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BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
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BEGIN:VEVENT
DTSTART;TZID=America/Bogota:20250203T180000
DTEND;TZID=America/Bogota:20250203T190000
DTSTAMP:20260404T080449
CREATED:20250116T190007Z
LAST-MODIFIED:20250116T190007Z
UID:18711-1738605600-1738609200@www.sumairafoundation.org
SUMMARY:Tratamientos para MOGAD
DESCRIPTION:Únase a nosotros el 3 de febrero para una presentación en vivo y una discusión sobre las opciones de tratamiento para pacientes de MOGAD en América Latina. \n  \nPara registrarse\, visite: https://us02web.zoom.us/webinar/register/WN_hLhettqCQQGgi1nt5Lf68A \n  \nLos asistentes tendrán la oportunidad de hacer preguntas a los expertos. Este seminario web se grabará y estará disponible para reproducirse en el canal de YouTube de TSF. \n  \nEste programa es posible gracias al apoyo de Amgen.
URL:https://www.sumairafoundation.org/event/tratamientos-para-mogad/
LOCATION:Virtual: Global
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/01/Contentti-and-Navas.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250203T140000
DTEND;TZID=Europe/Paris:20250203T150000
DTSTAMP:20260404T080449
CREATED:20250303T230812Z
LAST-MODIFIED:20250303T230812Z
UID:18894-1738591200-1738594800@www.sumairafoundation.org
SUMMARY:Le Projet Collectif Humain (HCP) | Français
DESCRIPTION:The Human Collective Project (HCP) est la réunion du groupe de soutien de TSF offerte à toute personne affectée par la NMOSD ou la MOGAD. Le programme a vu le jour au plus fort de la pandémie de COVID-19 en 2020\, lorsque la plupart des patients NMOSD/MOGAD se sentaient particulièrement isolés et vulnérables au coronavirus en tant que patient dit “vulnérable” de part son traitement contre ma maladie.\nL’isolement que beaucoup d’entre nous avons vécu a révélé un grand besoin et une opportunité pour nous de nous connecter de manière significative pour nous offrir notre soutien les uns aux autres. \nDepuis 2020\, nous avons élargi le programme pour offrir plus de sessions dans plusieurs zones géographiques afin de garantir que tous les membres des communautés NMOSD/MOGAD se sentent accueillis et inclus. Comme nous le disons toujours\, HCP est un excellent moyen de rencontrer d’autres personnes dans des circonstances similaires dans cette communauté rare; c’est un espace sûr pour rire\, pleurer\, évacuer\, partager les victoires\, etc. Ce programme est piloté et dirigé par les patients et soignants ambassadeurs de TSF dans le monde entier.
URL:https://www.sumairafoundation.org/event/le-projet-collectif-humain-hcp-francais-4/
LOCATION:Virtual: France\, France
CATEGORIES:Support Group,TSF France
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/03/45d9402e-d5a0-4a15-86fb-28197c367e32.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20250131T173000
DTEND;TZID=Europe/Rome:20250131T193000
DTSTAMP:20260404T080449
CREATED:20250121T201905Z
LAST-MODIFIED:20250121T201905Z
UID:18804-1738344600-1738351800@www.sumairafoundation.org
SUMMARY:Il progetto collettivo umano (HCP) | Italia Per pazienti adulti
DESCRIPTION:The Human Collective Project (HCP) è l’incontro del gruppo di supporto di TSF offerto a chiunque sia stato colpito/colpito da NMOSD/MOGAD. Il programma è nato durante il culmine della pandemia di COVID-19 nel 2020\, quando la maggior parte dei NMOSD/MOGAD si sentiva particolarmente isolata e vulnerabile al coronavirus come membri della società immunosoppressi/immunocompromessi. L’isolamento che molti di noi hanno vissuto ha svelato un grande bisogno e un’opportunità per noi di connetterci in modo significativo per offrire il nostro sostegno reciproco. \nDal 2020\, abbiamo ampliato il programma per offrire più sessioni in più aree geografiche per garantire che tutti nelle comunità NMOSD/MOGAD si sentano accolti e inclusi. Come diciamo sempre\, HCP è un ottimo modo per incontrare altri in circostanze simili in questa rara comunità; è uno spazio sicuro per ridere\, piangere\, sfogarsi\, condividere vittorie\, ecc. Questo programma è guidato e guidato dagli ambasciatori di pazienti e caregiver di TSF in tutto il mondo.
URL:https://www.sumairafoundation.org/event/il-progetto-collettivo-umano-hcp-italia-per-pazienti-adulti/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/01/Italian.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250131T110000
DTEND;TZID=America/New_York:20250131T120000
DTSTAMP:20260404T080449
CREATED:20241211T165158Z
LAST-MODIFIED:20250127T161446Z
UID:18513-1738321200-1738324800@www.sumairafoundation.org
SUMMARY:Managing Incontinence with Neuroimmune Disorders
DESCRIPTION:Join us on December 20th for TSF’s final webinar of 2024: Managing Incontinence with Neuroimmune Disorders featuring Dr. Raveen Syan\, Urologist and Assistant Professor of Clinical Urology at The University of Miami. \nDr. Syan will discuss urinary\, bowel and sexual dysfunction in the setting of neuroimmune conditions. Attendees joining the live program will have the opportunity to ask Dr. Raveen questions in real time. This webinar will be recorded and available for replay on TSF’s YouTube channel. \nThis program is made possible with support from Amgen.
URL:https://www.sumairafoundation.org/event/managing-incontinence-with-neuroimmune-disorders/
LOCATION:Virtual: Global
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/12/Raveen-Syan-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250129T200000
DTEND;TZID=Europe/Paris:20250129T210000
DTSTAMP:20260404T080449
CREATED:20250127T162011Z
LAST-MODIFIED:20250127T162423Z
UID:18828-1738180800-1738184400@www.sumairafoundation.org
SUMMARY:LES TROUBLES DU SOMMEIL : THÉORIE ET PRATIQUE POUR MIEUX DORMIR
DESCRIPTION:Les troubles du sommeil sont courants dans les maladies neurologiques. La NMO et la MOGAD ne font pas exception. Que ce soit les troubles de l’endormissement\, les réveils\, le sommeil peu réparateur\, les troubles sont variés et difficiles de s’en débarrasser. \nEn compagnie de Véronique Carrette\, sophrologue et hypnothérapeute\, Bérengère et Fatiha\, ambassadrices TSF\, nous les évoquerons mais surtout nous échangerons des trucs et astuces et des moyens d’améliorer la qualité de son sommeil. Retrouvez-nous en ligne ce mercredi 29 janvier à 20 heures. Vous pourrez poser toutes vos questions.
URL:https://www.sumairafoundation.org/event/les-troubles-du-sommeil-theorie-et-pratique-pour-mieux-dormir/
LOCATION:Virtual: Global
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/01/Veronique-Carrette.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20250128T180000
DTEND;TZID=Africa/Johannesburg:20250128T190000
DTSTAMP:20260404T080449
CREATED:20241009T200444Z
LAST-MODIFIED:20250121T155454Z
UID:17918-1738087200-1738090800@www.sumairafoundation.org
SUMMARY:Human Collective Project | South Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/human-collective-project-south-africa-8/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/04/South-Africa.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Seoul:20250121T090000
DTEND;TZID=Asia/Seoul:20250121T100000
DTSTAMP:20260404T080449
CREATED:20250109T175044Z
LAST-MODIFIED:20250110T191438Z
UID:18664-1737450000-1737453600@www.sumairafoundation.org
SUMMARY:다발성경화증(MS)\, 시신경척수염(NMOSD)\, 모그항체질환(MOGAD) 간의 유사점과 차이점을 이해합니다
DESCRIPTION:TSF 최초의 국내 환자교육 웨비나에 여러분을 초대합니다. \n1월 21일 화요일 오전 9시에 NMOSD와 MOGAD 전문가 김호진 박사가 출연하여 MOGAD\, MS 및 NMOSD 간의 유사점과 차이점을 논의하는 독점 프로그램에 참여하세요. \n참석자들은 김 박사에게 질문할 기회를 갖게 됩니다. 이 웹 세미나는 녹화되어 TSF의 YouTube 채널에서 재생할 수 있습니다. \n등록하려면 https://us02web.zoom.us/webinar/register/WN_7G2vm1JvTJeRgyB0cLrGMQ를 방문하세요.
URL:https://www.sumairafoundation.org/event/%eb%8b%a4%eb%b0%9c%ec%84%b1%ea%b2%bd%ed%99%94%ec%a6%9dms-%ec%8b%9c%ec%8b%a0%ea%b2%bd%ec%b2%99%ec%88%98%ec%97%bcnmosd-%eb%aa%a8%ea%b7%b8%ed%95%ad%ec%b2%b4%ec%a7%88%ed%99%98mogad-%ea%b0%84/
LOCATION:Virtual: Korea
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/01/Ho-Jin-Kim-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250109T200000
DTEND;TZID=America/New_York:20250109T210000
DTSTAMP:20260404T080449
CREATED:20250205T132616Z
LAST-MODIFIED:20250205T132616Z
UID:18610-1736452800-1736456400@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-38/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/10/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20250108T193000
DTEND;TZID=Europe/Amsterdam:20250108T203000
DTSTAMP:20260404T080449
CREATED:20241009T180429Z
LAST-MODIFIED:20241009T180429Z
UID:17893-1736364600-1736368200@www.sumairafoundation.org
SUMMARY:TSF Plauderstunde | HCP Germany
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/tsf-plauderstunde-hcp-germany-18/
LOCATION:Virtual: Germany\, Germany
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/10/Germany.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20241219T200000
DTEND;TZID=Europe/Paris:20241219T210000
DTSTAMP:20260404T080449
CREATED:20241009T195322Z
LAST-MODIFIED:20241216T171239Z
UID:17910-1734638400-1734642000@www.sumairafoundation.org
SUMMARY:Le Projet Collectif Humain (HCP) | Français
DESCRIPTION:The Human Collective Project (HCP) est la réunion du groupe de soutien de TSF offerte à toute personne affectée par la NMOSD ou la MOGAD. Le programme a vu le jour au plus fort de la pandémie de COVID-19 en 2020\, lorsque la plupart des patients NMOSD/MOGAD se sentaient particulièrement isolés et vulnérables au coronavirus en tant que patient dit “vulnérable” de part son traitement contre ma maladie.\nL’isolement que beaucoup d’entre nous avons vécu a révélé un grand besoin et une opportunité pour nous de nous connecter de manière significative pour nous offrir notre soutien les uns aux autres. \nDepuis 2020\, nous avons élargi le programme pour offrir plus de sessions dans plusieurs zones géographiques afin de garantir que tous les membres des communautés NMOSD/MOGAD se sentent accueillis et inclus. Comme nous le disons toujours\, HCP est un excellent moyen de rencontrer d’autres personnes dans des circonstances similaires dans cette communauté rare; c’est un espace sûr pour rire\, pleurer\, évacuer\, partager les victoires\, etc. Ce programme est piloté et dirigé par les patients et soignants ambassadeurs de TSF dans le monde entier.
URL:https://www.sumairafoundation.org/event/le-projet-collectif-humain-hcp-francais-3/
LOCATION:Virtual: France\, France
CATEGORIES:Support Group,TSF France
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/02/French-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20241217T180000
DTEND;TZID=Africa/Johannesburg:20241217T190000
DTSTAMP:20260404T080449
CREATED:20241009T200420Z
LAST-MODIFIED:20241009T200420Z
UID:17916-1734458400-1734462000@www.sumairafoundation.org
SUMMARY:Human Collective Project | South Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/human-collective-project-south-africa-7/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/04/South-Africa.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241212T200000
DTEND;TZID=America/New_York:20241212T210000
DTSTAMP:20260404T080449
CREATED:20241009T181604Z
LAST-MODIFIED:20241009T182401Z
UID:17905-1734033600-1734037200@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-37/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/10/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20241211T193000
DTEND;TZID=Europe/Amsterdam:20241211T203000
DTSTAMP:20260404T080449
CREATED:20241009T180322Z
LAST-MODIFIED:20241009T180322Z
UID:17891-1733945400-1733949000@www.sumairafoundation.org
SUMMARY:TSF Plauderstunde | HCP Germany
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/tsf-plauderstunde-hcp-germany-17/
LOCATION:Virtual: Germany\, Germany
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/10/Germany.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20241207T110000
DTEND;TZID=Europe/Rome:20241207T170000
DTSTAMP:20260404T080449
CREATED:20241031T141605Z
LAST-MODIFIED:20241031T150931Z
UID:18260-1733569200-1733590800@www.sumairafoundation.org
SUMMARY:2° Giornata dedicata ai pazienti con NMOSD e MOGAD - Verona
DESCRIPTION:TSF è lieta di invitare tutti i pazienti italiani con NMOSD e MOGAD\, i loro caregivers\, ed i medici interessati a queste patologie a partecipare a questa giornata di formazione\, unione e divertimento. \nIn collaborazione con la Dr.ssa Sara Mariotto dell’ Università di Verona\, The Sumaira Foundation è lieta di invitarvi alla 2° Giornata per pazienti\, caregivers e clinici dedicata a NMOSD e MOGAD. \nQuesto evento a libera iscrizione vi permetterà di: \n\n\nIncontrare pazienti italiani con NMOSD e MOGAD\, i loro caregivers ed i clinici esperti di queste patologie \n\n\n\n\nPorre domande agli esperti in diretta relative alla gestione dei sintomi\, le terapie\, le comorbidità e molto altro \n\n\n\n\nAggiornarvi in merito alle ultime ricerche scientifiche con l’aiuto di medici esperti italiani \n\n\n\n\nFare rete e instaurare connessioni con la comunità locale dedicata a NMOSD e MOGAD \n\n\nIl pranzo e il calore di TSF sono inclusi! \nNon vediamo l’ora di incontrarvi! \nTSF Italia
URL:https://www.sumairafoundation.org/event/2-giornata-dedicata-ai-pazienti-con-nmosd-e-mogad-verona/
LOCATION:Crowne Plaza Verona – Fiera\, 16 Via Belgio 37135\, Verona\, Italy
CATEGORIES:Community Event,Patient Days
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/10/2nd-Verona-Patient-Day-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241205T130000
DTEND;TZID=America/New_York:20241205T140000
DTSTAMP:20260404T080449
CREATED:20241113T185421Z
LAST-MODIFIED:20241118T124748Z
UID:18386-1733403600-1733407200@www.sumairafoundation.org
SUMMARY:Comprender MOGAD y la importancia de la participación del paciente
DESCRIPTION:TSF lo invita a unirse a nuestro próximo seminario web en español sobre MOGAD y la importancia de la participación de los pacientes en los ensayos clínicos. Nos sentimos honrados de contar con el Dr. José Flores de México y la Dra. Lucienne Costa Frossard França de España. ¡Esperamos que se una a nosotros en esta importante discusión!
URL:https://www.sumairafoundation.org/event/comprender-mogad-y-la-importancia-de-la-participacion-del-paciente/
LOCATION:Virtual: Global
CATEGORIES:Understanding MOGAD
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2024/11/SPANISH-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20241204T200000
DTEND;TZID=Europe/Paris:20241204T210000
DTSTAMP:20260404T080449
CREATED:20241120T195511Z
LAST-MODIFIED:20241120T195716Z
UID:18421-1733342400-1733346000@www.sumairafoundation.org
SUMMARY:Vécu\, besoins et attentes des patient(e)s français
DESCRIPTION:Les résultats sont là ! Vous avez peut-être participé à l’enquête réalisée par Alexion en partenariat avec The Sumaira Foundation France intitulée “Vécu\, besoins et attentes des patient(e)s atteint(e)s de NMOSD”. \nEn compagnie du Docteur Livia Lanotte\, neurologue et présidente du réseau Alsacep\, et Bérengère\, ambassadrice TSF\, nous reviendrons sur les résultats et les enseignements de cette enquête. TSF France a travaillé sur le questionnaire afin que la parole recueillie puisse servir le plus grand nombre. Nous pourrons nous appuyer sur les résultats de cette enquête pour porter un plaidoyer fort auprès des pouvoirs publics afin d’améliorer le quotidien des personnes touchées par une NMOSD ou une MOGAD. \nCe programme est rendu possible grâce au soutien de Alexion.
URL:https://www.sumairafoundation.org/event/vecu-besoins-et-attentes-des-patientes-francais/
LOCATION:Virtual: Global
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/11/Livia-Lanotte.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20241123T130000
DTEND;TZID=Europe/Paris:20241124T120000
DTSTAMP:20260404T080449
CREATED:20241031T143425Z
LAST-MODIFIED:20241031T143425Z
UID:18265-1732366800-1732449600@www.sumairafoundation.org
SUMMARY:Le 2ème week-end des patients et aidants de la NMOSD & de la MOGAD - Paris
DESCRIPTION:Suite au succès de notre 1ère Journée Patients NMOSD & MOGAD\, nous renouvelons l’évènement les 23 et 24 novembre à Paris ! \nVenez rencontrer des experts\, suivre nos ateliers\, rencontrer les différents acteurs de la NMOSD et la MOGAD. \nVenez mettre en lumière la NMOSD et la MOGAD avec Sumaira et TSF France. \nÀ bientôt! \nL’équipe TSF France (Anass\, Bérengère\, Elodie\, Emma\, Fatiha\, Nelly et Selma)
URL:https://www.sumairafoundation.org/event/le-2eme-week-end-des-patients-et-aidants-de-la-nmosd-de-la-mogad-paris/
LOCATION:FIAP Paris\, 30 Rue Cabanis\, Paris\, 75014\, France
CATEGORIES:Community Event,Patient Days
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/10/2nd-Paris-Patient-Day-Eventbrite.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Kolkata:20241123T090000
DTEND;TZID=Asia/Kolkata:20241123T100000
DTSTAMP:20260404T080449
CREATED:20241112T205613Z
LAST-MODIFIED:20241120T201500Z
UID:18327-1732352400-1732356000@www.sumairafoundation.org
SUMMARY:डिमायेलिनेटिंग बीमारियों पर जागरूकता और मार्गदर्शन
DESCRIPTION:कृपया 23 नवम्बर को सुबह 9 बजे IST पर हमारे विशेष वेबिनार में सम्मिलित हों\, जिसमें डॉ. पार्थवी रावत द्वारा डिमायेलिनेटिंग बीमारियों से प्रभावित रोगियों और उनके परिवारों को शिक्षित और सहायता प्रदान करने हेतु बहुमूल्य जानकारी और विशेषज्ञ मार्गदर्शन दिया जाएगा। लाइव वेबिनार में शामिल होने वाले प्रतिभागियों को डॉ. रावत से सीधे प्रश्न पूछने का अवसर मिलेगा। यह सत्र रिकॉर्ड किया जाएगा और TSF के यूट्यूब चैनल पर पुनः देखने के लिए उपलब्ध रहेगा। यह कार्यक्रम एमजेन के समर्थन से संभव हुआ है।
URL:https://www.sumairafoundation.org/event/%e0%a4%a1%e0%a4%bf%e0%a4%ae%e0%a4%be%e0%a4%af%e0%a5%87%e0%a4%b2%e0%a4%bf%e0%a4%a8%e0%a5%87%e0%a4%9f%e0%a4%bf%e0%a4%82%e0%a4%97-%e0%a4%ac%e0%a5%80%e0%a4%ae%e0%a4%be%e0%a4%b0%e0%a4%bf%e0%a4%af%e0%a5%8b/
LOCATION:Virtual: Global
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/11/Parthvi-Ravat.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20241119T180000
DTEND;TZID=Africa/Johannesburg:20241119T190000
DTSTAMP:20260404T080449
CREATED:20241009T200356Z
LAST-MODIFIED:20241009T200356Z
UID:17914-1732039200-1732042800@www.sumairafoundation.org
SUMMARY:Human Collective Project | South Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/human-collective-project-south-africa-6/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/04/South-Africa.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Berlin:20241115T160000
DTEND;TZID=Europe/Berlin:20241115T170000
DTSTAMP:20260404T080449
CREATED:20241112T144234Z
LAST-MODIFIED:20241112T144234Z
UID:18320-1731686400-1731690000@www.sumairafoundation.org
SUMMARY:Imaging Features of MOGAD & NMOSD
DESCRIPTION:TSF is pleased to provide the Iranian neurology community around the globe with another lecture and case discussion: Imaging Features of MOGAD & NMOSD led by Dr. Eoin Flanagan\, Professor of Neurology\, Chair\, Division of Multiple Sclerosis and Autoimmune Neurology\, Program Director\, Autoimmune Neurology Fellowship\, Consultant\, Departments of Neurology & Laboratory Medicine & Pathology at Mayo Clinic College of Medicine. \nWe invite clinicians & researchers from all over the world to join this important discussion. \nThis series is being organized by Prof. Mohammad Ali Sahraian ( Tehran University of Medical Sciences) and Dr. Sara Samadzadeh (Charité Universitätsmedizin Berlin).
URL:https://www.sumairafoundation.org/event/imaging-features-of-mogad-nmosd/
LOCATION:Virtual: Global
CATEGORIES:Case Discussion + Lecture
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/11/EFlanagan.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241114T200000
DTEND;TZID=America/New_York:20241114T210000
DTSTAMP:20260404T080449
CREATED:20241009T181538Z
LAST-MODIFIED:20241009T183616Z
UID:17903-1731614400-1731618000@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-36/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/10/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20241113T193000
DTEND;TZID=Europe/Amsterdam:20241113T203000
DTSTAMP:20260404T080449
CREATED:20241009T180214Z
LAST-MODIFIED:20241009T180214Z
UID:17889-1731526200-1731529800@www.sumairafoundation.org
SUMMARY:TSF Plauderstunde | HCP Germany
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/tsf-plauderstunde-hcp-germany-16/
LOCATION:Virtual: Germany\, Germany
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/10/Germany.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20241031T200000
DTEND;TZID=Europe/Paris:20241031T210000
DTSTAMP:20260404T080449
CREATED:20241009T195245Z
LAST-MODIFIED:20241009T195245Z
UID:17908-1730404800-1730408400@www.sumairafoundation.org
SUMMARY:Le Projet Collectif Humain (HCP) | Français
DESCRIPTION:The Human Collective Project (HCP) est la réunion du groupe de soutien de TSF offerte à toute personne affectée par la NMOSD ou la MOGAD. Le programme a vu le jour au plus fort de la pandémie de COVID-19 en 2020\, lorsque la plupart des patients NMOSD/MOGAD se sentaient particulièrement isolés et vulnérables au coronavirus en tant que patient dit “vulnérable” de part son traitement contre ma maladie.\nL’isolement que beaucoup d’entre nous avons vécu a révélé un grand besoin et une opportunité pour nous de nous connecter de manière significative pour nous offrir notre soutien les uns aux autres. \nDepuis 2020\, nous avons élargi le programme pour offrir plus de sessions dans plusieurs zones géographiques afin de garantir que tous les membres des communautés NMOSD/MOGAD se sentent accueillis et inclus. Comme nous le disons toujours\, HCP est un excellent moyen de rencontrer d’autres personnes dans des circonstances similaires dans cette communauté rare; c’est un espace sûr pour rire\, pleurer\, évacuer\, partager les victoires\, etc. Ce programme est piloté et dirigé par les patients et soignants ambassadeurs de TSF dans le monde entier.
URL:https://www.sumairafoundation.org/event/le-projet-collectif-humain-hcp-francais-2/
LOCATION:Virtual: France\, France
CATEGORIES:Support Group,TSF France
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/02/French-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20241025T163000
DTEND;TZID=Europe/Paris:20241025T173000
DTSTAMP:20260404T080449
CREATED:20241009T202215Z
LAST-MODIFIED:20241009T202814Z
UID:17930-1729873800-1729877400@www.sumairafoundation.org
SUMMARY:Recent Findings on Retinal Changes in AQP4-NMOSD\, MOGAD & DS cases
DESCRIPTION:TSF is pleased to provide the Iranian neurology community around the globe with another lecture and case discussion: Recent Findings on Retinal Changes in AQP4-NMOSD\, MOGAD & DS cases led by Dr. Frederike Cosima Oertel\, neuroimmunologist and NMOSD/MOGAD expert from Charité-Universitätsmedizin Berlin\, Germany. \nWe invite clinicians & researchers from all over the world to join this important discussion. \nThis series is being organized by Prof. Mohammad Ali Sahraian (Tehran University of Medical Sciences) and Dr. Sara Samadzadeh (Charité Universitätsmedizin Berlin).
URL:https://www.sumairafoundation.org/event/iranian-insights-iranian-insights-recent-findings-on-retinal-changes-in-aqp4-nmosd-mogad-ds-cases/
LOCATION:Virtual: Global
CATEGORIES:Case Discussion + Lecture
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2024/10/462608430_524240960237069_5635395659284592719_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241023T190000
DTEND;TZID=America/New_York:20241023T200000
DTSTAMP:20260404T080449
CREATED:20241009T201457Z
LAST-MODIFIED:20241009T201457Z
UID:17926-1729710000-1729713600@www.sumairafoundation.org
SUMMARY:Navigating NMOSD & MOGAD: Exploring the LGBTQIA+ Experience
DESCRIPTION:In celebration of LGBT History Month\, The Sumaira Foundation invites you to participate in our upcoming webinar\, “Navigating NMOSD & MOGAD: Exploring the LGBTQIA+ Experience\,” featuring Dr. William Conte\, head of the MS Center at Methodist Hospitals and Assistant Professor of Neurology at Indiana University\, Nicolas Overton\, NMOSD patient and TSF Ambassador of Florida and Avery Allmond\, MOGAD patient and TSF Ambassador of Oklahoma. \nJoin this important conversation!
URL:https://www.sumairafoundation.org/event/navigating-nmosd-mogad-exploring-the-lgbtqia-experience/
LOCATION:Virtual: United States\, United States
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/10/Exploring-the-LGBTQIA-Experience-in-NMOSDMOGAD.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20241022T180000
DTEND;TZID=Africa/Johannesburg:20241022T190000
DTSTAMP:20260404T080449
CREATED:20241009T200240Z
LAST-MODIFIED:20241009T200240Z
UID:17912-1729620000-1729623600@www.sumairafoundation.org
SUMMARY:Human Collective Project | South Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/human-collective-project-south-africa-5/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/04/South-Africa.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241010T200000
DTEND;TZID=America/New_York:20241010T210000
DTSTAMP:20260404T080449
CREATED:20241009T181513Z
LAST-MODIFIED:20241009T183716Z
UID:17900-1728590400-1728594000@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-35/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/10/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20241009T193000
DTEND;TZID=Europe/Amsterdam:20241009T203000
DTSTAMP:20260404T080449
CREATED:20241009T180130Z
LAST-MODIFIED:20241009T180130Z
UID:17887-1728502200-1728505800@www.sumairafoundation.org
SUMMARY:TSF Plauderstunde | HCP Germany
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/tsf-plauderstunde-hcp-germany-15/
LOCATION:Virtual: Germany\, Germany
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/10/Germany.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241005T110000
DTEND;TZID=America/New_York:20241005T170000
DTSTAMP:20260404T080449
CREATED:20241003T145652Z
LAST-MODIFIED:20241003T145652Z
UID:17873-1728126000-1728147600@www.sumairafoundation.org
SUMMARY:TSF's Miami Patient Day for NMOSD & MOGAD
DESCRIPTION:TSF is coming to Miami! \n\nAre you an NMOSD/MOGAD patient\, caregiver\, clinician\, nurse\, researcher and/or advocate in Florida? You’re invited to our event on Saturday\, October 5th at 11 AM at Margaritaville Hollywood Beach Resort. \n  \nJoin us for a day of education\, community\, and fun to: \n\nMeet local NMOSD & MOGAD patients\, caregivers and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, co-morbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\nPLUS! We’ll have an educational and interactive session in Spanish led by local experts.\n\n  \nThis in-person event is free and lunch will be served. We can’t wait to see you in Miami! \nThe Sumaira Foundation team
URL:https://www.sumairafoundation.org/event/tsfs-miami-patient-day-for-nmosd-mogad/
LOCATION:Margaritaville Hollywood Beach Resort\, 1111 N Ocean Dr\, Hollywood\, 33019\, United States
CATEGORIES:Community Event,TSF Patient Day
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2024/10/457129813_495847449743087_1970028794632479223_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Berlin:20241002T100000
DTEND;TZID=Europe/Berlin:20241002T170000
DTSTAMP:20260404T080449
CREATED:20240812T134906Z
LAST-MODIFIED:20240812T134906Z
UID:17708-1727863200-1727888400@www.sumairafoundation.org
SUMMARY:NEMOS Patient:innentag 2024
DESCRIPTION:Expert:innen informieren über Diagnose und Therapie derNMOSD (Neuromyelitis optica-Spektrum-Erkrankungen) und MOGAD\n(MOG-Antikörpervermittelte Erkrankungen). \nNatürlich besteht ausgiebig Möglichkeit für Fragen und für den Austausch mit anderen Betroffenen.
URL:https://www.sumairafoundation.org/event/nemos-patientinnentag-2024/
LOCATION:Frankfurt am Main\, Otto-Fleck-Schneise 4\, 60528 Frankfurt am Main\, Germany
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/08/Untitled-design.png
END:VEVENT
END:VCALENDAR