The Sumaira Foundation

HCP South Africa
2026-01-28 19:00 - 20:00 (Africa/Johannesburg) | Virtual: Global
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. Since 2020, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the Rare Neuroimmune community feels welcomed and included. As we always say, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh, cry, vent, share wins, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.

TSF's Human Collective Project Meetings
2026-02-12 20:00 - 21:00 (America/New_York) | Virtual: Global
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. Since 2020, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh, cry, vent, share wins, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.

Rochester Patient Day for Rare Neuroinflammatory & Related Disorders
2026-06-20 11:00 - 17:00 (America/Chicago) | Mayo Civic Center, 30 Civic Center Drive Southeast, Rochester, MN, 55904, United States
TSF is inviting patients and caregivers impacted by rare neuroinflammatory & related disorders from Minnesota and the upper Midwest region!

We’re coming to Rochester!
Are you or your loved one impacted by: AE*, CIDP*, CNS Vasculitis*, MG*, MOGAD*, neurosarcoidosis, NMOSD*, or SPS*? You’re invited to our event on Saturday, June 20th.
Join us for a day of education, community and fun to:

Meet local patients, partners, care-partners and clinicians
Ask experts questions in real time about symptom management, treatments and therapies, comorbidities and more
Learn about updates on the latest research and findings from local key opinion leaders

This event is being organized in collaboration with Dr. Eoin Flanigan (Mayo Clinic Rochester) and Dr. John Chen (Mayo Clinic Rochester) and in partnership with Autoimmune Encephalitis Alliance, MG Holistic Society and The Stiff Person Syndrome Research Foundation.
Registration is free and lunch will be served. We can’t wait to see you in Rochester!
https://www.eventbrite.com/e/rochester-patient-day-for-rare-neuroinflammatory-related-disorders-tickets-1986578610100
The Sumaira Foundation team
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AE stands for autoimmune encephalitis
CIDP stands for chronic inflammatory demyelinating polyneuropathy
CNS Vasculitis stands for central nervous system vasculitis
MG stands for myasthenia gravis
MOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorder
NMOSD stands for neuromyelitis optica spectrum disorder
SPS stands for stiff person syndrome

Human Collective Project | Mental Health Mondays
2026-01-26 20:00 - 21:00 (America/New_York) | Virtual: United States, United States
The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients, caregivers, and loved ones ride the rollercoaster of feelings throughout their daily lives, from the moment of symptom onset. Often, getting the proper diagnosis is a journey of its own, and dealing with life’s difficulties after that can include stressors that only others in your situation may understand. These meetings will offer a safe space for people to come together, share their stories, and highlight how they are coping with everyday challenges. We will discuss a range of mental health topics and have occasional special guest speakers join our meetings. So, whether you are newly diagnosed or a seasoned zebra, we hope to provide a space to help guide personal growth.
