TSF HCP Caregivers - Caregiver Burnout
2026-03-15 11:00 - 12:00 (America/New_York) | Virtual: Global
The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe, inclusive space for family members, partners, siblings, children, and loved ones to connect, share, and be heard. Led by our dedicated Caregiver Ambassadors, who bring their own lived experience and empathy to the conversation, participants can expect heartfelt conversations, mutual support, and practical insights into the caregiving journey. Whether you’re navigating the emotional, physical, or logistical challenges of caregiving, this group is designed to uplift and empower you through community, compassion, and connection.

Terapie per la NMOSD in Italia
2026-03-24 13:00 - 14:00 (America/New_York) | Virtual: Italy, Italy
In soli cinque anni, la comunità NMOSD è passata da zero terapie approvate a quattro — un traguardo straordinario, soprattutto considerando che solo circa il 5% delle malattie rare dispone di una terapia approvata.
Unitevi a noi il 24 marzo: saremo in compagnia del Dr. Raffaele Iorio, neuroimmunologo di Roma, che presenterà una panoramica delle terapie per la NMOSD disponibili in Italia e illustrerà i principali progressi degli ultimi cinque anni, seguita da una sessione di domande e risposte. https://us02web.zoom.us/webinar/register/WN_-pGC67FzTAqv8u9FRZGbWw
Il webinar sarà registrato e reso disponibile per la visione successiva.
Questo programma educativo è stato realizzato con il supporto di Amgen.

HCP South Africa
2026-01-28 19:00 - 20:00 (Africa/Johannesburg) | Virtual: Global
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. Since 2020, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the Rare Neuroimmune community feels welcomed and included. As we always say, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh, cry, vent, share wins, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.

Real-World Efficacy & Safety of NMOSD Treatments
2026-03-26 19:00 - 20:00 (America/New_York) | Virtual: United States, United States
A recent study, “Real‑World Efficacy and Safety of Neuromyelitis Optica Spectrum Disorder Disease‑Modifying Treatments,” showed that in routine practice, approved NMOSD therapies reduce relapse rates and offer better safety than older treatments, reinforcing their value for patients. (Read the article here: https://pubmed.ncbi.nlm.nih.gov/41494145/)
To mark NMO Awareness Month 2026, we’ll be joined by Dr. Shamik Bhattacharyya, a lead author of this study, who will discuss the benefits of FDA-approved NMOSD therapies versus non-approved first-line treatments.
Join us on Thursday, March 26th at 4 PM PST / 7 PM EST. Attendees joining live will have the opportunity to participate in the live Q&A.
The webinar will be recorded and available for replay. Registration is required.
This educational program is made possible with support from Amgen and Alexion.

Human Collective Project | Mental Health Mondays
2026-01-26 20:00 - 21:00 (America/New_York) | Virtual: United States, United States
The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients, caregivers, and loved ones ride the rollercoaster of feelings throughout their daily lives, from the moment of symptom onset. Often, getting the proper diagnosis is a journey of its own, and dealing with life’s difficulties after that can include stressors that only others in your situation may understand. These meetings will offer a safe space for people to come together, share their stories, and highlight how they are coping with everyday challenges. We will discuss a range of mental health topics and have occasional special guest speakers join our meetings. So, whether you are newly diagnosed or a seasoned zebra, we hope to provide a space to help guide personal growth.

Comprendere l’anticorpo AQP4 nella NMOSD
2026-04-02 18:00 - 19:00 (Europe/Rome) | Virtual: Italy, Italy
L’AQP4 (Aquaporina-4) è una proteina presente nel cervello, nel midollo spinale e nei nervi ottici che aiuta a regolare il movimento dell’acqua dentro e fuori dalle cellule. Nella NMOSD, il sistema immunitario attacca per errore l’AQP4. Questo attacco può causare infiammazione nel midollo spinale e nei nervi ottici, portando a sintomi come alterazioni della vista, debolezza o intorpidimento.
Unisciti a noi giovedì 2 aprile alle 18:00 (CET) per una presentazione e discussione approfondita sull’AQP4, guidata dalla Dott.ssa Sara Mariotto, neuroimmunologa presso l’Università di Verona.
I partecipanti collegati in diretta avranno l’opportunità di porre domande alla Dott.ssa Mariotto in tempo reale. È richiesta la registrazione. https://us02web.zoom.us/webinar/register/WN_CDm8SEe2Rmea8yjKnZqVGg
Questo programma è reso possibile grazie al supporto di Amgen e Alexion.

TSF's Human Collective Project Meetings
2026-02-12 20:00 - 21:00 (America/New_York) | Virtual: Global
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. Since 2020, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh, cry, vent, share wins, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.

TSF HCP Caregivers - Coping with Caregiving Emotions
2026-04-12 11:00 - 12:00 (America/New_York) | Virtual: Global
