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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261015T180000
DTEND;TZID=America/New_York:20261015T190000
DTSTAMP:20260723T021136Z
CREATED:20260723T021136Z
LAST-MODIFIED:20260723T021136Z
UID:10000481-1792087200-1792090800@www.sumairafoundation.org
SUMMARY:Comprendiendo el anticuerpo AQP4 en NMOSD
DESCRIPTION:¿Usted o un ser querido vive con NMOSD? \nLo invitamos a acompañarnos en un webinar especial titulado **”Comprendiendo el anticuerpo AQP4 en NMOSD”**\, con la Dra. Pilar Perachino\, de Argentina. \nEn esta sesión\, la Dra. Perachino explicará qué es el anticuerpo AQP4\, cuál es su papel en el NMOSD\, cómo contribuye al diagnóstico de la enfermedad y por qué es tan importante para comprender su evolución y tratamiento. \nAdemás\, quienes se conecten en vivo tendrán la oportunidad de hacer sus preguntas a la Dra. Perachino en tiempo real. \n¡Esperamos contar con su participación en esta conversación informativa e interactiva!
URL:https://www.sumairafoundation.org/event/comprendiendo-el-anticuerpo-aqp4-en-nmosd/
LOCATION:Virtual: Global
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/07/Pilar-Perachino.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Argentina/Buenos_Aires:20261013T210000
DTEND;TZID=America/Argentina/Buenos_Aires:20261013T220000
DTSTAMP:20261008T231202Z
CREATED:20260915T162423Z
LAST-MODIFIED:20261008T231202Z
UID:10000504-1791925200-1791928800@www.sumairafoundation.org
SUMMARY:Reeducación de la escritura: taller práctico
DESCRIPTION:En enfermedades desmielinizantes\, donde la afectación de la mielina enlentece la conducción de los impulsos eléctricos\, la reeducación de la escritura aplica técnicas gráficas específicas orientadas a desautomatizar la producción de texto y firma. \nEsta práctica refuerza la actividad de las vías aferentes y eferentes mientras entrena las funciones cognitivas involucradas. Escribir a mano desafía al sistema nervioso al integrar visión\, propiocepción y movimiento. \nEn este Webinar + Taller en dos sesiones: \nSesión 1 Webinar:  \nMartes 6 de octubre \n9pm Argentina / 7pm Colombia \nLa dra Eugenia Balbuena y la psicóloga Adriana Ziliotto (ambas de Argentina) nos contarán por que la reeducación de la escritura es importante neurológica y psicológicamente. \nSesión 2 Taller:  \nMartes 13 de octubre \n9pm Argentina / 7pm Colombia \nhttps://us02web.zoom.us/webinar/register/WN_jqVoHnC-TJiqvLddFHsxIg \nAdriana nos guiará en un taller práctico donde abordaremos ejercicios concretos para transformar el trazo en una herramienta clave de neurorrehabilitación y mejorar la destreza escritural cotidiana.
URL:https://www.sumairafoundation.org/event/reeducacion-de-la-escritura-taller-practico/
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/09/Eugenia-Balbuena-3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261012T180000
DTEND;TZID=America/New_York:20261012T190000
DTSTAMP:20260825T221038Z
CREATED:20260825T220655Z
LAST-MODIFIED:20260825T221038Z
UID:10000492-1791828000-1791831600@www.sumairafoundation.org
SUMMARY:Financial Health Workshop Series - Ways to Help Avoid Fraud & Scam
DESCRIPTION:Scams and financial fraud are constantly evolving\, and knowing what to look for can help you protect yourself and your loved ones. \nIn the final session of our three-part Financial Health series\, Angelica Civilus\, Vice President\, Community Manager with Chase Bank\, will share practical tips for recognizing common scams\, identifying potential warning signs\, and taking steps to protect your personal and financial information. \nWe’ll talk about some of the ways scammers may try to reach you\, what to do if something doesn’t feel right\, and simple habits that can help you stay safer online and in everyday life. This session is designed to be approachable and empowering\, so you can feel more prepared and confident when navigating today’s financial world. \nJoin us Monday\, October 12th at 3pm PT / 6pm ET and learn ways to help protect yourself\, your information\, and your financial future. \nRegister HERE.
URL:https://www.sumairafoundation.org/event/financial-health-workshop-series-ways-to-help-avoid-fraud-scam/
CATEGORIES:TSF Programming,TSF Webinar,Workshops
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/08/Financial-Health-Workshop-Series-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Argentina/Buenos_Aires:20261006T210000
DTEND;TZID=America/Argentina/Buenos_Aires:20261006T220000
DTSTAMP:20260921T184123Z
CREATED:20260915T161416Z
LAST-MODIFIED:20260921T184123Z
UID:10000503-1791320400-1791324000@www.sumairafoundation.org
SUMMARY:Reeducación de la escritura
DESCRIPTION:En enfermedades desmielinizantes\, donde la afectación de la mielina enlentece la conducción de los impulsos eléctricos\, la reeducación de la escritura aplica técnicas gráficas específicas orientadas a desautomatizar la producción de texto y firma. \nEsta práctica refuerza la actividad de las vías aferentes y eferentes mientras entrena las funciones cognitivas involucradas. Escribir a mano desafía al sistema nervioso al integrar visión\, propiocepción y movimiento. \nEn este Webinar + Taller en dos sesiones: \nSesión 1 Webinar:  \nMartes 6 de octubre \n9pm Argentina / 7pm Colombia \nLa dra Eugenia Balbuena y la psicóloga Adriana Ziliotto (ambas de Argentina) nos contarán por que la reeducación de la escritura es importante neurológica y psicológicamente. \nSesión 2 Taller:  \nMartes 13 de octubre \n9pm Argentina / 7pm Colombia \nhttps://us02web.zoom.us/webinar/register/WN_jqVoHnC-TJiqvLddFHsxIg \nAdriana nos guiará en un taller práctico donde abordaremos ejercicios concretos para transformar el trazo en una herramienta clave de neurorrehabilitación y mejorar la destreza escritural cotidiana.
URL:https://www.sumairafoundation.org/event/reeducacion-de-la-escritura/
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/09/Eugenia-Balbuena-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261005T180000
DTEND;TZID=America/New_York:20261005T190000
DTSTAMP:20260825T220253Z
CREATED:20260825T220253Z
LAST-MODIFIED:20260825T220253Z
UID:10000491-1791223200-1791226800@www.sumairafoundation.org
SUMMARY:Financial Health Workshop Series - Improving Credit and Managing Debt
DESCRIPTION:Credit and debt can sometimes feel complicated\, confusing\, or even stressful—but understanding your options can be an important step toward greater financial confidence. \nIn the second session of our three-part Financial Health series\, Angelica Civilus\, Vice President\, Community Manager with Chase Bank\, will break down the basics of credit and share practical strategies for managing debt. We’ll talk about what can impact your credit\, ways to work toward improving it\, and helpful approaches to managing debt without feeling overwhelmed. \nWhether you’re building credit for the first time\, working to improve your credit\, or simply want to better understand your financial options\, this session is designed to meet you where you are. \nJoin us Monday\, October 5th at 3pm PT / 6pm ET for an approachable conversation about building stronger financial habits and taking steps toward your goals. \nRegister HERE.
URL:https://www.sumairafoundation.org/event/financial-health-workshop-series-improving-credit-and-managing-debt/
CATEGORIES:TSF Programming,TSF Webinar,Workshops
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/08/Financial-Health-Workshop-Series-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260928T180000
DTEND;TZID=America/New_York:20260928T190000
DTSTAMP:20260825T220319Z
CREATED:20260825T215628Z
LAST-MODIFIED:20260825T220319Z
UID:10000490-1790618400-1790622000@www.sumairafoundation.org
SUMMARY:Financial Health Workshop Series - How to Set Goals\, Build a Budget & Save
DESCRIPTION:Managing your finances can feel overwhelming\, especially when living with the added costs and uncertainty that can come with a rare disease. In this first session of our three-part Financial Health series\, Angelica Civilus\, Vice President\, Community Manager with Chase Bank\, will share practical money skills to help you feel more confident about your financial goals. \nTogether\, we’ll explore how to set realistic financial goals\, create a budget that works for your life\, and find ways to build savings—even when your resources may feel limited. Whether you’re just getting started or looking for ways to strengthen your current financial plan\, this session will offer approachable tools you can put into practice right away. \nJoin us Monday\, September 28th at 3pm PT / 6pm ET and take the first step toward feeling more confident about your financial future. \nRegister HERE.
URL:https://www.sumairafoundation.org/event/financial-health-workshop-series-how-to-set-goals-build-a-budget-save/
CATEGORIES:TSF Programming,TSF Webinar,Workshops
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/08/Financial-Health-Workshop-Series-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260921T200000
DTEND;TZID=America/New_York:20260921T210000
DTSTAMP:20260814T002352Z
CREATED:20260813T225058Z
LAST-MODIFIED:20260814T002352Z
UID:10000485-1790020800-1790024400@www.sumairafoundation.org
SUMMARY:Little Patients\, Big Questions: Understanding Pediatric Neuroimmune Diseases
DESCRIPTION:When your child is living with a neuroimmune disease\, the questions can feel endless. What is happening in their body? What does a diagnosis mean for their future? And how can parents and caregivers feel more confident navigating care? \nJoin Dr. Kristen Fisher of Texas Children’s for an approachable conversation about pediatric neuroimmune diseases. Together\, we’ll explore what makes these conditions unique in children\, what families should know about diagnosis and treatment\, and how parents and caregivers can become informed and empowered partners in their child’s care. \nWhether your child is newly diagnosed\, navigating ongoing symptoms\, or you’re simply looking for a better understanding of pediatric neuroimmune diseases\, this webinar is designed with families in mind. \nMonday\, September 21 | 5:00 PM PT / 8:00 PM ET \nhttps://us02web.zoom.us/webinar/register/WN_ICZaFGZ2TB2koEcKAkfaww \nLive Q&A: Those who attend live will have the opportunity to ask Dr. Fisher their questions directly. \nMade possible with support from Amgen.
URL:https://www.sumairafoundation.org/event/little-patients-big-questions-understanding-pediatric-neuroimmune-diseases/
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/08/Kristen-Fisher-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260915T200000
DTEND;TZID=America/New_York:20260915T210000
DTSTAMP:20260831T234622Z
CREATED:20260831T234622Z
LAST-MODIFIED:20260831T234622Z
UID:10000495-1789502400-1789506000@www.sumairafoundation.org
SUMMARY:Caregiver Burnout: Preventing Burnout and Supporting the Critical Link
DESCRIPTION:Caregivers are an essential part of the rare neuroimmune community—but caring for someone you love can come with uncertainty\, stress\, and challenges that are not always easy to talk about. When you’re focused on supporting someone else\, it can be easy to put your own needs on the back burner. \nJoin Dr. Daniel Rohe from Mayo Clinic for a compassionate conversation about caregiver burnout\, including what it is\, the warning signs to look out for\, and ways to prevent and manage burnout before it takes a greater toll. We’ll talk about practical strategies for managing uncertainty\, staying connected to your community\, preparing for periods of increased intensity\, and finding additional support. Dr. Rohe will also share helpful resources\, including books and podcasts\, for caregivers who may need a little extra support along the way. \nWhether you’re a spouse\, parent\, family member\, friend\, or another loved one supporting someone with a rare neuroimmune condition\, you don’t have to navigate the caregiver journey alone. \nJoin us live on Tuesday\, September 15 at 5 PM PT / 8 PM ET. \nRegister HERE. \nThose who attend live will have the opportunity to ask Dr. Rohe questions during a live Q&A. \nMade possible with support from Amgen.
URL:https://www.sumairafoundation.org/event/caregiver-burnout-preventing-burnout-and-supporting-the-critical-link/
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/08/Daniel-Rohe.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260914T200000
DTEND;TZID=America/New_York:20260914T210000
DTSTAMP:20260828T172233Z
CREATED:20260828T172233Z
LAST-MODIFIED:20260828T172233Z
UID:10000494-1789416000-1789419600@www.sumairafoundation.org
SUMMARY:Meet the Author: Lisa Lauter
DESCRIPTION:Meet the Author: Lisa Lauter\, Author of *Songbirds Keep Singing* \nJoin The Sumaira Foundation for a special edition of our Meet the Author series featuring Lisa Lauter\, an author and patient living with autoimmune encephalitis (AE)\, and author of the memoir *Songbirds Keep Singing*. \nIn this heartfelt conversation\, Lisa will share the story behind her book and what inspired her to put her experience with AE into words. *Songbirds Keep Singing* offers a powerful look at the realities of living through a rare neuroimmune condition—and serves as a reminder that even in the most difficult chapters\, there can be hope\, resilience\, connection\, and a story worth telling. \nLisa will talk about the journey of writing and publishing her memoir\, what she hopes other patients and families take away from her story\, and how sharing our experiences can help others feel seen\, understood\, and less alone. Whether you’re living with a rare neuroimmune condition\, supporting a loved one\, or simply want to hear an inspiring patient story\, we hope you’ll join us for this meaningful conversation. \nMonday\, September 14 at 5:00 PM PT / 8:00 PM ET \nRegister HERE \nThose who attend live will have the opportunity to ask Lisa questions during the conversation.
URL:https://www.sumairafoundation.org/event/meet-the-author-lisa-lauter/
CATEGORIES:Meet The Author,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/08/Lisa-Lauter-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260901T200000
DTEND;TZID=America/New_York:20260901T210000
DTSTAMP:20260814T221935Z
CREATED:20260814T200018Z
LAST-MODIFIED:20260814T221935Z
UID:10000486-1788292800-1788296400@www.sumairafoundation.org
SUMMARY:When Autoimmune Diseases Overlap: Understanding Multiple Diagnoses
DESCRIPTION:What happens when one autoimmune or neuroimmune condition isn’t the whole story? For some patients\, receiving multiple diagnoses can bring even more questions and uncertainty. \nJoin Dr. Lilyana Amezcua from USC for an accessible conversation about overlapping autoimmune diseases\, why multiple diagnoses can occur\, and how clinicians approach symptoms that may not fit neatly into a single diagnosis. \nWe’ll explore what it means to live with more than one condition\, how diagnoses are evaluated\, and what patients and caregivers can do to feel more informed and empowered in their care. \nJoin us live on Tuesday\, September 1 at 5 PM PT / 8 PM ET. \nhttps://us02web.zoom.us/webinar/register/WN_-yVXB-6QTsqIMV_NtnpOsg \nThose who attend live will have the opportunity to ask Dr. Amezcua their questions during a live Q&A. \nMade possible by support from Amgen.
URL:https://www.sumairafoundation.org/event/when-autoimmune-diseases-overlap-understanding-multiple-diagnoses/
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/08/Lilyana-Amezcua-4.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260805T173000
DTEND;TZID=America/New_York:20260805T183000
DTSTAMP:20260720T220140Z
CREATED:20260713T220550Z
LAST-MODIFIED:20260720T220140Z
UID:10000476-1785951000-1785954600@www.sumairafoundation.org
SUMMARY:MOGAD in LatAm
DESCRIPTION:¿Usted o un ser querido vive con MOGAD? \nLo invitamos a acompañarnos el 5 de agosto en un webinar especial con el Dr. Edgar Carnero Contentti\, del Hospital Alemán de Argentina\, quien compartirá las últimas novedades sobre el tratamiento del MOGAD. \nEl Dr. Contentti explicará cómo los resultados de un nuevo ensayo clínico podrían ayudar a los pacientes y sus familias a comprender mejor las futuras opciones terapéuticas para el MOGAD en América Latina. \nAdemás\, quienes se conecten en vivo tendrán la oportunidad de hacer sus preguntas al Dr. Contentti en tiempo real. \nEl webinar será moderado por Ernesto\, paciente con MOGAD y Embajador de TSF en México. \n¡Esperamos contar con su participación en esta conversación informativa e interactiva!
URL:https://www.sumairafoundation.org/event/mogad-en-latam/
LOCATION:Virtual: Global
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/07/Edgar-Carnero-Contentti-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260625T200000
DTEND;TZID=America/New_York:20260625T210000
DTSTAMP:20260610T145856Z
CREATED:20260508T200046Z
LAST-MODIFIED:20260610T145856Z
UID:10000459-1782417600-1782421200@www.sumairafoundation.org
SUMMARY:Understanding Step Therapy: How Insurance Decisions Shape Neuroimmune Treatment
DESCRIPTION:Understanding insurance coverage can be overwhelming\, especially when treatment decisions are impacted by policies like step therapy. Join us Thursday\, June 25 at 5:00 PM PT / 8:00 PM ET for an important conversation with Dr. Rosemarie Walch about how insurance requirements can influence access to care for people living with rare neuroimmune disorders. \nIn this webinar\, Understanding Step Therapy: How Insurance Decisions Shape Neuroimmune Treatment\, Dr. Walch will explain what step therapy is\, why it exists\, and how it can affect treatment timelines\, medication access\, and patient outcomes. Attendees will also learn practical strategies for navigating insurance barriers\, advocating for appropriate care\, and working with their healthcare teams throughout the process. \nThose who attend live will have the opportunity to ask questions during the session. \nMade possible with support from Amgen.
URL:https://www.sumairafoundation.org/event/understanding-step-therapy-how-insurance-decisions-shape-neuroimmune-treatment/
LOCATION:Virtual: Global
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/05/Rosemarie-Walch-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260617T170000
DTEND;TZID=America/New_York:20260617T180000
DTSTAMP:20260430T155142Z
CREATED:20260430T020951Z
LAST-MODIFIED:20260430T155142Z
UID:10000445-1781715600-1781719200@www.sumairafoundation.org
SUMMARY:CAR-T: What Does This Mean for Rare Neuroimmune Disorders?
DESCRIPTION:You’ve likely heard about CAR-T but do you know what it is and what it means for those living with rare neuroimmune disorders? \nJoin us on June 17th at 5:00 PM EST for an informative and patient-friendly webinar featuring Dr. Michael Levy and Dr. Marcela Maus\, experts from Massachusetts General Hospital/Harvard Medical School\, who will break down this complex treatment approach in a way that’s easy to understand. During this time\, our expert speakers will educate our live audience about what CAR-T is\, how it works and why researchers are hopeful about its potential in conditions like NMOSD\, MOGAD\, and beyond. \nWhether you’re newly diagnosed\, living with a condition\, or supporting a loved one\, this session is designed to empower you with knowledge\, clarity and hope for the future of this breakthrough treatment. \n\nAttendees who join live will also have the opportunity to ask questions directly to the experts during the Q&A portion. This webinar will be recorded and made available for replay on TSF’s YouTube channel. \nThis program was made possible with support from Amgen.
URL:https://www.sumairafoundation.org/event/webinar-car-t-what-does-this-mean-for-rare-neuroimmune-disorders/
LOCATION:Virtual: Global
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/04/Michael-Levy-Marcela-Maus.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260609T190000
DTEND;TZID=Europe/Rome:20260609T200000
DTSTAMP:20260519T123440Z
CREATED:20260519T123440Z
LAST-MODIFIED:20260519T123440Z
UID:10000461-1781031600-1781035200@www.sumairafoundation.org
SUMMARY:Risonanza magnetica e NMOSD: quando serve\, cosa può mostrare e perché è importante
DESCRIPTION:Unisciti a noi per un’importante discussione\, “Risonanza magnetica e NMOSD: quando è necessaria\, cosa può mostrare e perché è importante”\, con la partecipazione della Dott.ssa Rosanna Cortese\, neurologa e ricercatrice\, il 9 giugno alle ore 19:00 CET. https://us02web.zoom.us/webinar/register/WN_hBD6r4NWSP-8e6dLtPq2vA  \nLa risonanza magnetica (MRI) svolge un ruolo fondamentale nella diagnosi e nel monitoraggio dell’NMOSD\, ma molti pazienti e caregiver hanno ancora domande su quando sia necessaria\, cosa osservano i medici e in che modo le immagini influenzino le decisioni terapeutiche. In questo webinar\, la Dott.ssa Cortese spiegherà questi importanti argomenti in modo chiaro\, accessibile e facile da comprendere per pazienti\, caregiver e famiglie. \nGli argomenti includeranno: \n\n Quando viene utilizzata la risonanza magnetica nell’NMOSD\n Cosa possono mostrare le scansioni MRI del cervello\, dei nervi ottici e del midollo spinale\n Come i risultati della MRI aiutano a guidare diagnosi e trattamento\n Domande frequenti e falsi miti sulla diagnostica per immagini nell’NMOSD\n\nI partecipanti collegati in diretta avranno l’opportunità di porre domande durante una sessione interattiva di domande e risposte. \nChe tu abbia ricevuto una diagnosi da poco\, conviva con l’NMOSD da anni o stia supportando una persona cara\, questo webinar ha l’obiettivo di offrire alla comunità maggiore conoscenza e chiarezza su un aspetto importante della cura. \nQuesto programma è stato reso possibile grazie al supporto di Amgen e Alexion.
URL:https://www.sumairafoundation.org/event/risonanza-magnetica-e-nmosd-quando-serve-cosa-puo-mostrare-e-perche-e-importante/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/05/Rosa-Cortese.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260528T210000
DTEND;TZID=America/New_York:20260528T220000
DTSTAMP:20260506T171641Z
CREATED:20260504T220909Z
LAST-MODIFIED:20260506T171641Z
UID:10000458-1780002000-1780005600@www.sumairafoundation.org
SUMMARY:When to Call Your Neurologist & What to Say: Advice from a Neurologist
DESCRIPTION:Not sure your neurologist needs to hear from you? Or what to say when you reach out? You’re not alone. \nJoin us on Thursday\, May 28 at 6 PM PT / 9 PM ET for a practical\, patient-friendly webinar with Dr. Stacey Clardy\, a leading neurologist\, who will walk through when it’s important to contact your care team\, how to clearly communicate your symptoms\, and how to advocate for the care you deserve. \nWhether you’re newly diagnosed or have been managing your condition for years\, this session will offer guidance to help you feel more confident navigating conversations with your neurologist. \nThose who attend live will have the opportunity to ask questions. \nMade possible with support from Amgen.
URL:https://www.sumairafoundation.org/event/when-to-call-your-neurologist-what-to-say-advice-from-a-neurologist/
LOCATION:Virtual: Global
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/05/Stacey-Clardy.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260518T153000
DTEND;TZID=America/New_York:20260518T163000
DTSTAMP:20260424T195529Z
CREATED:20260424T195529Z
LAST-MODIFIED:20260424T195529Z
UID:10000442-1779118200-1779121800@www.sumairafoundation.org
SUMMARY:Managing Chronic Pain
DESCRIPTION:Living with chronic pain can feel overwhelming\, but you don’t have to face it alone. You’re invited to a webinar focused on navigating chronic pain with clarity\, support\, and hope. \nOn Monday\, May 18th at 3:30 PM EST\, we’ll be joined by Dr. Anastasia Vishnevetsky\, neuroimmunologist at Mass General Brigham/Harvard Medical School\, who will share practical strategies and insights to help individuals better understand and manage chronic pain in their daily lives. This session is designed with patients and caregivers in mind—offering approachable\, real-world guidance in a supportive and inclusive space. \nTogether\, we’ll explore ways to improve quality of life\, build resilience\, and feel more empowered in your care journey. Attendees who join live will have the opportunity to ask questions and engage directly during the session. \nWe hope you’ll join us for this meaningful conversation and take a step toward feeling more supported and informed. \nThis program is made possible with support from Amgen.
URL:https://www.sumairafoundation.org/event/managing-chronic-pain/
LOCATION:Virtual: Global
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2026/04/Anastasia-Vishnevetsky.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260127T203000
DTEND;TZID=Europe/Rome:20260127T213000
DTSTAMP:20260109T135048Z
CREATED:20260108T175644Z
LAST-MODIFIED:20260109T135048Z
UID:10000333-1769545800-1769549400@www.sumairafoundation.org
SUMMARY:La terapia cannabinoide: l'importanza dell'informazione e del controllo medico
DESCRIPTION:Unisciti a noi il 27 gennaio per un webinar speciale dedicato alla terapia con cannabinoidi come opzione terapeutica valida e sicura per le malattie croniche.  \nSarà con noi Elisabetta Biavati\, donna che convive con atassia cerebellare e sindrome di Arnold Chiari\, in terapia con cannabis medica dal 2016. Elisabetta è un’attivista per i diritti delle persone in trattamento con cannabinoidi ed è stata Presidente di Associazione Pazienti Cannabis Medica Aps. \nDurante il webinar\, Elisabetta condividerà la sua esperienza personale e fornirà informazioni fondamentali per i pazienti\, tra cui: \n\nla differenza tra uso ricreativo e uso terapeutico basato su evidenze scientifiche\ni farmaci a base di cannabis prescrivibili secondo il Decreto Lorenzin (Legge 119/2017)\nla copertura delle prescrizioni da parte del Servizio Sanitario Nazionale\nl’importanza della supervisione medica e le interazioni con altre sostanze\ni possibili effetti collaterali della terapia con cannabinoidi\nl’importanza della formazione dei medici\n\nPartecipa a questo approfondimento: i partecipanti in diretta potranno porre domande a Elisabetta in tempo reale. Il webinar sarà registrato e reso disponibile in replay. \nQuesto programma è reso possibile grazie al supporto di Amgen e Alexion.
URL:https://www.sumairafoundation.org/event/la-terapia-cannabinoide-limportanza-dellinformazione-e-del-controllo-medico/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/01/Veronique-Carrette.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240621T120000
DTEND;TZID=America/New_York:20240621T130000
DTSTAMP:20240618T163936Z
CREATED:20240603T171348Z
LAST-MODIFIED:20240618T163936Z
UID:10000200-1718971200-1718974800@www.sumairafoundation.org
SUMMARY:Approved NMOSD Therapies
DESCRIPTION:In 2014\, there were 0 FDA-approved therapies for patients living with neuromyelitis optica spectrum disorder (NMOSD). In 2024\, there are 4 efficacious\, FDA-approved therapies available for patients living with NMOSD. \nYou’re invited to “Approved NMOSD Therapies” a live webinar during which Dr. Sean Pittock* of the Mayo Clinic will provide overviews (pharmacology\, drug delivery method\, dosing\, frequency\, side effects\, reduction in relapse rates\, antibody criteria\, etc.) of each approved therapy. \nWe invite patients\, caregivers\, clinicians\, researchers\, advocates\, industry professionals or anyone interested in NMOSD to join this educational program. Live attendees will have the opportunity to ask Dr. Pittock questions in real time. \nThis webinar will be recorded and made available for replay on TSF’s YouTube channel and global website. \n*Sean J. Pittock\, M.D.\nConsultant\, Department of Neurology\nProfessor of Neurology\nMarilyn A Park and Moon S. Park\, M.D. Director of the Mayo Clinic’s Center for Multiple Sclerosis and Autoimmune Neurology\,\nApplebaum Family Professor of Neurosciences
URL:https://www.sumairafoundation.org/event/approved-nmosd-therapies/
LOCATION:Virtual: Global
CATEGORIES:TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/06/Sean-Pittock-3.png
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BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20240527T140000
DTEND;TZID=Europe/Paris:20240527T150000
DTSTAMP:20240524T143519Z
CREATED:20240524T143519Z
LAST-MODIFIED:20240524T143519Z
UID:10000199-1716818400-1716822000@www.sumairafoundation.org
SUMMARY:Démarches administratives et handicap
DESCRIPTION:Nous vous invitons à rejoindre notre prochain webinaire le lundi 27 mai à 14h00 CET avec Marie Delenne\, Patiente Experte Sclérose en Plaques et ancienne Inspectrice du Travail. \nDémarches administratives quand on est en situation de handicap\, quelle galère ! Travail\, Sécu\, MDPH\, RQTH\, Retraite ! \nVenez en parler avec nous et recevoir les conseils de notre Experte qui aide depuis des années des Patients comme vous. \nCe programme est rendu possible grâce au soutien d’Alexion.
URL:https://www.sumairafoundation.org/event/demarches-administratives-et-handicap/
LOCATION:Virtual: France\, France
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/05/Marie-Delenne.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240420T110000
DTEND;TZID=America/New_York:20240420T120000
DTSTAMP:20240325T192208Z
CREATED:20240325T192208Z
LAST-MODIFIED:20240325T192208Z
UID:10000179-1713610800-1713614400@www.sumairafoundation.org
SUMMARY:Let's Talk About Cannabis: 4/20 Edition
DESCRIPTION:Are you curious to learn about the use of medical marijuana to help manage your symptoms? \nYou’re invited to TSF’s upcoming webinar – “Let’s Talk About Cannabis: 4/20 Edition” – on Saturday\, April 20th at 11 AM EST / 5 PM CET featuring Dr. Aaron Boster\, neurologist & MS specialist. \nThis educational webinar invites patients\, caregivers\, clinicians\, researchers\, advocates and/or anyone interested in learning about medical marijuana in the setting of neurological conditions. \nLive attendees will have the opportunity to ask Dr. Boster questions in real time. This is a safe space and a zero-judgment zone! \nThis webinar will be recorded and made available for replay on TSF’s YouTube channel and global website.
URL:https://www.sumairafoundation.org/event/lets-talk-about-cannabis-4-20-edition/
LOCATION:Virtual: United States\, United States
CATEGORIES:TSF Programming,TSF Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2024/03/1967cdd6-d6ad-4c35-8332-8b9725596873.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20231228T200000
DTEND;TZID=Europe/Paris:20231228T210000
DTSTAMP:20231222T130445Z
CREATED:20231222T130445Z
LAST-MODIFIED:20231222T130445Z
UID:10000145-1703793600-1703797200@www.sumairafoundation.org
SUMMARY:Webinaire: Parler de la maladie à son entourage
DESCRIPTION:Comment parler de la maladie à son entourage? \nRejoignez TSF France pour son dernier webinaire de l’année le 28 décembre avec Emilie Leta\, Psychologue diplômée d’état. \nCe programme d’éducation des patients est rendu possible grâce au soutien d’Alexion Therapeutics.
URL:https://www.sumairafoundation.org/event/webinaire-parler-de-la-maladie-a-son-entourage/
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/12/emilie-LETA-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20230727T170000
DTEND;TZID=Europe/Rome:20230727T180000
DTSTAMP:20230709T160555Z
CREATED:20230709T160555Z
LAST-MODIFIED:20230709T160555Z
UID:10000106-1690477200-1690480800@www.sumairafoundation.org
SUMMARY:NMOSD Sieronegativa
DESCRIPTION:Partecipa al nostro prossimo Webinar dal titolo: NMOSD sieronegativa – giovedì 27 luglio alle 17.00 con la dr. Elia Sechi\, neurologo presso l’Università degli Studi di Sassari. \nChi parteciperà di persona potrà porre le proprie domande alla dr. Sechi. Il webinar verrà registrato e lo troverete sul canale YouTube della Sumaira Foundation (TSF)\, su Facebook e tra i video del sito TSF. \nL’evento è supportato da Horizon Therapeutics.
URL:https://www.sumairafoundation.org/event/nmosd-sieronegativa/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/07/Elia-Sechi.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20230627T170000
DTEND;TZID=Europe/Rome:20230627T180000
DTSTAMP:20230601T150637Z
CREATED:20230601T144505Z
LAST-MODIFIED:20230601T150637Z
UID:10000103-1687885200-1687888800@www.sumairafoundation.org
SUMMARY:Trial clinici per i pazienti con MOGAD ed importanza della partecipazione dei pazienti
DESCRIPTION:Partecipa al nostro prossimo Webinar dal titolo: MOGAD: importanza della partecipazione dei pazienti ai trial clinici – martedì 27 giugno alle 17.00 con la dr.ssa Sara Mariotto\, neurologa presso l’Università di Verona. \nLa dr.ssa Mariotto presenterà le ultime novità in merito ai trial clinici in corso in Italia per i pazienti con MOGAD. Discuteremo l’importanza della partecipazione dei pazienti alla ricerca clinica e la strategia di sviluppo di nuove terapie. \nChi parteciperà di persona potrà porre le proprie domande alla dr. ssa Mariotto. Il webinar verrà registrato e lo troverete sul canale YouTube della Sumaira Foundation (TSF)\, su Facebook e tra i video del sito TSF. \nL’evento è supportato da UCB.
URL:https://www.sumairafoundation.org/event/trial-clinici-per-i-pazienti-con-mogad-ed-importanza-della-partecipazione-dei-pazienti/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:TSF Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2023/06/ITALIAN.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20230425T200000
DTEND;TZID=Europe/Paris:20230425T213000
DTSTAMP:20230414T153146Z
CREATED:20230414T153146Z
LAST-MODIFIED:20230414T153146Z
UID:10000088-1682452800-1682458200@www.sumairafoundation.org
SUMMARY:MOGAD : l'importance de la participation des patients aux essais cliniques
DESCRIPTION:Venez participer à notre prochain webinaire – MOGAD : l’importance de la participation des patients aux essais cliniques – le mardi 25 avril à 20 heures avec le docteur Romain Marignier\, professeur de neurologie et responsable du centre MIRCEM de Lyon. \nIl partagera avec nous les dernières actualités sur les essais cliniques en cours pour les patients vivant avec la MOGAD en direct de l’American Academy of Neurology. Nous discuterons avec lui de l’importance de la participation des patients à la recherche clinique et aux essais de nouvelles thérapies. \nVous pourrez poser des questions au Pr Marignier en direct.\nCe webinaire sera enregistré et pourra être retrouvé sur la chaîne YouTube de The Sumaira Foundation\, la bibliothèque Facebook et la galerie multimédia du site web de TSF. \nCe webinaire est rendu possible grâce au soutien institutionnel du laboratoire UCB.
URL:https://www.sumairafoundation.org/event/mogad-limportance-de-la-participation-des-patients-aux-essais-cliniques/
LOCATION:Virtual: France\, France
CATEGORIES:TSF France,TSF Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2023/04/unnamed.jpg
END:VEVENT
END:VCALENDAR