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BEGIN:STANDARD
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BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
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BEGIN:VEVENT
DTSTART;TZID=Europe/Copenhagen:20240920T150000
DTEND;TZID=Europe/Copenhagen:20240920T180000
DTSTAMP:20260404T181452
CREATED:20240607T133117Z
LAST-MODIFIED:20240607T133117Z
UID:17220-1726844400-1726855200@www.sumairafoundation.org
SUMMARY:ECTRIMS Patient Community Day
DESCRIPTION:Join us on 20 September 2024 for ECTRIMS Patient Community Day – an exclusive\, free event designed for individuals living with MOGAD\, MS\, NMOSD and related neurological conditions. \n  \nPatient Community Day is an opportunity to learn about the latest research advancements directly impacting your ongoing care and treatment options. The programme will include engaging roundtable discussions led by international experts\, insightful Q&A sessions\, and a multilingual experience ensuring accessibility for all. \n  \nThis event is FREE to attend. Pre-registration is required. It will be held in English\, with live translations in 50+ languages! \n  \nHave a research question about your condition that you would like answered during the event? As part of the interactive nature of the event\, we invite you to actively participate in our #ECTRIMS4me campaign. Your questions and concerns will shape the agenda\, making this event a true reflection of community-driven support and advocacy. \n  \nSend in your question  https://bit.ly/4562FhC \n  \nJoin us as we push the boundaries of knowledge and forge a stronger path toward collective support and well-being.
URL:https://www.sumairafoundation.org/event/ectrims-patient-community-day/
LOCATION:Bella Center Copenhagen\, Entrance B0\, Emma Gads Vej 43\, 2300 Copenhagen S\, Copenhagen\, Denmark
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/06/1820-1024.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Copenhagen:20240917T190000
DTEND;TZID=Europe/Copenhagen:20240917T220000
DTSTAMP:20260404T181452
CREATED:20240805T180413Z
LAST-MODIFIED:20240805T180413Z
UID:17607-1726599600-1726610400@www.sumairafoundation.org
SUMMARY:TSF's 7th Annual Gala
DESCRIPTION:Are you attending ECTRIMS in Copenhagen? You’re invited to attend The Sumaira Foundation’s 7th Annual Gala! \nJoin us for a memorable evening in Copenhagen filled with elegance\, entertainment\, and giving back. TSF’s first international hala will take place on Tuesday\, September 17th at 7:00 PM at the National Aquarium Denmark\, Europe’s largest aquarium. \nProceeds from this fundraiser will enable TSF to continue funding research and fellowships around the globe. Tax-deductible tickets are available until September 16th. \nGet ready to dress to impress and enjoy a night of celebration for a great cause. This event is black-tie optional. Because this is TSF’s first international gala\, we are encouraging our attendees to dress in formal attire from their country or favorite part of the world. \nWe can’t wait to illuminate NMOSD & MOGAD under the sea with you!
URL:https://www.sumairafoundation.org/event/tsfs-7th-annual-gala/
LOCATION:National Aquarium of Denmark\, Jacob Fortlingsvej 1\, 2770 Kastrup\, Denmark
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/08/1-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240912T200000
DTEND;TZID=America/New_York:20240912T210000
DTSTAMP:20260404T181452
CREATED:20241009T181452Z
LAST-MODIFIED:20241009T183911Z
UID:17898-1726171200-1726174800@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-34/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/10/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20240911T193000
DTEND;TZID=Europe/Amsterdam:20240911T203000
DTSTAMP:20260404T181452
CREATED:20241009T180044Z
LAST-MODIFIED:20241009T180044Z
UID:17884-1726083000-1726086600@www.sumairafoundation.org
SUMMARY:TSF Plauderstunde | HCP Germany
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/tsf-plauderstunde-hcp-germany-14/
LOCATION:Virtual: Germany\, Germany
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/10/Germany.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Tehran:20240830T180000
DTEND;TZID=Asia/Tehran:20240830T190000
DTSTAMP:20260404T181452
CREATED:20240812T175610Z
LAST-MODIFIED:20240822T182912Z
UID:17710-1725040800-1725044400@www.sumairafoundation.org
SUMMARY:Iranian Insights: Diagnostic Assays
DESCRIPTION:TSF is pleased to provide the Iranian neurology community around the globe with another lecture and case discussion: Diagnostic Assays led by Prof. Patrick Waters from the University of Oxford. \nWe invite clinicians & researchers from all over the world to join this important discussion. \nThis series is being organized by Dr. Sara Samadzadeh (Charité Universitätsmedizin Berlin)\, Dr. Masoud Majed (Keck School of Medicine of USC)\, and Dr. Mohammad Ali Sahraian ( Tehran University of Medical Sciences).
URL:https://www.sumairafoundation.org/event/iranian-insights-diagnostic-assays/
LOCATION:Virtual: Iran\, Iran\, Islamic Republic of
CATEGORIES:Case Discussion + Lecture
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/08/PWaters.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20240829T200000
DTEND;TZID=Europe/Paris:20240829T210000
DTSTAMP:20260404T181452
CREATED:20240216T153313Z
LAST-MODIFIED:20240805T232825Z
UID:16167-1724961600-1724965200@www.sumairafoundation.org
SUMMARY:Le Projet Collectif Humain (HCP) | Français
DESCRIPTION:The Human Collective Project (HCP) est la réunion du groupe de soutien de TSF offerte à toute personne affectée par la NMOSD ou la MOGAD. Le programme a vu le jour au plus fort de la pandémie de COVID-19 en 2020\, lorsque la plupart des patients NMOSD/MOGAD se sentaient particulièrement isolés et vulnérables au coronavirus en tant que patient dit “vulnérable” de part son traitement contre ma maladie.\nL’isolement que beaucoup d’entre nous avons vécu a révélé un grand besoin et une opportunité pour nous de nous connecter de manière significative pour nous offrir notre soutien les uns aux autres. \nDepuis 2020\, nous avons élargi le programme pour offrir plus de sessions dans plusieurs zones géographiques afin de garantir que tous les membres des communautés NMOSD/MOGAD se sentent accueillis et inclus. Comme nous le disons toujours\, HCP est un excellent moyen de rencontrer d’autres personnes dans des circonstances similaires dans cette communauté rare; c’est un espace sûr pour rire\, pleurer\, évacuer\, partager les victoires\, etc. Ce programme est piloté et dirigé par les patients et soignants ambassadeurs de TSF dans le monde entier.
URL:https://www.sumairafoundation.org/event/le-projet-collectif-humain-13/
LOCATION:Virtual: France\, France
CATEGORIES:Support Group,TSF France
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/02/French-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240829T190000
DTEND;TZID=America/New_York:20240829T200000
DTSTAMP:20260404T181452
CREATED:20240807T191148Z
LAST-MODIFIED:20240807T191148Z
UID:17674-1724958000-1724961600@www.sumairafoundation.org
SUMMARY:TSF's Exclusive TEEN & Young Adult HCP Meeting
DESCRIPTION:Are you a teen or young adult affected by rare neuroimmune disorders such as NMOSD or MOGAD? All are welcome between the ages of 13-25. \nThe Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-exclusive-teen-young-adult-hcp-meeting/
LOCATION:Virtual: Global
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/08/TEEN.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240823T140000
DTEND;TZID=America/New_York:20240823T150000
DTSTAMP:20260404T181452
CREATED:20240807T192135Z
LAST-MODIFIED:20240807T192135Z
UID:17679-1724421600-1724425200@www.sumairafoundation.org
SUMMARY:Verständnis von MOGAD und der Bedeutung der Patientenbeteiligung an klinischen Studien
DESCRIPTION:TSF Deutschland lädt deutschsprachige MOGAD-Patienten\, Pflegekräfte und Kliniker ein\, an unserem kommenden Live-Webinar “Verständnis von MOGAD und der Bedeutung der Patientenbeteiligung an klinischen Studien – mit Professor Friedemann Paul\, Neuroimmunologe an der Charité – Universitätsmedizin Berlin” teilzunehmen. \nLive-Teilnehmer haben die Möglichkeit\, Prof. Paul in Echtzeit Fragen zu stellen. \nDiese Sitzung wird aufgezeichnet und kann danach auf dem YouTube-Kanal von TSF wiedergegeben werden. \nDieses Programm wurde mit Unterstützung von UCB ermöglicht.
URL:https://www.sumairafoundation.org/event/verstandnis-von-mogad-und-der-bedeutung-der-patientenbeteiligung-an-klinischen-studien/
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/08/GERMAN.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Bogota:20240821T180000
DTEND;TZID=America/Bogota:20240821T190000
DTSTAMP:20260404T181452
CREATED:20240726T190133Z
LAST-MODIFIED:20240730T130810Z
UID:17558-1724263200-1724266800@www.sumairafoundation.org
SUMMARY:Tratamientos para el NMOSD
DESCRIPTION:El jueves 21 de agosto a las 6pm hora Colombia\, el Dr Carlos Navas de Colombia y el Dr Edgar Carnero de Argentina nos contarán los tratamientos para NMOSD. ¡¡Acompáñanos!!
URL:https://www.sumairafoundation.org/event/tratamientos-para-el-nmosd/
LOCATION:Virtual: Colombia\, Colombia
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/07/NavasContentti.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Istanbul:20240820T150000
DTEND;TZID=Europe/Istanbul:20240820T160000
DTSTAMP:20260404T181452
CREATED:20240805T181632Z
LAST-MODIFIED:20240812T120327Z
UID:17615-1724166000-1724169600@www.sumairafoundation.org
SUMMARY:HCP Turkey
DESCRIPTION:Ağustos nmo-sd/mog-ad toplantimiza tüm NMO-sd hastalarini ve aile fertleri davetlidir.\nzoom toplantimizda dr.Rabia ve dr.Meral Nmo ile ilgili sorulari cevaplayacaktir.\naşağıdaki belirtilmis olan linkten kaydinizi oluşturabilirsiniz\n\nsaygılarımla\nSumaira Türkiye\nFatih Şen
URL:https://www.sumairafoundation.org/event/hcp-turkey-4/
LOCATION:virtual: Turkey\, Turkey
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/08/Turkey-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20240814T193000
DTEND;TZID=Europe/Amsterdam:20240814T203000
DTSTAMP:20260404T181452
CREATED:20240805T181747Z
LAST-MODIFIED:20240812T122207Z
UID:17617-1723663800-1723667400@www.sumairafoundation.org
SUMMARY:TSF Plauderstunde | HCP Germany
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/tsf-plauderstunde-hcp-germany-13/
LOCATION:Virtual: Germany\, Germany
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/12/2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240808T200000
DTEND;TZID=America/New_York:20240808T210000
DTSTAMP:20260404T181452
CREATED:20240805T181324Z
LAST-MODIFIED:20240805T181324Z
UID:17612-1723147200-1723150800@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-33/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/08/America.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20240730T180000
DTEND;TZID=Africa/Johannesburg:20240730T190000
DTSTAMP:20260404T181452
CREATED:20240726T190600Z
LAST-MODIFIED:20240727T201603Z
UID:17561-1722362400-1722366000@www.sumairafoundation.org
SUMMARY:Human Collective Project | South Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/human-collective-project-south-africa-3/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/04/South-Africa.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Tehran:20240726T183000
DTEND;TZID=Asia/Tehran:20240726T193000
DTSTAMP:20260404T181452
CREATED:20240710T004504Z
LAST-MODIFIED:20240710T004636Z
UID:17394-1722018600-1722022200@www.sumairafoundation.org
SUMMARY:Iranian Insights: Treatment Strategy for MOGAD: Acute & Maintenance Therapy
DESCRIPTION:TSF is pleased to provide the Iranian neurology community around the globe with another lecture and case discussion: Treatment Strategy for MOGAD: Acute & Maintenance Therapy led by Dr. Sara Mariotto\, neuroimmunologist and global NMOSD/MOGAD expert. \nWe invite clinicians & researchers from all over the world to join this important discussion. \nThis series is being organized by Dr. Sara Samadzadeh (Charité Universitätsmedizin Berlin)\, Dr. Masoud Majed (Keck School of Medicine of USC)\, and Dr. Mohammad Ali Sahraian ( Tehran University of Medical Sciences).
URL:https://www.sumairafoundation.org/event/iranian-insights-treatment-strategy-for-mogad-acute-maintenance-therapy/
LOCATION:Virtual: Global
CATEGORIES:Case Discussion + Lecture
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2024/07/Illuminate-Insight-NMOSD-MOGAD-Iran.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240721T110000
DTEND;TZID=America/New_York:20240721T170000
DTSTAMP:20260404T181452
CREATED:20240611T180014Z
LAST-MODIFIED:20240611T180014Z
UID:17260-1721559600-1721581200@www.sumairafoundation.org
SUMMARY:TSF's Atlanta Patient Day for NMOSD & MOGAD
DESCRIPTION:Are you an NMOSD/MOGAD patient\, caregiver\, clinician\, nurse\, researcher and/or advocate in or around Georgia? You’re invited to our special day on Sunday\, July 21st at 11 AM at Emory Brain Health Center. \nIn collaboration with Dr. Grace Gombolay & Dr. Spencer Hutto (Emory) and Dr. Mitzi Joi Williams (Joi Life Wellness)\, The Sumaira Foundation is pleased to invite you to TSF’s Atlanta Patient Day\, a special day dedicated to NMOSD & MOGAD patients\, caregivers\, clinicians and researchers. \nJoin us for a day of education\, community\, and fun to: \n\nMeet local NMOSD & MOGAD patients\, caregivers and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, co-morbidities and more\n\n\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis is a free event and lunch will be served. We’re excited to see you in Atlanta! \nThe Sumaira Foundation team
URL:https://www.sumairafoundation.org/event/tsfs-atlanta-patient-day-for-nmosd-mogad/
LOCATION:Emory Brain Health Center\, 12 Executive Park Dr NE\, Atlana\, 30329\, United States
CATEGORIES:Patient Days
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/06/Atlanta-Patient-Day-July-2024.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240718T190000
DTEND;TZID=America/New_York:20240718T230000
DTSTAMP:20260404T181452
CREATED:20240604T011719Z
LAST-MODIFIED:20240604T011719Z
UID:17204-1721329200-1721343600@www.sumairafoundation.org
SUMMARY:10 Years of TSF
DESCRIPTION:You’re invited to celebrate 10 years of TSF! \nJoin us on Thursday\, July 18th at 7:00 PM for an evening of music\, dancing\, food/drinks and nostalgia as we commemorate a decade of impact while raising funds to support NMOSD and MOGAD research around the world. This social event will take place at Nikolai’s Roof (at Hilton Atlanta) the night before AAN’s Summer Conference dedicated to Autoimmune Neurology commences. \nDon’t miss out on this special evening with friends\, colleagues and supporters from all over the globe. Let’s raise a toast to the next ten years of rare disease advocacy and research! \nEarly-bird tickets are available until June 30\, 2024. Prices go up on July 1st. \nSee you soon \nThe Sumaira Foundation
URL:https://www.sumairafoundation.org/event/10-years-of-tsf/
LOCATION:Nikolai’s Roof\, 255 Courtland Street\, Atlana\, GA\, 30303\, United States
CATEGORIES:TSF Anniversary
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/06/Celebrating-10-Years-of-TSF-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240711T200000
DTEND;TZID=America/New_York:20240711T210000
DTSTAMP:20260404T181452
CREATED:20240401T184438Z
LAST-MODIFIED:20240401T184438Z
UID:16634-1720728000-1720731600@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-32/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20240708T183000
DTEND;TZID=Europe/Rome:20240708T193000
DTSTAMP:20260404T181452
CREATED:20240628T131614Z
LAST-MODIFIED:20240628T131614Z
UID:17366-1720463400-1720467000@www.sumairafoundation.org
SUMMARY:Il progetto collettivo umano (HCP) | Italia
DESCRIPTION:The Human Collective Project (HCP) è l’incontro del gruppo di supporto di TSF offerto a chiunque sia stato colpito/colpito da NMOSD/MOGAD. Il programma è nato durante il culmine della pandemia di COVID-19 nel 2020\, quando la maggior parte dei NMOSD/MOGAD si sentiva particolarmente isolata e vulnerabile al coronavirus come membri della società immunosoppressi/immunocompromessi. L’isolamento che molti di noi hanno vissuto ha svelato un grande bisogno e un’opportunità per noi di connetterci in modo significativo per offrire il nostro sostegno reciproco. \nDal 2020\, abbiamo ampliato il programma per offrire più sessioni in più aree geografiche per garantire che tutti nelle comunità NMOSD/MOGAD si sentano accolti e inclusi. Come diciamo sempre\, HCP è un ottimo modo per incontrare altri in circostanze simili in questa rara comunità; è uno spazio sicuro per ridere\, piangere\, sfogarsi\, condividere vittorie\, ecc. Questo programma è guidato e guidato dagli ambasciatori di pazienti e caregiver di TSF in tutto il mondo.
URL:https://www.sumairafoundation.org/event/il-progetto-collettivo-umano-hcp-italia-2/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/04/Italian-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Bogota:20240704T190000
DTEND;TZID=America/Bogota:20240704T200000
DTSTAMP:20260404T181452
CREATED:20240618T171057Z
LAST-MODIFIED:20240704T230036Z
UID:17306-1720119600-1720123200@www.sumairafoundation.org
SUMMARY:Mi enfermedad ¿Tierra o Sol?
DESCRIPTION:Convivir con un diagnóstico médico puede representar desafíos en diferentes áreas\, pero ¿Eso significa necesariamente que se convierte en el sol alrededor del que todos los planos de mi vida giran? ¿Qué hay de si también planteamos la posibilidad de que podría ser como el planeta Tierra?\, que si bien tiene al Sol como referencia para moverse\, tiene vida propia más allá de él. \nEn julio\, queremos hablar de la salud mental. La psicóloga Silvia Guzmán nos lleva a un espacio reflexivo para cavilar sobre estas preguntas y conocer cómo los procesos psicológicos como el pensamiento\, la motivación y la emoción\, influyen en la convivencia con la enfermedad. Al final\, podrás responderte: “mi enfermedad ¿Tierra o Sol?. Acompáñanos el próximo 4 de julio a las 7 pm COT.
URL:https://www.sumairafoundation.org/event/mi-enfermedad-tierra-o-sol/
LOCATION:Virtual: Colombia\, Colombia
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/06/Silvia-Tatiana-Guzman.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20240627T200000
DTEND;TZID=Europe/Paris:20240627T210000
DTSTAMP:20260404T181452
CREATED:20240216T153340Z
LAST-MODIFIED:20240216T153340Z
UID:16169-1719518400-1719522000@www.sumairafoundation.org
SUMMARY:Le Projet Collectif Humain
DESCRIPTION:The Human Collective Project (HCP) est la réunion du groupe de soutien de TSF offerte à toute personne affectée par la NMOSD ou la MOGAD. Le programme a vu le jour au plus fort de la pandémie de COVID-19 en 2020\, lorsque la plupart des patients NMOSD/MOGAD se sentaient particulièrement isolés et vulnérables au coronavirus en tant que patient dit “vulnérable” de part son traitement contre ma maladie.\nL’isolement que beaucoup d’entre nous avons vécu a révélé un grand besoin et une opportunité pour nous de nous connecter de manière significative pour nous offrir notre soutien les uns aux autres. \nDepuis 2020\, nous avons élargi le programme pour offrir plus de sessions dans plusieurs zones géographiques afin de garantir que tous les membres des communautés NMOSD/MOGAD se sentent accueillis et inclus. Comme nous le disons toujours\, HCP est un excellent moyen de rencontrer d’autres personnes dans des circonstances similaires dans cette communauté rare; c’est un espace sûr pour rire\, pleurer\, évacuer\, partager les victoires\, etc. Ce programme est piloté et dirigé par les patients et soignants ambassadeurs de TSF dans le monde entier.
URL:https://www.sumairafoundation.org/event/le-projet-collectif-humain-14/
LOCATION:Virtual: France\, France
CATEGORIES:Support Group,TSF France
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/03/France-The-Human-Collective-Project-169-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20240625T180000
DTEND;TZID=Africa/Johannesburg:20240625T190000
DTSTAMP:20260404T181452
CREATED:20240624T124630Z
LAST-MODIFIED:20240727T201635Z
UID:17322-1719338400-1719342000@www.sumairafoundation.org
SUMMARY:Human Collective Project | South Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/human-collective-project-south-africa-2/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/04/South-Africa.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240621T120000
DTEND;TZID=America/New_York:20240621T130000
DTSTAMP:20260404T181452
CREATED:20240603T171348Z
LAST-MODIFIED:20240618T163936Z
UID:17199-1718971200-1718974800@www.sumairafoundation.org
SUMMARY:Approved NMOSD Therapies
DESCRIPTION:In 2014\, there were 0 FDA-approved therapies for patients living with neuromyelitis optica spectrum disorder (NMOSD). In 2024\, there are 4 efficacious\, FDA-approved therapies available for patients living with NMOSD. \nYou’re invited to “Approved NMOSD Therapies” a live webinar during which Dr. Sean Pittock* of the Mayo Clinic will provide overviews (pharmacology\, drug delivery method\, dosing\, frequency\, side effects\, reduction in relapse rates\, antibody criteria\, etc.) of each approved therapy. \nWe invite patients\, caregivers\, clinicians\, researchers\, advocates\, industry professionals or anyone interested in NMOSD to join this educational program. Live attendees will have the opportunity to ask Dr. Pittock questions in real time. \nThis webinar will be recorded and made available for replay on TSF’s YouTube channel and global website. \n*Sean J. Pittock\, M.D.\nConsultant\, Department of Neurology\nProfessor of Neurology\nMarilyn A Park and Moon S. Park\, M.D. Director of the Mayo Clinic’s Center for Multiple Sclerosis and Autoimmune Neurology\,\nApplebaum Family Professor of Neurosciences
URL:https://www.sumairafoundation.org/event/approved-nmosd-therapies/
LOCATION:Virtual: Global
CATEGORIES:TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/06/Sean-Pittock-3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240615T110000
DTEND;TZID=America/New_York:20240615T170000
DTSTAMP:20260404T181452
CREATED:20240416T171719Z
LAST-MODIFIED:20240416T171719Z
UID:16747-1718449200-1718470800@www.sumairafoundation.org
SUMMARY:TSF's Cleveland Patient Day for NMOSD & MOGAD
DESCRIPTION:Are you an NMOSD/MOGAD patient\, caregiver\, clinician\, nurse\, researcher and/or advocate in or around Ohio? You’re invited to our special day! \nIn collaboration with Dr. Amy Kunchok\, Dr. Mary Rensel and Dr. Justin Abbatemarco at the Cleveland Clinic\, The Sumaira Foundation is pleased to invite you to TSF’s Cleveland Patient Day\, a special day dedicated to NMOSD & MOGAD patients\, caregivers\, clinicians and researchers. \nJoin us for a day of education\, community\, and fun where you’ll: \n\nMeet local NMOSD & MOGAD patients\, caregivers and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, co-morbidities and more\n\n\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis is a free event and lunch will be served. \nWe’re excited to see you in Cleveland! \nThe Sumaira Foundation team
URL:https://www.sumairafoundation.org/event/tsfs-cleveland-patient-day-for-nmosd-mogad/
LOCATION:Cleveland Clinic Administrative Campus Building 4\, 3175 Science Park Drive\, Beachwood\, 44122\, United States
CATEGORIES:Community Event,TSF Patient Day
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2024/04/https-cdn.evbuc_.com-images-744867119-132744545551-1-original.20240416-153900.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240613T200000
DTEND;TZID=America/New_York:20240613T210000
DTSTAMP:20260404T181452
CREATED:20240401T184330Z
LAST-MODIFIED:20240401T184330Z
UID:16632-1718308800-1718312400@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-30/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20240528T180000
DTEND;TZID=Africa/Johannesburg:20240528T190000
DTSTAMP:20260404T181452
CREATED:20240430T145010Z
LAST-MODIFIED:20240727T201444Z
UID:16828-1716919200-1716922800@www.sumairafoundation.org
SUMMARY:Human Collective Project | South Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/human-collective-project-south-africa/
LOCATION:Virtual: South Africa\, South Africa
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/04/South-Africa.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20240527T140000
DTEND;TZID=Europe/Paris:20240527T150000
DTSTAMP:20260404T181452
CREATED:20240524T143519Z
LAST-MODIFIED:20240524T143519Z
UID:16941-1716818400-1716822000@www.sumairafoundation.org
SUMMARY:Démarches administratives et handicap
DESCRIPTION:Nous vous invitons à rejoindre notre prochain webinaire le lundi 27 mai à 14h00 CET avec Marie Delenne\, Patiente Experte Sclérose en Plaques et ancienne Inspectrice du Travail. \nDémarches administratives quand on est en situation de handicap\, quelle galère ! Travail\, Sécu\, MDPH\, RQTH\, Retraite ! \nVenez en parler avec nous et recevoir les conseils de notre Experte qui aide depuis des années des Patients comme vous. \nCe programme est rendu possible grâce au soutien d’Alexion.
URL:https://www.sumairafoundation.org/event/demarches-administratives-et-handicap/
LOCATION:Virtual: France\, France
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/05/Marie-Delenne.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20240515T193000
DTEND;TZID=Europe/Amsterdam:20240515T203000
DTSTAMP:20260404T181452
CREATED:20240401T183520Z
LAST-MODIFIED:20240430T135345Z
UID:16626-1715801400-1715805000@www.sumairafoundation.org
SUMMARY:TSF Plauderstunde (HCP) | Deutsch
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/tsf-plauderstunde-hcp-germany-12/
LOCATION:Virtual: Germany\, Germany
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/04/Germany.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240509T200000
DTEND;TZID=America/New_York:20240509T210000
DTSTAMP:20260404T181452
CREATED:20240401T184243Z
LAST-MODIFIED:20240430T134434Z
UID:16630-1715284800-1715288400@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-28/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/04/America.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Bogota:20240506T193000
DTEND;TZID=America/Bogota:20240506T203000
DTSTAMP:20260404T181452
CREATED:20240430T133610Z
LAST-MODIFIED:20240430T133654Z
UID:16817-1715023800-1715027400@www.sumairafoundation.org
SUMMARY:El proyecto colectivo humano (HCP) | Español
DESCRIPTION:El Human Collective Project (HCP) es la reunión del grupo de apoyo de TSF que se ofrece a cualquier persona que haya sido afectada/impactada por NMOSD/MOG-AD. El programa nació durante el apogeo de la pandemia de COVID-19 en 2020\, cuando la mayoría de los NMOSD/MOG-AD se sentían particularmente aislados y vulnerables al coronavirus como miembros de la sociedad inmunodeprimidos/inmunodeprimidos. El aislamiento que muchos de nosotros experimentamos reveló una gran necesidad y oportunidad para conectarnos de una manera significativa y ofrecernos apoyo unos a otros. \nDesde 2020\, hemos ampliado el programa para ofrecer más sesiones en múltiples geografías para garantizar que todos en las comunidades NMOSD/MOG-AD se sientan bienvenidos e incluidos. Como siempre decimos\, HCP es una excelente manera de conocer a otras personas en circunstancias similares en esta rara comunidad; es un espacio seguro para reír\, llorar\, desahogarse\, compartir victorias\, etc. Este programa está impulsado y dirigido por pacientes y cuidadores embajadores de TSF en todo el mundo.
URL:https://www.sumairafoundation.org/event/el-proyecto-colectivo-humano-hcp-espanol/
LOCATION:Virtual: Colombia\, Colombia
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/04/Spanish-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20240506T183000
DTEND;TZID=Europe/Rome:20240506T193000
DTSTAMP:20260404T181452
CREATED:20240430T130003Z
LAST-MODIFIED:20240430T130003Z
UID:16814-1715020200-1715023800@www.sumairafoundation.org
SUMMARY:Il progetto collettivo umano (HCP) | Italia
DESCRIPTION:The Human Collective Project (HCP) è l’incontro del gruppo di supporto di TSF offerto a chiunque sia stato colpito/colpito da NMOSD/MOGAD. Il programma è nato durante il culmine della pandemia di COVID-19 nel 2020\, quando la maggior parte dei NMOSD/MOGAD si sentiva particolarmente isolata e vulnerabile al coronavirus come membri della società immunosoppressi/immunocompromessi. L’isolamento che molti di noi hanno vissuto ha svelato un grande bisogno e un’opportunità per noi di connetterci in modo significativo per offrire il nostro sostegno reciproco. \nDal 2020\, abbiamo ampliato il programma per offrire più sessioni in più aree geografiche per garantire che tutti nelle comunità NMOSD/MOGAD si sentano accolti e inclusi. Come diciamo sempre\, HCP è un ottimo modo per incontrare altri in circostanze simili in questa rara comunità; è uno spazio sicuro per ridere\, piangere\, sfogarsi\, condividere vittorie\, ecc. Questo programma è guidato e guidato dagli ambasciatori di pazienti e caregiver di TSF in tutto il mondo.
URL:https://www.sumairafoundation.org/event/il-progetto-collettivo-umano-hcp-italia/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/04/Italian-1.png
END:VEVENT
END:VCALENDAR