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BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20240528T180000
DTEND;TZID=Africa/Johannesburg:20240528T190000
DTSTAMP:20260405T074928
CREATED:20240430T145010Z
LAST-MODIFIED:20240727T201444Z
UID:16828-1716919200-1716922800@www.sumairafoundation.org
SUMMARY:Human Collective Project | South Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/human-collective-project-south-africa/
LOCATION:Virtual: South Africa\, South Africa
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/04/South-Africa.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20240527T140000
DTEND;TZID=Europe/Paris:20240527T150000
DTSTAMP:20260405T074928
CREATED:20240524T143519Z
LAST-MODIFIED:20240524T143519Z
UID:16941-1716818400-1716822000@www.sumairafoundation.org
SUMMARY:Démarches administratives et handicap
DESCRIPTION:Nous vous invitons à rejoindre notre prochain webinaire le lundi 27 mai à 14h00 CET avec Marie Delenne\, Patiente Experte Sclérose en Plaques et ancienne Inspectrice du Travail. \nDémarches administratives quand on est en situation de handicap\, quelle galère ! Travail\, Sécu\, MDPH\, RQTH\, Retraite ! \nVenez en parler avec nous et recevoir les conseils de notre Experte qui aide depuis des années des Patients comme vous. \nCe programme est rendu possible grâce au soutien d’Alexion.
URL:https://www.sumairafoundation.org/event/demarches-administratives-et-handicap/
LOCATION:Virtual: France\, France
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/05/Marie-Delenne.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20240515T193000
DTEND;TZID=Europe/Amsterdam:20240515T203000
DTSTAMP:20260405T074928
CREATED:20240401T183520Z
LAST-MODIFIED:20240430T135345Z
UID:16626-1715801400-1715805000@www.sumairafoundation.org
SUMMARY:TSF Plauderstunde (HCP) | Deutsch
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/tsf-plauderstunde-hcp-germany-12/
LOCATION:Virtual: Germany\, Germany
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/04/Germany.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240509T200000
DTEND;TZID=America/New_York:20240509T210000
DTSTAMP:20260405T074928
CREATED:20240401T184243Z
LAST-MODIFIED:20240430T134434Z
UID:16630-1715284800-1715288400@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-28/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/04/America.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Bogota:20240506T193000
DTEND;TZID=America/Bogota:20240506T203000
DTSTAMP:20260405T074928
CREATED:20240430T133610Z
LAST-MODIFIED:20240430T133654Z
UID:16817-1715023800-1715027400@www.sumairafoundation.org
SUMMARY:El proyecto colectivo humano (HCP) | Español
DESCRIPTION:El Human Collective Project (HCP) es la reunión del grupo de apoyo de TSF que se ofrece a cualquier persona que haya sido afectada/impactada por NMOSD/MOG-AD. El programa nació durante el apogeo de la pandemia de COVID-19 en 2020\, cuando la mayoría de los NMOSD/MOG-AD se sentían particularmente aislados y vulnerables al coronavirus como miembros de la sociedad inmunodeprimidos/inmunodeprimidos. El aislamiento que muchos de nosotros experimentamos reveló una gran necesidad y oportunidad para conectarnos de una manera significativa y ofrecernos apoyo unos a otros. \nDesde 2020\, hemos ampliado el programa para ofrecer más sesiones en múltiples geografías para garantizar que todos en las comunidades NMOSD/MOG-AD se sientan bienvenidos e incluidos. Como siempre decimos\, HCP es una excelente manera de conocer a otras personas en circunstancias similares en esta rara comunidad; es un espacio seguro para reír\, llorar\, desahogarse\, compartir victorias\, etc. Este programa está impulsado y dirigido por pacientes y cuidadores embajadores de TSF en todo el mundo.
URL:https://www.sumairafoundation.org/event/el-proyecto-colectivo-humano-hcp-espanol/
LOCATION:Virtual: Colombia\, Colombia
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/04/Spanish-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20240506T183000
DTEND;TZID=Europe/Rome:20240506T193000
DTSTAMP:20260405T074928
CREATED:20240430T130003Z
LAST-MODIFIED:20240430T130003Z
UID:16814-1715020200-1715023800@www.sumairafoundation.org
SUMMARY:Il progetto collettivo umano (HCP) | Italia
DESCRIPTION:The Human Collective Project (HCP) è l’incontro del gruppo di supporto di TSF offerto a chiunque sia stato colpito/colpito da NMOSD/MOGAD. Il programma è nato durante il culmine della pandemia di COVID-19 nel 2020\, quando la maggior parte dei NMOSD/MOGAD si sentiva particolarmente isolata e vulnerabile al coronavirus come membri della società immunosoppressi/immunocompromessi. L’isolamento che molti di noi hanno vissuto ha svelato un grande bisogno e un’opportunità per noi di connetterci in modo significativo per offrire il nostro sostegno reciproco. \nDal 2020\, abbiamo ampliato il programma per offrire più sessioni in più aree geografiche per garantire che tutti nelle comunità NMOSD/MOGAD si sentano accolti e inclusi. Come diciamo sempre\, HCP è un ottimo modo per incontrare altri in circostanze simili in questa rara comunità; è uno spazio sicuro per ridere\, piangere\, sfogarsi\, condividere vittorie\, ecc. Questo programma è guidato e guidato dagli ambasciatori di pazienti e caregiver di TSF in tutto il mondo.
URL:https://www.sumairafoundation.org/event/il-progetto-collettivo-umano-hcp-italia/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/04/Italian-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Copenhagen:20240501T190000
DTEND;TZID=Europe/Copenhagen:20240501T200000
DTSTAMP:20260405T074928
CREATED:20240429T191715Z
LAST-MODIFIED:20240429T191715Z
UID:16809-1714590000-1714593600@www.sumairafoundation.org
SUMMARY:TSF’s Human Collective Project | Danmark
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-danmark-7/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/04/Danish-3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20240430T190000
DTEND;TZID=Europe/Paris:20240430T200000
DTSTAMP:20260405T074928
CREATED:20240419T191639Z
LAST-MODIFIED:20240419T194854Z
UID:16757-1714503600-1714507200@www.sumairafoundation.org
SUMMARY:PREMIÈRE MONDIALE | La vie c’est tout de suite
DESCRIPTION:Nelly\, la quarantaine\, vit près de Beauvais en France. Cette professeure en milieu carcéral est une personne très active avec de nombreux amis et passe-temps. Malgré des années d’incertitude jusqu’à ce qu’elle reçoive enfin un diagnostic (MOGAD)\, elle n’a jamais laissé ses symptômes\, pourtant graves\, lui ôter sa joie de vivre. \nAprès 2 ans de travail\, nous avons l’honneur de vous inviter à la première mondiale de “La vie\, c’est tout suite\,” l’histoire de Nelly Campos qui aura lieu le mardi 30 avril à 19h00. (heure de Paris) sur ce lien https://tinyurl.com/TSFNelly
URL:https://www.sumairafoundation.org/event/premiere-mondiale-la-vie-cest-tout-suite/
LOCATION:Virtual: France\, France
CATEGORIES:TSF France,TSF Programming
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2024/04/THUMBNAIL_NELLY_16_9-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20240430T180000
DTEND;TZID=Africa/Johannesburg:20240430T190000
DTSTAMP:20260405T074928
CREATED:20240423T155748Z
LAST-MODIFIED:20240727T201401Z
UID:16775-1714500000-1714503600@www.sumairafoundation.org
SUMMARY:HCP South Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/hcp-south-africa-11/
LOCATION:Virtual: South Africa\, South Africa
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/04/SOUTH-AFRICA-The-Human-Collective-Project-Facebook-Cover.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20240425T200000
DTEND;TZID=Europe/Paris:20240425T210000
DTSTAMP:20260405T074928
CREATED:20240216T153227Z
LAST-MODIFIED:20240216T153227Z
UID:16165-1714075200-1714078800@www.sumairafoundation.org
SUMMARY:Le Projet Collectif Humain
DESCRIPTION:The Human Collective Project (HCP) est la réunion du groupe de soutien de TSF offerte à toute personne affectée par la NMOSD ou la MOGAD. Le programme a vu le jour au plus fort de la pandémie de COVID-19 en 2020\, lorsque la plupart des patients NMOSD/MOGAD se sentaient particulièrement isolés et vulnérables au coronavirus en tant que patient dit “vulnérable” de part son traitement contre ma maladie.\nL’isolement que beaucoup d’entre nous avons vécu a révélé un grand besoin et une opportunité pour nous de nous connecter de manière significative pour nous offrir notre soutien les uns aux autres. \nDepuis 2020\, nous avons élargi le programme pour offrir plus de sessions dans plusieurs zones géographiques afin de garantir que tous les membres des communautés NMOSD/MOGAD se sentent accueillis et inclus. Comme nous le disons toujours\, HCP est un excellent moyen de rencontrer d’autres personnes dans des circonstances similaires dans cette communauté rare; c’est un espace sûr pour rire\, pleurer\, évacuer\, partager les victoires\, etc. Ce programme est piloté et dirigé par les patients et soignants ambassadeurs de TSF dans le monde entier.
URL:https://www.sumairafoundation.org/event/le-projet-collectif-humain-12/
LOCATION:Virtual: France\, France
CATEGORIES:Support Group,TSF France
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/03/France-The-Human-Collective-Project-169-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Bogota:20240425T193000
DTEND;TZID=America/Bogota:20240425T203000
DTSTAMP:20260405T074928
CREATED:20240423T154147Z
LAST-MODIFIED:20240425T144500Z
UID:16771-1714073400-1714077000@www.sumairafoundation.org
SUMMARY:Diferencias entre Esclerosis múltiple\, NMOSD y MOG-AD
DESCRIPTION:El Dr Carlos Navas discutirá desde la perspectiva del paciente\, las diferencias entre Esclerosis múltiple\, NMOSD y MOGAD.\n\nEl Dr Navas es un médico colombiano dedicado al estudio y tratamiento de pacientes con enfermedades desmielinizantes. Acompáñanos en un nuevo From the Experts en español\, el jueves 25 de abril a las 7:30 pm COT para estar en vivo con el Dr. Navas.\n\nLos asistentes tendrán la oportunidad de hacer preguntas al Dr. Navas en tiempo real. Este seminario web se grabará y estará disponible para reproducirse en el canal de YouTube de TSF.\n\nEste programa es posible gracias al apoyo de Amgen.
URL:https://www.sumairafoundation.org/event/diferencias-entre-esclerosis-multiple-nmosd-y-mog-ad/
LOCATION:Virtual: Colombia\, Colombia
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/04/Carlos-Navas-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Istanbul:20240422T193000
DTEND;TZID=Europe/Istanbul:20240422T203000
DTSTAMP:20260405T074928
CREATED:20240401T182656Z
LAST-MODIFIED:20240415T185518Z
UID:16622-1713814200-1713817800@www.sumairafoundation.org
SUMMARY:HCP Turkey
DESCRIPTION:Sumaira fonu olarak sizi aylık (hcp) zoom toplantimiza davet ediyoruz. Aşağıdaki belirtilmiş olan linke tıklayarak\nKaydınızı oluşturabilirsiniz \nSumaira foundation adına\nSaygılarımla\nFatih Şen
URL:https://www.sumairafoundation.org/event/hcp-turkey-3/
LOCATION:virtual: Turkey\, Turkey
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/02/Turkiye-The-Human-Collective-Project-Facebook-Cover-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240420T110000
DTEND;TZID=America/New_York:20240420T120000
DTSTAMP:20260405T074928
CREATED:20240325T192208Z
LAST-MODIFIED:20240325T192208Z
UID:16484-1713610800-1713614400@www.sumairafoundation.org
SUMMARY:Let's Talk About Cannabis: 4/20 Edition
DESCRIPTION:Are you curious to learn about the use of medical marijuana to help manage your symptoms? \nYou’re invited to TSF’s upcoming webinar – “Let’s Talk About Cannabis: 4/20 Edition” – on Saturday\, April 20th at 11 AM EST / 5 PM CET featuring Dr. Aaron Boster\, neurologist & MS specialist. \nThis educational webinar invites patients\, caregivers\, clinicians\, researchers\, advocates and/or anyone interested in learning about medical marijuana in the setting of neurological conditions. \nLive attendees will have the opportunity to ask Dr. Boster questions in real time. This is a safe space and a zero-judgment zone! \nThis webinar will be recorded and made available for replay on TSF’s YouTube channel and global website.
URL:https://www.sumairafoundation.org/event/lets-talk-about-cannabis-4-20-edition/
LOCATION:Virtual: United States\, United States
CATEGORIES:TSF Programming,TSF Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2024/03/1967cdd6-d6ad-4c35-8332-8b9725596873.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Kolkata:20240414T203000
DTEND;TZID=Asia/Kolkata:20240414T213000
DTSTAMP:20260405T074928
CREATED:20240408T141818Z
LAST-MODIFIED:20240408T141818Z
UID:16674-1713126600-1713130200@www.sumairafoundation.org
SUMMARY:HCP India
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD or MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD and MOGAD patients felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. Since launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies and languages to ensure that everyone in the NMOSD and MOGAD community feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world.
URL:https://www.sumairafoundation.org/event/hcp-india-3/
LOCATION:Virtual: India\, India
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/08/HCP-India.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240411T200000
DTEND;TZID=America/New_York:20240411T210000
DTSTAMP:20260405T074928
CREATED:20240401T184211Z
LAST-MODIFIED:20240401T184211Z
UID:16628-1712865600-1712869200@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-27/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20240410T193000
DTEND;TZID=Europe/Amsterdam:20240410T203000
DTSTAMP:20260405T074928
CREATED:20240216T180427Z
LAST-MODIFIED:20240216T180427Z
UID:16176-1712777400-1712781000@www.sumairafoundation.org
SUMMARY:TSF Plauderstunde | HCP Germany
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/tsf-plauderstunde-hcp-germany-11/
LOCATION:Virtual: Germany\, Germany
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/12/2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20240408T183000
DTEND;TZID=Europe/Rome:20240408T193000
DTSTAMP:20260405T074928
CREATED:20240401T183357Z
LAST-MODIFIED:20240403T182540Z
UID:16624-1712601000-1712604600@www.sumairafoundation.org
SUMMARY:HCP Italia
DESCRIPTION:The Human Collective Project (HCP) è l’incontro del gruppo di supporto di TSF offerto a chiunque sia stato colpito/colpito da NMOSD/MOGAD. Il programma è nato durante il culmine della pandemia di COVID-19 nel 2020\, quando la maggior parte dei NMOSD/MOGAD si sentiva particolarmente isolata e vulnerabile al coronavirus come membri della società immunosoppressi/immunocompromessi. L’isolamento che molti di noi hanno vissuto ha svelato un grande bisogno e un’opportunità per noi di connetterci in modo significativo per offrire il nostro sostegno reciproco. \nDal 2020\, abbiamo ampliato il programma per offrire più sessioni in più aree geografiche per garantire che tutti nelle comunità NMOSD/MOGAD si sentano accolti e inclusi. Come diciamo sempre\, HCP è un ottimo modo per incontrare altri in circostanze simili in questa rara comunità; è uno spazio sicuro per ridere\, piangere\, sfogarsi\, condividere vittorie\, ecc. Questo programma è guidato e guidato dagli ambasciatori di pazienti e caregiver di TSF in tutto il mondo.
URL:https://www.sumairafoundation.org/event/hcp-italia-9/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/04/unnamed.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Tokyo:20240407T100000
DTEND;TZID=Asia/Tokyo:20240407T110000
DTSTAMP:20260405T074928
CREATED:20240326T204953Z
LAST-MODIFIED:20240401T135054Z
UID:16508-1712484000-1712487600@www.sumairafoundation.org
SUMMARY:NMOSD\, MOGAD\, MS の類似点と相違点を理解する
DESCRIPTION:視神経脊髄炎（NMOSD）、MOG抗体関連疾患（MOGAD）、多発性硬化症（MS）に関して４月７日（日）日本時間10:00からウェビナーを開催します。３疾患はどのような点が異なるかというお話について専門家が分かりやすく解説します。質問の時間もありますのでぜひご参加ください。 \n演題：「NMOSD、MOGAD、MSの類似点と相違点を理解する」 講師：藤原一男先生（福島県立医科大学） \n藤原一男先生 脳神経内科医。福島県立医科大学医学部 多発性硬化症治療学講座 教授。 脳神経疾患研究所附属南東北病院 多発性硬化症・視神経脊髄炎センター センター長。 専門分野は多発性硬化症（MS）、視神経脊髄炎（NMOSD）、MOG抗体関連疾患（MOGAD）などの免疫性神経疾患。 \n※内容は録画し、後日、スマイラ財団のYouTubeチャンネルから再配信します。 ※このセミナーはアムジェン株式会社の支援のもと、MSキャビンと日本視神経脊髄炎患者会の協力によって開催します。
URL:https://www.sumairafoundation.org/event/nmosd-mogad-ms-%e3%81%ae%e9%a1%9e%e4%bc%bc%e7%82%b9%e3%81%a8%e7%9b%b8%e9%81%95%e7%82%b9%e3%82%92%e7%90%86%e8%a7%a3%e3%81%99%e3%82%8b/
LOCATION:Virtual: Japan\, Japan
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/03/9817a3eb-440f-4130-bf10-578446557799.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20240403T190000
DTEND;TZID=Europe/Amsterdam:20240403T200000
DTSTAMP:20260405T074928
CREATED:20240215T211419Z
LAST-MODIFIED:20240401T182152Z
UID:16161-1712170800-1712174400@www.sumairafoundation.org
SUMMARY:TSF’s Human Collective Project | Danmark
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-danmark-6/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/02/Denmark-The-Human-Collective-Project-Facebook-Cover-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20240402T180000
DTEND;TZID=Africa/Johannesburg:20240402T190000
DTSTAMP:20260405T074928
CREATED:20240229T155648Z
LAST-MODIFIED:20240423T154956Z
UID:16336-1712080800-1712084400@www.sumairafoundation.org
SUMMARY:HCP South Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/hcp-south-africa-10/
LOCATION:Virtual: South Africa\, South Africa
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/02/SOUTH-AFRICA-The-Human-Collective-Project-Facebook-Cover.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240330T100000
DTEND;TZID=America/New_York:20240330T110000
DTSTAMP:20260405T074928
CREATED:20240325T191109Z
LAST-MODIFIED:20240325T191109Z
UID:16480-1711792800-1711796400@www.sumairafoundation.org
SUMMARY:The Human Collective Project Global
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/the-human-collective-project-global/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/03/092b008f-8852-4a95-aab3-9b3578c950f2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20240328T200000
DTEND;TZID=Europe/Paris:20240328T210000
DTSTAMP:20260405T074928
CREATED:20240216T153128Z
LAST-MODIFIED:20240216T153152Z
UID:16163-1711656000-1711659600@www.sumairafoundation.org
SUMMARY:Le Projet Collectif Humain
DESCRIPTION:The Human Collective Project (HCP) est la réunion du groupe de soutien de TSF offerte à toute personne affectée par la NMOSD ou la MOGAD. Le programme a vu le jour au plus fort de la pandémie de COVID-19 en 2020\, lorsque la plupart des patients NMOSD/MOGAD se sentaient particulièrement isolés et vulnérables au coronavirus en tant que patient dit “vulnérable” de part son traitement contre ma maladie.\nL’isolement que beaucoup d’entre nous avons vécu a révélé un grand besoin et une opportunité pour nous de nous connecter de manière significative pour nous offrir notre soutien les uns aux autres. \nDepuis 2020\, nous avons élargi le programme pour offrir plus de sessions dans plusieurs zones géographiques afin de garantir que tous les membres des communautés NMOSD/MOGAD se sentent accueillis et inclus. Comme nous le disons toujours\, HCP est un excellent moyen de rencontrer d’autres personnes dans des circonstances similaires dans cette communauté rare; c’est un espace sûr pour rire\, pleurer\, évacuer\, partager les victoires\, etc. Ce programme est piloté et dirigé par les patients et soignants ambassadeurs de TSF dans le monde entier.
URL:https://www.sumairafoundation.org/event/le-projet-collectif-humain-11/
LOCATION:Virtual: France\, France
CATEGORIES:Support Group,TSF France
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/03/France-The-Human-Collective-Project-169-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20240321T190000
DTEND;TZID=Europe/Paris:20240321T200000
DTSTAMP:20260405T074928
CREATED:20240314T143933Z
LAST-MODIFIED:20240321T171817Z
UID:16441-1711047600-1711051200@www.sumairafoundation.org
SUMMARY:La rééducation et la récupération dans les maladies neurologiques (SEP\, NMOSD\, MOGAD)
DESCRIPTION:A l’occasion du mois de sensibilisation à la NMOSD\, le docteur Cécile Donzé nous fait le plaisir de venir aborder avec TSF France la rééducation et la réadaptation dans les maladies neurologiques (NMOSD\, Mogad et Sclérose en plaques (SEP)). Toutes ces maladies se caractérisent par l’apparition de handicaps plus ou moins visibles mais qui ne sont pas définitifs pour la plupart si on peut bénéficier d’une bonne prise en charge. \nVous pourrez profiter d’un échange avec cette spécialiste reconnue de Médecine Physique et de Réadaptation\, cheffe de service au centre spécialisé de Saint-Philibert-de-Lomme. Nous aborderons les aspects pratiques et répondrons à vos questions en direct. \nCe programme est rendu possible grâce au soutien d’Alexion Pharmaceuticals.
URL:https://www.sumairafoundation.org/event/la-reeducation-et-la-recuperation-dans-les-maladies-neurologiques-sep-nmosd-mogad/
LOCATION:Virtual: France\, France
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/03/Cecile-Donze-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Sao_Paulo:20240321T190000
DTEND;TZID=America/Sao_Paulo:20240321T200000
DTSTAMP:20260405T074928
CREATED:20240229T153945Z
LAST-MODIFIED:20240321T170842Z
UID:16330-1711047600-1711051200@www.sumairafoundation.org
SUMMARY:Compreendendo as semelhanças e diferenças entre NMOSD\, MOGAD e MS
DESCRIPTION:Para celebrar o Mês de Conscientização sobre NMO 2024\, convidamos pacientes\, cuidadores\, médicos e pesquisadores de língua portuguesa a participarem do primeiro webinar português da TSF: Compreendendo as semelhanças e diferenças entre DENMO\, MOGAD e EM. \nEste webinar ao vivo contará com a participação do Professor Jefferson Becker\, da Pontifícia Universidade Católica do Rio Grande do Sul\, que descreverá as semelhanças e diferenças entre NMOSD\, MOGAD e esclerose múltipla. \nOs participantes do webinar ao vivo terão a oportunidade de perguntar ao Prof. Becker questões em tempo real. A sessão será gravada e disponibilizada no YouTube. \nEste programa é possível com o apoio da Amgen em colaboração com a The Sumaira Foundation\, BCTRIMS e NMO Brasil.
URL:https://www.sumairafoundation.org/event/compreendendo-as-semelhancas-e-diferencas-entre-nmosd-mogad-e-ms/
LOCATION:Virtual: Brazil\, Brazil
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/02/Jefferson-Becker-1024x576-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20240320T180000
DTEND;TZID=Europe/Rome:20240320T190000
DTSTAMP:20260405T074928
CREATED:20240229T153236Z
LAST-MODIFIED:20240319T184618Z
UID:16327-1710957600-1710961200@www.sumairafoundation.org
SUMMARY:La storia e l'evoluzione di NMOSD
DESCRIPTION:Per celebrare il Mese della Consapevolezza NMO 2024\, TSF Italia ti invita a partecipare a un webinar molto speciale con il Professor Luca Massacesi e la Dott.ssa Sara Mariotto mercoledì 20 marzo alle 18:00 CET. \nIn questo webinar in formato intervista\, verrà fatto un excursus storico sulla neuromielite ottica\, toccando anche diversi aspetti tra cui la complessa diagnosi differenziale e le conseguenti difficoltà nelle scelte terapeutiche prima della scoperta degli anticorpi anti-AQP4\, l’impatto della scoperta degli anticorpi stessi e l’apporto dei diversi criteri diagnostici. Infine\, verranno discussi aspetti più recenti come la caratterizzazione patogenetica dell’NMOSD facendo accenno anche alla diagnosi differenziale con malattie di più recente identificazione e le ultime strategie terapeutiche. \nI partecipanti all’evento dal vivo avranno l’opportunità di porre domande agli esperti. Questo webinar sarà registrato e sarà disponibile per la riproduzione sul canale YouTube e sulla libreria multimediale di TSF. \nQuesto programma è reso possibile grazie al supporto di Amgen.
URL:https://www.sumairafoundation.org/event/la-storia-e-levoluzione-di-nmosd/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/02/Luca-Massacesi-Sara-Mariotto-1024x576-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Bogota:20240319T193000
DTEND;TZID=America/Bogota:20240319T203000
DTSTAMP:20260405T074928
CREATED:20240229T155455Z
LAST-MODIFIED:20240229T155455Z
UID:16334-1710876600-1710880200@www.sumairafoundation.org
SUMMARY:El Proyecto Colectivo Humano
DESCRIPTION:El Human Collective Project (HCP) es la reunión del grupo de apoyo de TSF que se ofrece a cualquier persona que haya sido afectada/impactada por NMOSD/MOG-AD. El programa nació durante el apogeo de la pandemia de COVID-19 en 2020\, cuando la mayoría de los NMOSD/MOG-AD se sentían particularmente aislados y vulnerables al coronavirus como miembros de la sociedad inmunodeprimidos/inmunodeprimidos. El aislamiento que muchos de nosotros experimentamos reveló una gran necesidad y oportunidad para conectarnos de una manera significativa y ofrecernos apoyo unos a otros. \nDesde 2020\, hemos ampliado el programa para ofrecer más sesiones en múltiples geografías para garantizar que todos en las comunidades NMOSD/MOG-AD se sientan bienvenidos e incluidos. Como siempre decimos\, HCP es una excelente manera de conocer a otras personas en circunstancias similares en esta rara comunidad; es un espacio seguro para reír\, llorar\, desahogarse\, compartir victorias\, etc. Este programa está impulsado y dirigido por pacientes y cuidadores embajadores de TSF en todo el mundo.
URL:https://www.sumairafoundation.org/event/el-proyecto-colectivo-humano-3/
LOCATION:Virtual: Colombia\, Colombia
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/11/Human-Collective-Registration-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Berlin:20240319T190000
DTEND;TZID=Europe/Berlin:20240319T200000
DTSTAMP:20260405T074928
CREATED:20240319T183322Z
LAST-MODIFIED:20240319T195906Z
UID:16455-1710874800-1710878400@www.sumairafoundation.org
SUMMARY:Was Betroffene über NMOSD und MOGAD wissen sollten
DESCRIPTION:Sie sind zum kommenden Webinar von TSF Deutschland eingeladen: Was Betroffene über NMOSD und MOGAD wissen sollten. \nBesuchen Sie uns am Dienstag\, den 19. März um 19:00 Uhr MEZ zu einer aufschlussreichen Diskussion mit Dr. Joachim Havla (Ludwig-Maximilians-Universität München) über alles\, was Sie über NMOSD und MOGAD wissen müssen! \nTeilnehmer des Live-Webinars haben die Möglichkeit\, Dr. Havla Fragen zu stellen. Dieses Webinar wird aufgezeichnet und kann auf dem YouTube-Kanal und der globalen Website von TSF wiedergegeben werden. \nDieses Programm wird mit Unterstützung von Amgen ermöglicht. Eine Anmeldung ist erforderlich.
URL:https://www.sumairafoundation.org/event/was-betroffene-uber-nmosd-und-mogad-wissen-sollten/
LOCATION:Virtual: Germany\, Germany
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/03/Joachim-Havla.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20240318T190000
DTEND;TZID=Europe/Amsterdam:20240318T200000
DTSTAMP:20260405T074928
CREATED:20240229T152627Z
LAST-MODIFIED:20240229T152627Z
UID:16324-1710788400-1710792000@www.sumairafoundation.org
SUMMARY:Verleden\, heden en toekomst van behandelingen voor NMOSD en MOGAD
DESCRIPTION:In deze webinar bespreken we de snel veranderende kennis over immuuntherapie bij NMOSD en MOGAD. Welke behandelingen gebruiken we nu? Welke nieuwe behandelingen zijn recent goedgekeurd? En wat heeft de toekomst in petto aan mogelijke innovatieve behandelingsopties? \nProf. Dr. Barbara Willekens\, Universitair Ziekenhuis Antwerpen en Universiteit Antwerpen\, België en dr. Beatrijs Wokke\, Erasmus Medisch Centrum Rotterdam\, Nederland\, loodsen u door het complexe behandel-landschap van deze zeldzame ziekten. \nDeelnemers aan het live webinar krijgen de mogelijkheid om vragen te stellen aan de experts. Dit webinar wordt opgenomen en kan worden afgespeeld op het YouTube-kanaal en de multimediabibliotheek van TSF. \nDit programma wordt mogelijk gemaakt met steun van Amgen.
URL:https://www.sumairafoundation.org/event/verleden-heden-en-toekomst-van-behandelingen-voor-nmosd-en-mogad/
LOCATION:Virtual: Amsterdam\, Netherlands
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/02/Barbara-Willekens-Beatrijs-Wokke-1024x576-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240314T200000
DTEND;TZID=America/New_York:20240314T210000
DTSTAMP:20260405T074928
CREATED:20231219T151510Z
LAST-MODIFIED:20231219T151510Z
UID:15662-1710446400-1710450000@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-31/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
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DTSTART;TZID=Europe/Copenhagen:20240314T160000
DTEND;TZID=Europe/Copenhagen:20240314T170000
DTSTAMP:20260405T074928
CREATED:20240229T142736Z
LAST-MODIFIED:20240229T142736Z
UID:16321-1710432000-1710435600@www.sumairafoundation.org
SUMMARY:Forståelse af ligheder og forskelle mellem NMOSD\, MOGAD og MS
DESCRIPTION:Du inviteres til TSF’s første danske webinar! \nVi inviterer dansktalende patienter\, plejere\, klinikere\, forskere og fortalere til at deltage i vores webinar – Forståelse af ligheder og forskelle mellem NMOSD\, MOGAD og MS – med prof. Nasrin Asgari\, neurolog ved Syddansk Universitet. \nDeltagere\, der vil deltage i live-begivenheden\, vil have mulighed for at stille spørgsmål til prof. Asgari. Dette webinar vil blive optaget og tilgængeligt til afspilning på TSF’s YouTube-kanal og multimediebibliotek. \nDette program er gjort muligt med støtte fra Amgen.
URL:https://www.sumairafoundation.org/event/forstaelse-af-ligheder-og-forskelle-mellem-nmosd-mogad-og-ms/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/02/Nasrin-Asgari-1024x576-1.png
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