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BEGIN:VEVENT
DTSTART;TZID=Europe/Istanbul:20251223T160000
DTEND;TZID=Europe/Istanbul:20251223T170000
DTSTAMP:20260511T151157
CREATED:20251210T204842Z
LAST-MODIFIED:20251210T204842Z
UID:20857-1766505600-1766509200@www.sumairafoundation.org
SUMMARY:MOGAD Hakkında Güncel Gelişmeler ve Tedaviler
DESCRIPTION:Siz veya sevdiğiniz biri MOG antikor hastalığından etkileniyor mu? \n23 Aralık Salı günü saat 16:00’da MOGAD’a özel bir web seminerine katılmanızı rica ediyoruz. Prof. Dr. Murat Kürtüncü\, Prof. Dr. Murat Terzi ve Prof. Dr. Emine Rabia Koç\, MOG antikor hastalığı\, klinik çalışmalar ve hastaların gelecekteki tedavi seçenekleri için MOG ile ilgili klinik çalışmalara nasıl katılabilecekleri hakkında genel bir bakış sunacak. \nCanlı olarak katılan katılımcılar\, uzmanlara gerçek zamanlı olarak soru sorma fırsatına sahip olacaklar. Bu web semineri kaydedilecek ve TSF’nin YouTube kanalında tekrar izlenebilecek. \nBu program\, UCB’nin desteğiyle mümkün olmuştur.
URL:https://www.sumairafoundation.org/event/mogad-hakkinda-guncel-gelismeler-ve-tedaviler/
LOCATION:virtual: Turkey\, Turkey
CATEGORIES:Understanding MOGAD
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2025/12/TURKISH.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20251118T200000
DTEND;TZID=Europe/Amsterdam:20251118T210000
DTSTAMP:20260511T151157
CREATED:20251008T173035Z
LAST-MODIFIED:20251009T150856Z
UID:20294-1763496000-1763499600@www.sumairafoundation.org
SUMMARY:Het belang van deelname van mensen met MOGAD aan onderzoek\, met als doel de ziekte beter te begrijpen en behandelen
DESCRIPTION:Bent u of kent u iemand die getroffen is door MOGAD? U bent uitgenodigd voor een webinar over MOGAD en klinische studies op 18 november. \nWe zullen worden vergezeld door prof. Barbara Willekens en prof. Guy Laurys\, die een overzicht geven van MOG-antilichaamziekte\, klinische studies en hoe patiënten kunnen deelnemen aan MOG-gerelateerde klinische studies voor toekomstige therapieopties. Dit online patiëntenvoorlichtingsevenement wordt gemodereerd door Saskia\, wiens moeder de diagnose MOGAD kreeg. \nAanwezigen die live deelnemen\, kunnen de experts in realtime vragen stellen. \nDit webinar wordt opgenomen en beschikbaar gesteld voor herhaling op het YouTube-kanaal van TSF. \nDit programma is mogelijk gemaakt met steun van UCB.
URL:https://www.sumairafoundation.org/event/het-belang-van-deelname-van-mensen-met-mogad-aan-onderzoek-met-als-doel-de-ziekte-beter-te-begrijpen-en-behandelen/
LOCATION:Virtual: Amsterdam\, Netherlands
CATEGORIES:Understanding MOGAD
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/10/DUTCH-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Athens:20251110T180000
DTEND;TZID=Europe/Athens:20251110T190000
DTSTAMP:20260511T151157
CREATED:20251013T232500Z
LAST-MODIFIED:20251013T232703Z
UID:20377-1762797600-1762801200@www.sumairafoundation.org
SUMMARY:Κατανόηση της MOGAD και της σημασίας της συμμετοχής των ασθενών σε κλινικές δοκιμές
DESCRIPTION:Εσείς ή κάποιος που αγαπάτε επηρεάζεστε από το MOGAD; \nΣας προσκαλούμε να συμμετάσχετε στο επερχόμενο πρόγραμμά μας αφιερωμένο στην MOGAD τη Δευτέρα 10 Νοεμβρίου στις 6 μ.μ. EET. \nΘα συμμετάσχουν ο Καθηγητής Νικόλας Γρηγοριάδης και η Δρ. Έλμα Ευαγγελοπούλου\, οι οποίοι θα συζητήσουν τα συμπτώματα\, τις θεραπείες και τις κλινικές δοκιμές της MOGAD. \nΟι συμμετέχοντες που θα συμμετάσχουν ζωντανά θα έχουν την ευκαιρία να θέσουν ερωτήσεις στους ειδικούς. Αυτό το διαδικτυακό σεμινάριο θα ηχογραφηθεί και θα είναι διαθέσιμο στο κανάλι YouTube του TSF. \nΑυτό το πρόγραμμα καθίσταται δυνατό με την υποστήριξη του UCB.
URL:https://www.sumairafoundation.org/event/%ce%ba%ce%b1%cf%84%ce%b1%ce%bd%cf%8c%ce%b7%cf%83%ce%b7-%cf%84%ce%b7%cf%82-mogad-%ce%ba%ce%b1%ce%b9-%cf%84%ce%b7%cf%82-%cf%83%ce%b7%ce%bc%ce%b1%cf%83%ce%af%ce%b1%cf%82-%cf%84%ce%b7%cf%82-%cf%83%cf%85/
LOCATION:Virtual: Global
CATEGORIES:Understanding MOGAD
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2025/10/GREEK.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Warsaw:20251014T180000
DTEND;TZID=Europe/Warsaw:20251014T190000
DTSTAMP:20260511T151157
CREATED:20250928T160219Z
LAST-MODIFIED:20251009T001857Z
UID:20237-1760464800-1760468400@www.sumairafoundation.org
SUMMARY:Zrozumienie MOGAD i znaczenia udziału pacjentów w badaniach klinicznych
DESCRIPTION:Czy Ciebie lub kogoś bliskiego dotknęła plaga MOGAD? \nDołącz do nas 14 października o godzinie 18:00 czasu środkowoeuropejskiego\, aby zapoznać się z eksperckim przeglądem MOGAD\, obejmującym objawy\, rokowania i leczenie\, a następnie z inspirującą dyskusją na temat badań klinicznych. W webinarium wezmą udział dr Robert Bonek\, dr Maciej Juryńczyk i dr Paweł Wrona. \nUczestnicy na żywo będą mieli okazję zadać pytania ekspertom. Webinarium zostanie nagrane i udostępnione do odtworzenia na kanale TSF w serwisie YouTube. \nProgram ten jest możliwy dzięki wsparciu UCB.
URL:https://www.sumairafoundation.org/event/zrozumienie-mogad-i-znaczenia-udzialu-pacjentow-w-badaniach-klinicznych/
LOCATION:Virtual: Poland\, Poland
CATEGORIES:Understanding MOGAD
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2025/09/POLISH.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250904T200000
DTEND;TZID=Europe/London:20250904T210000
DTSTAMP:20260511T151157
CREATED:20250717T145545Z
LAST-MODIFIED:20250811T150509Z
UID:19789-1757016000-1757019600@www.sumairafoundation.org
SUMMARY:Understanding MOGAD & The Importance of Patient Participation in Clinical Trials
DESCRIPTION:Have you or someone close to you been affected by MOGAD? Join us on Thursday\, September 4th to learn about MOGAD and the importance of patient participation in clinical trials. This program will feature Dr. Saif Huda (The Walton Centre – UK)\, Dr. Silvia Messina (Nuffield Department of Clinical Neurosciences – UK) and Dr. Katharina Fink (Karolinska University Hospital and Karolinska Institutet – Sweden) who will answer questions from our audience in real time. This program is promoted by the Sumaira Foundation in collaboration with mymyelitis and is made possible with support from UCB.
URL:https://www.sumairafoundation.org/event/understanding-mogad-the-importance-of-patient-participation-in-clinical-trials/
LOCATION:Virtual: Global
CATEGORIES:Understanding MOGAD
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/07/ENGLISHUKSWEDEN.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250902T170000
DTEND;TZID=Europe/Paris:20250902T180000
DTSTAMP:20260511T151157
CREATED:20250708T213935Z
LAST-MODIFIED:20250805T170329Z
UID:19726-1756832400-1756836000@www.sumairafoundation.org
SUMMARY:Comprendre MOGAD et l'importance de la participation des patients aux essais cliniques
DESCRIPTION:Avez-vous été touché(e) ou l’un de vos proches par MOGAD ? Rejoignez-nous le mardi 2 septembre pour en savoir plus sur MOGAD et l’importance de la participation des patients aux essais cliniques. Ce programme sera animé par le Pr Jérôme de Seze (Université de Strasbourg – France) et le Dr Sophie Elands (Hôpital Érasme – Hôpital Universitaire de Bruxelles – Belgique) qui répondront aux questions de notre public. Ce programme est soutenu par la Fondation Sumaira et est rendu possible grâce au soutien d’UCB.
URL:https://www.sumairafoundation.org/event/compreendendo-a-mogad-e-a-importancia-da-participacao-do-paciente-em-ensaios-clinicos-2/
LOCATION:Virtual: France\, France
CATEGORIES:Understanding MOGAD
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2025/07/FRENCH.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Sao_Paulo:20250818T110000
DTEND;TZID=America/Sao_Paulo:20250818T120000
DTSTAMP:20260511T151157
CREATED:20250708T185929Z
LAST-MODIFIED:20250708T213343Z
UID:19719-1755514800-1755518400@www.sumairafoundation.org
SUMMARY:Compreendendo a MOGAD e a importância da participação do paciente em ensaios clínicos
DESCRIPTION:Você ou alguém próximo a você foi afetado pelo MOGAD? Junte-se a nós na segunda-feira\, 18 de agosto\, para aprender sobre MOGAD e a importância da participação de pacientes em ensaios clínicos. Este programa contará com a participação do Dr. Douglas Kazutoshi Sato (do Brasil) e da Dra. Ernestina Santos (de Portugal)\, que responderão a perguntas da nossa plateia em tempo real. Este programa é promovido pela Fundação Sumaira em colaboração com a NMO Brasil e a ABNMO e é possível graças ao apoio da UCB.
URL:https://www.sumairafoundation.org/event/compreendendo-a-mogad-e-a-importancia-da-participacao-do-paciente-em-ensaios-clinicos/
LOCATION:Virtual: Brazil\, Brazil
CATEGORIES:Understanding MOGAD
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/07/PORTUGUESE.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Tokyo:20250426T140000
DTEND;TZID=Asia/Tokyo:20250426T150000
DTSTAMP:20260511T151157
CREATED:20250402T181535Z
LAST-MODIFIED:20250418T145953Z
UID:19109-1745676000-1745679600@www.sumairafoundation.org
SUMMARY:MOGADについての理解と 臨床試験への患者参加の 重要性
DESCRIPTION:MOGAD啓発月間を記念し、Sumaira Foundation、MSCabin、NPO法人日本視神経脊髄炎患者会が、藤原一男先生と毛塚剛司先生による特別ウェビナーを開催します。 4 月 26 日午後 2 時から、MOG抗体疾患と臨床試験への患者参加の重要性について話し合うインタラクティブ プログラムにご参加ください。 セミナーのライブ視聴者は、講師の先生方へ質問することができます。 セミナーアーカイブは、後日 TSF YouTube チャンネルで視聴できます。 （チャンネル登録が必要です）
URL:https://www.sumairafoundation.org/event/mogad%e3%81%ab%e3%81%a4%e3%81%84%e3%81%a6%e3%81%ae%e7%90%86%e8%a7%a3%e3%81%a8-%e8%87%a8%e5%ba%8a%e8%a9%a6%e9%a8%93%e3%81%b8%e3%81%ae%e6%82%a3%e8%80%85%e5%8f%82%e5%8a%a0%e3%81%ae-%e9%87%8d%e8%a6%81/
LOCATION:Virtual: Japan\, Japan
CATEGORIES:Understanding MOGAD
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/04/JAPANESE-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241205T130000
DTEND;TZID=America/New_York:20241205T140000
DTSTAMP:20260511T151157
CREATED:20241113T185421Z
LAST-MODIFIED:20241118T124748Z
UID:18386-1733403600-1733407200@www.sumairafoundation.org
SUMMARY:Comprender MOGAD y la importancia de la participación del paciente
DESCRIPTION:TSF lo invita a unirse a nuestro próximo seminario web en español sobre MOGAD y la importancia de la participación de los pacientes en los ensayos clínicos. Nos sentimos honrados de contar con el Dr. José Flores de México y la Dra. Lucienne Costa Frossard França de España. ¡Esperamos que se una a nosotros en esta importante discusión!
URL:https://www.sumairafoundation.org/event/comprender-mogad-y-la-importancia-de-la-participacion-del-paciente/
LOCATION:Virtual: Global
CATEGORIES:Understanding MOGAD
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2024/11/SPANISH-2.jpg
END:VEVENT
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