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X-WR-CALDESC:Events for The Sumaira Foundation
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BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20230111T193000
DTEND;TZID=Europe/Amsterdam:20230111T203000
DTSTAMP:20260405T225723
CREATED:20221220T133906Z
LAST-MODIFIED:20230103T151137Z
UID:12079-1673465400-1673469000@www.sumairafoundation.org
SUMMARY:TSF Plauderstunde | HCP Germany
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOG-AD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOG-AD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOG-AD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/tsf-plauderstunde-hcp-germany/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:Support Group,TSF Events/Fundraisers
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/12/2.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230106T090000
DTEND;TZID=America/New_York:20230106T100000
DTSTAMP:20260405T225723
CREATED:20221221T125746Z
LAST-MODIFIED:20230103T151615Z
UID:12206-1672995600-1672999200@www.sumairafoundation.org
SUMMARY:Understanding Clinical Trials for MOGAD & the Importance of Patient Participation
DESCRIPTION:You’re invited to join TSF’s 1st live webinar of 2023 – Understanding Clinical Trials for MOGAD & the Importance of Patient Participation – on Friday\, January 6th featuring Dr. Michael Levy who will share updates about ongoing clinical trials for patients living with MOGAD. Additionally\, we will discuss the importance and value of patient participation in clinical research and trials for novel therapies. Attendees will have the opportunity to ask Dr. Levy questions in real time. \nThis webinar will be recorded and available for replay on TSF’s Facebook and YouTube libraries. \nThis webinar is sponsored by UCB.
URL:https://www.sumairafoundation.org/event/understanding-clinical-trials-for-mogad-the-importance-of-patient-participation/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2022/12/320019904_674636397736521_7721156511967542261_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230105T200000
DTEND;TZID=America/New_York:20230105T210000
DTSTAMP:20260405T225723
CREATED:20221220T140515Z
LAST-MODIFIED:20221220T140515Z
UID:12094-1672948800-1672952400@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOG-AD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOG-AD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOG-AD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-2/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:Support Group,TSF Events/Fundraisers
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221222T200000
DTEND;TZID=America/New_York:20221222T210000
DTSTAMP:20260405T225723
CREATED:20221220T140430Z
LAST-MODIFIED:20221220T140430Z
UID:12084-1671739200-1671742800@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOG-AD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOG-AD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOG-AD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:Support Group,TSF Events/Fundraisers
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221214T120000
DTEND;TZID=America/New_York:20221214T133000
DTSTAMP:20260405T225723
CREATED:20221212T210453Z
LAST-MODIFIED:20221220T142055Z
UID:11827-1671019200-1671024600@www.sumairafoundation.org
SUMMARY:SM\, NMOSD e MOGAD: Somiglianze e Differenze
DESCRIPTION:Unisciti a noi mercoledì 14 dicembre per il 1° webinar italiano della Fondazione Sumaira con la dott.ssa Sara Mariotto\, neurologa ed esperta di NMOSD/MOGAD che discuterà e risponderà alle domande sulle somiglianze e le differenze tra NMOSD e MOGAD. \nI partecipanti avranno l’opportunità di porre domande alla Dr. ssa Mariotto dal vivo ed in italiano. Il webinar sarà registrato e sarà disponibile per essere rivisto sul canale YouTube e Facebook di TSF. \nQuesto evento è reso possibile da una sponsorizzazione per la formazione ed il supporto ai pazienti di Horizon Therapeutics.
URL:https://www.sumairafoundation.org/event/sm-nmosd-e-mogad-somiglianze-e-differenze/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2022/12/315004859_2505543582953404_5586759427257825187_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221213T200000
DTEND;TZID=America/New_York:20221213T210000
DTSTAMP:20260405T225723
CREATED:20221212T211117Z
LAST-MODIFIED:20221220T142019Z
UID:11821-1670961600-1670965200@www.sumairafoundation.org
SUMMARY:TSF Book Club | "Being Mortal" by Atul Gawande
DESCRIPTION:You’re invited to join TSF’s next book club meeting on November 29th\, during which we’ll discuss “Being Mortal” by Dr. Atul Gawande.\nFrom Atul Gawande\, a book that has the potential to change medicine – and lives.\n\n\nThrough eye-opening research and gripping stories of his own patients and family\, Gawande reveals the suffering this dynamic has produced. Nursing homes\, devoted above all to safety\, battle with residents over the food they can eat and the choices they are allowed to make. Doctors\, uncomfortable discussing patients’ anxieties about death\, fall back on false hopes and treatments that shorten lives instead of improving them. And families go along with all of it.
URL:https://www.sumairafoundation.org/event/tsf-book-club-being-mortal-by-atul-gawande/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:TSF Book Club
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221203T120000
DTEND;TZID=America/New_York:20221203T170000
DTSTAMP:20260405T225723
CREATED:20221212T211210Z
LAST-MODIFIED:20221212T211210Z
UID:11866-1670068800-1670086800@www.sumairafoundation.org
SUMMARY:SRNA Young Adults Group Meeting
DESCRIPTION:Join us for an online social hour hosted by Aidan M. for those in their 20’s and 30’s with ADEM\, AFM\, MOGAD\, NMOSD\, ON\, or TM! Connect with others and discuss what it’s like living with a rare neuroimmune disorder during the transitions of young adulthood. Ask questions\, share your stories\, or just listen – everyone is welcome. \nPlease think of this as a virtual coffee hour\, where we will have informal conversations and create community among younger folks with disorders under the SRNA umbrella. Come connect with others and discuss what it’s like living with a rare neuroimmune disorder. Ask questions\, share your stories\, or just listen – everyone is welcome.
URL:https://www.sumairafoundation.org/event/srna-young-adults-group-meeting/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:Partner Events,Support Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221203T100000
DTEND;TZID=America/New_York:20221203T110000
DTSTAMP:20260405T225723
CREATED:20221212T211443Z
LAST-MODIFIED:20221220T141945Z
UID:11864-1670061600-1670065200@www.sumairafoundation.org
SUMMARY:NMOSD/MOGAD Global Support Group Meeting
DESCRIPTION:We are excited to launch TSF’s first-ever global Human Collective Project meeting! Join us on Saturday\, December 3rd at 10 AM EST / 4 PM CET for a support group meeting with NMOSD/MOGAD patients and caregivers from all over the world.\nThis special monthly group will be hosted by\, Candice Galvan\, NMOSD Caregiver\, Colorado Ambassador\, and HCP Program Manager. This meeting will be conducted in English.\nTo register\, visit https://tinyurl.com/TSFHCPglobal
URL:https://www.sumairafoundation.org/event/tsfs-first-ever-global-human-collective-project-meeting/
CATEGORIES:Support Group
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