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DTSTART;TZID=Asia/Seoul:20250121T090000
DTEND;TZID=Asia/Seoul:20250121T100000
DTSTAMP:20260403T111742
CREATED:20250109T175044Z
LAST-MODIFIED:20250110T191438Z
UID:18664-1737450000-1737453600@www.sumairafoundation.org
SUMMARY:다발성경화증(MS)\, 시신경척수염(NMOSD)\, 모그항체질환(MOGAD) 간의 유사점과 차이점을 이해합니다
DESCRIPTION:TSF 최초의 국내 환자교육 웨비나에 여러분을 초대합니다. \n1월 21일 화요일 오전 9시에 NMOSD와 MOGAD 전문가 김호진 박사가 출연하여 MOGAD\, MS 및 NMOSD 간의 유사점과 차이점을 논의하는 독점 프로그램에 참여하세요. \n참석자들은 김 박사에게 질문할 기회를 갖게 됩니다. 이 웹 세미나는 녹화되어 TSF의 YouTube 채널에서 재생할 수 있습니다. \n등록하려면 https://us02web.zoom.us/webinar/register/WN_7G2vm1JvTJeRgyB0cLrGMQ를 방문하세요.
URL:https://www.sumairafoundation.org/event/%eb%8b%a4%eb%b0%9c%ec%84%b1%ea%b2%bd%ed%99%94%ec%a6%9dms-%ec%8b%9c%ec%8b%a0%ea%b2%bd%ec%b2%99%ec%88%98%ec%97%bcnmosd-%eb%aa%a8%ea%b7%b8%ed%95%ad%ec%b2%b4%ec%a7%88%ed%99%98mogad-%ea%b0%84/
LOCATION:Virtual: Korea
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/01/Ho-Jin-Kim-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20250128T180000
DTEND;TZID=Africa/Johannesburg:20250128T190000
DTSTAMP:20260403T111742
CREATED:20241009T200444Z
LAST-MODIFIED:20250121T155454Z
UID:17918-1738087200-1738090800@www.sumairafoundation.org
SUMMARY:Human Collective Project | South Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/human-collective-project-south-africa-8/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/04/South-Africa.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250129T200000
DTEND;TZID=Europe/Paris:20250129T210000
DTSTAMP:20260403T111742
CREATED:20250127T162011Z
LAST-MODIFIED:20250127T162423Z
UID:18828-1738180800-1738184400@www.sumairafoundation.org
SUMMARY:LES TROUBLES DU SOMMEIL : THÉORIE ET PRATIQUE POUR MIEUX DORMIR
DESCRIPTION:Les troubles du sommeil sont courants dans les maladies neurologiques. La NMO et la MOGAD ne font pas exception. Que ce soit les troubles de l’endormissement\, les réveils\, le sommeil peu réparateur\, les troubles sont variés et difficiles de s’en débarrasser. \nEn compagnie de Véronique Carrette\, sophrologue et hypnothérapeute\, Bérengère et Fatiha\, ambassadrices TSF\, nous les évoquerons mais surtout nous échangerons des trucs et astuces et des moyens d’améliorer la qualité de son sommeil. Retrouvez-nous en ligne ce mercredi 29 janvier à 20 heures. Vous pourrez poser toutes vos questions.
URL:https://www.sumairafoundation.org/event/les-troubles-du-sommeil-theorie-et-pratique-pour-mieux-dormir/
LOCATION:Virtual: Global
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/01/Veronique-Carrette.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250131T110000
DTEND;TZID=America/New_York:20250131T120000
DTSTAMP:20260403T111742
CREATED:20241211T165158Z
LAST-MODIFIED:20250127T161446Z
UID:18513-1738321200-1738324800@www.sumairafoundation.org
SUMMARY:Managing Incontinence with Neuroimmune Disorders
DESCRIPTION:Join us on December 20th for TSF’s final webinar of 2024: Managing Incontinence with Neuroimmune Disorders featuring Dr. Raveen Syan\, Urologist and Assistant Professor of Clinical Urology at The University of Miami. \nDr. Syan will discuss urinary\, bowel and sexual dysfunction in the setting of neuroimmune conditions. Attendees joining the live program will have the opportunity to ask Dr. Raveen questions in real time. This webinar will be recorded and available for replay on TSF’s YouTube channel. \nThis program is made possible with support from Amgen.
URL:https://www.sumairafoundation.org/event/managing-incontinence-with-neuroimmune-disorders/
LOCATION:Virtual: Global
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/12/Raveen-Syan-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20250131T173000
DTEND;TZID=Europe/Rome:20250131T193000
DTSTAMP:20260403T111742
CREATED:20250121T201905Z
LAST-MODIFIED:20250121T201905Z
UID:18804-1738344600-1738351800@www.sumairafoundation.org
SUMMARY:Il progetto collettivo umano (HCP) | Italia Per pazienti adulti
DESCRIPTION:The Human Collective Project (HCP) è l’incontro del gruppo di supporto di TSF offerto a chiunque sia stato colpito/colpito da NMOSD/MOGAD. Il programma è nato durante il culmine della pandemia di COVID-19 nel 2020\, quando la maggior parte dei NMOSD/MOGAD si sentiva particolarmente isolata e vulnerabile al coronavirus come membri della società immunosoppressi/immunocompromessi. L’isolamento che molti di noi hanno vissuto ha svelato un grande bisogno e un’opportunità per noi di connetterci in modo significativo per offrire il nostro sostegno reciproco. \nDal 2020\, abbiamo ampliato il programma per offrire più sessioni in più aree geografiche per garantire che tutti nelle comunità NMOSD/MOGAD si sentano accolti e inclusi. Come diciamo sempre\, HCP è un ottimo modo per incontrare altri in circostanze simili in questa rara comunità; è uno spazio sicuro per ridere\, piangere\, sfogarsi\, condividere vittorie\, ecc. Questo programma è guidato e guidato dagli ambasciatori di pazienti e caregiver di TSF in tutto il mondo.
URL:https://www.sumairafoundation.org/event/il-progetto-collettivo-umano-hcp-italia-per-pazienti-adulti/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/01/Italian.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250203T140000
DTEND;TZID=Europe/Paris:20250203T150000
DTSTAMP:20260403T111742
CREATED:20250303T230812Z
LAST-MODIFIED:20250303T230812Z
UID:18894-1738591200-1738594800@www.sumairafoundation.org
SUMMARY:Le Projet Collectif Humain (HCP) | Français
DESCRIPTION:The Human Collective Project (HCP) est la réunion du groupe de soutien de TSF offerte à toute personne affectée par la NMOSD ou la MOGAD. Le programme a vu le jour au plus fort de la pandémie de COVID-19 en 2020\, lorsque la plupart des patients NMOSD/MOGAD se sentaient particulièrement isolés et vulnérables au coronavirus en tant que patient dit “vulnérable” de part son traitement contre ma maladie.\nL’isolement que beaucoup d’entre nous avons vécu a révélé un grand besoin et une opportunité pour nous de nous connecter de manière significative pour nous offrir notre soutien les uns aux autres. \nDepuis 2020\, nous avons élargi le programme pour offrir plus de sessions dans plusieurs zones géographiques afin de garantir que tous les membres des communautés NMOSD/MOGAD se sentent accueillis et inclus. Comme nous le disons toujours\, HCP est un excellent moyen de rencontrer d’autres personnes dans des circonstances similaires dans cette communauté rare; c’est un espace sûr pour rire\, pleurer\, évacuer\, partager les victoires\, etc. Ce programme est piloté et dirigé par les patients et soignants ambassadeurs de TSF dans le monde entier.
URL:https://www.sumairafoundation.org/event/le-projet-collectif-humain-hcp-francais-4/
LOCATION:Virtual: France\, France
CATEGORIES:Support Group,TSF France
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/03/45d9402e-d5a0-4a15-86fb-28197c367e32.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Bogota:20250203T180000
DTEND;TZID=America/Bogota:20250203T190000
DTSTAMP:20260403T111742
CREATED:20250116T190007Z
LAST-MODIFIED:20250116T190007Z
UID:18711-1738605600-1738609200@www.sumairafoundation.org
SUMMARY:Tratamientos para MOGAD
DESCRIPTION:Únase a nosotros el 3 de febrero para una presentación en vivo y una discusión sobre las opciones de tratamiento para pacientes de MOGAD en América Latina. \n  \nPara registrarse\, visite: https://us02web.zoom.us/webinar/register/WN_hLhettqCQQGgi1nt5Lf68A \n  \nLos asistentes tendrán la oportunidad de hacer preguntas a los expertos. Este seminario web se grabará y estará disponible para reproducirse en el canal de YouTube de TSF. \n  \nEste programa es posible gracias al apoyo de Amgen.
URL:https://www.sumairafoundation.org/event/tratamientos-para-mogad/
LOCATION:Virtual: Global
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/01/Contentti-and-Navas.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20250212T193000
DTEND;TZID=Europe/Amsterdam:20250212T203000
DTSTAMP:20260403T111742
CREATED:20241009T180501Z
LAST-MODIFIED:20241009T180501Z
UID:17895-1739388600-1739392200@www.sumairafoundation.org
SUMMARY:TSF Plauderstunde | HCP Germany
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/tsf-plauderstunde-hcp-germany-19/
LOCATION:Virtual: Germany\, Germany
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/10/Germany.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250213T200000
DTEND;TZID=America/New_York:20250213T210000
DTSTAMP:20260403T111742
CREATED:20250205T133338Z
LAST-MODIFIED:20250205T133338Z
UID:18848-1739476800-1739480400@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings | Black History Month
DESCRIPTION:Happy Black History Month! Let’s get together for our monthly call to catch up\, share stories\, and keep building a supportive space for our unique community. This is a safe place for patients\, caregivers\, and anyone else affected by NMOSD\, MOGAD\, and other rare Neuroimmune disorders. \nThe Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-black-history-month/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/02/HCP-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20250225T190000
DTEND;TZID=Africa/Johannesburg:20250225T200000
DTSTAMP:20260403T111742
CREATED:20241009T200503Z
LAST-MODIFIED:20250225T115002Z
UID:17920-1740510000-1740513600@www.sumairafoundation.org
SUMMARY:Human Collective Project | South Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/human-collective-project-south-africa-9/
LOCATION:Virtual: South Africa\, South Africa
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/04/South-Africa.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250225T190000
DTEND;TZID=America/New_York:20250225T203000
DTSTAMP:20260403T111742
CREATED:20250214T173547Z
LAST-MODIFIED:20250214T173547Z
UID:18862-1740510000-1740515400@www.sumairafoundation.org
SUMMARY:Breaking Barriers in Neuroimmune Disorders
DESCRIPTION:You’re invited to a special event during Black History Month featuring 2 ‘greats’ in neuroimmunology! \nJoin us on February 25th for a fireside chat between Dr. Mitzi Joi Williams\, a celebrated neuroimmunologist\, and Dr. Kina Peppers\, an OB/GYN\, author and NMOSD patient. \nDuring this exclusive program\, Dr. Williams and Dr. Peppers will discuss a variety of topics including systemic health equity challenges\, the achievements of Black doctors and researchers in neuroimmunology\, the prevalence of MS\, NMOSD\, and MOGAD in the Black community\, the importance of patient advocacy\, research\, clinical trials\, cultural competency for healthcare providers and calls to action for empowerment. \nLive attendees will have the opportunity to ask questions in real time. This webinar will be recorded and made available for replay on TSF’s YouTube channel.
URL:https://www.sumairafoundation.org/event/breaking-barriers-in-neuroimmune-disorders/
LOCATION:Virtual: United States\, United States
CATEGORIES:TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/02/Fireside-Chat.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250303T140000
DTEND;TZID=Europe/Paris:20250303T150000
DTSTAMP:20260403T111742
CREATED:20250303T231035Z
LAST-MODIFIED:20250303T231035Z
UID:18897-1741010400-1741014000@www.sumairafoundation.org
SUMMARY:Le Projet Collectif Humain (HCP) | Français
DESCRIPTION:The Human Collective Project (HCP) est la réunion du groupe de soutien de TSF offerte à toute personne affectée par la NMOSD ou la MOGAD. Le programme a vu le jour au plus fort de la pandémie de COVID-19 en 2020\, lorsque la plupart des patients NMOSD/MOGAD se sentaient particulièrement isolés et vulnérables au coronavirus en tant que patient dit “vulnérable” de part son traitement contre ma maladie.\nL’isolement que beaucoup d’entre nous avons vécu a révélé un grand besoin et une opportunité pour nous de nous connecter de manière significative pour nous offrir notre soutien les uns aux autres. \nDepuis 2020\, nous avons élargi le programme pour offrir plus de sessions dans plusieurs zones géographiques afin de garantir que tous les membres des communautés NMOSD/MOGAD se sentent accueillis et inclus. Comme nous le disons toujours\, HCP est un excellent moyen de rencontrer d’autres personnes dans des circonstances similaires dans cette communauté rare; c’est un espace sûr pour rire\, pleurer\, évacuer\, partager les victoires\, etc. Ce programme est piloté et dirigé par les patients et soignants ambassadeurs de TSF dans le monde entier.
URL:https://www.sumairafoundation.org/event/le-projet-collectif-humain-hcp-francais-5/
LOCATION:Virtual: France\, France
CATEGORIES:Support Group,TSF France
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/03/45d9402e-d5a0-4a15-86fb-28197c367e32.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250306T140000
DTEND;TZID=America/New_York:20250306T153000
DTSTAMP:20260403T111742
CREATED:20250215T144137Z
LAST-MODIFIED:20250215T144137Z
UID:18866-1741269600-1741275000@www.sumairafoundation.org
SUMMARY:Navigating the Transition from Pediatric to Adult Neuroimmunology Care
DESCRIPTION:We’re calling pediatric patients and their parents/caregivers to join us on March 6th for a special webinar featuring experts from Children’s National Hospital and George Washington University. \nThis webinar will provide an overview of the transition from pediatric to adult medical care\, featuring insights from a pediatric neurologist\, social worker\, and a neuropsychologist. \nTopics will include maintaining continuity of care\, managing complex medical conditions\, self-advocacy in healthcare settings\, and addressing social and emotional considerations. The discussion aims to support patients\, families\, and caregivers in navigating this important transition effectively.
URL:https://www.sumairafoundation.org/event/navigating-the-transition-from-pediatric-to-adult-neuroimmunology-care/
LOCATION:Virtual: United States\, United States
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/02/Childrens-National.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250313T200000
DTEND;TZID=America/New_York:20250313T210000
DTSTAMP:20260403T111742
CREATED:20250303T234515Z
LAST-MODIFIED:20250303T234515Z
UID:18908-1741896000-1741899600@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-39/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/10/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250313T200000
DTEND;TZID=America/New_York:20250313T210000
DTSTAMP:20260403T111742
CREATED:20250505T160252Z
LAST-MODIFIED:20250505T160252Z
UID:19259-1741896000-1741899600@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-40/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/10/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Bangui:20250317T180000
DTEND;TZID=Africa/Bangui:20250317T193000
DTSTAMP:20260403T111742
CREATED:20250227T205412Z
LAST-MODIFIED:20250317T151413Z
UID:18883-1742234400-1742239800@www.sumairafoundation.org
SUMMARY:NMOSD in sub-Saharan Africa
DESCRIPTION:In honor of NMO Awareness Month 2025\, TSF is excited to present “NMOSD in Sub-Saharan Africa\,” a live event exploring the landscape of NMOSD and other rare neuroimmunological disorders. \nJoin us on Monday\, March 17th\, for an exclusive webinar featuring Dr. Mashina Chomba (Zambia)\, Dr. Fiifi Duodu (Ghana)\, Dr. Pearl Thomas (South Africa)\, and Dr. Cynthia Wendo (Kenya). The experts will provide insights and answer questions about the prevalence and incidence of NMOSD\, diagnostics\, available treatments\, immunizations\, clinical trials\, and more. We invite patients\, caregivers\, clinicians\, researchers\, and advocates from around the world to attend. \nLive participants will have the opportunity to ask questions directly to the experts. The webinar will be recorded and made available for replay on TSF’s YouTube channel. \nRegistration is required.
URL:https://www.sumairafoundation.org/event/nmosd-in-sub-saharan-africa/
LOCATION:Virtual: South Africa\, South Africa
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2025/02/NMOSD-in-Sub-Saharan-Africa-1280-x-720-px.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Bogota:20250320T190000
DTEND;TZID=America/Bogota:20250320T200000
DTSTAMP:20260403T111742
CREATED:20250303T232518Z
LAST-MODIFIED:20250303T232518Z
UID:18903-1742497200-1742500800@www.sumairafoundation.org
SUMMARY:El proyecto colectivo humano (HCP) | Español
DESCRIPTION:El Human Collective Project (HCP) es la reunión del grupo de apoyo de TSF que se ofrece a cualquier persona que haya sido afectada/impactada por NMOSD/MOG-AD. El programa nació durante el apogeo de la pandemia de COVID-19 en 2020\, cuando la mayoría de los NMOSD/MOG-AD se sentían particularmente aislados y vulnerables al coronavirus como miembros de la sociedad inmunodeprimidos/inmunodeprimidos. El aislamiento que muchos de nosotros experimentamos reveló una gran necesidad y oportunidad para conectarnos de una manera significativa y ofrecernos apoyo unos a otros. \nDesde 2020\, hemos ampliado el programa para ofrecer más sesiones en múltiples geografías para garantizar que todos en las comunidades NMOSD/MOG-AD se sientan bienvenidos e incluidos. Como siempre decimos\, HCP es una excelente manera de conocer a otras personas en circunstancias similares en esta rara comunidad; es un espacio seguro para reír\, llorar\, desahogarse\, compartir victorias\, etc. Este programa está impulsado y dirigido por pacientes y cuidadores embajadores de TSF en todo el mundo.
URL:https://www.sumairafoundation.org/event/el-proyecto-colectivo-humano-hcp-espanol-2/
LOCATION:Virtual: Colombia\, Colombia
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/04/Spanish-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250324T200000
DTEND;TZID=Europe/Paris:20250324T210000
DTSTAMP:20260403T111742
CREATED:20250304T230139Z
LAST-MODIFIED:20250304T230200Z
UID:18958-1742846400-1742850000@www.sumairafoundation.org
SUMMARY:La gestion de la fatigue dans la NMOSD et la MOGAD
DESCRIPTION:La fatigue et la fatigabilité touchent toutes les personnes souffrant de NMOSD et de MOGAD. Cela reste la première cause de baisse de la qualité de vie mais est assez difficile à gérer. Imprévisible\, durable\, la fatigue n’est pas gérable avec une pilule miracle. Pour aborder ce sujet nous serons en compagnie du docteur Nathalie Moreau\, Cheffe de service de l’unité de Médecine Physique et de Réadaptation de l’Hôpital Léopold Bellan à Paris et de Véronique Carrette\, sophrologue et hypnothérapeute. Vous pourrez poser vos questions à nos intervenantes. Ce programme est rendu possible grâce au soutien d’Amgen.
URL:https://www.sumairafoundation.org/event/la-gestion-de-la-fatigue-dans-la-nmosd-et-la-mogad/
LOCATION:Virtual: France\, France
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2025/03/Veronique-Carrette-et-Nathalie-Moreau.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250325T190000
DTEND;TZID=America/New_York:20250325T200000
DTSTAMP:20260403T111742
CREATED:20250311T170125Z
LAST-MODIFIED:20250311T170125Z
UID:18994-1742929200-1742932800@www.sumairafoundation.org
SUMMARY:Immunizations for the Immunocompromised
DESCRIPTION:Vaccines play a crucial role in protecting immunocompromised patients\, as their weakened immune systems make them more vulnerable to infections. Vaccines also help prevent the spread of contagious diseases to others. For immunocompromised patients\, the risk of severe illness or complications from diseases such as flu\, pneumonia or COVID-19 is significantly higher\, making vaccination a key preventative measure. Join us for an insightful discussion on March 25th about immunizations for the immunocompromised led by Dr. Elias Sotirchos\, neuroimmunologist and Assistant Professor of Neurology at The Johns Hopkins University School of Medicine. Attendees joining live will have the opportunity to ask Dr. Sotirchos questions about vaccines and immunizations in real time. This program is made possible with support from Alexion.
URL:https://www.sumairafoundation.org/event/immunizations-for-the-immunocompromised/
LOCATION:Virtual: United States\, United States
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/03/Elias-Sotirchos.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20250326T190000
DTEND;TZID=Africa/Johannesburg:20250326T200000
DTSTAMP:20260403T111742
CREATED:20241009T200525Z
LAST-MODIFIED:20250325T141622Z
UID:17922-1743015600-1743019200@www.sumairafoundation.org
SUMMARY:Human Collective Project | South Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/human-collective-project-south-africa-10/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/04/South-Africa.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20250328T173000
DTEND;TZID=Europe/Rome:20250328T193000
DTSTAMP:20260403T111742
CREATED:20250303T234021Z
LAST-MODIFIED:20250303T234326Z
UID:18905-1743183000-1743190200@www.sumairafoundation.org
SUMMARY:Il progetto collettivo umano (HCP) | Italia Per pazienti adulti
DESCRIPTION:The Human Collective Project (HCP) è l’incontro del gruppo di supporto di TSF offerto a chiunque sia stato colpito/colpito da NMOSD/MOGAD. Il programma è nato durante il culmine della pandemia di COVID-19 nel 2020\, quando la maggior parte dei NMOSD/MOGAD si sentiva particolarmente isolata e vulnerabile al coronavirus come membri della società immunosoppressi/immunocompromessi. L’isolamento che molti di noi hanno vissuto ha svelato un grande bisogno e un’opportunità per noi di connetterci in modo significativo per offrire il nostro sostegno reciproco. \nDal 2020\, abbiamo ampliato il programma per offrire più sessioni in più aree geografiche per garantire che tutti nelle comunità NMOSD/MOGAD si sentano accolti e inclusi. Come diciamo sempre\, HCP è un ottimo modo per incontrare altri in circostanze simili in questa rara comunità; è uno spazio sicuro per ridere\, piangere\, sfogarsi\, condividere vittorie\, ecc. Questo programma è guidato e guidato dagli ambasciatori di pazienti e caregiver di TSF in tutto il mondo.
URL:https://www.sumairafoundation.org/event/il-progetto-collettivo-umano-hcp-italia-per-pazienti-adulti-2/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/01/Italian.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250329T110000
DTEND;TZID=America/Los_Angeles:20250329T170000
DTSTAMP:20260403T111742
CREATED:20250306T214916Z
LAST-MODIFIED:20250306T214916Z
UID:18965-1743246000-1743267600@www.sumairafoundation.org
SUMMARY:TSF's San Francisco Patient Day for NMOSD & MOGAD
DESCRIPTION:TSF is coming to San Francisco! \nAre you an NMOSD/MOGAD patient\, caregiver\, clinician\, nurse\, researcher and/or advocate in the Bay Area? You’re invited to our event on Saturday\, March 29th at 11 AM at Stanford University – Cardinal Hall\, hosted in collaboration with the neuroimmunology teams at Stanford and UCSF. \nJoin us for a day of education\, community and fun to: \n\nMeet local NMOSD & MOGAD patients\, caregivers and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, co-morbidities and more\n\n\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis in-person event is free and lunch will be served. We can’t wait to see you in San Francisco. \nThe Sumaira Foundation team
URL:https://www.sumairafoundation.org/event/tsfs-san-francisco-patient-day-for-nmosd-mogad/
LOCATION:Stanford University – Cardinal Hall\, 505 Broadway\, Redwood City\, 94063\, United States
CATEGORIES:Community Event,Patient Days
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/03/San-Francisco-Patient-Day-Main-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250410T200000
DTEND;TZID=America/New_York:20250410T210000
DTSTAMP:20260403T111742
CREATED:20250505T160323Z
LAST-MODIFIED:20250505T160323Z
UID:19261-1744315200-1744318800@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-41/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/10/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Tokyo:20250426T140000
DTEND;TZID=Asia/Tokyo:20250426T150000
DTSTAMP:20260403T111742
CREATED:20250402T181535Z
LAST-MODIFIED:20250418T145953Z
UID:19109-1745676000-1745679600@www.sumairafoundation.org
SUMMARY:MOGADについての理解と 臨床試験への患者参加の 重要性
DESCRIPTION:MOGAD啓発月間を記念し、Sumaira Foundation、MSCabin、NPO法人日本視神経脊髄炎患者会が、藤原一男先生と毛塚剛司先生による特別ウェビナーを開催します。 4 月 26 日午後 2 時から、MOG抗体疾患と臨床試験への患者参加の重要性について話し合うインタラクティブ プログラムにご参加ください。 セミナーのライブ視聴者は、講師の先生方へ質問することができます。 セミナーアーカイブは、後日 TSF YouTube チャンネルで視聴できます。 （チャンネル登録が必要です）
URL:https://www.sumairafoundation.org/event/mogad%e3%81%ab%e3%81%a4%e3%81%84%e3%81%a6%e3%81%ae%e7%90%86%e8%a7%a3%e3%81%a8-%e8%87%a8%e5%ba%8a%e8%a9%a6%e9%a8%93%e3%81%b8%e3%81%ae%e6%82%a3%e8%80%85%e5%8f%82%e5%8a%a0%e3%81%ae-%e9%87%8d%e8%a6%81/
LOCATION:Virtual: Japan\, Japan
CATEGORIES:Understanding MOGAD
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/04/JAPANESE-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20250429T180000
DTEND;TZID=Africa/Johannesburg:20250429T190000
DTSTAMP:20260403T111742
CREATED:20241009T200600Z
LAST-MODIFIED:20250121T160003Z
UID:17924-1745949600-1745953200@www.sumairafoundation.org
SUMMARY:Human Collective Project | South Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/human-collective-project-south-africa-11/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/04/South-Africa.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250508T200000
DTEND;TZID=America/New_York:20250508T210000
DTSTAMP:20260403T111742
CREATED:20250505T160351Z
LAST-MODIFIED:20250505T160351Z
UID:19263-1746734400-1746738000@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-42/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/10/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20250528T190000
DTEND;TZID=Africa/Johannesburg:20250528T200000
DTSTAMP:20260403T111742
CREATED:20250505T155803Z
LAST-MODIFIED:20250528T151059Z
UID:19256-1748458800-1748462400@www.sumairafoundation.org
SUMMARY:Human Collective Project | Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/human-collective-project-south-africa-12/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/05/HCP-Master-169-Facebook-Cover.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250608T110000
DTEND;TZID=America/New_York:20250608T170000
DTSTAMP:20260403T111742
CREATED:20250417T140359Z
LAST-MODIFIED:20250417T140359Z
UID:19144-1749380400-1749402000@www.sumairafoundation.org
SUMMARY:TSF's Washington DC Patient Day
DESCRIPTION:TSF is coming to the DMV area! \nAre you an NMOSD/MOGAD patient\, caregiver\, clinician\, nurse\, researcher and/or advocate in the Washington D.C./Baltimore area? You’re invited to our event on Sunday\, June 8th\, at 11 AM at the Georgetown University Conference Center. \nJoin us for a day of education\, community\, and fun to: \n\nMeet local NMOSD & MOGAD patients\, caregivers and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, co-morbidities and more\n\n\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis in-person event is free and lunch will be served. We can’t wait to see you in the capital of the United States! \nThe Sumaira Foundation team
URL:https://www.sumairafoundation.org/event/tsfs-washington-dc-patient-day/
LOCATION:Leavey Center\, 560 Tondorf Road\, Washington\, DC\, 20057\, United States
CATEGORIES:TSF Patient Day
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/04/Washington-DC-Patient-Day-June-2025-2160-x-1080-px.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250612T200000
DTEND;TZID=America/New_York:20250612T210000
DTSTAMP:20260403T111742
CREATED:20250505T160423Z
LAST-MODIFIED:20250505T160423Z
UID:19265-1749758400-1749762000@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-43/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/10/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Mexico_City:20250619T180000
DTEND;TZID=America/Mexico_City:20250619T190000
DTSTAMP:20260403T111742
CREATED:20250522T123220Z
LAST-MODIFIED:20250522T123220Z
UID:19399-1750356000-1750359600@www.sumairafoundation.org
SUMMARY:Hacer ejercicio con una enfermedad autoimmune
DESCRIPTION:¿Sabías que el ejercicio puede ser un aliado poderoso en la gestión de enfermedades autoinmunes? En este webinar\, exploraremos cómo el deporte puede ayudar a mejorar la calidad de vida. \n  \nÚnase a nosotros el 5 de junio para una presentación y discusión con la Dra. Araceli Reyes Cuayahuitl. Haga clic aquí para registrarse: https://us02web.zoom.us/webinar/register/WN_DeOIgA_qTemWu61Y3RWVJg \n  \nTemas a cubrir: \n• Breve introducción a las enfermedades desmielinizantes \n• Síntomas físicos comunes \n• Importancia de la actividad física en general \n• Evidencia científica del impacto del ejercicio en enfermedades desmielinizantes \n• Tipos de ejercicio recomendados \n  \n¿Qué esperar en el webinar? \n• Información basada en evidencia científica \n• Oportunidad para hacer preguntas e interactuar con expertos \n  \nEste programa es posible gracias al apoyo de Amgen.
URL:https://www.sumairafoundation.org/event/hacer-ejercicio-con-una-enfermedad-autoimmune/
LOCATION:Virtual: Mexico
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2025/05/Araceli-Reyes-Cuayahuitl.jpg
END:VEVENT
END:VCALENDAR