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X-WR-CALDESC:Events for The Sumaira Foundation
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DTSTART;TZID=America/New_York:20260914T200000
DTEND;TZID=America/New_York:20260914T210000
DTSTAMP:20260828T172233Z
CREATED:20260828T172233Z
LAST-MODIFIED:20260828T172233Z
UID:23474-1789416000-1789419600@www.sumairafoundation.org
SUMMARY:Meet the Author: Lisa Lauter
DESCRIPTION:Meet the Author: Lisa Lauter\, Author of *Songbirds Keep Singing* \nJoin The Sumaira Foundation for a special edition of our Meet the Author series featuring Lisa Lauter\, an author and patient living with autoimmune encephalitis (AE)\, and author of the memoir *Songbirds Keep Singing*. \nIn this heartfelt conversation\, Lisa will share the story behind her book and what inspired her to put her experience with AE into words. *Songbirds Keep Singing* offers a powerful look at the realities of living through a rare neuroimmune condition—and serves as a reminder that even in the most difficult chapters\, there can be hope\, resilience\, connection\, and a story worth telling. \nLisa will talk about the journey of writing and publishing her memoir\, what she hopes other patients and families take away from her story\, and how sharing our experiences can help others feel seen\, understood\, and less alone. Whether you’re living with a rare neuroimmune condition\, supporting a loved one\, or simply want to hear an inspiring patient story\, we hope you’ll join us for this meaningful conversation. \nMonday\, September 14 at 5:00 PM PT / 8:00 PM ET \nRegister HERE \nThose who attend live will have the opportunity to ask Lisa questions during the conversation.
URL:https://www.sumairafoundation.org/event/meet-the-author-lisa-lauter/
CATEGORIES:Meet The Author,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/08/Lisa-Lauter-1.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260915T200000
DTEND;TZID=America/New_York:20260915T210000
DTSTAMP:20260831T234622Z
CREATED:20260831T234622Z
LAST-MODIFIED:20260831T234622Z
UID:23497-1789502400-1789506000@www.sumairafoundation.org
SUMMARY:Caregiver Burnout: Preventing Burnout and Supporting the Critical Link
DESCRIPTION:Caregivers are an essential part of the rare neuroimmune community—but caring for someone you love can come with uncertainty\, stress\, and challenges that are not always easy to talk about. When you’re focused on supporting someone else\, it can be easy to put your own needs on the back burner. \nJoin Dr. Daniel Rohe from Mayo Clinic for a compassionate conversation about caregiver burnout\, including what it is\, the warning signs to look out for\, and ways to prevent and manage burnout before it takes a greater toll. We’ll talk about practical strategies for managing uncertainty\, staying connected to your community\, preparing for periods of increased intensity\, and finding additional support. Dr. Rohe will also share helpful resources\, including books and podcasts\, for caregivers who may need a little extra support along the way. \nWhether you’re a spouse\, parent\, family member\, friend\, or another loved one supporting someone with a rare neuroimmune condition\, you don’t have to navigate the caregiver journey alone. \nJoin us live on Tuesday\, September 15 at 5 PM PT / 8 PM ET. \nRegister HERE. \nThose who attend live will have the opportunity to ask Dr. Rohe questions during a live Q&A. \nMade possible with support from Amgen.
URL:https://www.sumairafoundation.org/event/caregiver-burnout-preventing-burnout-and-supporting-the-critical-link/
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/08/Daniel-Rohe.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260921T200000
DTEND;TZID=America/New_York:20260921T210000
DTSTAMP:20260814T002352Z
CREATED:20260813T225058Z
LAST-MODIFIED:20260814T002352Z
UID:23212-1790020800-1790024400@www.sumairafoundation.org
SUMMARY:Little Patients\, Big Questions: Understanding Pediatric Neuroimmune Diseases
DESCRIPTION:When your child is living with a neuroimmune disease\, the questions can feel endless. What is happening in their body? What does a diagnosis mean for their future? And how can parents and caregivers feel more confident navigating care? \nJoin Dr. Kristen Fisher of Texas Children’s for an approachable conversation about pediatric neuroimmune diseases. Together\, we’ll explore what makes these conditions unique in children\, what families should know about diagnosis and treatment\, and how parents and caregivers can become informed and empowered partners in their child’s care. \nWhether your child is newly diagnosed\, navigating ongoing symptoms\, or you’re simply looking for a better understanding of pediatric neuroimmune diseases\, this webinar is designed with families in mind. \nMonday\, September 21 | 5:00 PM PT / 8:00 PM ET \nhttps://us02web.zoom.us/webinar/register/WN_ICZaFGZ2TB2koEcKAkfaww \nLive Q&A: Those who attend live will have the opportunity to ask Dr. Fisher their questions directly. \nMade possible with support from Amgen.
URL:https://www.sumairafoundation.org/event/little-patients-big-questions-understanding-pediatric-neuroimmune-diseases/
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/08/Kristen-Fisher-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260928T180000
DTEND;TZID=America/New_York:20260928T190000
DTSTAMP:20260825T220319Z
CREATED:20260825T215628Z
LAST-MODIFIED:20260825T220319Z
UID:23398-1790618400-1790622000@www.sumairafoundation.org
SUMMARY:Financial Health Workshop Series - How to Set Goals\, Build a Budget & Save
DESCRIPTION:Managing your finances can feel overwhelming\, especially when living with the added costs and uncertainty that can come with a rare disease. In this first session of our three-part Financial Health series\, Angelica Civilus\, Vice President\, Community Manager with Chase Bank\, will share practical money skills to help you feel more confident about your financial goals. \nTogether\, we’ll explore how to set realistic financial goals\, create a budget that works for your life\, and find ways to build savings—even when your resources may feel limited. Whether you’re just getting started or looking for ways to strengthen your current financial plan\, this session will offer approachable tools you can put into practice right away. \nJoin us Monday\, September 28th at 3pm PT / 6pm ET and take the first step toward feeling more confident about your financial future. \nRegister HERE.
URL:https://www.sumairafoundation.org/event/financial-health-workshop-series-how-to-set-goals-build-a-budget-save/
CATEGORIES:TSF Programming,TSF Webinar,Workshops
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/08/Financial-Health-Workshop-Series-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261005T180000
DTEND;TZID=America/New_York:20261005T190000
DTSTAMP:20260825T220253Z
CREATED:20260825T220253Z
LAST-MODIFIED:20260825T220253Z
UID:23402-1791223200-1791226800@www.sumairafoundation.org
SUMMARY:Financial Health Workshop Series - Improving Credit and Managing Debt
DESCRIPTION:Credit and debt can sometimes feel complicated\, confusing\, or even stressful—but understanding your options can be an important step toward greater financial confidence. \nIn the second session of our three-part Financial Health series\, Angelica Civilus\, Vice President\, Community Manager with Chase Bank\, will break down the basics of credit and share practical strategies for managing debt. We’ll talk about what can impact your credit\, ways to work toward improving it\, and helpful approaches to managing debt without feeling overwhelmed. \nWhether you’re building credit for the first time\, working to improve your credit\, or simply want to better understand your financial options\, this session is designed to meet you where you are. \nJoin us Monday\, October 5th at 3pm PT / 6pm ET for an approachable conversation about building stronger financial habits and taking steps toward your goals. \nRegister HERE.
URL:https://www.sumairafoundation.org/event/financial-health-workshop-series-improving-credit-and-managing-debt/
CATEGORIES:TSF Programming,TSF Webinar,Workshops
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/08/Financial-Health-Workshop-Series-1.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261012T180000
DTEND;TZID=America/New_York:20261012T190000
DTSTAMP:20260825T221038Z
CREATED:20260825T220655Z
LAST-MODIFIED:20260825T221038Z
UID:23407-1791828000-1791831600@www.sumairafoundation.org
SUMMARY:Financial Health Workshop Series - Ways to Help Avoid Fraud & Scam
DESCRIPTION:Scams and financial fraud are constantly evolving\, and knowing what to look for can help you protect yourself and your loved ones. \nIn the final session of our three-part Financial Health series\, Angelica Civilus\, Vice President\, Community Manager with Chase Bank\, will share practical tips for recognizing common scams\, identifying potential warning signs\, and taking steps to protect your personal and financial information. \nWe’ll talk about some of the ways scammers may try to reach you\, what to do if something doesn’t feel right\, and simple habits that can help you stay safer online and in everyday life. This session is designed to be approachable and empowering\, so you can feel more prepared and confident when navigating today’s financial world. \nJoin us Monday\, October 12th at 3pm PT / 6pm ET and learn ways to help protect yourself\, your information\, and your financial future. \nRegister HERE.
URL:https://www.sumairafoundation.org/event/financial-health-workshop-series-ways-to-help-avoid-fraud-scam/
CATEGORIES:TSF Programming,TSF Webinar,Workshops
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/08/Financial-Health-Workshop-Series-1.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261015T180000
DTEND;TZID=America/New_York:20261015T190000
DTSTAMP:20260723T021136Z
CREATED:20260723T021136Z
LAST-MODIFIED:20260723T021136Z
UID:23008-1792087200-1792090800@www.sumairafoundation.org
SUMMARY:Comprendiendo el anticuerpo AQP4 en NMOSD
DESCRIPTION:¿Usted o un ser querido vive con NMOSD? \nLo invitamos a acompañarnos en un webinar especial titulado **”Comprendiendo el anticuerpo AQP4 en NMOSD”**\, con la Dra. Pilar Perachino\, de Argentina. \nEn esta sesión\, la Dra. Perachino explicará qué es el anticuerpo AQP4\, cuál es su papel en el NMOSD\, cómo contribuye al diagnóstico de la enfermedad y por qué es tan importante para comprender su evolución y tratamiento. \nAdemás\, quienes se conecten en vivo tendrán la oportunidad de hacer sus preguntas a la Dra. Perachino en tiempo real. \n¡Esperamos contar con su participación en esta conversación informativa e interactiva!
URL:https://www.sumairafoundation.org/event/comprendiendo-el-anticuerpo-aqp4-en-nmosd/
LOCATION:Virtual: Global
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/07/Pilar-Perachino.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261104T153000
DTEND;TZID=America/New_York:20261104T163000
DTSTAMP:20260820T221237Z
CREATED:20260820T195043Z
LAST-MODIFIED:20260820T221237Z
UID:23333-1793806200-1793809800@www.sumairafoundation.org
SUMMARY:Understanding Long-Term Side Effects of Steroids
DESCRIPTION:Steroids can be an important part of treatment for many rare neuroimmune conditions\, but what happens when they’re used over a longer period of time? Join Dr. Amy Kunchok for a patient-friendly discussion about the potential long-term side effects of steroids\, what to watch for\, and how patients can work with their healthcare team to manage risks while balancing the benefits of treatment. \nWednesday\, November 4 \n12:30 PM PT / 3:30 PM ET \nhttps://us02web.zoom.us/webinar/register/WN_ad8Zm0X7QMyYdhKQORlrog \nThis webinar is designed for patients and caregivers and will provide practical information to help you better understand your treatment and advocate for your health. Those who attend live will also have the opportunity to ask Dr. Kunchok their questions! Made possible with support from Amgen.
URL:https://www.sumairafoundation.org/event/understanding-long-term-side-effects-of-steroids/
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/08/Amy-Kunchok-3.png
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