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BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20250429T180000
DTEND;TZID=Africa/Johannesburg:20250429T190000
DTSTAMP:20260403T145310
CREATED:20241009T200600Z
LAST-MODIFIED:20250121T160003Z
UID:17924-1745949600-1745953200@www.sumairafoundation.org
SUMMARY:Human Collective Project | South Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/human-collective-project-south-africa-11/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/04/South-Africa.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250508T200000
DTEND;TZID=America/New_York:20250508T210000
DTSTAMP:20260403T145310
CREATED:20250505T160351Z
LAST-MODIFIED:20250505T160351Z
UID:19263-1746734400-1746738000@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-42/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/10/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20250528T190000
DTEND;TZID=Africa/Johannesburg:20250528T200000
DTSTAMP:20260403T145310
CREATED:20250505T155803Z
LAST-MODIFIED:20250528T151059Z
UID:19256-1748458800-1748462400@www.sumairafoundation.org
SUMMARY:Human Collective Project | Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/human-collective-project-south-africa-12/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/05/HCP-Master-169-Facebook-Cover.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250608T110000
DTEND;TZID=America/New_York:20250608T170000
DTSTAMP:20260403T145310
CREATED:20250417T140359Z
LAST-MODIFIED:20250417T140359Z
UID:19144-1749380400-1749402000@www.sumairafoundation.org
SUMMARY:TSF's Washington DC Patient Day
DESCRIPTION:TSF is coming to the DMV area! \nAre you an NMOSD/MOGAD patient\, caregiver\, clinician\, nurse\, researcher and/or advocate in the Washington D.C./Baltimore area? You’re invited to our event on Sunday\, June 8th\, at 11 AM at the Georgetown University Conference Center. \nJoin us for a day of education\, community\, and fun to: \n\nMeet local NMOSD & MOGAD patients\, caregivers and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, co-morbidities and more\n\n\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis in-person event is free and lunch will be served. We can’t wait to see you in the capital of the United States! \nThe Sumaira Foundation team
URL:https://www.sumairafoundation.org/event/tsfs-washington-dc-patient-day/
LOCATION:Leavey Center\, 560 Tondorf Road\, Washington\, DC\, 20057\, United States
CATEGORIES:TSF Patient Day
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/04/Washington-DC-Patient-Day-June-2025-2160-x-1080-px.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250612T200000
DTEND;TZID=America/New_York:20250612T210000
DTSTAMP:20260403T145310
CREATED:20250505T160423Z
LAST-MODIFIED:20250505T160423Z
UID:19265-1749758400-1749762000@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-43/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/10/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Mexico_City:20250619T180000
DTEND;TZID=America/Mexico_City:20250619T190000
DTSTAMP:20260403T145310
CREATED:20250522T123220Z
LAST-MODIFIED:20250522T123220Z
UID:19399-1750356000-1750359600@www.sumairafoundation.org
SUMMARY:Hacer ejercicio con una enfermedad autoimmune
DESCRIPTION:¿Sabías que el ejercicio puede ser un aliado poderoso en la gestión de enfermedades autoinmunes? En este webinar\, exploraremos cómo el deporte puede ayudar a mejorar la calidad de vida. \n  \nÚnase a nosotros el 5 de junio para una presentación y discusión con la Dra. Araceli Reyes Cuayahuitl. Haga clic aquí para registrarse: https://us02web.zoom.us/webinar/register/WN_DeOIgA_qTemWu61Y3RWVJg \n  \nTemas a cubrir: \n• Breve introducción a las enfermedades desmielinizantes \n• Síntomas físicos comunes \n• Importancia de la actividad física en general \n• Evidencia científica del impacto del ejercicio en enfermedades desmielinizantes \n• Tipos de ejercicio recomendados \n  \n¿Qué esperar en el webinar? \n• Información basada en evidencia científica \n• Oportunidad para hacer preguntas e interactuar con expertos \n  \nEste programa es posible gracias al apoyo de Amgen.
URL:https://www.sumairafoundation.org/event/hacer-ejercicio-con-una-enfermedad-autoimmune/
LOCATION:Virtual: Mexico
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2025/05/Araceli-Reyes-Cuayahuitl.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250619T200000
DTEND;TZID=America/New_York:20250619T210000
DTSTAMP:20260403T145310
CREATED:20250617T154328Z
LAST-MODIFIED:20250617T154328Z
UID:19569-1750363200-1750366800@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings [Pride Edition]
DESCRIPTION:Pride is more than just a month. We recognize the unique challenges faced by those navigating both an LGBTQIA+ identity and a rare disease diagnosis\, and we’re here to ensure you don’t have to face them alone. The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by Acute disseminated encephalomyelitis (ADEM)\, Autoimmune encephalitis (AE)\, Multiple sclerosis (MS)\, Myelin oligodendrocyte glycoprotein antibody-associated disease (MOGAD)\, Neuromyelitis optica spectrum disorder (NMOSD)\, Optic neuritis (ON) or Transverse myelitis (TM). Please join us to offer support to one another and meet others who truly understand our journeys. \nTogether\, we can create a compassionate community that understands and supports the unique experiences of living with ADEM\, AE\, MOGAD\, MS\, NMOSD\, ON\, and TM as an LGBTQIA+ individual. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-pride-edition/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2025/06/bcc1c101-c966-4885-97f0-3ecae69593d6.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20250625T190000
DTEND;TZID=Africa/Johannesburg:20250625T200000
DTSTAMP:20260403T145310
CREATED:20250617T154622Z
LAST-MODIFIED:20250617T154622Z
UID:19574-1750878000-1750881600@www.sumairafoundation.org
SUMMARY:Human Collective Project | Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/human-collective-project-africa-2/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/05/HCP-Master-169-Facebook-Cover.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250710T200000
DTEND;TZID=America/New_York:20250710T210000
DTSTAMP:20260403T145310
CREATED:20250617T154818Z
LAST-MODIFIED:20250617T154818Z
UID:19576-1752177600-1752181200@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-44/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/10/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250726T110000
DTEND;TZID=America/Chicago:20250726T170000
DTSTAMP:20260403T145310
CREATED:20250605T152456Z
LAST-MODIFIED:20250622T201657Z
UID:19507-1753527600-1753549200@www.sumairafoundation.org
SUMMARY:Chicago Patient Day for Rare Neuroinflammatory Disorders
DESCRIPTION:Are you an NMOSD*\, MOGAD*\, AE*\, MG* or SPS* patient\, caregiver\, clinician\, nurse\, researcher and/or advocate in the Chicagoland area? You’re invited to our event on Saturday\, July 26th at Rush University Medical Center’s Searle Center. We are proud to collaborate on this event with the Chicago MS Alliance. \nJoin us for a day of education\, community\, and fun to: \n\nMeet local NMOSD\, MOGAD\, AE\, MG and SPS patients\, caregivers and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, co-morbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis in-person event is free and lunch will be served. We can’t wait to see you in CHI-town! \nThe Sumaira Foundation team \n— \nNMOSD stands for neuromyelitis optica spectrum disorder \nMOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorder \nAE stands for autoimmune encephalitis \nMG stands for myasthenia gravis \nSPS stands for stiff person syndrome
URL:https://www.sumairafoundation.org/event/chicago-patient-day-for-rare-neuroinflammatory-disorders/
LOCATION:Rush University Medical Center\, 1725 West Harrison Street #5th floor\, Chicago\, IL\, 60612\, United States
CATEGORIES:TSF Patient Day
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/06/Chicago-PD-2025-Presentation-Size.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20250730T190000
DTEND;TZID=Africa/Johannesburg:20250730T200000
DTSTAMP:20260403T145310
CREATED:20250617T154441Z
LAST-MODIFIED:20250617T154524Z
UID:19572-1753902000-1753905600@www.sumairafoundation.org
SUMMARY:Human Collective Project | Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/human-collective-project-africa/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/05/HCP-Master-169-Facebook-Cover.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250814T200000
DTEND;TZID=America/New_York:20250814T210000
DTSTAMP:20260403T145310
CREATED:20250730T212637Z
LAST-MODIFIED:20250804T204003Z
UID:19870-1755201600-1755205200@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-45/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/10/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Phoenix:20250816T110000
DTEND;TZID=America/Phoenix:20250816T170000
DTSTAMP:20260403T145310
CREATED:20250707T190725Z
LAST-MODIFIED:20250805T174323Z
UID:19712-1755342000-1755363600@www.sumairafoundation.org
SUMMARY:TSF's Intermountain West Patient Day for Rare Neuroinflammatory Disorders
DESCRIPTION:TSF is coming to Salt Lake City! \nAre you an AE*\, CNS Vasculitis\, MOGAD*\, neurosarcoidosis\, NMOSD* or SPS* patient\, caregiver\, clinician\, nurse\, researcher and/or advocate from the Intermountain West region? You’re invited to our event on Saturday\, August 16th at the University of Utah Health. \nJoin us for a day of education\, community\, and fun to: \n\nMeet local AE\, CNS Vasculitis\, MOGAD\, neurosarcoidosis\, NMOSD or SPS patients\, caregivers and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, comorbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis in-person event is free and lunch will be served. We can’t wait to see you in SLC! \nThe Sumaira Foundation team \n— \nNMOSD stands for neuromyelitis optica spectrum disorder\nMOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorder\nAE stands for autoimmune encephalitis\nSPS stands for stiff person syndrome
URL:https://www.sumairafoundation.org/event/tsfs-intermountain-west-patient-day-for-rare-neuroinflammatory-disorders/
LOCATION:University of Utah\, UT\, United States
CATEGORIES:TSF Patient Day
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/07/SLC-Presenter-Slides.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Sao_Paulo:20250818T110000
DTEND;TZID=America/Sao_Paulo:20250818T120000
DTSTAMP:20260403T145310
CREATED:20250708T185929Z
LAST-MODIFIED:20250708T213343Z
UID:19719-1755514800-1755518400@www.sumairafoundation.org
SUMMARY:Compreendendo a MOGAD e a importância da participação do paciente em ensaios clínicos
DESCRIPTION:Você ou alguém próximo a você foi afetado pelo MOGAD? Junte-se a nós na segunda-feira\, 18 de agosto\, para aprender sobre MOGAD e a importância da participação de pacientes em ensaios clínicos. Este programa contará com a participação do Dr. Douglas Kazutoshi Sato (do Brasil) e da Dra. Ernestina Santos (de Portugal)\, que responderão a perguntas da nossa plateia em tempo real. Este programa é promovido pela Fundação Sumaira em colaboração com a NMO Brasil e a ABNMO e é possível graças ao apoio da UCB.
URL:https://www.sumairafoundation.org/event/compreendendo-a-mogad-e-a-importancia-da-participacao-do-paciente-em-ensaios-clinicos/
LOCATION:Virtual: Brazil\, Brazil
CATEGORIES:Understanding MOGAD
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/07/PORTUGUESE.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20250827T190000
DTEND;TZID=Africa/Johannesburg:20250827T200000
DTSTAMP:20260403T145310
CREATED:20250730T212407Z
LAST-MODIFIED:20250730T212407Z
UID:19866-1756321200-1756324800@www.sumairafoundation.org
SUMMARY:Human Collective Project | Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/human-collective-project-africa-3/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/05/HCP-Master-169-Facebook-Cover.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250902T170000
DTEND;TZID=Europe/Paris:20250902T180000
DTSTAMP:20260403T145310
CREATED:20250708T213935Z
LAST-MODIFIED:20250805T170329Z
UID:19726-1756832400-1756836000@www.sumairafoundation.org
SUMMARY:Comprendre MOGAD et l'importance de la participation des patients aux essais cliniques
DESCRIPTION:Avez-vous été touché(e) ou l’un de vos proches par MOGAD ? Rejoignez-nous le mardi 2 septembre pour en savoir plus sur MOGAD et l’importance de la participation des patients aux essais cliniques. Ce programme sera animé par le Pr Jérôme de Seze (Université de Strasbourg – France) et le Dr Sophie Elands (Hôpital Érasme – Hôpital Universitaire de Bruxelles – Belgique) qui répondront aux questions de notre public. Ce programme est soutenu par la Fondation Sumaira et est rendu possible grâce au soutien d’UCB.
URL:https://www.sumairafoundation.org/event/compreendendo-a-mogad-e-a-importancia-da-participacao-do-paciente-em-ensaios-clinicos-2/
LOCATION:Virtual: France\, France
CATEGORIES:Understanding MOGAD
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2025/07/FRENCH.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250904T200000
DTEND;TZID=Europe/London:20250904T210000
DTSTAMP:20260403T145310
CREATED:20250717T145545Z
LAST-MODIFIED:20250811T150509Z
UID:19789-1757016000-1757019600@www.sumairafoundation.org
SUMMARY:Understanding MOGAD & The Importance of Patient Participation in Clinical Trials
DESCRIPTION:Have you or someone close to you been affected by MOGAD? Join us on Thursday\, September 4th to learn about MOGAD and the importance of patient participation in clinical trials. This program will feature Dr. Saif Huda (The Walton Centre – UK)\, Dr. Silvia Messina (Nuffield Department of Clinical Neurosciences – UK) and Dr. Katharina Fink (Karolinska University Hospital and Karolinska Institutet – Sweden) who will answer questions from our audience in real time. This program is promoted by the Sumaira Foundation in collaboration with mymyelitis and is made possible with support from UCB.
URL:https://www.sumairafoundation.org/event/understanding-mogad-the-importance-of-patient-participation-in-clinical-trials/
LOCATION:Virtual: Global
CATEGORIES:Understanding MOGAD
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/07/ENGLISHUKSWEDEN.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Kuwait:20250909T190000
DTEND;TZID=Asia/Kuwait:20250909T200000
DTSTAMP:20260403T145310
CREATED:20250813T170324Z
LAST-MODIFIED:20250813T170324Z
UID:19971-1757444400-1757448000@www.sumairafoundation.org
SUMMARY:إدارة الأعراض والأمراض المصاحبة مع اضطراب الطيف العصبي البصري
DESCRIPTION:سيناقش هذا الويبينار أحدث الطرق والرؤى حول إدارة الأعراض الأساسية والاعتلالات المصاحبة لاضطراب الطيف العصبي البصري .(NMOSD) \nسيركز المختصون المشاركون على التحديات التي يواجهها المرضى في التعامل مع المرض، وأفضل الممارسات لتحسين جودة الحياة، واستراتيجيات علاجية للتعامل مع الأمراض المصاحبة. سيحظى الحضور أيضًا بفرصة لطرح الأسئلة والنقاش مع الخبراء في هذا المجال
URL:https://www.sumairafoundation.org/event/%d8%a5%d8%af%d8%a7%d8%b1%d8%a9-%d8%a7%d9%84%d8%a3%d8%b9%d8%b1%d8%a7%d8%b6-%d9%88%d8%a7%d9%84%d8%a3%d9%85%d8%b1%d8%a7%d8%b6-%d8%a7%d9%84%d9%85%d8%b5%d8%a7%d8%ad%d8%a8%d8%a9-%d9%85%d8%b9-%d8%a7%d8%b6/
LOCATION:Virtual: Global
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/08/Seraj-Makkawi-Salman-Aljarallah.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250911T200000
DTEND;TZID=America/New_York:20250911T210000
DTSTAMP:20260403T145310
CREATED:20250730T212708Z
LAST-MODIFIED:20250730T212708Z
UID:19872-1757620800-1757624400@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-46/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/10/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20250924T190000
DTEND;TZID=Africa/Johannesburg:20250924T200000
DTSTAMP:20260403T145310
CREATED:20250730T212518Z
LAST-MODIFIED:20250730T212518Z
UID:19868-1758740400-1758744000@www.sumairafoundation.org
SUMMARY:Human Collective Project | Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/human-collective-project-africa-4/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/05/HCP-Master-169-Facebook-Cover.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20250924T190000
DTEND;TZID=Europe/Rome:20250924T223000
DTSTAMP:20260403T145310
CREATED:20250513T191036Z
LAST-MODIFIED:20250514T202337Z
UID:19343-1758740400-1758753000@www.sumairafoundation.org
SUMMARY:TSF Research Update & Award Ceremony
DESCRIPTION:If you’re attending ECTRIMS in Barcelona\, we invite you to attend TSF’s Research Update & Award Ceremony at Casa Llotja de Mar. \n\nJoin us for an evening with research updates\, recognition of outstanding achievements in the field and networking with a community dedicated to pushing the boundaries of science and technology. During this time\, we will be announcing the recipient of TSF’s 2025 Global Rare Trailblazer Award. \nThis in-person gathering promises to be a memorable occasion where key opinion leaders\, researchers\, patients and industry leaders come together to celebrate excellence in neurology. \n100% of proceeds will be used to fund research through TSF’s Spark and Unicorn grants. To reserve your tickets\, visit https://www.eventbrite.com/e/entradas-2025-tsf-research-update-award-ceremony-1364334644649
URL:https://www.sumairafoundation.org/event/tsf-research-update-award-ceremony/
LOCATION:Casa Llotja de Mar\, Barcelona\, Spain
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/05/EVENTBRITE-2025-TSF-Research-Update-Award-Ceremony.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Madrid:20250926T150000
DTEND;TZID=Europe/Madrid:20250926T180000
DTSTAMP:20260403T145310
CREATED:20250702T170005Z
LAST-MODIFIED:20250702T170005Z
UID:19683-1758898800-1758909600@www.sumairafoundation.org
SUMMARY:ECTRIMS Patient Community Day 2025
DESCRIPTION:Join us on September 26\, 2025 for ECTRIMS Patient Community Day – an exclusive\, free event designed for individuals living with MOGAD\, MS\, NMOSD and related neurological conditions. \nPatient Community Day is an opportunity to learn about the latest research advancements directly impacting your ongoing care and treatment options. The programme will include engaging roundtable discussions led by international experts\, insightful Q&A sessions\, and a multilingual experience ensuring accessibility for all. \nThis event is FREE to attend. Pre-registration is required. It will be held in English\, with live translations in 50+ languages! \nHave a research question about your condition that you would like answered during the event? As part of the interactive nature of the event\, we invite you to actively participate in our #ECTRIMS4me campaign. Your questions and concerns will shape the agenda\, making this event a true reflection of community-driven support and advocacy. Submit your question: https://www.ectrimspatientcommunity.eu/ask-the-expert \nJoin us as we push the boundaries of knowledge and forge a stronger path toward collective support and well-being.
URL:https://www.sumairafoundation.org/event/ectrims-patient-community-day-2025/
LOCATION:Online and Onsite at CCIB Barcelona International Convention Centre\, Barcelona\, Spain
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2025/07/ECTRIMS2025_PatientCommunityDay_SocialMedia_Toolkit_v01_GeneralEventBanner_Twitter-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250928T090000
DTEND;TZID=America/New_York:20250928T160000
DTSTAMP:20260403T145310
CREATED:20250722T151600Z
LAST-MODIFIED:20250722T151600Z
UID:19813-1759050000-1759075200@www.sumairafoundation.org
SUMMARY:TSF's 5k for Rare Neuroimmune Disorders
DESCRIPTION:Join us on Sunday September 28th in Weston\, Massachusetts to run\, walk\, socialize\, and raise funds. (Registration/attendance comes with a free t-shirt). \nThis event is being organized by Terry Clark\, TSF Ambassador of MA and NMOSD patient who says\, “As many of you know\, almost 3 years ago\, in May of 2022\, I was diagnoses with a rare autoimmune disease called NMO. This 5k has been something I’ve wanted to do for years now\, so I’m excited to finally begin this annual race to raise awareness. Early detection of NMO improves quality of life!” \nProceeds from this event will be used to fund researcher rare neuroimmunological disorders. Thanks to grassroots efforts like this\, we’ve been able to fund close to 1m in research since 2018. View our research portfolio here: https://www.sumairafoundation.org/tsf-funded-research/ \nSpread the word; the more\, the merrier! 
URL:https://www.sumairafoundation.org/event/tsfs-5k-for-rare-neuroimmune-disorders/
LOCATION:Weston Town Hall\, 11 Town House Rd\, Weston\, 02493\, United States
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/07/TSF-5K.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Bogota:20251001T180000
DTEND;TZID=America/Bogota:20251001T190000
DTSTAMP:20260403T145310
CREATED:20250910T185924Z
LAST-MODIFIED:20250910T185924Z
UID:20140-1759341600-1759345200@www.sumairafoundation.org
SUMMARY:Yoga Para Todos. Yoga y Vida
DESCRIPTION:Descubre por que el Yoga es para todos y puede ayudarte. El yoga no es esa idea que se tiene de una disciplina física. El Yoga es mas que físico\, es celular\, mental\, intelectual y espiritual: te afecta en todo tu ser.
URL:https://www.sumairafoundation.org/event/yoga-para-todos-yoga-y-vida/
LOCATION:Virtual: Colombia\, Colombia
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/09/Maria-Victoria-Beltran.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251009T200000
DTEND;TZID=America/New_York:20251009T210000
DTSTAMP:20260403T145310
CREATED:20250730T212759Z
LAST-MODIFIED:20251010T163135Z
UID:19874-1760040000-1760043600@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-47/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/10/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Warsaw:20251014T180000
DTEND;TZID=Europe/Warsaw:20251014T190000
DTSTAMP:20260403T145310
CREATED:20250928T160219Z
LAST-MODIFIED:20251009T001857Z
UID:20237-1760464800-1760468400@www.sumairafoundation.org
SUMMARY:Zrozumienie MOGAD i znaczenia udziału pacjentów w badaniach klinicznych
DESCRIPTION:Czy Ciebie lub kogoś bliskiego dotknęła plaga MOGAD? \nDołącz do nas 14 października o godzinie 18:00 czasu środkowoeuropejskiego\, aby zapoznać się z eksperckim przeglądem MOGAD\, obejmującym objawy\, rokowania i leczenie\, a następnie z inspirującą dyskusją na temat badań klinicznych. W webinarium wezmą udział dr Robert Bonek\, dr Maciej Juryńczyk i dr Paweł Wrona. \nUczestnicy na żywo będą mieli okazję zadać pytania ekspertom. Webinarium zostanie nagrane i udostępnione do odtworzenia na kanale TSF w serwisie YouTube. \nProgram ten jest możliwy dzięki wsparciu UCB.
URL:https://www.sumairafoundation.org/event/zrozumienie-mogad-i-znaczenia-udzialu-pacjentow-w-badaniach-klinicznych/
LOCATION:Virtual: Poland\, Poland
CATEGORIES:Understanding MOGAD
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2025/09/POLISH.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20251015T190000
DTEND;TZID=Europe/Paris:20251015T200000
DTSTAMP:20260403T145311
CREATED:20250919T153314Z
LAST-MODIFIED:20250919T153314Z
UID:20210-1760554800-1760558400@www.sumairafoundation.org
SUMMARY:Salute femminile e NMOSD/MOGAD: dialogo su gravidanza\, allattamento e sessualità
DESCRIPTION:Siete tutti invitati al webinar – Salute femminile e NMOSD/MOGAD: dialogo su gravidanza\, allattamento e sessualità  – esclusivo di TSF Italia dedicato alle donne che vivono con NMOSD o MOGAD! \n  \n Data: 15 ottobre alle 19:00 CET \n Relatrice: Dott.ssa Sara Carta\, esperta in Neuroimmunologia presso l’Università di Verona \n Temi: Gravidanza\, Allattamento e Sessualità – aspetti cruciali per una gestione consapevole della salute. \n  \nPartecipando in diretta\, avrete l’opportunità di: \n– Porre domande in tempo reale alla Dott.ssa Carta \n– Condividere esperienze e dubbi in uno *spazio sicuro e accogliente*\, libero da pregiudizi \n– Connettervi con altre persone della comunità NMOSD e MOGAD italiane \n  \n Questo webinar è aperto a pazienti\, caregiver e a tutti coloro interessati a comprendere meglio queste condizioni neuroimmunologiche dal punto di vista della salute femminile. \n  \nQuesto evento è reso possibile grazie al supporto di Alexion. \n  \n Iscriviti ora e unisciti a noi per un momento di condivisione e crescita! https://us02web.zoom.us/webinar/register/WN_I2EUzRCMR9Gdtm92DG6WOA \n  \nTSF Italia si impegna a promuovere la consapevolezza e il sostegno alle persone affette da malattie neuroimmunologiche rare.
URL:https://www.sumairafoundation.org/event/salute-femminile-e-nmosd-mogad-dialogo-su-gravidanza-allattamento-e-sessualita-2/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/09/Sara-Carta-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20251018T110000
DTEND;TZID=America/Los_Angeles:20251018T170000
DTSTAMP:20260403T145311
CREATED:20250822T164117Z
LAST-MODIFIED:20250912T134018Z
UID:20009-1760785200-1760806800@www.sumairafoundation.org
SUMMARY:Seattle Patient Day for Rare Neuroinflammatory Disorders
DESCRIPTION:We’re coming to Seattle! \nAre you an AE*\, CNS Vasculitis\, MOGAD*\, neurosarcoidosis\, NMOSD* or SPS* patient\, partner\, care-partner\, clinician\, nurse\, researcher and/or advocate from the Pacific Northwest region? You’re invited to our event on Saturday\, October 18th at the UW Medicine Neurosciences Institute. \nJoin us for a day of education\, community\, and fun to: \n\nMeet local patients\, partners\, care-partners and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, co-morbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis event is being organized in collaboration with Dr. Shuvro Roy at the UW Medicine Neurosciences Institute\, Dr. Pavle Repovic at Swedish Neuroscience Institute and in partnership with Autoimmune Encephalitis Alliance and The Stiff Person Syndrome Research Foundation. Registration is free and lunch will be served. We can’t wait to see you in Seattle! \n— \nAE stands for autoimmune encephalitis \nMOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorder \nNMOSD stands for neuromyelitis optica spectrum disorder \nSPS stands for stiff person syndrome
URL:https://www.sumairafoundation.org/event/seattle-patient-day-for-rare-neuroinflammatory-disorders/
LOCATION:University of Washington\, 4295 Little Canoe Channel NE\, Seattle\, WA\, 98195\, United States
CATEGORIES:TSF Patient Day
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/08/Seattle-Patient-Day-2025-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20251022T190000
DTEND;TZID=Europe/London:20251022T200000
DTSTAMP:20260403T145311
CREATED:20251008T154342Z
LAST-MODIFIED:20251008T154342Z
UID:20285-1761159600-1761163200@www.sumairafoundation.org
SUMMARY:Human Collective Project | United Kingdom
DESCRIPTION:The Human Collective Project (HCP) is a community initiative for people living with NMOSD\, MOGAD and other rare neuroimmune diseases\, to come together in a safe\, confidential and encouraging space. These gatherings are not recorded and allow for everyone to speak openly and honestly without worry. HCP is more about than just a discussion\, it’s about connection and belonging.
URL:https://www.sumairafoundation.org/event/human-collective-project-united-kingdom/
LOCATION:Virtual: United Kingdom\, United Kingdom
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2025/10/UK-HCP-Visuals-169-Facebook-Cover.jpg
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DTSTART;TZID=America/New_York:20251027T200000
DTEND;TZID=America/New_York:20251027T210000
DTSTAMP:20260403T145311
CREATED:20251008T180110Z
LAST-MODIFIED:20251008T180110Z
UID:20297-1761595200-1761598800@www.sumairafoundation.org
SUMMARY:Human Collective Project | Mental Health Mondays
DESCRIPTION:The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients\, caregivers\, and loved ones ride the rollercoaster of feelings throughout their daily lives\, from the moment of symptom onset. Often\, getting the proper diagnosis is a journey of its own\, and dealing with life’s difficulties after that can include stressors that only others in your situation may understand. These meetings will offer a safe space for people to come together\, share their stories\, and highlight how they are coping with everyday challenges. We will discuss a range of mental health topics and have occasional special guest speakers join our meetings. So\, whether you are newly diagnosed or a seasoned zebra\, we hope to provide a space to help guide personal growth.
URL:https://www.sumairafoundation.org/event/human-collective-project-mental-health-mondays/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/10/HCP-Master-169-Facebook-Cover-3.png
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