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X-WR-CALDESC:Events for The Sumaira Foundation
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DTSTART;TZID=America/New_York:20261011T120000
DTEND;TZID=America/New_York:20261011T130000
DTSTAMP:20260522T091637Z
CREATED:20260522T091637Z
LAST-MODIFIED:20260522T091637Z
UID:22152-1791720000-1791723600@www.sumairafoundation.org
SUMMARY:TSF HCP Caregivers - Family Caregivers
DESCRIPTION:The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation\, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe\, inclusive space for family members\, partners\, siblings\, children\, and loved ones to connect\, share\, and be heard. Led by our dedicated Caregiver Ambassadors\, who bring their own lived experience and empathy to the conversation\, participants can expect heartfelt conversations\, mutual support\, and practical insights into the caregiving journey. Whether you’re navigating the emotional\, physical\, or logistical challenges of caregiving\, this group is designed to uplift and empower you through community\, compassion\, and connection.
URL:https://www.sumairafoundation.org/event/tsf-hcp-caregivers-family-caregivers/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/04/HCP-Caregiver-Visual-.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261015T180000
DTEND;TZID=America/New_York:20261015T190000
DTSTAMP:20260723T021136Z
CREATED:20260723T021136Z
LAST-MODIFIED:20260723T021136Z
UID:23008-1792087200-1792090800@www.sumairafoundation.org
SUMMARY:Comprendiendo el anticuerpo AQP4 en NMOSD
DESCRIPTION:¿Usted o un ser querido vive con NMOSD? \nLo invitamos a acompañarnos en un webinar especial titulado **”Comprendiendo el anticuerpo AQP4 en NMOSD”**\, con la Dra. Pilar Perachino\, de Argentina. \nEn esta sesión\, la Dra. Perachino explicará qué es el anticuerpo AQP4\, cuál es su papel en el NMOSD\, cómo contribuye al diagnóstico de la enfermedad y por qué es tan importante para comprender su evolución y tratamiento. \nAdemás\, quienes se conecten en vivo tendrán la oportunidad de hacer sus preguntas a la Dra. Perachino en tiempo real. \n¡Esperamos contar con su participación en esta conversación informativa e interactiva!
URL:https://www.sumairafoundation.org/event/comprendiendo-el-anticuerpo-aqp4-en-nmosd/
LOCATION:Virtual: Global
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/07/Pilar-Perachino.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261020T173000
DTEND;TZID=America/New_York:20261021T220000
DTSTAMP:20260803T114531Z
CREATED:20260803T114531Z
LAST-MODIFIED:20260803T114531Z
UID:23092-1792517400-1792620000@www.sumairafoundation.org
SUMMARY:TSF x IPMSSG's Research Update & Networking Evening
DESCRIPTION:Join TSF and IPMSSG on October 20\, 2026\, on the 22nd floor of the SickKids Patient Support Centre for an exclusive evening connecting global leaders in neuroimmunology. Enjoy an inspiring setting above Toronto’s skyline while engaging in meaningful conversations\, collaboration and networking. \nThis special event will feature simultaneous research update sessions focused on adult and pediatric neuroimmunology\, presented by internationally recognized experts. Following the presentations\, attendees will enjoy time to socialize while enjoying a gorgeous view of Toronto. \nCapacity is limited\, and advance registration is required. Food and beverages will be served. https://www.eventbrite.com/e/tsf-x-ipmssgs-research-update-networking-evening-tickets-1994679754842 \n— \nA note about the program format: The adult and pediatric neuroimmunology research updates will run concurrently\, allowing attendees to participate in the session most relevant to their area of interest. Throughout the evening\, both communities will come together during refreshment breaks and the networking reception to foster collaboration\, exchange ideas\, and build connections across the global neuroimmunology community. \nThe Sumaira Foundation’s Research Update & Award Ceremony\nJoin internationally recognized experts for an engaging update on the latest advances in rare neuroimmunology\, including diagnostics\, clinical trials\, patient registries\, industry innovations and global neurology initiatives. We’ll also hear from ECTRIMS-MEDEN Fellows as they present updates on their research projects and emerging work in the field. The program will conclude with the presentation of TSF’s 2026 Global Rare Trailblazer Award\, recognizing an individual whose exceptional contributions have advanced research\, advocacy and care for the rare neuroimmune disease community. \nIPMSSG’s Research Update\nJoin members of the IPMSSG for an interactive session highlighting the latest advances in pediatric neuroimmunology. The program will feature updates from ongoing research studies\, presentation and discussion of survey results introduced at the IPMSSG 2025 Meeting\, and collaborative conversations on future research priorities and goals. Attendees will also have the opportunity to learn about recruitment for new IPMSSG Steering Committee members and contribute to discussions on the future of a stand-alone IPMSSG meeting.
URL:https://www.sumairafoundation.org/event/tsf-x-ipmssgs-research-update-networking-evening/
LOCATION:DC
CATEGORIES:TSF Events/Fundraisers
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/08/2026-TSF-Research-Update.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261021T190000
DTEND;TZID=America/New_York:20261021T210000
DTSTAMP:20260803T115546Z
CREATED:20260803T115546Z
LAST-MODIFIED:20260803T115546Z
UID:23095-1792609200-1792616400@www.sumairafoundation.org
SUMMARY:NMOSD & MOGAD: Global Challenges
DESCRIPTION:Are you a clinician\, researcher\, fellow\, resident or trainee interested in NMOSD\, MOGAD and related neuroimmunological disorders? \n\n\nJoin us for an evening of discussion\, mentorship and networking with leading experts from around the world. Held alongside MSToronto 2026\, this special event will bring together clinicians\, researchers\, trainees and patient advocacy leaders to explore the challenges and opportunities shaping the future of rare neuroimmunology. \nThe evening will begin with a moderated fireside discussion: \nOvercoming Global Challenges in NMOSD and MOGAD Care and Research \nThe conversation will explore emerging therapeutic strategies\, global disparities in diagnosis and treatment\, collaborative research priorities and mentorship for the next generation of neuroimmunology professionals. \nFeatured Speakers\n\nDr. Jacqueline Palace (University of Oxford\, UK)\nDr. Sara Mariotto (University of Verona\, Italy)\nDr. Kazuo Fujihara (Fukushima Medical University\, Japan)\n\nModerator \n\nDr. Dalia Rotstein (University of Toronto\, Canada)\n\nFollowing the discussion\, guests are invited to stay for an informal networking reception designed to foster mentorship\, collaboration and meaningful connections among clinicians\, researchers\, fellows\, residents and trainees working in NMOSD\, MOGAD and related demyelinating disorders. \nThis event offers a unique opportunity to engage with colleagues from across the globe\, exchange ideas\, and strengthen partnerships between academia\, clinical practice\, research and patient advocacy. \nOrganized by\n\nDr. Courtney Casserly (Western University)\nDr. Jonathan Krett (University of Calgary)\nDr. Dalia Rotstein (University of Toronto)\n\nIn partnership with The Sumaira Foundation. \nPresented by\nThe University of Calgary\, The Sumaira Foundation\, University of Toronto\, and Western University. \nPlease note: This independent event is not included in the MSToronto2026 accredited program.
URL:https://www.sumairafoundation.org/event/nmosd-mogad-global-challenges/
LOCATION:DC
CATEGORIES:TSF Events/Fundraisers
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/08/NO-REGISTRATION-INFO.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261112T200000
DTEND;TZID=America/New_York:20261112T210000
DTSTAMP:20260502T160454Z
CREATED:20260502T160311Z
LAST-MODIFIED:20260502T160454Z
UID:21959-1794513600-1794517200@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. Since 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-56/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/05/HCP_America-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261115T110000
DTEND;TZID=America/New_York:20261115T120000
DTSTAMP:20260522T092047Z
CREATED:20260522T092047Z
LAST-MODIFIED:20260522T092047Z
UID:22154-1794740400-1794744000@www.sumairafoundation.org
SUMMARY:TSF HCP Caregivers - Caregiving with Dignity
DESCRIPTION:The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation\, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe\, inclusive space for family members\, partners\, siblings\, children\, and loved ones to connect\, share\, and be heard. Led by our dedicated Caregiver Ambassadors\, who bring their own lived experience and empathy to the conversation\, participants can expect heartfelt conversations\, mutual support\, and practical insights into the caregiving journey. Whether you’re navigating the emotional\, physical\, or logistical challenges of caregiving\, this group is designed to uplift and empower you through community\, compassion\, and connection.
URL:https://www.sumairafoundation.org/event/tsf-hcp-caregivers-caregiving-with-dignity/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/04/HCP-Caregiver-Visual-.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20261205T100000
DTEND;TZID=America/Los_Angeles:20261205T170000
DTSTAMP:20260729T203806Z
CREATED:20260729T203459Z
LAST-MODIFIED:20260729T203806Z
UID:23059-1796464800-1796490000@www.sumairafoundation.org
SUMMARY:LA Patient Day for Rare Neuroinflammatory and Related Disorders
DESCRIPTION:We’re coming to Los Angeles! \nTSF is inviting patients and caregivers impacted by rare neuroinflammatory & related disorders from California & the west coast! \nAre you or your loved one impacted by: AE*\, CIDP*\, MG*\, MOGAD*\, neurosarcoidosis\, or NMOSD*? You’re invited to our event on Saturday\, December 5th. \nJoin us for a day of education\, community and fun to: \n\nMeet local patients\, partners\, care-partners and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, comorbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis event is being organized in collaboration with Dr. Lilyana Amezcua and Dr. Masoud Majed (USC). \nRegistration is free and lunch will be served. \nhttps://www.eventbrite.com/e/la-patient-day-for-rare-neuroinflammatory-related-disorders-tickets-1989963571611?aff=oddtdtcreator \nWe can’t wait to see you in LA! \nThe Sumaira Foundation team \n— \nAE stands for autoimmune encephalitis \nCIDP stands for chronic inflammatory demyelinating polyneuropathy \nMG stands for myasthenia gravis \nMOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorder \nNMOSD stands for neuromyelitis optica spectrum disorder
URL:https://www.sumairafoundation.org/event/la-patient-day-for-rare-neuroinflammatory-and-related-disorders/
LOCATION:DC
CATEGORIES:Community Event,Patient Days,TSF Patient Day
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/07/1920-x-1080-LA.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261210T200000
DTEND;TZID=America/New_York:20261210T210000
DTSTAMP:20260502T160845Z
CREATED:20260502T160845Z
LAST-MODIFIED:20260502T160845Z
UID:21962-1796932800-1796936400@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. Since 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-57/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/05/HCP_America.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261213T110000
DTEND;TZID=America/New_York:20261213T120000
DTSTAMP:20260522T092417Z
CREATED:20260522T092417Z
LAST-MODIFIED:20260522T092417Z
UID:22156-1797159600-1797163200@www.sumairafoundation.org
SUMMARY:TSF HCP Caregivers - Medication Management
DESCRIPTION:The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation\, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe\, inclusive space for family members\, partners\, siblings\, children\, and loved ones to connect\, share\, and be heard. Led by our dedicated Caregiver Ambassadors\, who bring their own lived experience and empathy to the conversation\, participants can expect heartfelt conversations\, mutual support\, and practical insights into the caregiving journey. Whether you’re navigating the emotional\, physical\, or logistical challenges of caregiving\, this group is designed to uplift and empower you through community\, compassion\, and connection.
URL:https://www.sumairafoundation.org/event/tsf-hcp-caregivers-medication-management/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/04/HCP-Caregiver-Visual-.png
END:VEVENT
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