LAST-MODIFIED:20260304T101921Z
UID:21398-1774357200-1774360800@www.sumairafoundation.org
SUMMARY:Terapie per la NMOSD in Italia
DESCRIPTION:In soli cinque anni\, la comunità NMOSD è passata da zero terapie approvate a quattro — un traguardo straordinario\, soprattutto considerando che solo circa il 5% delle malattie rare dispone di una terapia approvata. \nUnitevi a noi il 24 marzo: saremo in compagnia del Dr. Raffaele Iorio\, neuroimmunologo di Roma\, che presenterà una panoramica delle terapie per la NMOSD disponibili in Italia e illustrerà i principali progressi degli ultimi cinque anni\, seguita da una sessione di domande e risposte. https://us02web.zoom.us/webinar/register/WN_-pGC67FzTAqv8u9FRZGbWw \nIl webinar sarà registrato e reso disponibile per la visione successiva. \nQuesto programma educativo è stato realizzato con il supporto di Amgen. \n 
URL:https://www.sumairafoundation.org/event/terapie-per-la-nmosd-in-italia/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/03/Raffaele-Iorio-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260315T110000
DTEND;TZID=America/New_York:20260315T120000
DTSTAMP:20260403T180303
CREATED:20260201T163548Z
LAST-MODIFIED:20260201T165057Z
UID:21205-1773572400-1773576000@www.sumairafoundation.org
SUMMARY:TSF HCP Caregivers - Caregiver Burnout
DESCRIPTION:The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation\, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe\, inclusive space for family members\, partners\, siblings\, children\, and loved ones to connect\, share\, and be heard. Led by our dedicated Caregiver Ambassadors\, who bring their own lived experience and empathy to the conversation\, participants can expect heartfelt conversations\, mutual support\, and practical insights into the caregiving journey. Whether you’re navigating the emotional\, physical\, or logistical challenges of caregiving\, this group is designed to uplift and empower you through community\, compassion\, and connection.
URL:https://www.sumairafoundation.org/event/tsf-hcp-caregivers-caregiver-burnout/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/01/HCP-Caregiver-Visual-.png
END:VEVENT
END:VCALENDAR