Navigating NMOSD & MOGAD: Exploring the LGBTQIA+ Experience
2024-10-23 19:00 - 20:00 (America/New_York) | Virtual: United States, United States
In celebration of LGBT History Month, The Sumaira Foundation invites you to participate in our upcoming webinar, “Navigating NMOSD & MOGAD: Exploring the LGBTQIA+ Experience,” featuring Dr. William Conte, head of the MS Center at Methodist Hospitals and Assistant Professor of Neurology at Indiana University, Nicolas Overton, NMOSD patient and TSF Ambassador of Florida and Avery Allmond, MOGAD patient and TSF Ambassador of Oklahoma.
Join this important conversation!

Recent Findings on Retinal Changes in AQP4-NMOSD, MOGAD & DS cases
2024-10-25 16:30 - 17:30 (Europe/Paris) | Virtual: Global
TSF is pleased to provide the Iranian neurology community around the globe with another lecture and case discussion: Recent Findings on Retinal Changes in AQP4-NMOSD, MOGAD & DS cases led by Dr. Frederike Cosima Oertel, neuroimmunologist and NMOSD/MOGAD expert from Charité-Universitätsmedizin Berlin, Germany.
We invite clinicians & researchers from all over the world to join this important discussion.
This series is being organized by Prof. Mohammad Ali Sahraian (Tehran University of Medical Sciences) and Dr. Sara Samadzadeh (Charité Universitätsmedizin Berlin).

Le Projet Collectif Humain (HCP) | Français
2024-10-31 20:00 - 21:00, 2024-12-19 20:00 - 21:00, 2025-02-03 14:00 - 15:00, 2025-03-03 14:00 - 15:00 (Europe/Paris) | Virtual: France, France
The Human Collective Project (HCP) est la réunion du groupe de soutien de TSF offerte à toute personne affectée par la NMOSD ou la MOGAD. Le programme a vu le jour au plus fort de la pandémie de COVID-19 en 2020, lorsque la plupart des patients NMOSD/MOGAD se sentaient particulièrement isolés et vulnérables au coronavirus en tant que patient dit “vulnérable” de part son traitement contre ma maladie.
L’isolement que beaucoup d’entre nous avons vécu a révélé un grand besoin et une opportunité pour nous de nous connecter de manière significative pour nous offrir notre soutien les uns aux autres.
Depuis 2020, nous avons élargi le programme pour offrir plus de sessions dans plusieurs zones géographiques afin de garantir que tous les membres des communautés NMOSD/MOGAD se sentent accueillis et inclus. Comme nous le disons toujours, HCP est un excellent moyen de rencontrer d’autres personnes dans des circonstances similaires dans cette communauté rare; c’est un espace sûr pour rire, pleurer, évacuer, partager les victoires, etc. Ce programme est piloté et dirigé par les patients et soignants ambassadeurs de TSF dans le monde entier.

TSF Plauderstunde | HCP Germany
2024-11-13 19:30 - 20:30, 2024-12-11 19:30 - 20:30, 2025-01-08 19:30 - 20:30, 2025-02-12 19:30 - 20:30 (Europe/Amsterdam) | Virtual: Germany, Germany
The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
Since launching in 2020, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh, cry, vent, share wins, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world.

TSF's Human Collective Project Meetings
2024-11-14 20:00 - 21:00, 2024-12-12 20:00 - 21:00, 2025-01-09 20:00 - 21:00 (America/New_York) | Virtual: United States, United States
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
Since 2020, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh, cry, vent, share wins, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.

Imaging Features of MOGAD & NMOSD
2024-11-15 16:00 - 17:00 (Europe/Berlin) | Virtual: Global
TSF is pleased to provide the Iranian neurology community around the globe with another lecture and case discussion: Imaging Features of MOGAD & NMOSD led by Dr. Eoin Flanagan, Professor of Neurology, Chair, Division of Multiple Sclerosis and Autoimmune Neurology, Program Director, Autoimmune Neurology Fellowship, Consultant, Departments of Neurology & Laboratory Medicine & Pathology at Mayo Clinic College of Medicine.
We invite clinicians & researchers from all over the world to join this important discussion.
This series is being organized by Prof. Mohammad Ali Sahraian ( Tehran University of Medical Sciences) and Dr. Sara Samadzadeh (Charité Universitätsmedizin Berlin).

Human Collective Project | South Africa
2024-11-19 18:00 - 19:00, 2024-12-17 18:00 - 19:00, 2025-01-28 18:00 - 19:00 (Africa/Johannesburg)
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.

डिमायेलिनेटिंग बीमारियों पर जागरूकता और मार्गदर्शन
2024-11-23 09:00 - 10:00 (Asia/Kolkata) | Virtual: Global
कृपया 23 नवम्बर को सुबह 9 बजे IST पर हमारे विशेष वेबिनार में सम्मिलित हों, जिसमें डॉ. पार्थवी रावत द्वारा डिमायेलिनेटिंग बीमारियों से प्रभावित रोगियों और उनके परिवारों को शिक्षित और सहायता प्रदान करने हेतु बहुमूल्य जानकारी और विशेषज्ञ मार्गदर्शन दिया जाएगा। लाइव वेबिनार में शामिल होने वाले प्रतिभागियों को डॉ. रावत से सीधे प्रश्न पूछने का अवसर मिलेगा। यह सत्र रिकॉर्ड किया जाएगा और TSF के यूट्यूब चैनल पर पुनः देखने के लिए उपलब्ध रहेगा। यह कार्यक्रम एमजेन के समर्थन से संभव हुआ है।

Le 2ème week-end des patients et aidants de la NMOSD & de la MOGAD - Paris
2024-11-23 13:00 - 2024-11-24 12:00 (Europe/Paris) | FIAP Paris, 30 Rue Cabanis, Paris, 75014, France
Suite au succès de notre 1ère Journée Patients NMOSD & MOGAD, nous renouvelons l’évènement les 23 et 24 novembre à Paris !
Venez rencontrer des experts, suivre nos ateliers, rencontrer les différents acteurs de la NMOSD et la MOGAD.
Venez mettre en lumière la NMOSD et la MOGAD avec Sumaira et TSF France.
À bientôt!
L’équipe TSF France (Anass, Bérengère, Elodie, Emma, Fatiha, Nelly et Selma)

Vécu, besoins et attentes des patient(e)s français
2024-12-04 20:00 - 21:00 (Europe/Paris) | Virtual: Global
Les résultats sont là ! Vous avez peut-être participé à l’enquête réalisée par Alexion en partenariat avec The Sumaira Foundation France intitulée “Vécu, besoins et attentes des patient(e)s atteint(e)s de NMOSD”.
En compagnie du Docteur Livia Lanotte, neurologue et présidente du réseau Alsacep, et Bérengère, ambassadrice TSF, nous reviendrons sur les résultats et les enseignements de cette enquête. TSF France a travaillé sur le questionnaire afin que la parole recueillie puisse servir le plus grand nombre. Nous pourrons nous appuyer sur les résultats de cette enquête pour porter un plaidoyer fort auprès des pouvoirs publics afin d’améliorer le quotidien des personnes touchées par une NMOSD ou une MOGAD.
Ce programme est rendu possible grâce au soutien de Alexion.

Comprender MOGAD y la importancia de la participación del paciente
2024-12-05 13:00 - 14:00 (America/New_York) | Virtual: Global
TSF lo invita a unirse a nuestro próximo seminario web en español sobre MOGAD y la importancia de la participación de los pacientes en los ensayos clínicos. Nos sentimos honrados de contar con el Dr. José Flores de México y la Dra. Lucienne Costa Frossard França de España. ¡Esperamos que se una a nosotros en esta importante discusión!

2° Giornata dedicata ai pazienti con NMOSD e MOGAD - Verona
2024-12-07 11:00 - 17:00 (Europe/Rome) | Crowne Plaza Verona – Fiera, 16 Via Belgio 37135, Verona, Italy
TSF è lieta di invitare tutti i pazienti italiani con NMOSD e MOGAD, i loro caregivers, ed i medici interessati a queste patologie a partecipare a questa giornata di formazione, unione e divertimento.
In collaborazione con la Dr.ssa Sara Mariotto dell’ Università di Verona, The Sumaira Foundation è lieta di invitarvi alla 2° Giornata per pazienti, caregivers e clinici dedicata a NMOSD e MOGAD.
Questo evento a libera iscrizione vi permetterà di:

Incontrare pazienti italiani con NMOSD e MOGAD, i loro caregivers ed i clinici esperti di queste patologie

Porre domande agli esperti in diretta relative alla gestione dei sintomi, le terapie, le comorbidità e molto altro

Aggiornarvi in merito alle ultime ricerche scientifiche con l’aiuto di medici esperti italiani

Fare rete e instaurare connessioni con la comunità locale dedicata a NMOSD e MOGAD

Il pranzo e il calore di TSF sono inclusi!
Non vediamo l’ora di incontrarvi!
TSF Italia

다발성경화증(MS), 시신경척수염(NMOSD), 모그항체질환(MOGAD) 간의 유사점과 차이점을 이해합니다
2025-01-21 09:00 - 10:00 (Asia/Seoul) | Virtual: Korea
TSF 최초의 국내 환자교육 웨비나에 여러분을 초대합니다.
1월 21일 화요일 오전 9시에 NMOSD와 MOGAD 전문가 김호진 박사가 출연하여 MOGAD, MS 및 NMOSD 간의 유사점과 차이점을 논의하는 독점 프로그램에 참여하세요.
참석자들은 김 박사에게 질문할 기회를 갖게 됩니다. 이 웹 세미나는 녹화되어 TSF의 YouTube 채널에서 재생할 수 있습니다.
등록하려면 https://us02web.zoom.us/webinar/register/WN_7G2vm1JvTJeRgyB0cLrGMQ를 방문하세요.

LES TROUBLES DU SOMMEIL : THÉORIE ET PRATIQUE POUR MIEUX DORMIR
2025-01-29 20:00 - 21:00 (Europe/Paris) | Virtual: Global
Les troubles du sommeil sont courants dans les maladies neurologiques. La NMO et la MOGAD ne font pas exception. Que ce soit les troubles de l’endormissement, les réveils, le sommeil peu réparateur, les troubles sont variés et difficiles de s’en débarrasser.
En compagnie de Véronique Carrette, sophrologue et hypnothérapeute, Bérengère et Fatiha, ambassadrices TSF, nous les évoquerons mais surtout nous échangerons des trucs et astuces et des moyens d’améliorer la qualité de son sommeil. Retrouvez-nous en ligne ce mercredi 29 janvier à 20 heures. Vous pourrez poser toutes vos questions.

Managing Incontinence with Neuroimmune Disorders
2025-01-31 11:00 - 12:00 (America/New_York) | Virtual: Global
Join us on December 20th for TSF’s final webinar of 2024: Managing Incontinence with Neuroimmune Disorders featuring Dr. Raveen Syan, Urologist and Assistant Professor of Clinical Urology at The University of Miami.
Dr. Syan will discuss urinary, bowel and sexual dysfunction in the setting of neuroimmune conditions. Attendees joining the live program will have the opportunity to ask Dr. Raveen questions in real time. This webinar will be recorded and available for replay on TSF’s YouTube channel.
This program is made possible with support from Amgen.

Il progetto collettivo umano (HCP) | Italia Per pazienti adulti
2025-01-31 17:30 - 19:30 (Europe/Rome) | Virtual: Italy, Italy
The Human Collective Project (HCP) è l’incontro del gruppo di supporto di TSF offerto a chiunque sia stato colpito/colpito da NMOSD/MOGAD. Il programma è nato durante il culmine della pandemia di COVID-19 nel 2020, quando la maggior parte dei NMOSD/MOGAD si sentiva particolarmente isolata e vulnerabile al coronavirus come membri della società immunosoppressi/immunocompromessi. L’isolamento che molti di noi hanno vissuto ha svelato un grande bisogno e un’opportunità per noi di connetterci in modo significativo per offrire il nostro sostegno reciproco.
Dal 2020, abbiamo ampliato il programma per offrire più sessioni in più aree geografiche per garantire che tutti nelle comunità NMOSD/MOGAD si sentano accolti e inclusi. Come diciamo sempre, HCP è un ottimo modo per incontrare altri in circostanze simili in questa rara comunità; è uno spazio sicuro per ridere, piangere, sfogarsi, condividere vittorie, ecc. Questo programma è guidato e guidato dagli ambasciatori di pazienti e caregiver di TSF in tutto il mondo.

Tratamientos para MOGAD
2025-02-03 18:00 - 19:00 (America/Bogota) | Virtual: Global
Únase a nosotros el 3 de febrero para una presentación en vivo y una discusión sobre las opciones de tratamiento para pacientes de MOGAD en América Latina.

Para registrarse, visite: https://us02web.zoom.us/webinar/register/WN_hLhettqCQQGgi1nt5Lf68A

Los asistentes tendrán la oportunidad de hacer preguntas a los expertos. Este seminario web se grabará y estará disponible para reproducirse en el canal de YouTube de TSF.

Este programa es posible gracias al apoyo de Amgen.

TSF's Human Collective Project Meetings | Black History Month
2025-02-13 20:00 - 21:00 (America/New_York) | Virtual: United States, United States
Happy Black History Month! Let’s get together for our monthly call to catch up, share stories, and keep building a supportive space for our unique community. This is a safe place for patients, caregivers, and anyone else affected by NMOSD, MOGAD, and other rare Neuroimmune disorders.
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
Since 2020, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh, cry, vent, share wins, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.

Human Collective Project | South Africa
2025-02-25 19:00 - 20:00 (Africa/Johannesburg) | Virtual: South Africa, South Africa

Breaking Barriers in Neuroimmune Disorders
2025-02-25 19:00 - 20:30 (America/New_York) | Virtual: United States, United States
You’re invited to a special event during Black History Month featuring 2 ‘greats’ in neuroimmunology!
Join us on February 25th for a fireside chat between Dr. Mitzi Joi Williams, a celebrated neuroimmunologist, and Dr. Kina Peppers, an OB/GYN, author and NMOSD patient.
During this exclusive program, Dr. Williams and Dr. Peppers will discuss a variety of topics including systemic health equity challenges, the achievements of Black doctors and researchers in neuroimmunology, the prevalence of MS, NMOSD, and MOGAD in the Black community, the importance of patient advocacy, research, clinical trials, cultural competency for healthcare providers and calls to action for empowerment.
Live attendees will have the opportunity to ask questions in real time. This webinar will be recorded and made available for replay on TSF’s YouTube channel.
