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BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20240410T193000
DTEND;TZID=Europe/Amsterdam:20240410T203000
DTSTAMP:20260405T074927
CREATED:20240216T180427Z
LAST-MODIFIED:20240216T180427Z
UID:16176-1712777400-1712781000@www.sumairafoundation.org
SUMMARY:TSF Plauderstunde | HCP Germany
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/tsf-plauderstunde-hcp-germany-11/
LOCATION:Virtual: Germany\, Germany
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/12/2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20240408T183000
DTEND;TZID=Europe/Rome:20240408T193000
DTSTAMP:20260405T074927
CREATED:20240401T183357Z
LAST-MODIFIED:20240403T182540Z
UID:16624-1712601000-1712604600@www.sumairafoundation.org
SUMMARY:HCP Italia
DESCRIPTION:The Human Collective Project (HCP) è l’incontro del gruppo di supporto di TSF offerto a chiunque sia stato colpito/colpito da NMOSD/MOGAD. Il programma è nato durante il culmine della pandemia di COVID-19 nel 2020\, quando la maggior parte dei NMOSD/MOGAD si sentiva particolarmente isolata e vulnerabile al coronavirus come membri della società immunosoppressi/immunocompromessi. L’isolamento che molti di noi hanno vissuto ha svelato un grande bisogno e un’opportunità per noi di connetterci in modo significativo per offrire il nostro sostegno reciproco. \nDal 2020\, abbiamo ampliato il programma per offrire più sessioni in più aree geografiche per garantire che tutti nelle comunità NMOSD/MOGAD si sentano accolti e inclusi. Come diciamo sempre\, HCP è un ottimo modo per incontrare altri in circostanze simili in questa rara comunità; è uno spazio sicuro per ridere\, piangere\, sfogarsi\, condividere vittorie\, ecc. Questo programma è guidato e guidato dagli ambasciatori di pazienti e caregiver di TSF in tutto il mondo.
URL:https://www.sumairafoundation.org/event/hcp-italia-9/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/04/unnamed.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Tokyo:20240407T100000
DTEND;TZID=Asia/Tokyo:20240407T110000
DTSTAMP:20260405T074927
CREATED:20240326T204953Z
LAST-MODIFIED:20240401T135054Z
UID:16508-1712484000-1712487600@www.sumairafoundation.org
SUMMARY:NMOSD\, MOGAD\, MS の類似点と相違点を理解する
DESCRIPTION:視神経脊髄炎（NMOSD）、MOG抗体関連疾患（MOGAD）、多発性硬化症（MS）に関して４月７日（日）日本時間10:00からウェビナーを開催します。３疾患はどのような点が異なるかというお話について専門家が分かりやすく解説します。質問の時間もありますのでぜひご参加ください。 \n演題：「NMOSD、MOGAD、MSの類似点と相違点を理解する」 講師：藤原一男先生（福島県立医科大学） \n藤原一男先生 脳神経内科医。福島県立医科大学医学部 多発性硬化症治療学講座 教授。 脳神経疾患研究所附属南東北病院 多発性硬化症・視神経脊髄炎センター センター長。 専門分野は多発性硬化症（MS）、視神経脊髄炎（NMOSD）、MOG抗体関連疾患（MOGAD）などの免疫性神経疾患。 \n※内容は録画し、後日、スマイラ財団のYouTubeチャンネルから再配信します。 ※このセミナーはアムジェン株式会社の支援のもと、MSキャビンと日本視神経脊髄炎患者会の協力によって開催します。
URL:https://www.sumairafoundation.org/event/nmosd-mogad-ms-%e3%81%ae%e9%a1%9e%e4%bc%bc%e7%82%b9%e3%81%a8%e7%9b%b8%e9%81%95%e7%82%b9%e3%82%92%e7%90%86%e8%a7%a3%e3%81%99%e3%82%8b/
LOCATION:Virtual: Japan\, Japan
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/03/9817a3eb-440f-4130-bf10-578446557799.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20240403T190000
DTEND;TZID=Europe/Amsterdam:20240403T200000
DTSTAMP:20260405T074927
CREATED:20240215T211419Z
LAST-MODIFIED:20240401T182152Z
UID:16161-1712170800-1712174400@www.sumairafoundation.org
SUMMARY:TSF’s Human Collective Project | Danmark
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-danmark-6/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/02/Denmark-The-Human-Collective-Project-Facebook-Cover-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20240402T180000
DTEND;TZID=Africa/Johannesburg:20240402T190000
DTSTAMP:20260405T074927
CREATED:20240229T155648Z
LAST-MODIFIED:20240423T154956Z
UID:16336-1712080800-1712084400@www.sumairafoundation.org
SUMMARY:HCP South Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/hcp-south-africa-10/
LOCATION:Virtual: South Africa\, South Africa
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/02/SOUTH-AFRICA-The-Human-Collective-Project-Facebook-Cover.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240330T100000
DTEND;TZID=America/New_York:20240330T110000
DTSTAMP:20260405T074927
CREATED:20240325T191109Z
LAST-MODIFIED:20240325T191109Z
UID:16480-1711792800-1711796400@www.sumairafoundation.org
SUMMARY:The Human Collective Project Global
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/the-human-collective-project-global/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/03/092b008f-8852-4a95-aab3-9b3578c950f2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20240328T200000
DTEND;TZID=Europe/Paris:20240328T210000
DTSTAMP:20260405T074927
CREATED:20240216T153128Z
LAST-MODIFIED:20240216T153152Z
UID:16163-1711656000-1711659600@www.sumairafoundation.org
SUMMARY:Le Projet Collectif Humain
DESCRIPTION:The Human Collective Project (HCP) est la réunion du groupe de soutien de TSF offerte à toute personne affectée par la NMOSD ou la MOGAD. Le programme a vu le jour au plus fort de la pandémie de COVID-19 en 2020\, lorsque la plupart des patients NMOSD/MOGAD se sentaient particulièrement isolés et vulnérables au coronavirus en tant que patient dit “vulnérable” de part son traitement contre ma maladie.\nL’isolement que beaucoup d’entre nous avons vécu a révélé un grand besoin et une opportunité pour nous de nous connecter de manière significative pour nous offrir notre soutien les uns aux autres. \nDepuis 2020\, nous avons élargi le programme pour offrir plus de sessions dans plusieurs zones géographiques afin de garantir que tous les membres des communautés NMOSD/MOGAD se sentent accueillis et inclus. Comme nous le disons toujours\, HCP est un excellent moyen de rencontrer d’autres personnes dans des circonstances similaires dans cette communauté rare; c’est un espace sûr pour rire\, pleurer\, évacuer\, partager les victoires\, etc. Ce programme est piloté et dirigé par les patients et soignants ambassadeurs de TSF dans le monde entier.
URL:https://www.sumairafoundation.org/event/le-projet-collectif-humain-11/
LOCATION:Virtual: France\, France
CATEGORIES:Support Group,TSF France
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/03/France-The-Human-Collective-Project-169-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20240321T190000
DTEND;TZID=Europe/Paris:20240321T200000
DTSTAMP:20260405T074927
CREATED:20240314T143933Z
LAST-MODIFIED:20240321T171817Z
UID:16441-1711047600-1711051200@www.sumairafoundation.org
SUMMARY:La rééducation et la récupération dans les maladies neurologiques (SEP\, NMOSD\, MOGAD)
DESCRIPTION:A l’occasion du mois de sensibilisation à la NMOSD\, le docteur Cécile Donzé nous fait le plaisir de venir aborder avec TSF France la rééducation et la réadaptation dans les maladies neurologiques (NMOSD\, Mogad et Sclérose en plaques (SEP)). Toutes ces maladies se caractérisent par l’apparition de handicaps plus ou moins visibles mais qui ne sont pas définitifs pour la plupart si on peut bénéficier d’une bonne prise en charge. \nVous pourrez profiter d’un échange avec cette spécialiste reconnue de Médecine Physique et de Réadaptation\, cheffe de service au centre spécialisé de Saint-Philibert-de-Lomme. Nous aborderons les aspects pratiques et répondrons à vos questions en direct. \nCe programme est rendu possible grâce au soutien d’Alexion Pharmaceuticals.
URL:https://www.sumairafoundation.org/event/la-reeducation-et-la-recuperation-dans-les-maladies-neurologiques-sep-nmosd-mogad/
LOCATION:Virtual: France\, France
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/03/Cecile-Donze-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Sao_Paulo:20240321T190000
DTEND;TZID=America/Sao_Paulo:20240321T200000
DTSTAMP:20260405T074927
CREATED:20240229T153945Z
LAST-MODIFIED:20240321T170842Z
UID:16330-1711047600-1711051200@www.sumairafoundation.org
SUMMARY:Compreendendo as semelhanças e diferenças entre NMOSD\, MOGAD e MS
DESCRIPTION:Para celebrar o Mês de Conscientização sobre NMO 2024\, convidamos pacientes\, cuidadores\, médicos e pesquisadores de língua portuguesa a participarem do primeiro webinar português da TSF: Compreendendo as semelhanças e diferenças entre DENMO\, MOGAD e EM. \nEste webinar ao vivo contará com a participação do Professor Jefferson Becker\, da Pontifícia Universidade Católica do Rio Grande do Sul\, que descreverá as semelhanças e diferenças entre NMOSD\, MOGAD e esclerose múltipla. \nOs participantes do webinar ao vivo terão a oportunidade de perguntar ao Prof. Becker questões em tempo real. A sessão será gravada e disponibilizada no YouTube. \nEste programa é possível com o apoio da Amgen em colaboração com a The Sumaira Foundation\, BCTRIMS e NMO Brasil.
URL:https://www.sumairafoundation.org/event/compreendendo-as-semelhancas-e-diferencas-entre-nmosd-mogad-e-ms/
LOCATION:Virtual: Brazil\, Brazil
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/02/Jefferson-Becker-1024x576-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20240320T180000
DTEND;TZID=Europe/Rome:20240320T190000
DTSTAMP:20260405T074927
CREATED:20240229T153236Z
LAST-MODIFIED:20240319T184618Z
UID:16327-1710957600-1710961200@www.sumairafoundation.org
SUMMARY:La storia e l'evoluzione di NMOSD
DESCRIPTION:Per celebrare il Mese della Consapevolezza NMO 2024\, TSF Italia ti invita a partecipare a un webinar molto speciale con il Professor Luca Massacesi e la Dott.ssa Sara Mariotto mercoledì 20 marzo alle 18:00 CET. \nIn questo webinar in formato intervista\, verrà fatto un excursus storico sulla neuromielite ottica\, toccando anche diversi aspetti tra cui la complessa diagnosi differenziale e le conseguenti difficoltà nelle scelte terapeutiche prima della scoperta degli anticorpi anti-AQP4\, l’impatto della scoperta degli anticorpi stessi e l’apporto dei diversi criteri diagnostici. Infine\, verranno discussi aspetti più recenti come la caratterizzazione patogenetica dell’NMOSD facendo accenno anche alla diagnosi differenziale con malattie di più recente identificazione e le ultime strategie terapeutiche. \nI partecipanti all’evento dal vivo avranno l’opportunità di porre domande agli esperti. Questo webinar sarà registrato e sarà disponibile per la riproduzione sul canale YouTube e sulla libreria multimediale di TSF. \nQuesto programma è reso possibile grazie al supporto di Amgen.
URL:https://www.sumairafoundation.org/event/la-storia-e-levoluzione-di-nmosd/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/02/Luca-Massacesi-Sara-Mariotto-1024x576-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Bogota:20240319T193000
DTEND;TZID=America/Bogota:20240319T203000
DTSTAMP:20260405T074927
CREATED:20240229T155455Z
LAST-MODIFIED:20240229T155455Z
UID:16334-1710876600-1710880200@www.sumairafoundation.org
SUMMARY:El Proyecto Colectivo Humano
DESCRIPTION:El Human Collective Project (HCP) es la reunión del grupo de apoyo de TSF que se ofrece a cualquier persona que haya sido afectada/impactada por NMOSD/MOG-AD. El programa nació durante el apogeo de la pandemia de COVID-19 en 2020\, cuando la mayoría de los NMOSD/MOG-AD se sentían particularmente aislados y vulnerables al coronavirus como miembros de la sociedad inmunodeprimidos/inmunodeprimidos. El aislamiento que muchos de nosotros experimentamos reveló una gran necesidad y oportunidad para conectarnos de una manera significativa y ofrecernos apoyo unos a otros. \nDesde 2020\, hemos ampliado el programa para ofrecer más sesiones en múltiples geografías para garantizar que todos en las comunidades NMOSD/MOG-AD se sientan bienvenidos e incluidos. Como siempre decimos\, HCP es una excelente manera de conocer a otras personas en circunstancias similares en esta rara comunidad; es un espacio seguro para reír\, llorar\, desahogarse\, compartir victorias\, etc. Este programa está impulsado y dirigido por pacientes y cuidadores embajadores de TSF en todo el mundo.
URL:https://www.sumairafoundation.org/event/el-proyecto-colectivo-humano-3/
LOCATION:Virtual: Colombia\, Colombia
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/11/Human-Collective-Registration-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Berlin:20240319T190000
DTEND;TZID=Europe/Berlin:20240319T200000
DTSTAMP:20260405T074927
CREATED:20240319T183322Z
LAST-MODIFIED:20240319T195906Z
UID:16455-1710874800-1710878400@www.sumairafoundation.org
SUMMARY:Was Betroffene über NMOSD und MOGAD wissen sollten
DESCRIPTION:Sie sind zum kommenden Webinar von TSF Deutschland eingeladen: Was Betroffene über NMOSD und MOGAD wissen sollten. \nBesuchen Sie uns am Dienstag\, den 19. März um 19:00 Uhr MEZ zu einer aufschlussreichen Diskussion mit Dr. Joachim Havla (Ludwig-Maximilians-Universität München) über alles\, was Sie über NMOSD und MOGAD wissen müssen! \nTeilnehmer des Live-Webinars haben die Möglichkeit\, Dr. Havla Fragen zu stellen. Dieses Webinar wird aufgezeichnet und kann auf dem YouTube-Kanal und der globalen Website von TSF wiedergegeben werden. \nDieses Programm wird mit Unterstützung von Amgen ermöglicht. Eine Anmeldung ist erforderlich.
URL:https://www.sumairafoundation.org/event/was-betroffene-uber-nmosd-und-mogad-wissen-sollten/
LOCATION:Virtual: Germany\, Germany
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/03/Joachim-Havla.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20240318T190000
DTEND;TZID=Europe/Amsterdam:20240318T200000
DTSTAMP:20260405T074927
CREATED:20240229T152627Z
LAST-MODIFIED:20240229T152627Z
UID:16324-1710788400-1710792000@www.sumairafoundation.org
SUMMARY:Verleden\, heden en toekomst van behandelingen voor NMOSD en MOGAD
DESCRIPTION:In deze webinar bespreken we de snel veranderende kennis over immuuntherapie bij NMOSD en MOGAD. Welke behandelingen gebruiken we nu? Welke nieuwe behandelingen zijn recent goedgekeurd? En wat heeft de toekomst in petto aan mogelijke innovatieve behandelingsopties? \nProf. Dr. Barbara Willekens\, Universitair Ziekenhuis Antwerpen en Universiteit Antwerpen\, België en dr. Beatrijs Wokke\, Erasmus Medisch Centrum Rotterdam\, Nederland\, loodsen u door het complexe behandel-landschap van deze zeldzame ziekten. \nDeelnemers aan het live webinar krijgen de mogelijkheid om vragen te stellen aan de experts. Dit webinar wordt opgenomen en kan worden afgespeeld op het YouTube-kanaal en de multimediabibliotheek van TSF. \nDit programma wordt mogelijk gemaakt met steun van Amgen.
URL:https://www.sumairafoundation.org/event/verleden-heden-en-toekomst-van-behandelingen-voor-nmosd-en-mogad/
LOCATION:Virtual: Amsterdam\, Netherlands
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/02/Barbara-Willekens-Beatrijs-Wokke-1024x576-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240314T200000
DTEND;TZID=America/New_York:20240314T210000
DTSTAMP:20260405T074927
CREATED:20231219T151510Z
LAST-MODIFIED:20231219T151510Z
UID:15662-1710446400-1710450000@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-31/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Copenhagen:20240314T160000
DTEND;TZID=Europe/Copenhagen:20240314T170000
DTSTAMP:20260405T074927
CREATED:20240229T142736Z
LAST-MODIFIED:20240229T142736Z
UID:16321-1710432000-1710435600@www.sumairafoundation.org
SUMMARY:Forståelse af ligheder og forskelle mellem NMOSD\, MOGAD og MS
DESCRIPTION:Du inviteres til TSF’s første danske webinar! \nVi inviterer dansktalende patienter\, plejere\, klinikere\, forskere og fortalere til at deltage i vores webinar – Forståelse af ligheder og forskelle mellem NMOSD\, MOGAD og MS – med prof. Nasrin Asgari\, neurolog ved Syddansk Universitet. \nDeltagere\, der vil deltage i live-begivenheden\, vil have mulighed for at stille spørgsmål til prof. Asgari. Dette webinar vil blive optaget og tilgængeligt til afspilning på TSF’s YouTube-kanal og multimediebibliotek. \nDette program er gjort muligt med støtte fra Amgen.
URL:https://www.sumairafoundation.org/event/forstaelse-af-ligheder-og-forskelle-mellem-nmosd-mogad-og-ms/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/02/Nasrin-Asgari-1024x576-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20240313T193000
DTEND;TZID=Europe/Amsterdam:20240313T203000
DTSTAMP:20260405T074927
CREATED:20240216T180349Z
LAST-MODIFIED:20240216T180349Z
UID:16174-1710358200-1710361800@www.sumairafoundation.org
SUMMARY:TSF Plauderstunde | HCP Germany
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/tsf-plauderstunde-hcp-germany-10/
LOCATION:Virtual: Germany\, Germany
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/12/2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240309T110000
DTEND;TZID=America/New_York:20240309T170000
DTSTAMP:20260405T074927
CREATED:20240116T165451Z
LAST-MODIFIED:20240116T165451Z
UID:15975-1709982000-1710003600@www.sumairafoundation.org
SUMMARY:TSF's New England Patient Day for NMOSD & MOGAD
DESCRIPTION:Are you an NMOSD/MOGAD patient\, caregiver\, clinician\, nurse\, researcher and/or advocate in New England? You’re invited! \nIn collaboration with Dr. Michael Levy at Mass General Hospital\, The Sumaira Foundation is pleased to invite you to TSF’s New England Patient Day\, a special day dedicated to NMOSD & MOGAD patients\, caregivers\, clinicians and researchers. \nJoin us for a day of education\, community\, and fun where you’ll: \n\nMeet NMOSD & MOGAD patients\, caregivers and clinicians from New England\nAsk experts questions in real time about symptom management\, treatments and therapies\, co-morbidities and more\n\n\nLearn about updates on the latest research and findings from local key opinion leaders\n\n\nMake connections and engage in meaningful discussions with the local NMOSD/MOGAD community\n\nThis is a free event and lunch will be served. \nWe’re excited to meet you! \nThe Sumaira Foundation team
URL:https://www.sumairafoundation.org/event/tsfs-new-england-patient-day-for-nmosd-mogad/
LOCATION:Mass General Brigham\, 399 Revolution Drive\, Somerville\, MA\, 02145\, United States
CATEGORIES:Community Event,Patient Days
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/01/New-England-Patient-Day-2024.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20240306T190000
DTEND;TZID=Europe/Amsterdam:20240306T200000
DTSTAMP:20260405T074927
CREATED:20240215T211230Z
LAST-MODIFIED:20240215T211230Z
UID:16158-1709751600-1709755200@www.sumairafoundation.org
SUMMARY:TSF’s Human Collective Project | Danmark
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-danmark-5/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/02/Denmark-The-Human-Collective-Project-Facebook-Cover.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Istanbul:20240305T193000
DTEND;TZID=Europe/Istanbul:20240305T193000
DTSTAMP:20260405T074927
CREATED:20240221T162426Z
LAST-MODIFIED:20240221T165034Z
UID:16208-1709667000-1709667000@www.sumairafoundation.org
SUMMARY:HCP Turkey
DESCRIPTION:Sumaira fonu olarak sizi aylık (hcp) zoom toplantimiza davet ediyoruz. Aşağıdaki belirtilmiş olan linke tıklayarak\nKaydınızı oluşturabilirsiniz \nSumaira foundation adına\nSaygılarımla\nFatih Şen
URL:https://www.sumairafoundation.org/event/hcp-turkey-2/
LOCATION:virtual: Turkey\, Turkey
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/02/Turkiye-The-Human-Collective-Project-Facebook-Cover-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20240304T183000
DTEND;TZID=Europe/Rome:20240304T193000
DTSTAMP:20260405T074927
CREATED:20240221T142747Z
LAST-MODIFIED:20240221T142747Z
UID:16202-1709577000-1709580600@www.sumairafoundation.org
SUMMARY:HCP Italia
DESCRIPTION:The Human Collective Project (HCP) è l’incontro del gruppo di supporto di TSF offerto a chiunque sia stato colpito/colpito da NMOSD/MOGAD. Il programma è nato durante il culmine della pandemia di COVID-19 nel 2020\, quando la maggior parte dei NMOSD/MOGAD si sentiva particolarmente isolata e vulnerabile al coronavirus come membri della società immunosoppressi/immunocompromessi. L’isolamento che molti di noi hanno vissuto ha svelato un grande bisogno e un’opportunità per noi di connetterci in modo significativo per offrire il nostro sostegno reciproco. \nDal 2020\, abbiamo ampliato il programma per offrire più sessioni in più aree geografiche per garantire che tutti nelle comunità NMOSD/MOGAD si sentano accolti e inclusi. Come diciamo sempre\, HCP è un ottimo modo per incontrare altri in circostanze simili in questa rara comunità; è uno spazio sicuro per ridere\, piangere\, sfogarsi\, condividere vittorie\, ecc. Questo programma è guidato e guidato dagli ambasciatori di pazienti e caregiver di TSF in tutto il mondo.
URL:https://www.sumairafoundation.org/event/hcp-italia-8/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/04/unnamed.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240301T100000
DTEND;TZID=America/New_York:20240301T110000
DTSTAMP:20260405T074927
CREATED:20240220T202321Z
LAST-MODIFIED:20240229T141927Z
UID:16189-1709287200-1709290800@www.sumairafoundation.org
SUMMARY:Myths & Facts - Family Planning Considerations for NMOSD & other rare neurological conditions
DESCRIPTION:To celebrate NMO Awareness Month 2024\, The Sumaira Foundation invites you to join an insightful discussion about an important topic: Family Planning. \nJoin us on March 1st for a live webinar featuring Dr. Ahmed Shatila who will share myths & facts about family planning in people living with NMOSD & other rare neuro-immunological conditions. Dr. Shatila will discuss contraception and other factors that are important for people to plan with their neurologists and obstetricians. He will talk about the implications of a relapse before or during pregnancy and how to approach certain scenarios. Dr Shatila will outline the benefits and risks of several medications and options for treatment scheduling\, symptom management\, and MRI preparation. Finally\, we’ll conclude with discussing the considerations for labor and breastfeeding. \nThis meeting will be conducted in English with Arabic subtitles. Attendees will have the opportunity to ask Dr. Shatila questions in real time. This webinar will be recorded and made available on TSF’s YouTube channel and global website. \nThis program is made possible with support from AstraZeneca.
URL:https://www.sumairafoundation.org/event/myths-facts-family-planning-considerations-for-nmosd-other-rare-neurological-conditions/
LOCATION:Virtual: Global
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2024/02/Ahmed-Shatila.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20240229T200000
DTEND;TZID=Europe/Paris:20240229T210000
DTSTAMP:20260405T074927
CREATED:20231031T193144Z
LAST-MODIFIED:20240204T003027Z
UID:15249-1709236800-1709240400@www.sumairafoundation.org
SUMMARY:Le Projet Collectif Humain
DESCRIPTION:The Human Collective Project (HCP) est la réunion du groupe de soutien de TSF offerte à toute personne affectée par la NMOSD ou la MOGAD. Le programme a vu le jour au plus fort de la pandémie de COVID-19 en 2020\, lorsque la plupart des patients NMOSD/MOGAD se sentaient particulièrement isolés et vulnérables au coronavirus en tant que patient dit “vulnérable” de part son traitement contre ma maladie.\nL’isolement que beaucoup d’entre nous avons vécu a révélé un grand besoin et une opportunité pour nous de nous connecter de manière significative pour nous offrir notre soutien les uns aux autres. \nDepuis 2020\, nous avons élargi le programme pour offrir plus de sessions dans plusieurs zones géographiques afin de garantir que tous les membres des communautés NMOSD/MOGAD se sentent accueillis et inclus. Comme nous le disons toujours\, HCP est un excellent moyen de rencontrer d’autres personnes dans des circonstances similaires dans cette communauté rare; c’est un espace sûr pour rire\, pleurer\, évacuer\, partager les victoires\, etc. Ce programme est piloté et dirigé par les patients et soignants ambassadeurs de TSF dans le monde entier.
URL:https://www.sumairafoundation.org/event/le-projet-collectif-humain-10/
LOCATION:Virtual: France\, France
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/03/France-The-Human-Collective-Project-169-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20240227T180000
DTEND;TZID=Africa/Johannesburg:20240227T190000
DTSTAMP:20260405T074927
CREATED:20240204T002653Z
LAST-MODIFIED:20240220T201849Z
UID:16093-1709056800-1709060400@www.sumairafoundation.org
SUMMARY:HCP South Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/hcp-south-africa-9/
LOCATION:Virtual: South Africa\, South Africa
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/04/SOUTH-AFRICA-The-Human-Collective-Project-Facebook-Cover-1200-×-676-px.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Bogota:20240219T193000
DTEND;TZID=America/Bogota:20240219T203000
DTSTAMP:20260405T074927
CREATED:20240204T004327Z
LAST-MODIFIED:20240204T004327Z
UID:16101-1708371000-1708374600@www.sumairafoundation.org
SUMMARY:El Proyecto Colectivo Humano
DESCRIPTION:El Human Collective Project (HCP) es la reunión del grupo de apoyo de TSF que se ofrece a cualquier persona que haya sido afectada/impactada por NMOSD/MOG-AD. El programa nació durante el apogeo de la pandemia de COVID-19 en 2020\, cuando la mayoría de los NMOSD/MOG-AD se sentían particularmente aislados y vulnerables al coronavirus como miembros de la sociedad inmunodeprimidos/inmunodeprimidos. El aislamiento que muchos de nosotros experimentamos reveló una gran necesidad y oportunidad para conectarnos de una manera significativa y ofrecernos apoyo unos a otros. \nDesde 2020\, hemos ampliado el programa para ofrecer más sesiones en múltiples geografías para garantizar que todos en las comunidades NMOSD/MOG-AD se sientan bienvenidos e incluidos. Como siempre decimos\, HCP es una excelente manera de conocer a otras personas en circunstancias similares en esta rara comunidad; es un espacio seguro para reír\, llorar\, desahogarse\, compartir victorias\, etc. Este programa está impulsado y dirigido por pacientes y cuidadores embajadores de TSF en todo el mundo.
URL:https://www.sumairafoundation.org/event/el-proyecto-colectivo-humano-2/
LOCATION:Virtual: Colombia\, Colombia
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/11/Human-Collective-Registration-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240215T200000
DTEND;TZID=America/New_York:20240215T210000
DTSTAMP:20260405T074927
CREATED:20231219T151407Z
LAST-MODIFIED:20231219T151407Z
UID:15658-1708027200-1708030800@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-29/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20240214T193000
DTEND;TZID=Europe/Amsterdam:20240214T203000
DTSTAMP:20260405T074927
CREATED:20240204T002432Z
LAST-MODIFIED:20240204T002811Z
UID:16091-1707939000-1707942600@www.sumairafoundation.org
SUMMARY:TSF Plauderstunde | HCP Germany
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/tsf-plauderstunde-hcp-germany-9/
LOCATION:Virtual: Germany\, Germany
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/12/2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Tehran:20240211T190000
DTEND;TZID=Asia/Tehran:20240211T200000
DTSTAMP:20260405T074927
CREATED:20240130T170152Z
LAST-MODIFIED:20240130T170236Z
UID:16083-1707678000-1707681600@www.sumairafoundation.org
SUMMARY:Iranian Insights: NMOSD & MOGAD - Case discussions & lecture series
DESCRIPTION:TSF is pleased to launch Iranian Insights: NMOSD & MOGAD Case Discussion + Lecture Series.\nWe invite clinicians & researchers to join the discussions led by experts from Iran and around the world.\nThis series is being organized by Dr. Sara Samadzadeh\, Dr. Masoud Majed\, and Dr. Mohammad Ali Sahraian.
URL:https://www.sumairafoundation.org/event/iranian-insights-nmosd-mogad-case-discussions-lecture-series/
LOCATION:Virtual: Iran\, Iran\, Islamic Republic of
CATEGORIES:Case Discussion + Lecture
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/01/Illuminate-Insight-NMOSD-MOGAD-Iran.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Bogota:20240208T190000
DTEND;TZID=America/Bogota:20240208T200000
DTSTAMP:20260405T074927
CREATED:20240204T005542Z
LAST-MODIFIED:20240204T005542Z
UID:16103-1707418800-1707422400@www.sumairafoundation.org
SUMMARY:Pautas de rehabilitación después de una recaída de NMOSD
DESCRIPTION:Acompáñanos al primer webinar desde Colombia el próximo jueves 8 de febrero a las 7 pm COT. Jeimi Rodriguez fisioterapeuta y especialista en neuro rehabilitación\, nos contará las pautas\, desde el punto de vista de la fisioterapia\, después de una recaída de NMOSD. \nLos asistentes que se unan al seminario web en vivo tendrán la oportunidad de hacer preguntas. La sesión se grabará y estará disponible para su reproducción en el canal de YouTube y en el sitio web global de TSF. \nEste programa es posible gracias al apoyo de Amgen.
URL:https://www.sumairafoundation.org/event/pautas-de-rehabilitacion-despues-de-una-recaida-de-nmosd/
LOCATION:Virtual: Colombia\, Colombia
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/02/Jeimi-Rodriguez-Fisioterapeuta.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20240207T190000
DTEND;TZID=Europe/Amsterdam:20240207T200000
DTSTAMP:20260405T074927
CREATED:20240204T002254Z
LAST-MODIFIED:20240204T002254Z
UID:16089-1707332400-1707336000@www.sumairafoundation.org
SUMMARY:TSF’s Human Collective Project | Danmark
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-danmark-4/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/01/Denmark-The-Human-Collective-Project-Facebook-Cover-4.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Istanbul:20240205T193000
DTEND;TZID=Europe/Istanbul:20240205T193000
DTSTAMP:20260405T074927
CREATED:20240204T003936Z
LAST-MODIFIED:20240204T004026Z
UID:16097-1707161400-1707161400@www.sumairafoundation.org
SUMMARY:HCP Turkey
DESCRIPTION:Sumaira Foundation olarak düzenleyeceğimiz ilk toplantımıza sizi davet etmekten mutluluk youyuyoruz. Toplantı Tarihi: 5 Şubat\, Saat: 17:30 (Türkiye saati). Toplantı Zoom üzerinden gerçekleştirilecektir. Lütfen aşağıdaki bağlantıyı kullanarak katilin
URL:https://www.sumairafoundation.org/event/hcp-turkey/
LOCATION:virtual: Turkey\, Turkey
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/02/Turkiye-The-Human-Collective-Project-Facebook-Cover-1.png
END:VEVENT
END:VCALENDAR