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DTSTART:20230101T000000
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240718T190000
DTEND;TZID=America/New_York:20240718T230000
DTSTAMP:20260404T181453
CREATED:20240604T011719Z
LAST-MODIFIED:20240604T011719Z
UID:17204-1721329200-1721343600@www.sumairafoundation.org
SUMMARY:10 Years of TSF
DESCRIPTION:You’re invited to celebrate 10 years of TSF! \nJoin us on Thursday\, July 18th at 7:00 PM for an evening of music\, dancing\, food/drinks and nostalgia as we commemorate a decade of impact while raising funds to support NMOSD and MOGAD research around the world. This social event will take place at Nikolai’s Roof (at Hilton Atlanta) the night before AAN’s Summer Conference dedicated to Autoimmune Neurology commences. \nDon’t miss out on this special evening with friends\, colleagues and supporters from all over the globe. Let’s raise a toast to the next ten years of rare disease advocacy and research! \nEarly-bird tickets are available until June 30\, 2024. Prices go up on July 1st. \nSee you soon \nThe Sumaira Foundation
URL:https://www.sumairafoundation.org/event/10-years-of-tsf/
LOCATION:Nikolai’s Roof\, 255 Courtland Street\, Atlana\, GA\, 30303\, United States
CATEGORIES:TSF Anniversary
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/06/Celebrating-10-Years-of-TSF-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240711T200000
DTEND;TZID=America/New_York:20240711T210000
DTSTAMP:20260404T181453
CREATED:20240401T184438Z
LAST-MODIFIED:20240401T184438Z
UID:16634-1720728000-1720731600@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-32/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20240708T183000
DTEND;TZID=Europe/Rome:20240708T193000
DTSTAMP:20260404T181453
CREATED:20240628T131614Z
LAST-MODIFIED:20240628T131614Z
UID:17366-1720463400-1720467000@www.sumairafoundation.org
SUMMARY:Il progetto collettivo umano (HCP) | Italia
DESCRIPTION:The Human Collective Project (HCP) è l’incontro del gruppo di supporto di TSF offerto a chiunque sia stato colpito/colpito da NMOSD/MOGAD. Il programma è nato durante il culmine della pandemia di COVID-19 nel 2020\, quando la maggior parte dei NMOSD/MOGAD si sentiva particolarmente isolata e vulnerabile al coronavirus come membri della società immunosoppressi/immunocompromessi. L’isolamento che molti di noi hanno vissuto ha svelato un grande bisogno e un’opportunità per noi di connetterci in modo significativo per offrire il nostro sostegno reciproco. \nDal 2020\, abbiamo ampliato il programma per offrire più sessioni in più aree geografiche per garantire che tutti nelle comunità NMOSD/MOGAD si sentano accolti e inclusi. Come diciamo sempre\, HCP è un ottimo modo per incontrare altri in circostanze simili in questa rara comunità; è uno spazio sicuro per ridere\, piangere\, sfogarsi\, condividere vittorie\, ecc. Questo programma è guidato e guidato dagli ambasciatori di pazienti e caregiver di TSF in tutto il mondo.
URL:https://www.sumairafoundation.org/event/il-progetto-collettivo-umano-hcp-italia-2/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/04/Italian-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Bogota:20240704T190000
DTEND;TZID=America/Bogota:20240704T200000
DTSTAMP:20260404T181453
CREATED:20240618T171057Z
LAST-MODIFIED:20240704T230036Z
UID:17306-1720119600-1720123200@www.sumairafoundation.org
SUMMARY:Mi enfermedad ¿Tierra o Sol?
DESCRIPTION:Convivir con un diagnóstico médico puede representar desafíos en diferentes áreas\, pero ¿Eso significa necesariamente que se convierte en el sol alrededor del que todos los planos de mi vida giran? ¿Qué hay de si también planteamos la posibilidad de que podría ser como el planeta Tierra?\, que si bien tiene al Sol como referencia para moverse\, tiene vida propia más allá de él. \nEn julio\, queremos hablar de la salud mental. La psicóloga Silvia Guzmán nos lleva a un espacio reflexivo para cavilar sobre estas preguntas y conocer cómo los procesos psicológicos como el pensamiento\, la motivación y la emoción\, influyen en la convivencia con la enfermedad. Al final\, podrás responderte: “mi enfermedad ¿Tierra o Sol?. Acompáñanos el próximo 4 de julio a las 7 pm COT.
URL:https://www.sumairafoundation.org/event/mi-enfermedad-tierra-o-sol/
LOCATION:Virtual: Colombia\, Colombia
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/06/Silvia-Tatiana-Guzman.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20240627T200000
DTEND;TZID=Europe/Paris:20240627T210000
DTSTAMP:20260404T181453
CREATED:20240216T153340Z
LAST-MODIFIED:20240216T153340Z
UID:16169-1719518400-1719522000@www.sumairafoundation.org
SUMMARY:Le Projet Collectif Humain
DESCRIPTION:The Human Collective Project (HCP) est la réunion du groupe de soutien de TSF offerte à toute personne affectée par la NMOSD ou la MOGAD. Le programme a vu le jour au plus fort de la pandémie de COVID-19 en 2020\, lorsque la plupart des patients NMOSD/MOGAD se sentaient particulièrement isolés et vulnérables au coronavirus en tant que patient dit “vulnérable” de part son traitement contre ma maladie.\nL’isolement que beaucoup d’entre nous avons vécu a révélé un grand besoin et une opportunité pour nous de nous connecter de manière significative pour nous offrir notre soutien les uns aux autres. \nDepuis 2020\, nous avons élargi le programme pour offrir plus de sessions dans plusieurs zones géographiques afin de garantir que tous les membres des communautés NMOSD/MOGAD se sentent accueillis et inclus. Comme nous le disons toujours\, HCP est un excellent moyen de rencontrer d’autres personnes dans des circonstances similaires dans cette communauté rare; c’est un espace sûr pour rire\, pleurer\, évacuer\, partager les victoires\, etc. Ce programme est piloté et dirigé par les patients et soignants ambassadeurs de TSF dans le monde entier.
URL:https://www.sumairafoundation.org/event/le-projet-collectif-humain-14/
LOCATION:Virtual: France\, France
CATEGORIES:Support Group,TSF France
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/03/France-The-Human-Collective-Project-169-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20240625T180000
DTEND;TZID=Africa/Johannesburg:20240625T190000
DTSTAMP:20260404T181453
CREATED:20240624T124630Z
LAST-MODIFIED:20240727T201635Z
UID:17322-1719338400-1719342000@www.sumairafoundation.org
SUMMARY:Human Collective Project | South Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/human-collective-project-south-africa-2/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/04/South-Africa.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240621T120000
DTEND;TZID=America/New_York:20240621T130000
DTSTAMP:20260404T181453
CREATED:20240603T171348Z
LAST-MODIFIED:20240618T163936Z
UID:17199-1718971200-1718974800@www.sumairafoundation.org
SUMMARY:Approved NMOSD Therapies
DESCRIPTION:In 2014\, there were 0 FDA-approved therapies for patients living with neuromyelitis optica spectrum disorder (NMOSD). In 2024\, there are 4 efficacious\, FDA-approved therapies available for patients living with NMOSD. \nYou’re invited to “Approved NMOSD Therapies” a live webinar during which Dr. Sean Pittock* of the Mayo Clinic will provide overviews (pharmacology\, drug delivery method\, dosing\, frequency\, side effects\, reduction in relapse rates\, antibody criteria\, etc.) of each approved therapy. \nWe invite patients\, caregivers\, clinicians\, researchers\, advocates\, industry professionals or anyone interested in NMOSD to join this educational program. Live attendees will have the opportunity to ask Dr. Pittock questions in real time. \nThis webinar will be recorded and made available for replay on TSF’s YouTube channel and global website. \n*Sean J. Pittock\, M.D.\nConsultant\, Department of Neurology\nProfessor of Neurology\nMarilyn A Park and Moon S. Park\, M.D. Director of the Mayo Clinic’s Center for Multiple Sclerosis and Autoimmune Neurology\,\nApplebaum Family Professor of Neurosciences
URL:https://www.sumairafoundation.org/event/approved-nmosd-therapies/
LOCATION:Virtual: Global
CATEGORIES:TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/06/Sean-Pittock-3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240615T110000
DTEND;TZID=America/New_York:20240615T170000
DTSTAMP:20260404T181453
CREATED:20240416T171719Z
LAST-MODIFIED:20240416T171719Z
UID:16747-1718449200-1718470800@www.sumairafoundation.org
SUMMARY:TSF's Cleveland Patient Day for NMOSD & MOGAD
DESCRIPTION:Are you an NMOSD/MOGAD patient\, caregiver\, clinician\, nurse\, researcher and/or advocate in or around Ohio? You’re invited to our special day! \nIn collaboration with Dr. Amy Kunchok\, Dr. Mary Rensel and Dr. Justin Abbatemarco at the Cleveland Clinic\, The Sumaira Foundation is pleased to invite you to TSF’s Cleveland Patient Day\, a special day dedicated to NMOSD & MOGAD patients\, caregivers\, clinicians and researchers. \nJoin us for a day of education\, community\, and fun where you’ll: \n\nMeet local NMOSD & MOGAD patients\, caregivers and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, co-morbidities and more\n\n\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis is a free event and lunch will be served. \nWe’re excited to see you in Cleveland! \nThe Sumaira Foundation team
URL:https://www.sumairafoundation.org/event/tsfs-cleveland-patient-day-for-nmosd-mogad/
LOCATION:Cleveland Clinic Administrative Campus Building 4\, 3175 Science Park Drive\, Beachwood\, 44122\, United States
CATEGORIES:Community Event,TSF Patient Day
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2024/04/https-cdn.evbuc_.com-images-744867119-132744545551-1-original.20240416-153900.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240613T200000
DTEND;TZID=America/New_York:20240613T210000
DTSTAMP:20260404T181453
CREATED:20240401T184330Z
LAST-MODIFIED:20240401T184330Z
UID:16632-1718308800-1718312400@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-30/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20240528T180000
DTEND;TZID=Africa/Johannesburg:20240528T190000
DTSTAMP:20260404T181453
CREATED:20240430T145010Z
LAST-MODIFIED:20240727T201444Z
UID:16828-1716919200-1716922800@www.sumairafoundation.org
SUMMARY:Human Collective Project | South Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/human-collective-project-south-africa/
LOCATION:Virtual: South Africa\, South Africa
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/04/South-Africa.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20240527T140000
DTEND;TZID=Europe/Paris:20240527T150000
DTSTAMP:20260404T181453
CREATED:20240524T143519Z
LAST-MODIFIED:20240524T143519Z
UID:16941-1716818400-1716822000@www.sumairafoundation.org
SUMMARY:Démarches administratives et handicap
DESCRIPTION:Nous vous invitons à rejoindre notre prochain webinaire le lundi 27 mai à 14h00 CET avec Marie Delenne\, Patiente Experte Sclérose en Plaques et ancienne Inspectrice du Travail. \nDémarches administratives quand on est en situation de handicap\, quelle galère ! Travail\, Sécu\, MDPH\, RQTH\, Retraite ! \nVenez en parler avec nous et recevoir les conseils de notre Experte qui aide depuis des années des Patients comme vous. \nCe programme est rendu possible grâce au soutien d’Alexion.
URL:https://www.sumairafoundation.org/event/demarches-administratives-et-handicap/
LOCATION:Virtual: France\, France
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/05/Marie-Delenne.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20240515T193000
DTEND;TZID=Europe/Amsterdam:20240515T203000
DTSTAMP:20260404T181453
CREATED:20240401T183520Z
LAST-MODIFIED:20240430T135345Z
UID:16626-1715801400-1715805000@www.sumairafoundation.org
SUMMARY:TSF Plauderstunde (HCP) | Deutsch
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/tsf-plauderstunde-hcp-germany-12/
LOCATION:Virtual: Germany\, Germany
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/04/Germany.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240509T200000
DTEND;TZID=America/New_York:20240509T210000
DTSTAMP:20260404T181453
CREATED:20240401T184243Z
LAST-MODIFIED:20240430T134434Z
UID:16630-1715284800-1715288400@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-28/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/04/America.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Bogota:20240506T193000
DTEND;TZID=America/Bogota:20240506T203000
DTSTAMP:20260404T181453
CREATED:20240430T133610Z
LAST-MODIFIED:20240430T133654Z
UID:16817-1715023800-1715027400@www.sumairafoundation.org
SUMMARY:El proyecto colectivo humano (HCP) | Español
DESCRIPTION:El Human Collective Project (HCP) es la reunión del grupo de apoyo de TSF que se ofrece a cualquier persona que haya sido afectada/impactada por NMOSD/MOG-AD. El programa nació durante el apogeo de la pandemia de COVID-19 en 2020\, cuando la mayoría de los NMOSD/MOG-AD se sentían particularmente aislados y vulnerables al coronavirus como miembros de la sociedad inmunodeprimidos/inmunodeprimidos. El aislamiento que muchos de nosotros experimentamos reveló una gran necesidad y oportunidad para conectarnos de una manera significativa y ofrecernos apoyo unos a otros. \nDesde 2020\, hemos ampliado el programa para ofrecer más sesiones en múltiples geografías para garantizar que todos en las comunidades NMOSD/MOG-AD se sientan bienvenidos e incluidos. Como siempre decimos\, HCP es una excelente manera de conocer a otras personas en circunstancias similares en esta rara comunidad; es un espacio seguro para reír\, llorar\, desahogarse\, compartir victorias\, etc. Este programa está impulsado y dirigido por pacientes y cuidadores embajadores de TSF en todo el mundo.
URL:https://www.sumairafoundation.org/event/el-proyecto-colectivo-humano-hcp-espanol/
LOCATION:Virtual: Colombia\, Colombia
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/04/Spanish-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20240506T183000
DTEND;TZID=Europe/Rome:20240506T193000
DTSTAMP:20260404T181453
CREATED:20240430T130003Z
LAST-MODIFIED:20240430T130003Z
UID:16814-1715020200-1715023800@www.sumairafoundation.org
SUMMARY:Il progetto collettivo umano (HCP) | Italia
DESCRIPTION:The Human Collective Project (HCP) è l’incontro del gruppo di supporto di TSF offerto a chiunque sia stato colpito/colpito da NMOSD/MOGAD. Il programma è nato durante il culmine della pandemia di COVID-19 nel 2020\, quando la maggior parte dei NMOSD/MOGAD si sentiva particolarmente isolata e vulnerabile al coronavirus come membri della società immunosoppressi/immunocompromessi. L’isolamento che molti di noi hanno vissuto ha svelato un grande bisogno e un’opportunità per noi di connetterci in modo significativo per offrire il nostro sostegno reciproco. \nDal 2020\, abbiamo ampliato il programma per offrire più sessioni in più aree geografiche per garantire che tutti nelle comunità NMOSD/MOGAD si sentano accolti e inclusi. Come diciamo sempre\, HCP è un ottimo modo per incontrare altri in circostanze simili in questa rara comunità; è uno spazio sicuro per ridere\, piangere\, sfogarsi\, condividere vittorie\, ecc. Questo programma è guidato e guidato dagli ambasciatori di pazienti e caregiver di TSF in tutto il mondo.
URL:https://www.sumairafoundation.org/event/il-progetto-collettivo-umano-hcp-italia/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/04/Italian-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Copenhagen:20240501T190000
DTEND;TZID=Europe/Copenhagen:20240501T200000
DTSTAMP:20260404T181453
CREATED:20240429T191715Z
LAST-MODIFIED:20240429T191715Z
UID:16809-1714590000-1714593600@www.sumairafoundation.org
SUMMARY:TSF’s Human Collective Project | Danmark
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-danmark-7/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/04/Danish-3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20240430T190000
DTEND;TZID=Europe/Paris:20240430T200000
DTSTAMP:20260404T181453
CREATED:20240419T191639Z
LAST-MODIFIED:20240419T194854Z
UID:16757-1714503600-1714507200@www.sumairafoundation.org
SUMMARY:PREMIÈRE MONDIALE | La vie c’est tout de suite
DESCRIPTION:Nelly\, la quarantaine\, vit près de Beauvais en France. Cette professeure en milieu carcéral est une personne très active avec de nombreux amis et passe-temps. Malgré des années d’incertitude jusqu’à ce qu’elle reçoive enfin un diagnostic (MOGAD)\, elle n’a jamais laissé ses symptômes\, pourtant graves\, lui ôter sa joie de vivre. \nAprès 2 ans de travail\, nous avons l’honneur de vous inviter à la première mondiale de “La vie\, c’est tout suite\,” l’histoire de Nelly Campos qui aura lieu le mardi 30 avril à 19h00. (heure de Paris) sur ce lien https://tinyurl.com/TSFNelly
URL:https://www.sumairafoundation.org/event/premiere-mondiale-la-vie-cest-tout-suite/
LOCATION:Virtual: France\, France
CATEGORIES:TSF France,TSF Programming
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2024/04/THUMBNAIL_NELLY_16_9-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20240430T180000
DTEND;TZID=Africa/Johannesburg:20240430T190000
DTSTAMP:20260404T181453
CREATED:20240423T155748Z
LAST-MODIFIED:20240727T201401Z
UID:16775-1714500000-1714503600@www.sumairafoundation.org
SUMMARY:HCP South Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/hcp-south-africa-11/
LOCATION:Virtual: South Africa\, South Africa
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/04/SOUTH-AFRICA-The-Human-Collective-Project-Facebook-Cover.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20240425T200000
DTEND;TZID=Europe/Paris:20240425T210000
DTSTAMP:20260404T181453
CREATED:20240216T153227Z
LAST-MODIFIED:20240216T153227Z
UID:16165-1714075200-1714078800@www.sumairafoundation.org
SUMMARY:Le Projet Collectif Humain
DESCRIPTION:The Human Collective Project (HCP) est la réunion du groupe de soutien de TSF offerte à toute personne affectée par la NMOSD ou la MOGAD. Le programme a vu le jour au plus fort de la pandémie de COVID-19 en 2020\, lorsque la plupart des patients NMOSD/MOGAD se sentaient particulièrement isolés et vulnérables au coronavirus en tant que patient dit “vulnérable” de part son traitement contre ma maladie.\nL’isolement que beaucoup d’entre nous avons vécu a révélé un grand besoin et une opportunité pour nous de nous connecter de manière significative pour nous offrir notre soutien les uns aux autres. \nDepuis 2020\, nous avons élargi le programme pour offrir plus de sessions dans plusieurs zones géographiques afin de garantir que tous les membres des communautés NMOSD/MOGAD se sentent accueillis et inclus. Comme nous le disons toujours\, HCP est un excellent moyen de rencontrer d’autres personnes dans des circonstances similaires dans cette communauté rare; c’est un espace sûr pour rire\, pleurer\, évacuer\, partager les victoires\, etc. Ce programme est piloté et dirigé par les patients et soignants ambassadeurs de TSF dans le monde entier.
URL:https://www.sumairafoundation.org/event/le-projet-collectif-humain-12/
LOCATION:Virtual: France\, France
CATEGORIES:Support Group,TSF France
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/03/France-The-Human-Collective-Project-169-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Bogota:20240425T193000
DTEND;TZID=America/Bogota:20240425T203000
DTSTAMP:20260404T181453
CREATED:20240423T154147Z
LAST-MODIFIED:20240425T144500Z
UID:16771-1714073400-1714077000@www.sumairafoundation.org
SUMMARY:Diferencias entre Esclerosis múltiple\, NMOSD y MOG-AD
DESCRIPTION:El Dr Carlos Navas discutirá desde la perspectiva del paciente\, las diferencias entre Esclerosis múltiple\, NMOSD y MOGAD.\n\nEl Dr Navas es un médico colombiano dedicado al estudio y tratamiento de pacientes con enfermedades desmielinizantes. Acompáñanos en un nuevo From the Experts en español\, el jueves 25 de abril a las 7:30 pm COT para estar en vivo con el Dr. Navas.\n\nLos asistentes tendrán la oportunidad de hacer preguntas al Dr. Navas en tiempo real. Este seminario web se grabará y estará disponible para reproducirse en el canal de YouTube de TSF.\n\nEste programa es posible gracias al apoyo de Amgen.
URL:https://www.sumairafoundation.org/event/diferencias-entre-esclerosis-multiple-nmosd-y-mog-ad/
LOCATION:Virtual: Colombia\, Colombia
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/04/Carlos-Navas-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Istanbul:20240422T193000
DTEND;TZID=Europe/Istanbul:20240422T203000
DTSTAMP:20260404T181453
CREATED:20240401T182656Z
LAST-MODIFIED:20240415T185518Z
UID:16622-1713814200-1713817800@www.sumairafoundation.org
SUMMARY:HCP Turkey
DESCRIPTION:Sumaira fonu olarak sizi aylık (hcp) zoom toplantimiza davet ediyoruz. Aşağıdaki belirtilmiş olan linke tıklayarak\nKaydınızı oluşturabilirsiniz \nSumaira foundation adına\nSaygılarımla\nFatih Şen
URL:https://www.sumairafoundation.org/event/hcp-turkey-3/
LOCATION:virtual: Turkey\, Turkey
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/02/Turkiye-The-Human-Collective-Project-Facebook-Cover-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240420T110000
DTEND;TZID=America/New_York:20240420T120000
DTSTAMP:20260404T181453
CREATED:20240325T192208Z
LAST-MODIFIED:20240325T192208Z
UID:16484-1713610800-1713614400@www.sumairafoundation.org
SUMMARY:Let's Talk About Cannabis: 4/20 Edition
DESCRIPTION:Are you curious to learn about the use of medical marijuana to help manage your symptoms? \nYou’re invited to TSF’s upcoming webinar – “Let’s Talk About Cannabis: 4/20 Edition” – on Saturday\, April 20th at 11 AM EST / 5 PM CET featuring Dr. Aaron Boster\, neurologist & MS specialist. \nThis educational webinar invites patients\, caregivers\, clinicians\, researchers\, advocates and/or anyone interested in learning about medical marijuana in the setting of neurological conditions. \nLive attendees will have the opportunity to ask Dr. Boster questions in real time. This is a safe space and a zero-judgment zone! \nThis webinar will be recorded and made available for replay on TSF’s YouTube channel and global website.
URL:https://www.sumairafoundation.org/event/lets-talk-about-cannabis-4-20-edition/
LOCATION:Virtual: United States\, United States
CATEGORIES:TSF Programming,TSF Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2024/03/1967cdd6-d6ad-4c35-8332-8b9725596873.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Kolkata:20240414T203000
DTEND;TZID=Asia/Kolkata:20240414T213000
DTSTAMP:20260404T181453
CREATED:20240408T141818Z
LAST-MODIFIED:20240408T141818Z
UID:16674-1713126600-1713130200@www.sumairafoundation.org
SUMMARY:HCP India
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD or MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD and MOGAD patients felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. Since launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies and languages to ensure that everyone in the NMOSD and MOGAD community feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world.
URL:https://www.sumairafoundation.org/event/hcp-india-3/
LOCATION:Virtual: India\, India
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/08/HCP-India.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240411T200000
DTEND;TZID=America/New_York:20240411T210000
DTSTAMP:20260404T181453
CREATED:20240401T184211Z
LAST-MODIFIED:20240401T184211Z
UID:16628-1712865600-1712869200@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-27/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20240410T193000
DTEND;TZID=Europe/Amsterdam:20240410T203000
DTSTAMP:20260404T181453
CREATED:20240216T180427Z
LAST-MODIFIED:20240216T180427Z
UID:16176-1712777400-1712781000@www.sumairafoundation.org
SUMMARY:TSF Plauderstunde | HCP Germany
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/tsf-plauderstunde-hcp-germany-11/
LOCATION:Virtual: Germany\, Germany
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/12/2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20240408T183000
DTEND;TZID=Europe/Rome:20240408T193000
DTSTAMP:20260404T181453
CREATED:20240401T183357Z
LAST-MODIFIED:20240403T182540Z
UID:16624-1712601000-1712604600@www.sumairafoundation.org
SUMMARY:HCP Italia
DESCRIPTION:The Human Collective Project (HCP) è l’incontro del gruppo di supporto di TSF offerto a chiunque sia stato colpito/colpito da NMOSD/MOGAD. Il programma è nato durante il culmine della pandemia di COVID-19 nel 2020\, quando la maggior parte dei NMOSD/MOGAD si sentiva particolarmente isolata e vulnerabile al coronavirus come membri della società immunosoppressi/immunocompromessi. L’isolamento che molti di noi hanno vissuto ha svelato un grande bisogno e un’opportunità per noi di connetterci in modo significativo per offrire il nostro sostegno reciproco. \nDal 2020\, abbiamo ampliato il programma per offrire più sessioni in più aree geografiche per garantire che tutti nelle comunità NMOSD/MOGAD si sentano accolti e inclusi. Come diciamo sempre\, HCP è un ottimo modo per incontrare altri in circostanze simili in questa rara comunità; è uno spazio sicuro per ridere\, piangere\, sfogarsi\, condividere vittorie\, ecc. Questo programma è guidato e guidato dagli ambasciatori di pazienti e caregiver di TSF in tutto il mondo.
URL:https://www.sumairafoundation.org/event/hcp-italia-9/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/04/unnamed.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Tokyo:20240407T100000
DTEND;TZID=Asia/Tokyo:20240407T110000
DTSTAMP:20260404T181453
CREATED:20240326T204953Z
LAST-MODIFIED:20240401T135054Z
UID:16508-1712484000-1712487600@www.sumairafoundation.org
SUMMARY:NMOSD\, MOGAD\, MS の類似点と相違点を理解する
DESCRIPTION:視神経脊髄炎（NMOSD）、MOG抗体関連疾患（MOGAD）、多発性硬化症（MS）に関して４月７日（日）日本時間10:00からウェビナーを開催します。３疾患はどのような点が異なるかというお話について専門家が分かりやすく解説します。質問の時間もありますのでぜひご参加ください。 \n演題：「NMOSD、MOGAD、MSの類似点と相違点を理解する」 講師：藤原一男先生（福島県立医科大学） \n藤原一男先生 脳神経内科医。福島県立医科大学医学部 多発性硬化症治療学講座 教授。 脳神経疾患研究所附属南東北病院 多発性硬化症・視神経脊髄炎センター センター長。 専門分野は多発性硬化症（MS）、視神経脊髄炎（NMOSD）、MOG抗体関連疾患（MOGAD）などの免疫性神経疾患。 \n※内容は録画し、後日、スマイラ財団のYouTubeチャンネルから再配信します。 ※このセミナーはアムジェン株式会社の支援のもと、MSキャビンと日本視神経脊髄炎患者会の協力によって開催します。
URL:https://www.sumairafoundation.org/event/nmosd-mogad-ms-%e3%81%ae%e9%a1%9e%e4%bc%bc%e7%82%b9%e3%81%a8%e7%9b%b8%e9%81%95%e7%82%b9%e3%82%92%e7%90%86%e8%a7%a3%e3%81%99%e3%82%8b/
LOCATION:Virtual: Japan\, Japan
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/03/9817a3eb-440f-4130-bf10-578446557799.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20240403T190000
DTEND;TZID=Europe/Amsterdam:20240403T200000
DTSTAMP:20260404T181453
CREATED:20240215T211419Z
LAST-MODIFIED:20240401T182152Z
UID:16161-1712170800-1712174400@www.sumairafoundation.org
SUMMARY:TSF’s Human Collective Project | Danmark
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-danmark-6/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/02/Denmark-The-Human-Collective-Project-Facebook-Cover-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20240402T180000
DTEND;TZID=Africa/Johannesburg:20240402T190000
DTSTAMP:20260404T181453
CREATED:20240229T155648Z
LAST-MODIFIED:20240423T154956Z
UID:16336-1712080800-1712084400@www.sumairafoundation.org
SUMMARY:HCP South Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/hcp-south-africa-10/
LOCATION:Virtual: South Africa\, South Africa
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/02/SOUTH-AFRICA-The-Human-Collective-Project-Facebook-Cover.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240330T100000
DTEND;TZID=America/New_York:20240330T110000
DTSTAMP:20260404T181453
CREATED:20240325T191109Z
LAST-MODIFIED:20240325T191109Z
UID:16480-1711792800-1711796400@www.sumairafoundation.org
SUMMARY:The Human Collective Project Global
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/the-human-collective-project-global/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/03/092b008f-8852-4a95-aab3-9b3578c950f2.png
END:VEVENT
END:VCALENDAR