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BEGIN:DAYLIGHT
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TZOFFSETTO:+0200
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BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20230421T200000
DTEND;TZID=Europe/Paris:20230421T213000
DTSTAMP:20260405T185156
CREATED:20230411T203920Z
LAST-MODIFIED:20230411T203920Z
UID:13545-1682107200-1682112600@www.sumairafoundation.org
SUMMARY:NMOSD et MOGAD: échanges autour de la vie intime\, affective et sexuelle
DESCRIPTION:Avec bienveillance\, ouverture d’esprit\, empathie\, venez échanger avec TSF France et Delphine Mutot sur ce qu’est pour vous la vie intime\, affective et sexuelle. Sentez-vous libre de poser toutes les questions que vous souhaitez\, et d’utiliser les mots avec lesquels vous êtes à l’aise. Pas de chichi entre nous! \nRetrouvez-nous le 21 avril 2023 à 20 heures. \nCet événement est soutenu par les subventions d’Horizon Therapeutics et Alexion pour l’éducation des patients.
URL:https://www.sumairafoundation.org/event/nmosd-et-mogad-echanges-autour-de-la-vie-intime-affective-et-sexuelle/
LOCATION:Virtual: France\, France
CATEGORIES:From The Experts,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/04/Delphine-Mutot.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230422T200000
DTEND;TZID=America/New_York:20230422T230000
DTSTAMP:20260405T185156
CREATED:20230118T163153Z
LAST-MODIFIED:20230207T175611Z
UID:12508-1682193600-1682204400@www.sumairafoundation.org
SUMMARY:6th Annual TSF Gala
DESCRIPTION:You are invited to attend The Sumaira Foundation’s \n6th Annual Gala\nSaturday\, April 22\, 2023 at 8 PM at The Newbury Boston\nThis event is black-tie optional. \nWe’ve set an ambitious goal to raise \n$375\,000\nClick here to view the research we’ve been able to fund thanks to you!
URL:https://www.sumairafoundation.org/event/6th-annual-tsf-gala/
LOCATION:The Newbury Boston\, 1 Newbury St\, Boston\, MA\, 02116\, United States
CATEGORIES:TSF Events/Fundraisers
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2023/01/TSF_GALA_POSTER_1620x924_Link.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20230425T180000
DTEND;TZID=Africa/Johannesburg:20230425T190000
DTSTAMP:20260405T185156
CREATED:20230418T220147Z
LAST-MODIFIED:20230424T182135Z
UID:13595-1682445600-1682449200@www.sumairafoundation.org
SUMMARY:HCP South Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/hcp-south-africa/
LOCATION:Virtual: South Africa\, South Africa
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/04/SOUTH-AFRICA-The-Human-Collective-Project-Facebook-Cover-1200-×-676-px.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20230425T200000
DTEND;TZID=Europe/Paris:20230425T213000
DTSTAMP:20260405T185156
CREATED:20230414T153146Z
LAST-MODIFIED:20230414T153146Z
UID:13587-1682452800-1682458200@www.sumairafoundation.org
SUMMARY:MOGAD : l'importance de la participation des patients aux essais cliniques
DESCRIPTION:Venez participer à notre prochain webinaire – MOGAD : l’importance de la participation des patients aux essais cliniques – le mardi 25 avril à 20 heures avec le docteur Romain Marignier\, professeur de neurologie et responsable du centre MIRCEM de Lyon. \nIl partagera avec nous les dernières actualités sur les essais cliniques en cours pour les patients vivant avec la MOGAD en direct de l’American Academy of Neurology. Nous discuterons avec lui de l’importance de la participation des patients à la recherche clinique et aux essais de nouvelles thérapies. \nVous pourrez poser des questions au Pr Marignier en direct.\nCe webinaire sera enregistré et pourra être retrouvé sur la chaîne YouTube de The Sumaira Foundation\, la bibliothèque Facebook et la galerie multimédia du site web de TSF. \nCe webinaire est rendu possible grâce au soutien institutionnel du laboratoire UCB.
URL:https://www.sumairafoundation.org/event/mogad-limportance-de-la-participation-des-patients-aux-essais-cliniques/
LOCATION:Virtual: France\, France
CATEGORIES:TSF France,TSF Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2023/04/unnamed.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230427T160000
DTEND;TZID=America/New_York:20230427T170000
DTSTAMP:20260405T185156
CREATED:20230411T200034Z
LAST-MODIFIED:20230411T204403Z
UID:13541-1682611200-1682614800@www.sumairafoundation.org
SUMMARY:NMOSD y MOGAD\, Perlas en el Diagnóstico y Opciones para el Tratamiento
DESCRIPTION:Está invitado a asistir a la videoconferencia “NMOSD y MOGAD\, Perlas en el Diagnóstico y Opciones para el Tratamiento” el viernes 27 de abril a las 2:00 pm México / 4:00 pm Venezuela / 5:00 pm Argentina. Médicos especialistas de 3 diferentes países de Latinoamérica unen esfuerzos para abordar temas de interés común para todos. \n“Perlas en el Diagnóstico Diferencial (EM\, NMOSD\, MOGAD)”\, Dr. Edgar Carnero Contentti. \n“Tratamiento con Eculizumab\, Satralizumab\, Inebilizumab en NMO”\, Dra. Sarah Vargas. \n“Impactos Socioeconómicos de la Enfermedad y Acceso Entre Fronteras”\, Dr. José Flores Rivera. \nLos asistentes conectados a la videoconferencia tendrán la oportunidad de hacer preguntas a los tres doctores en tiempo real. Esta conferencia web se grabará y estará disponible para su reproducción\, tanto en la biblioteca multimedia\, como en el canal de YouTube de The Sumaira Foundation. \nEste evento educativo es posible gracias a una subvención para la educación del paciente de Horizon Therapeutics.
URL:https://www.sumairafoundation.org/event/nmosd-y-mogad-perlas-en-el-diagnostico-y-opciones-para-el-tratamiento/
LOCATION:Virtual: Global
CATEGORIES:From The Experts,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/04/JFloresEContenttiSVargas.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230427T200000
DTEND;TZID=America/New_York:20230427T210000
DTSTAMP:20260405T185156
CREATED:20230116T194724Z
LAST-MODIFIED:20230207T172832Z
UID:12468-1682625600-1682629200@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-9/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230429T120000
DTEND;TZID=America/New_York:20230429T130000
DTSTAMP:20260405T185156
CREATED:20230131T163136Z
LAST-MODIFIED:20230424T185651Z
UID:12552-1682769600-1682773200@www.sumairafoundation.org
SUMMARY:Cabaret for A Cause
DESCRIPTION:In celebration of NMOSD & MOGAD Awareness Months\, TSF is pleased to present “Cabaret for a Cause\,” a dance class taught by professional choreographers / show girls from a world-renowned cabaret in Paris\, France. \nEmma Castel and Deborah Lettieri will be teaching the class for both standing and seated attendees! \n100% of proceeds will be donated towards research for neuromyelitis optica spectrum disorder (NMOSD) and myelin oligodendrocyte glycoprotein antibody disorder (MOGAD).
URL:https://www.sumairafoundation.org/event/cabaret-for-a-cause/
LOCATION:Virtual: Global
CATEGORIES:TSF Events/Fundraisers
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/01/2023-Cabaret-for-a-Cause-2.0-Eventbrite-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230501
DTEND;VALUE=DATE:20230504
DTSTAMP:20260405T185156
CREATED:20230131T192742Z
LAST-MODIFIED:20230131T192742Z
UID:12565-1682899200-1683158399@www.sumairafoundation.org
SUMMARY:Rare Drug Development Symposium 2023: Collaborate: Go Farther\, Together
DESCRIPTION:Join us May 1-3\, 2023 in Philadelphia\, Pennsylvania for the RARE Drug Development Symposium 2023 \n\n\nCollaboration is the foundation of success in rare disease research.  Knowing who to work with\, what strategies to use\, and how to prepare for discussions can help you overcome barriers posed by small populations and limited funding.\n\nAt the Rare Drug Development Symposium (RDDS) 2023\, a partnership between Global Genes and the Orphan Disease Center of the University of Pennsylvania\, you’ll connect to  rare disease advocacy leaders\, researchers\, clinicians\, industry professionals and policy developers who will share their experience and provide you with models to help your community push forward. This 2-day\, in-person only event includes dynamic presentations\, followed by workshops and expert office hours that will enable you to:\nCreate A Comprehensive Research Strategy\nUnderstand the end-to-end process of drug discovery and development for rare disease and participate in a workshop where you’ll analyze your community’s potential and needs. \nLeverage the Power of Data\nWhat makes data valid and reliable? Once you have invested in a registry\, what partnership models can  help you move the needle toward translational research? \nUse AI for Drug Discovery and Repurposing\nFind out how artificial intelligence is being used to transform an often complex\, decades-long-mission into a more efficient process\, reducing the timeline and cost to bring therapies to patients. \nUnderstand Regulatory Considerations\nWhether your organization is local or global\, regulatory guidelines must be taken into account at each step. Learn how to navigate the requirements through case studies and expert advice. \nWho should attend: \n\nPatient Advocacy Group leaders\nPatients\nMembers of the rare disease community who want to learn more about the drug development process\, the unique ways this applies to the development of therapeutics for rare diseases\, and how they can engage with the process\nClinicians and researchers focused on rare disease therapeutic targets\n\nView 2022 Highlights \nTo learn more about the 2022 Symposium\, read the summary report here. We look forward to seeing you at the 2023 Symposium. \nA Year-Long Initiative in Rare Drug Development\nIn addition to activities surrounding the RARE Drug Development Symposium in June\, Global Genes is providing educational resources to help advocates and organizations become better equipped to work with researchers and industry partners throughout the drug development process. This includes: \n \nRare Research Roadmap: This toolkit was designed to help advocates\, individuals\, families\, and organizations better understand some of the potential routes to treatment and some of the key concepts that are part of these processes to work with researchers and industry partners throughout the drug development process. \n\n\n\nDownload Your Copy Of The Rare Research Roadmap And Toolkit\n\nWatch webinars and videos of experts that happened before and after the 2022 RARE Drug Development Symposium. \n\n2022 Webinar 1\n\n\n2022 Webinar 2\n\n\n2022 Webinar 3\n\n\nRDDS 2022: Value Of Collaboration\n\n\nRDDS 2022: Challenges For Rare Disease
URL:https://www.sumairafoundation.org/event/rare-drug-development-symposium-2023-collaborate-go-farther-together/
LOCATION:Sheraton Downtown\, 201 N 17th St\, Philadelphia\, PA\, 19103\, United States
CATEGORIES:Partner Events
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/01/Global-Advocacy-Alliance-600px-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20230502T173000
DTEND;TZID=Europe/Rome:20230502T183000
DTSTAMP:20260405T185156
CREATED:20230428T172836Z
LAST-MODIFIED:20230428T172836Z
UID:13648-1683048600-1683052200@www.sumairafoundation.org
SUMMARY:HCP Italia
DESCRIPTION:The Human Collective Project (HCP) è l’incontro del gruppo di supporto di TSF offerto a chiunque sia stato colpito/colpito da NMOSD/MOGAD. Il programma è nato durante il culmine della pandemia di COVID-19 nel 2020\, quando la maggior parte dei NMOSD/MOGAD si sentiva particolarmente isolata e vulnerabile al coronavirus come membri della società immunosoppressi/immunocompromessi. L’isolamento che molti di noi hanno vissuto ha svelato un grande bisogno e un’opportunità per noi di connetterci in modo significativo per offrire il nostro sostegno reciproco. \nDal 2020\, abbiamo ampliato il programma per offrire più sessioni in più aree geografiche per garantire che tutti nelle comunità NMOSD/MOGAD si sentano accolti e inclusi. Come diciamo sempre\, HCP è un ottimo modo per incontrare altri in circostanze simili in questa rara comunità; è uno spazio sicuro per ridere\, piangere\, sfogarsi\, condividere vittorie\, ecc. Questo programma è guidato e guidato dagli ambasciatori di pazienti e caregiver di TSF in tutto il mondo.
URL:https://www.sumairafoundation.org/event/hcp-italia/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/04/unnamed.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230504
DTEND;VALUE=DATE:20230508
DTSTAMP:20260405T185156
CREATED:20230131T192051Z
LAST-MODIFIED:20230131T192051Z
UID:12563-1683158400-1683503999@www.sumairafoundation.org
SUMMARY:EMSP Annual Conference 2023
DESCRIPTION:We are glad to invite you to save the date for the EMSP Annual Conference 2023\, to be held under the theme of Social Policies between 4-7 May 2023 in Helsinki\, Finland. \nHeld as an in-person event co-hosted by the Finnish MS Society (Neuroliito)\, the conference will offer the latest MS developments\, expert insights\, and networking with the community. \nIf interested\, please pencil the following dates into your calendar: \nThursday\, 4th May 2023 – EMSP Annual General Meeting\nFriday\, 5th May 2023 – EMSP Annual Conference – Day 1\nSaturday\, 6th May 2023 – Day 2\nSunday\, 7th May 2023 – Young People’s Festival
URL:https://www.sumairafoundation.org/event/emsp-annual-conference-2023/
CATEGORIES:Partner Events
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/01/EMSP_LOGO_CMYK_square.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230506T100000
DTEND;TZID=America/New_York:20230506T110000
DTSTAMP:20260405T185156
CREATED:20230116T191046Z
LAST-MODIFIED:20230207T172935Z
UID:12425-1683367200-1683370800@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project | Global Meetings
DESCRIPTION:These meetings are a safe space led by the community for the community. No judgment; only love & support. (This meeting will be conducted in English) \nThe Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \n 
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-global-meetings-5/
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/01/HCP-Global.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20230510T193000
DTEND;TZID=Europe/Amsterdam:20230510T203000
DTSTAMP:20260405T185156
CREATED:20230116T185858Z
LAST-MODIFIED:20230207T173020Z
UID:12410-1683747000-1683750600@www.sumairafoundation.org
SUMMARY:TSF Plauderstunde | HCP Germany
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/tsf-plauderstunde-hcp-germany-5/
LOCATION:Virtual: Germany\, Germany
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/12/2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230511T200000
DTEND;TZID=America/New_York:20230511T210000
DTSTAMP:20260405T185156
CREATED:20230116T194803Z
LAST-MODIFIED:20230207T173109Z
UID:12470-1683835200-1683838800@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-10/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20230516T190000
DTEND;TZID=Europe/Amsterdam:20230516T200000
DTSTAMP:20260405T185156
CREATED:20230511T174754Z
LAST-MODIFIED:20230511T175929Z
UID:13724-1684263600-1684267200@www.sumairafoundation.org
SUMMARY:Het Human Collective Project
DESCRIPTION:Op dinsdag 16 mei om 19:00 organiseert de Sumaira Foundation de eerste Nederlands en Vlaamse online bijeenkomst voor mensen met NMOSD of MOGAD en hun familieleden en/of dierbaren.\n\nU bent van harte welkom om deel te nemen en ervaringen uit te wisselen en elkaar te ondersteunen in een veilige omgeving.\n\nAanmelden voor deze bijeenkomst kan via: ZOOM
URL:https://www.sumairafoundation.org/event/het-human-collective-project-2/
LOCATION:Virtual: Amsterdam\, Netherlands
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2023/05/HCP-Dutch1.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20230519T200000
DTEND;TZID=Europe/Paris:20230519T210000
DTSTAMP:20260405T185156
CREATED:20230320T164926Z
LAST-MODIFIED:20230320T164926Z
UID:13341-1684526400-1684530000@www.sumairafoundation.org
SUMMARY:Le Projet Collectif Humain
DESCRIPTION:The Human Collective Project (HCP) est la réunion du groupe de soutien de TSF offerte à toute personne affectée par la NMOSD ou la MOGAD. Le programme a vu le jour au plus fort de la pandémie de COVID-19 en 2020\, lorsque la plupart des patients NMOSD/MOGAD se sentaient particulièrement isolés et vulnérables au coronavirus en tant que patient dit “vulnérable” de part son traitement contre ma maladie.\nL’isolement que beaucoup d’entre nous avons vécu a révélé un grand besoin et une opportunité pour nous de nous connecter de manière significative pour nous offrir notre soutien les uns aux autres. \nDepuis 2020\, nous avons élargi le programme pour offrir plus de sessions dans plusieurs zones géographiques afin de garantir que tous les membres des communautés NMOSD/MOGAD se sentent accueillis et inclus. Comme nous le disons toujours\, HCP est un excellent moyen de rencontrer d’autres personnes dans des circonstances similaires dans cette communauté rare; c’est un espace sûr pour rire\, pleurer\, évacuer\, partager les victoires\, etc. Ce programme est piloté et dirigé par les patients et soignants ambassadeurs de TSF dans le monde entier.
URL:https://www.sumairafoundation.org/event/le-projet-collectif-humain-2/
LOCATION:Virtual: France\, France
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/03/France-The-Human-Collective-Project-169-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230525T200000
DTEND;TZID=America/New_York:20230525T210000
DTSTAMP:20260405T185156
CREATED:20230116T194823Z
LAST-MODIFIED:20230207T173147Z
UID:12472-1685044800-1685048400@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-11/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20230530T180000
DTEND;TZID=Africa/Johannesburg:20230530T190000
DTSTAMP:20260405T185156
CREATED:20230530T132405Z
LAST-MODIFIED:20230530T132405Z
UID:13805-1685469600-1685473200@www.sumairafoundation.org
SUMMARY:HCP South Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/hcp-south-africa-2/
LOCATION:Virtual: South Africa\, South Africa
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/04/SOUTH-AFRICA-The-Human-Collective-Project-Facebook-Cover-1200-×-676-px.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230602T150000
DTEND;TZID=America/New_York:20230602T160000
DTSTAMP:20260405T185156
CREATED:20230515T174248Z
LAST-MODIFIED:20230515T174248Z
UID:13740-1685718000-1685721600@www.sumairafoundation.org
SUMMARY:Double sero-negative NMOSD
DESCRIPTION:Do you or your loved one continue to test negative for the AQP4 and MOG antibodies? You are not alone! \n  \nYou’re invited to attend “Double sero-negative NMOSD” on Friday\, June 2nd at 12 PM PST / 3PM EST / 9 PM CET featuring Dr. Eoin Flanagan\, Professor of Neurology\, Chair of the Division of Multiple Sclerosis and Autoimmune Neurology\, Director of the Autoimmune Neurology Fellowship and Consultant in the departments of Neurology and Laboratory Medicine and Pathology at the Mayo Clinic (Rochester\, MN). \n  \nDr. Flanagan will be in conversation with Sumaira\, presenting live from the CMSC 2023 Annual Meeting in Aurora\, CO. Live attendees will have the opportunity to ask Dr. Flanagan questions in real time. This webinar will be recorded and available for replay on TSF’s Multimedia Library and YouTube channel. \n  \nThis educational event is made possible through a patient education grant from Horizon Therapeutics.
URL:https://www.sumairafoundation.org/event/double-sero-negative-nmosd/
LOCATION:Virtual: Global
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/05/Eoin-Flanagan.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230603T100000
DTEND;TZID=America/New_York:20230603T110000
DTSTAMP:20260405T185156
CREATED:20230116T191118Z
LAST-MODIFIED:20230530T142702Z
UID:12427-1685786400-1685790000@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project | Global Meetings
DESCRIPTION:We’re excited to bring NMOSD/MOGAD patients + caregivers from around the globe together another global support group meeting! \nThese meetings are a safe space led by the community for the community. No judgment\, only love & support. (This meeting will be conducted in English) \nThe Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \n 
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-global-meetings-6/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/01/HCP-Global.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20230606T173000
DTEND;TZID=Europe/Rome:20230606T183000
DTSTAMP:20260405T185156
CREATED:20230530T143552Z
LAST-MODIFIED:20230530T143552Z
UID:13817-1686072600-1686076200@www.sumairafoundation.org
SUMMARY:HCP Italia
DESCRIPTION:The Human Collective Project (HCP) è l’incontro del gruppo di supporto di TSF offerto a chiunque sia stato colpito/colpito da NMOSD/MOGAD. Il programma è nato durante il culmine della pandemia di COVID-19 nel 2020\, quando la maggior parte dei NMOSD/MOGAD si sentiva particolarmente isolata e vulnerabile al coronavirus come membri della società immunosoppressi/immunocompromessi. L’isolamento che molti di noi hanno vissuto ha svelato un grande bisogno e un’opportunità per noi di connetterci in modo significativo per offrire il nostro sostegno reciproco. \nDal 2020\, abbiamo ampliato il programma per offrire più sessioni in più aree geografiche per garantire che tutti nelle comunità NMOSD/MOGAD si sentano accolti e inclusi. Come diciamo sempre\, HCP è un ottimo modo per incontrare altri in circostanze simili in questa rara comunità; è uno spazio sicuro per ridere\, piangere\, sfogarsi\, condividere vittorie\, ecc. Questo programma è guidato e guidato dagli ambasciatori di pazienti e caregiver di TSF in tutto il mondo.
URL:https://www.sumairafoundation.org/event/hcp-italia-2/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/04/unnamed.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20230607T190000
DTEND;TZID=Europe/Amsterdam:20230607T200000
DTSTAMP:20260405T185156
CREATED:20230116T192244Z
LAST-MODIFIED:20230530T142831Z
UID:12443-1686164400-1686168000@www.sumairafoundation.org
SUMMARY:TSF’s Human Collective Project | Danmark
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/hcp-danmark-6/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/01/Denmark-The-Human-Collective-Project-Facebook-Cover-4.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230608T200000
DTEND;TZID=America/New_York:20230608T210000
DTSTAMP:20260405T185156
CREATED:20230116T194849Z
LAST-MODIFIED:20230207T173309Z
UID:12474-1686254400-1686258000@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-12/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20230614T193000
DTEND;TZID=Europe/Amsterdam:20230614T203000
DTSTAMP:20260405T185156
CREATED:20230116T185938Z
LAST-MODIFIED:20230207T173347Z
UID:12412-1686771000-1686774600@www.sumairafoundation.org
SUMMARY:TSF Plauderstunde | HCP Germany
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/tsf-plauderstunde-hcp-germany-6/
LOCATION:Virtual: Germany\, Germany
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/12/2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20230617T150000
DTEND;TZID=Europe/Paris:20230617T160000
DTSTAMP:20260405T185156
CREATED:20230320T165019Z
LAST-MODIFIED:20230614T204658Z
UID:13343-1687014000-1687017600@www.sumairafoundation.org
SUMMARY:Le Projet Collectif Humain
DESCRIPTION:The Human Collective Project (HCP) est la réunion du groupe de soutien de TSF offerte à toute personne affectée par la NMOSD ou la MOGAD. Le programme a vu le jour au plus fort de la pandémie de COVID-19 en 2020\, lorsque la plupart des patients NMOSD/MOGAD se sentaient particulièrement isolés et vulnérables au coronavirus en tant que patient dit “vulnérable” de part son traitement contre ma maladie.\nL’isolement que beaucoup d’entre nous avons vécu a révélé un grand besoin et une opportunité pour nous de nous connecter de manière significative pour nous offrir notre soutien les uns aux autres. \nDepuis 2020\, nous avons élargi le programme pour offrir plus de sessions dans plusieurs zones géographiques afin de garantir que tous les membres des communautés NMOSD/MOGAD se sentent accueillis et inclus. Comme nous le disons toujours\, HCP est un excellent moyen de rencontrer d’autres personnes dans des circonstances similaires dans cette communauté rare; c’est un espace sûr pour rire\, pleurer\, évacuer\, partager les victoires\, etc. Ce programme est piloté et dirigé par les patients et soignants ambassadeurs de TSF dans le monde entier.
URL:https://www.sumairafoundation.org/event/le-projet-collectif-humain-3/
LOCATION:Virtual: France\, France
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/03/France-The-Human-Collective-Project-169-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20230623T200000
DTEND;TZID=Europe/Paris:20230623T210000
DTSTAMP:20260405T185156
CREATED:20230614T132242Z
LAST-MODIFIED:20230614T150041Z
UID:13870-1687550400-1687554000@www.sumairafoundation.org
SUMMARY:Sports Pour Tous
DESCRIPTION:Rejoignez-nous pour des échanges sur le sport adapté avec Mathieu Jousse\, sportif et professionnel en sports adaptés et Emmanuel Rouchaussée\,mal voyant profond et sportif amateur en sports adaptés \, autour de 3 axes principaux : les différents sports que l’on peut adapter et comment\, les bienfaits de la pratique du sport et les associations et sites de sports adaptés en France et en Belgique. \nRetrouvez-nous le 23 juin 2023 à 20 heures. \nCet événement est soutenu par les subventions d’Horizon Therapeutics et Alexion pour l’éducation des patients.
URL:https://www.sumairafoundation.org/event/sports-pour-tous/
LOCATION:Virtual: France\, France
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2023/06/Sports-Pour-Tous.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20230627T170000
DTEND;TZID=Europe/Rome:20230627T180000
DTSTAMP:20260405T185156
CREATED:20230601T144505Z
LAST-MODIFIED:20230601T150637Z
UID:13834-1687885200-1687888800@www.sumairafoundation.org
SUMMARY:Trial clinici per i pazienti con MOGAD ed importanza della partecipazione dei pazienti
DESCRIPTION:Partecipa al nostro prossimo Webinar dal titolo: MOGAD: importanza della partecipazione dei pazienti ai trial clinici – martedì 27 giugno alle 17.00 con la dr.ssa Sara Mariotto\, neurologa presso l’Università di Verona. \nLa dr.ssa Mariotto presenterà le ultime novità in merito ai trial clinici in corso in Italia per i pazienti con MOGAD. Discuteremo l’importanza della partecipazione dei pazienti alla ricerca clinica e la strategia di sviluppo di nuove terapie. \nChi parteciperà di persona potrà porre le proprie domande alla dr. ssa Mariotto. Il webinar verrà registrato e lo troverete sul canale YouTube della Sumaira Foundation (TSF)\, su Facebook e tra i video del sito TSF. \nL’evento è supportato da UCB.
URL:https://www.sumairafoundation.org/event/trial-clinici-per-i-pazienti-con-mogad-ed-importanza-della-partecipazione-dei-pazienti/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:TSF Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2023/06/ITALIAN.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20230627T180000
DTEND;TZID=Africa/Johannesburg:20230627T190000
DTSTAMP:20260405T185156
CREATED:20230530T132633Z
LAST-MODIFIED:20230530T132633Z
UID:13807-1687888800-1687892400@www.sumairafoundation.org
SUMMARY:HCP South Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/hcp-south-africa-3/
LOCATION:Virtual: South Africa\, South Africa
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/04/SOUTH-AFRICA-The-Human-Collective-Project-Facebook-Cover-1200-×-676-px.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230629T200000
DTEND;TZID=America/New_York:20230629T210000
DTSTAMP:20260405T185156
CREATED:20230116T194915Z
LAST-MODIFIED:20230623T001516Z
UID:12476-1688068800-1688072400@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-13/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20230630T190000
DTEND;TZID=Europe/Amsterdam:20230630T200000
DTSTAMP:20260405T185156
CREATED:20230530T144326Z
LAST-MODIFIED:20230530T144524Z
UID:13826-1688151600-1688155200@www.sumairafoundation.org
SUMMARY:Het Human Collective Project
DESCRIPTION:Op dinsdag 16 mei om 19:00 organiseert de Sumaira Foundation de eerste Nederlands en Vlaamse online bijeenkomst voor mensen met NMOSD of MOGAD en hun familieleden en/of dierbaren.\n\nU bent van harte welkom om deel te nemen en ervaringen uit te wisselen en elkaar te ondersteunen in een veilige omgeving.\n\nAanmelden voor deze bijeenkomst kan via: ZOOM
URL:https://www.sumairafoundation.org/event/het-human-collective-project-3/
LOCATION:Virtual: Amsterdam\, Netherlands
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/05/HCP-Dutch.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20230704T173000
DTEND;TZID=Europe/Rome:20230704T183000
DTSTAMP:20260405T185156
CREATED:20230530T143658Z
LAST-MODIFIED:20230530T143658Z
UID:13819-1688491800-1688495400@www.sumairafoundation.org
SUMMARY:HCP Italia
DESCRIPTION:The Human Collective Project (HCP) è l’incontro del gruppo di supporto di TSF offerto a chiunque sia stato colpito/colpito da NMOSD/MOGAD. Il programma è nato durante il culmine della pandemia di COVID-19 nel 2020\, quando la maggior parte dei NMOSD/MOGAD si sentiva particolarmente isolata e vulnerabile al coronavirus come membri della società immunosoppressi/immunocompromessi. L’isolamento che molti di noi hanno vissuto ha svelato un grande bisogno e un’opportunità per noi di connetterci in modo significativo per offrire il nostro sostegno reciproco. \nDal 2020\, abbiamo ampliato il programma per offrire più sessioni in più aree geografiche per garantire che tutti nelle comunità NMOSD/MOGAD si sentano accolti e inclusi. Come diciamo sempre\, HCP è un ottimo modo per incontrare altri in circostanze simili in questa rara comunità; è uno spazio sicuro per ridere\, piangere\, sfogarsi\, condividere vittorie\, ecc. Questo programma è guidato e guidato dagli ambasciatori di pazienti e caregiver di TSF in tutto il mondo.
URL:https://www.sumairafoundation.org/event/hcp-italia-3/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/04/unnamed.png
END:VEVENT
END:VCALENDAR