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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261005T180000
DTEND;TZID=America/New_York:20261005T190000
DTSTAMP:20260825T220253Z
CREATED:20260825T220253Z
LAST-MODIFIED:20260825T220253Z
UID:10000491-1791223200-1791226800@www.sumairafoundation.org
SUMMARY:Financial Health Workshop Series - Improving Credit and Managing Debt
DESCRIPTION:Credit and debt can sometimes feel complicated\, confusing\, or even stressful—but understanding your options can be an important step toward greater financial confidence. \nIn the second session of our three-part Financial Health series\, Angelica Civilus\, Vice President\, Community Manager with Chase Bank\, will break down the basics of credit and share practical strategies for managing debt. We’ll talk about what can impact your credit\, ways to work toward improving it\, and helpful approaches to managing debt without feeling overwhelmed. \nWhether you’re building credit for the first time\, working to improve your credit\, or simply want to better understand your financial options\, this session is designed to meet you where you are. \nJoin us Monday\, October 5th at 3pm PT / 6pm ET for an approachable conversation about building stronger financial habits and taking steps toward your goals. \nRegister HERE.
URL:https://www.sumairafoundation.org/event/financial-health-workshop-series-improving-credit-and-managing-debt/
CATEGORIES:TSF Programming,TSF Webinar,Workshops
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/08/Financial-Health-Workshop-Series-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Argentina/Buenos_Aires:20261006T210000
DTEND;TZID=America/Argentina/Buenos_Aires:20261006T220000
DTSTAMP:20260921T184123Z
CREATED:20260915T161416Z
LAST-MODIFIED:20260921T184123Z
UID:10000503-1791320400-1791324000@www.sumairafoundation.org
SUMMARY:Reeducación de la escritura
DESCRIPTION:En enfermedades desmielinizantes\, donde la afectación de la mielina enlentece la conducción de los impulsos eléctricos\, la reeducación de la escritura aplica técnicas gráficas específicas orientadas a desautomatizar la producción de texto y firma. \nEsta práctica refuerza la actividad de las vías aferentes y eferentes mientras entrena las funciones cognitivas involucradas. Escribir a mano desafía al sistema nervioso al integrar visión\, propiocepción y movimiento. \nEn este Webinar + Taller en dos sesiones: \nSesión 1 Webinar:  \nMartes 6 de octubre \n9pm Argentina / 7pm Colombia \nLa dra Eugenia Balbuena y la psicóloga Adriana Ziliotto (ambas de Argentina) nos contarán por que la reeducación de la escritura es importante neurológica y psicológicamente. \nSesión 2 Taller:  \nMartes 13 de octubre \n9pm Argentina / 7pm Colombia \nhttps://us02web.zoom.us/webinar/register/WN_jqVoHnC-TJiqvLddFHsxIg \nAdriana nos guiará en un taller práctico donde abordaremos ejercicios concretos para transformar el trazo en una herramienta clave de neurorrehabilitación y mejorar la destreza escritural cotidiana.
URL:https://www.sumairafoundation.org/event/reeducacion-de-la-escritura/
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/09/Eugenia-Balbuena-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261012T180000
DTEND;TZID=America/New_York:20261012T190000
DTSTAMP:20260825T221038Z
CREATED:20260825T220655Z
LAST-MODIFIED:20260825T221038Z
UID:10000492-1791828000-1791831600@www.sumairafoundation.org
SUMMARY:Financial Health Workshop Series - Ways to Help Avoid Fraud & Scam
DESCRIPTION:Scams and financial fraud are constantly evolving\, and knowing what to look for can help you protect yourself and your loved ones. \nIn the final session of our three-part Financial Health series\, Angelica Civilus\, Vice President\, Community Manager with Chase Bank\, will share practical tips for recognizing common scams\, identifying potential warning signs\, and taking steps to protect your personal and financial information. \nWe’ll talk about some of the ways scammers may try to reach you\, what to do if something doesn’t feel right\, and simple habits that can help you stay safer online and in everyday life. This session is designed to be approachable and empowering\, so you can feel more prepared and confident when navigating today’s financial world. \nJoin us Monday\, October 12th at 3pm PT / 6pm ET and learn ways to help protect yourself\, your information\, and your financial future. \nRegister HERE.
URL:https://www.sumairafoundation.org/event/financial-health-workshop-series-ways-to-help-avoid-fraud-scam/
CATEGORIES:TSF Programming,TSF Webinar,Workshops
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/08/Financial-Health-Workshop-Series-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Argentina/Buenos_Aires:20261013T210000
DTEND;TZID=America/Argentina/Buenos_Aires:20261013T220000
DTSTAMP:20261008T231202Z
CREATED:20260915T162423Z
LAST-MODIFIED:20261008T231202Z
UID:10000504-1791925200-1791928800@www.sumairafoundation.org
SUMMARY:Reeducación de la escritura: taller práctico
DESCRIPTION:En enfermedades desmielinizantes\, donde la afectación de la mielina enlentece la conducción de los impulsos eléctricos\, la reeducación de la escritura aplica técnicas gráficas específicas orientadas a desautomatizar la producción de texto y firma. \nEsta práctica refuerza la actividad de las vías aferentes y eferentes mientras entrena las funciones cognitivas involucradas. Escribir a mano desafía al sistema nervioso al integrar visión\, propiocepción y movimiento. \nEn este Webinar + Taller en dos sesiones: \nSesión 1 Webinar:  \nMartes 6 de octubre \n9pm Argentina / 7pm Colombia \nLa dra Eugenia Balbuena y la psicóloga Adriana Ziliotto (ambas de Argentina) nos contarán por que la reeducación de la escritura es importante neurológica y psicológicamente. \nSesión 2 Taller:  \nMartes 13 de octubre \n9pm Argentina / 7pm Colombia \nhttps://us02web.zoom.us/webinar/register/WN_jqVoHnC-TJiqvLddFHsxIg \nAdriana nos guiará en un taller práctico donde abordaremos ejercicios concretos para transformar el trazo en una herramienta clave de neurorrehabilitación y mejorar la destreza escritural cotidiana.
URL:https://www.sumairafoundation.org/event/reeducacion-de-la-escritura-taller-practico/
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/09/Eugenia-Balbuena-3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261015T180000
DTEND;TZID=America/New_York:20261015T190000
DTSTAMP:20260723T021136Z
CREATED:20260723T021136Z
LAST-MODIFIED:20260723T021136Z
UID:10000481-1792087200-1792090800@www.sumairafoundation.org
SUMMARY:Comprendiendo el anticuerpo AQP4 en NMOSD
DESCRIPTION:¿Usted o un ser querido vive con NMOSD? \nLo invitamos a acompañarnos en un webinar especial titulado **”Comprendiendo el anticuerpo AQP4 en NMOSD”**\, con la Dra. Pilar Perachino\, de Argentina. \nEn esta sesión\, la Dra. Perachino explicará qué es el anticuerpo AQP4\, cuál es su papel en el NMOSD\, cómo contribuye al diagnóstico de la enfermedad y por qué es tan importante para comprender su evolución y tratamiento. \nAdemás\, quienes se conecten en vivo tendrán la oportunidad de hacer sus preguntas a la Dra. Perachino en tiempo real. \n¡Esperamos contar con su participación en esta conversación informativa e interactiva!
URL:https://www.sumairafoundation.org/event/comprendiendo-el-anticuerpo-aqp4-en-nmosd/
LOCATION:Virtual: Global
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/07/Pilar-Perachino.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Bogota:20261024T120000
DTEND;TZID=America/Bogota:20261024T140000
DTSTAMP:20261012T225813Z
CREATED:20261009T204125Z
LAST-MODIFIED:20261012T225813Z
UID:10000505-1792843200-1792850400@www.sumairafoundation.org
SUMMARY:Mas alla del diagnóstico de la NMOSD Panel de Expertos : perspectivas multidisciplinarias para un cuidado integral
DESCRIPTION:El manejo del Trastorno del Espectro de la Neuromielitis Óptica (NMOSD) ha estado centrado de forma casi exclusiva en el control del brote agudo y la inmunosupresión. \nSin embargo\, el paciente convive las 24 horas del día con el impacto físico\, cognitivo y emocional de la enfermedad. \nEste encuentro busca romper con esa visión y propone un abordaje integral al reunir a quince expertos de distintas disciplinas : neurología\, investigación clínica\, sexología\, kinesiología\, salud mental\, fonoaudiología entre otros. El objetivo es transmitir un mensaje claro: el bienestar real no se logra únicamente apagando la inflamación del sistema nervioso\, sino acompañando al paciente en todas las esferas de su cotidianidad. \nhttps://us02web.zoom.us/webinar/register/WN_qJPifmNLRjqY9IgQcmQCPQ
URL:https://www.sumairafoundation.org/event/mas-alla-del-diagnostico-de-la-nmosd-panel-de-expertos-perspectivas-multidisciplinarias-para-un-cuidado-integral/
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/10/Eugenia-Balbuena.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261116T190000
DTEND;TZID=America/New_York:20261116T200000
DTSTAMP:20261029T173439Z
CREATED:20260820T195043Z
LAST-MODIFIED:20261029T173439Z
UID:10000488-1794855600-1794859200@www.sumairafoundation.org
SUMMARY:Steroids and Plasma Exchange in Neuroimmune Disease: Treatment\, Side Effects & Long-Term Considerations
DESCRIPTION:Steroids and plasma exchange (PLEX) can play important roles in treating flares and relapses in many rare neuroimmune conditions. But how do these treatments work\, when are they used\, and what should patients know about their potential side effects and long-term considerations? \nJoin Dr. John Chen from Mayo Clinic in Rochester\, Minnesota\, for a patient-friendly discussion exploring steroids\, plasma exchange\, and their roles in neuroimmune disease management. Learn about the benefits and risks of these treatments\, what patients can expect\, and how to work with your healthcare team to make informed decisions about your care. \nMonday\, November 16 4:00 PM PT / 7:00 PM ET \nRegister here: https://us02web.zoom.us/webinar/register/WN_ad8Zm0X7QMyYdhKQORlrog \nDesigned for patients and caregivers\, this webinar will provide practical information to help you better understand your treatment options and advocate for your health. Those who attend live will also have the opportunity to ask Dr. Chen their questions! \nMade possible with support from Amgen.
URL:https://www.sumairafoundation.org/event/understanding-long-term-side-effects-of-steroids/
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/08/John-Chen.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20261119T180000
DTEND;TZID=Europe/Rome:20261119T190000
DTSTAMP:20261112T175418Z
CREATED:20261110T223450Z
LAST-MODIFIED:20261112T175418Z
UID:10000507-1795111200-1795114800@www.sumairafoundation.org
SUMMARY:🇮🇹 WEBINAR IN ITALIANO | FROM THE EXPERTS: ECTRIMS 2026 - LE ULTIME NOVITÀ DA TORONTO
DESCRIPTION:Questo webinar\, dedicato alle ultime novità presentate al Congresso ECTRIMS 2026 di Toronto\, si terrà in italiano e vedrà la partecipazione della Dott.ssa Sara Mariotto. \nTra gli argomenti trattati: \n\nDati preclinici e studi clinici su NMOSD e MOGAD.\nLinee guida e raccomandazioni sulle vaccinazioni.\n\nLa presentazione sarà seguita da una sessione interattiva di domande e risposte\, durante la quale i pazienti avranno l’opportunità di rivolgere direttamente le proprie domande alla nostra esperta. \n Relatrice: Dott.ssa Sara Mariotto\, MD\, PhD\n Moderatrice: Elena\, Ambasciatrice TSF Italia \n 19 novembre 2026\n 18:00-18:45 CET\n Lingua: Italiano \n Registrati e partecipa: https://us02web.zoom.us/webinar/register/WN_MiSf2o5oSVed5S-L___Lcw \nVi aspettiamo numerosi per questo incontro informativo e per un momento di confronto e dialogo!
URL:https://www.sumairafoundation.org/event/%f0%9f%87%ae%f0%9f%87%b9-italian-webinar-from-the-experts-ectrims-2026-latest-updates-from-toronto/
CATEGORIES:Community Event,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/11/Untitled-design.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261201T190000
DTEND;TZID=America/New_York:20261201T200000
DTSTAMP:20261110T181241Z
CREATED:20261106T230616Z
LAST-MODIFIED:20261110T181241Z
UID:10000506-1796151600-1796155200@www.sumairafoundation.org
SUMMARY:Young People Living with Rare Neurological Disorders
DESCRIPTION:Join us for TSF’s 10th and final U.S. webinar of 2026\, a casual\, candid conversation with young TSF ambassadors about what it’s really like to grow up with a rare neurological disorder. Beyond diagnoses and treatments\, our panelists will share how their condition shows up in everyday life: navigating school\, building a career\, making and keeping friends\, dating\, and everything in between. Whether you’re a young person living with a rare disease\, a parent\, a caregiver\, or a friend\, you’ll come away with real stories\, practical insight\, and the reminder that you’re not alone. \nRegister HERE. \nTuesday\, December 1\, 2026 \n4:00 PM PT / 7:00 PM ET \nModerated by Taylor Macey \nMade possible with support from Amgen and argenx.
URL:https://www.sumairafoundation.org/event/young-people-living-with-rare-neurological-disorders/
CATEGORIES:From The Experts,TSF Programming,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/11/TSF-Youth-3.png
END:VEVENT
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