The Sumaira Foundation

Human Collective Project | South Africa
2025-03-26 19:00 - 20:00, 2025-04-29 18:00 - 19:00 (Africa/Johannesburg)
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.

Il progetto collettivo umano (HCP) | Italia Per pazienti adulti
2025-03-28 17:30 - 19:30 (Europe/Rome) | Virtual: Italy, Italy
The Human Collective Project (HCP) è l’incontro del gruppo di supporto di TSF offerto a chiunque sia stato colpito/colpito da NMOSD/MOGAD. Il programma è nato durante il culmine della pandemia di COVID-19 nel 2020, quando la maggior parte dei NMOSD/MOGAD si sentiva particolarmente isolata e vulnerabile al coronavirus come membri della società immunosoppressi/immunocompromessi. L’isolamento che molti di noi hanno vissuto ha svelato un grande bisogno e un’opportunità per noi di connetterci in modo significativo per offrire il nostro sostegno reciproco.
Dal 2020, abbiamo ampliato il programma per offrire più sessioni in più aree geografiche per garantire che tutti nelle comunità NMOSD/MOGAD si sentano accolti e inclusi. Come diciamo sempre, HCP è un ottimo modo per incontrare altri in circostanze simili in questa rara comunità; è uno spazio sicuro per ridere, piangere, sfogarsi, condividere vittorie, ecc. Questo programma è guidato e guidato dagli ambasciatori di pazienti e caregiver di TSF in tutto il mondo.

TSF's San Francisco Patient Day for NMOSD & MOGAD
2025-03-29 11:00 - 17:00 (America/Los_Angeles) | Stanford University – Cardinal Hall, 505 Broadway, Redwood City, 94063, United States
TSF is coming to San Francisco!
Are you an NMOSD/MOGAD patient, caregiver, clinician, nurse, researcher and/or advocate in the Bay Area? You’re invited to our event on Saturday, March 29th at 11 AM at Stanford University – Cardinal Hall, hosted in collaboration with the neuroimmunology teams at Stanford and UCSF.
Join us for a day of education, community and fun to:

Meet local NMOSD & MOGAD patients, caregivers and clinicians
Ask experts questions in real time about symptom management, treatments and therapies, co-morbidities and more

Learn about updates on the latest research and findings from local key opinion leaders

This in-person event is free and lunch will be served. We can’t wait to see you in San Francisco.
The Sumaira Foundation team

TSF's Human Collective Project Meetings
2025-04-10 20:00 - 21:00, 2025-05-08 20:00 - 21:00, 2025-06-12 20:00 - 21:00, 2025-07-10 20:00 - 21:00, 2025-08-14 20:00 - 21:00, 2025-09-11 20:00 - 21:00, 2025-10-09 20:00 - 21:00 (America/New_York) | Virtual: United States, United States
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
Since 2020, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh, cry, vent, share wins, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.

MOGADについての理解と 臨床試験への患者参加の 重要性
2025-04-26 14:00 - 15:00 (Asia/Tokyo) | Virtual: Japan, Japan
MOGAD啓発月間を記念し、Sumaira Foundation、MSCabin、NPO法人日本視神経脊髄炎患者会が、藤原一男先生と毛塚剛司先生による特別ウェビナーを開催します。 4 月 26 日午後 2 時から、MOG抗体疾患と臨床試験への患者参加の重要性について話し合うインタラクティブ プログラムにご参加ください。 セミナーのライブ視聴者は、講師の先生方へ質問することができます。 セミナーアーカイブは、後日 TSF YouTube チャンネルで視聴できます。 （チャンネル登録が必要です）

Human Collective Project | Africa
2025-05-28 19:00 - 20:00, 2025-06-25 19:00 - 20:00, 2025-07-30 19:00 - 20:00, 2025-08-27 19:00 - 20:00, 2025-09-24 19:00 - 20:00 (Africa/Johannesburg)

TSF's Washington DC Patient Day
2025-06-08 11:00 - 17:00 (America/New_York) | Leavey Center, 560 Tondorf Road, Washington, DC, 20057, United States
TSF is coming to the DMV area!
Are you an NMOSD/MOGAD patient, caregiver, clinician, nurse, researcher and/or advocate in the Washington D.C./Baltimore area? You’re invited to our event on Sunday, June 8th, at 11 AM at the Georgetown University Conference Center.
Join us for a day of education, community, and fun to:

Meet local NMOSD & MOGAD patients, caregivers and clinicians
Ask experts questions in real time about symptom management, treatments and therapies, co-morbidities and more

Learn about updates on the latest research and findings from local key opinion leaders

This in-person event is free and lunch will be served. We can’t wait to see you in the capital of the United States!
The Sumaira Foundation team

Hacer ejercicio con una enfermedad autoimmune
2025-06-19 18:00 - 19:00 (America/Mexico_City) | Virtual: Mexico
¿Sabías que el ejercicio puede ser un aliado poderoso en la gestión de enfermedades autoinmunes? En este webinar, exploraremos cómo el deporte puede ayudar a mejorar la calidad de vida.

Únase a nosotros el 5 de junio para una presentación y discusión con la Dra. Araceli Reyes Cuayahuitl. Haga clic aquí para registrarse: https://us02web.zoom.us/webinar/register/WN_DeOIgA_qTemWu61Y3RWVJg

Temas a cubrir:
• Breve introducción a las enfermedades desmielinizantes
• Síntomas físicos comunes
• Importancia de la actividad física en general
• Evidencia científica del impacto del ejercicio en enfermedades desmielinizantes
• Tipos de ejercicio recomendados

¿Qué esperar en el webinar?
• Información basada en evidencia científica
• Oportunidad para hacer preguntas e interactuar con expertos

Este programa es posible gracias al apoyo de Amgen.

TSF's Human Collective Project Meetings [Pride Edition]
2025-06-19 20:00 - 21:00 (America/New_York) | Virtual: United States, United States
Pride is more than just a month. We recognize the unique challenges faced by those navigating both an LGBTQIA+ identity and a rare disease diagnosis, and we’re here to ensure you don’t have to face them alone. The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by Acute disseminated encephalomyelitis (ADEM), Autoimmune encephalitis (AE), Multiple sclerosis (MS), Myelin oligodendrocyte glycoprotein antibody-associated disease (MOGAD), Neuromyelitis optica spectrum disorder (NMOSD), Optic neuritis (ON) or Transverse myelitis (TM). Please join us to offer support to one another and meet others who truly understand our journeys.
Together, we can create a compassionate community that understands and supports the unique experiences of living with ADEM, AE, MOGAD, MS, NMOSD, ON, and TM as an LGBTQIA+ individual. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.

Chicago Patient Day for Rare Neuroinflammatory Disorders
2025-07-26 11:00 - 17:00 (America/Chicago) | Rush University Medical Center, 1725 West Harrison Street #5th floor, Chicago, IL, 60612, United States
Are you an NMOSD*, MOGAD*, AE*, MG* or SPS* patient, caregiver, clinician, nurse, researcher and/or advocate in the Chicagoland area? You’re invited to our event on Saturday, July 26th at Rush University Medical Center’s Searle Center. We are proud to collaborate on this event with the Chicago MS Alliance.
Join us for a day of education, community, and fun to:

Meet local NMOSD, MOGAD, AE, MG and SPS patients, caregivers and clinicians
Ask experts questions in real time about symptom management, treatments and therapies, co-morbidities and more
Learn about updates on the latest research and findings from local key opinion leaders

This in-person event is free and lunch will be served. We can’t wait to see you in CHI-town!
The Sumaira Foundation team
—
NMOSD stands for neuromyelitis optica spectrum disorder
MOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorder
AE stands for autoimmune encephalitis
MG stands for myasthenia gravis
SPS stands for stiff person syndrome

TSF's Intermountain West Patient Day for Rare Neuroinflammatory Disorders
2025-08-16 11:00 - 17:00 (America/Phoenix) | University of Utah, UT, United States
TSF is coming to Salt Lake City!
Are you an AE*, CNS Vasculitis, MOGAD*, neurosarcoidosis, NMOSD* or SPS* patient, caregiver, clinician, nurse, researcher and/or advocate from the Intermountain West region? You’re invited to our event on Saturday, August 16th at the University of Utah Health.
Join us for a day of education, community, and fun to:

Meet local AE, CNS Vasculitis, MOGAD, neurosarcoidosis, NMOSD or SPS patients, caregivers and clinicians
Ask experts questions in real time about symptom management, treatments and therapies, comorbidities and more
Learn about updates on the latest research and findings from local key opinion leaders

This in-person event is free and lunch will be served. We can’t wait to see you in SLC!
The Sumaira Foundation team
—
NMOSD stands for neuromyelitis optica spectrum disorder
MOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorder
AE stands for autoimmune encephalitis
SPS stands for stiff person syndrome

Compreendendo a MOGAD e a importância da participação do paciente em ensaios clínicos
2025-08-18 11:00 - 12:00 (America/Sao_Paulo) | Virtual: Brazil, Brazil
Você ou alguém próximo a você foi afetado pelo MOGAD? Junte-se a nós na segunda-feira, 18 de agosto, para aprender sobre MOGAD e a importância da participação de pacientes em ensaios clínicos. Este programa contará com a participação do Dr. Douglas Kazutoshi Sato (do Brasil) e da Dra. Ernestina Santos (de Portugal), que responderão a perguntas da nossa plateia em tempo real. Este programa é promovido pela Fundação Sumaira em colaboração com a NMO Brasil e a ABNMO e é possível graças ao apoio da UCB.

Comprendre MOGAD et l'importance de la participation des patients aux essais cliniques
2025-09-02 17:00 - 18:00 (Europe/Paris) | Virtual: France, France
Avez-vous été touché(e) ou l’un de vos proches par MOGAD ? Rejoignez-nous le mardi 2 septembre pour en savoir plus sur MOGAD et l’importance de la participation des patients aux essais cliniques. Ce programme sera animé par le Pr Jérôme de Seze (Université de Strasbourg – France) et le Dr Sophie Elands (Hôpital Érasme – Hôpital Universitaire de Bruxelles – Belgique) qui répondront aux questions de notre public. Ce programme est soutenu par la Fondation Sumaira et est rendu possible grâce au soutien d’UCB.

Understanding MOGAD & The Importance of Patient Participation in Clinical Trials
2025-09-04 20:00 - 21:00 (Europe/London) | Virtual: Global
Have you or someone close to you been affected by MOGAD? Join us on Thursday, September 4th to learn about MOGAD and the importance of patient participation in clinical trials. This program will feature Dr. Saif Huda (The Walton Centre – UK), Dr. Silvia Messina (Nuffield Department of Clinical Neurosciences – UK) and Dr. Katharina Fink (Karolinska University Hospital and Karolinska Institutet – Sweden) who will answer questions from our audience in real time. This program is promoted by the Sumaira Foundation in collaboration with mymyelitis and is made possible with support from UCB.

إدارة الأعراض والأمراض المصاحبة مع اضطراب الطيف العصبي البصري
2025-09-09 19:00 - 20:00 (Asia/Kuwait) | Virtual: Global
سيناقش هذا الويبينار أحدث الطرق والرؤى حول إدارة الأعراض الأساسية والاعتلالات المصاحبة لاضطراب الطيف العصبي البصري .(NMOSD)
سيركز المختصون المشاركون على التحديات التي يواجهها المرضى في التعامل مع المرض، وأفضل الممارسات لتحسين جودة الحياة، واستراتيجيات علاجية للتعامل مع الأمراض المصاحبة. سيحظى الحضور أيضًا بفرصة لطرح الأسئلة والنقاش مع الخبراء في هذا المجال

TSF Research Update & Award Ceremony
2025-09-24 19:00 - 22:30 (Europe/Rome) | Casa Llotja de Mar, Barcelona, Spain
If you’re attending ECTRIMS in Barcelona, we invite you to attend TSF’s Research Update & Award Ceremony at Casa Llotja de Mar.

Join us for an evening with research updates, recognition of outstanding achievements in the field and networking with a community dedicated to pushing the boundaries of science and technology. During this time, we will be announcing the recipient of TSF’s 2025 Global Rare Trailblazer Award.
This in-person gathering promises to be a memorable occasion where key opinion leaders, researchers, patients and industry leaders come together to celebrate excellence in neurology.
100% of proceeds will be used to fund research through TSF’s Spark and Unicorn grants. To reserve your tickets, visit https://www.eventbrite.com/e/entradas-2025-tsf-research-update-award-ceremony-1364334644649

ECTRIMS Patient Community Day 2025
2025-09-26 15:00 - 18:00 (Europe/Madrid) | Online and Onsite at CCIB Barcelona International Convention Centre, Barcelona, Spain
Join us on September 26, 2025 for ECTRIMS Patient Community Day – an exclusive, free event designed for individuals living with MOGAD, MS, NMOSD and related neurological conditions.
Patient Community Day is an opportunity to learn about the latest research advancements directly impacting your ongoing care and treatment options. The programme will include engaging roundtable discussions led by international experts, insightful Q&A sessions, and a multilingual experience ensuring accessibility for all.
This event is FREE to attend. Pre-registration is required. It will be held in English, with live translations in 50+ languages!
Have a research question about your condition that you would like answered during the event? As part of the interactive nature of the event, we invite you to actively participate in our #ECTRIMS4me campaign. Your questions and concerns will shape the agenda, making this event a true reflection of community-driven support and advocacy. Submit your question: https://www.ectrimspatientcommunity.eu/ask-the-expert
Join us as we push the boundaries of knowledge and forge a stronger path toward collective support and well-being.

TSF's 5k for Rare Neuroimmune Disorders
2025-09-28 09:00 - 16:00 (America/New_York) | Weston Town Hall, 11 Town House Rd, Weston, 02493, United States
Join us on Sunday September 28th in Weston, Massachusetts to run, walk, socialize, and raise funds. (Registration/attendance comes with a free t-shirt).
This event is being organized by Terry Clark, TSF Ambassador of MA and NMOSD patient who says, “As many of you know, almost 3 years ago, in May of 2022, I was diagnoses with a rare autoimmune disease called NMO. This 5k has been something I’ve wanted to do for years now, so I’m excited to finally begin this annual race to raise awareness. Early detection of NMO improves quality of life!”
Proceeds from this event will be used to fund researcher rare neuroimmunological disorders. Thanks to grassroots efforts like this, we’ve been able to fund close to 1m in research since 2018. View our research portfolio here: https://www.sumairafoundation.org/tsf-funded-research/
Spread the word; the more, the merrier!

Yoga Para Todos. Yoga y Vida
2025-10-01 18:00 - 19:00 (America/Bogota) | Virtual: Colombia, Colombia
Descubre por que el Yoga es para todos y puede ayudarte. El yoga no es esa idea que se tiene de una disciplina física. El Yoga es mas que físico, es celular, mental, intelectual y espiritual: te afecta en todo tu ser.
