BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//The Sumaira Foundation - ECPv6.15.17.1//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:The Sumaira Foundation
X-ORIGINAL-URL:https://www.sumairafoundation.org
X-WR-CALDESC:Events for The Sumaira Foundation
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:Europe/Rome
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20220327T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20221030T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20230326T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20231029T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20240331T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20241027T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20250330T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20251026T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20260329T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20261025T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20270328T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20271031T010000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20230312T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20231105T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20240310T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20241103T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:Europe/Paris
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20220327T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20221030T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20230326T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20231029T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20240331T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20241027T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20250330T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20251026T010000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260127T203000
DTEND;TZID=Europe/Rome:20260127T213000
DTSTAMP:20260430T132452
CREATED:20260108T175644Z
LAST-MODIFIED:20260109T135048Z
UID:21028-1769545800-1769549400@www.sumairafoundation.org
SUMMARY:La terapia cannabinoide: l'importanza dell'informazione e del controllo medico
DESCRIPTION:Unisciti a noi il 27 gennaio per un webinar speciale dedicato alla terapia con cannabinoidi come opzione terapeutica valida e sicura per le malattie croniche.  \nSarà con noi Elisabetta Biavati\, donna che convive con atassia cerebellare e sindrome di Arnold Chiari\, in terapia con cannabis medica dal 2016. Elisabetta è un’attivista per i diritti delle persone in trattamento con cannabinoidi ed è stata Presidente di Associazione Pazienti Cannabis Medica Aps. \nDurante il webinar\, Elisabetta condividerà la sua esperienza personale e fornirà informazioni fondamentali per i pazienti\, tra cui: \n\nla differenza tra uso ricreativo e uso terapeutico basato su evidenze scientifiche\ni farmaci a base di cannabis prescrivibili secondo il Decreto Lorenzin (Legge 119/2017)\nla copertura delle prescrizioni da parte del Servizio Sanitario Nazionale\nl’importanza della supervisione medica e le interazioni con altre sostanze\ni possibili effetti collaterali della terapia con cannabinoidi\nl’importanza della formazione dei medici\n\nPartecipa a questo approfondimento: i partecipanti in diretta potranno porre domande a Elisabetta in tempo reale. Il webinar sarà registrato e reso disponibile in replay. \nQuesto programma è reso possibile grazie al supporto di Amgen e Alexion.
URL:https://www.sumairafoundation.org/event/la-terapia-cannabinoide-limportanza-dellinformazione-e-del-controllo-medico/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/01/Veronique-Carrette.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240621T120000
DTEND;TZID=America/New_York:20240621T130000
DTSTAMP:20260430T132452
CREATED:20240603T171348Z
LAST-MODIFIED:20240618T163936Z
UID:17199-1718971200-1718974800@www.sumairafoundation.org
SUMMARY:Approved NMOSD Therapies
DESCRIPTION:In 2014\, there were 0 FDA-approved therapies for patients living with neuromyelitis optica spectrum disorder (NMOSD). In 2024\, there are 4 efficacious\, FDA-approved therapies available for patients living with NMOSD. \nYou’re invited to “Approved NMOSD Therapies” a live webinar during which Dr. Sean Pittock* of the Mayo Clinic will provide overviews (pharmacology\, drug delivery method\, dosing\, frequency\, side effects\, reduction in relapse rates\, antibody criteria\, etc.) of each approved therapy. \nWe invite patients\, caregivers\, clinicians\, researchers\, advocates\, industry professionals or anyone interested in NMOSD to join this educational program. Live attendees will have the opportunity to ask Dr. Pittock questions in real time. \nThis webinar will be recorded and made available for replay on TSF’s YouTube channel and global website. \n*Sean J. Pittock\, M.D.\nConsultant\, Department of Neurology\nProfessor of Neurology\nMarilyn A Park and Moon S. Park\, M.D. Director of the Mayo Clinic’s Center for Multiple Sclerosis and Autoimmune Neurology\,\nApplebaum Family Professor of Neurosciences
URL:https://www.sumairafoundation.org/event/approved-nmosd-therapies/
LOCATION:Virtual: Global
CATEGORIES:TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/06/Sean-Pittock-3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20240527T140000
DTEND;TZID=Europe/Paris:20240527T150000
DTSTAMP:20260430T132452
CREATED:20240524T143519Z
LAST-MODIFIED:20240524T143519Z
UID:16941-1716818400-1716822000@www.sumairafoundation.org
SUMMARY:Démarches administratives et handicap
DESCRIPTION:Nous vous invitons à rejoindre notre prochain webinaire le lundi 27 mai à 14h00 CET avec Marie Delenne\, Patiente Experte Sclérose en Plaques et ancienne Inspectrice du Travail. \nDémarches administratives quand on est en situation de handicap\, quelle galère ! Travail\, Sécu\, MDPH\, RQTH\, Retraite ! \nVenez en parler avec nous et recevoir les conseils de notre Experte qui aide depuis des années des Patients comme vous. \nCe programme est rendu possible grâce au soutien d’Alexion.
URL:https://www.sumairafoundation.org/event/demarches-administratives-et-handicap/
LOCATION:Virtual: France\, France
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/05/Marie-Delenne.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240420T110000
DTEND;TZID=America/New_York:20240420T120000
DTSTAMP:20260430T132452
CREATED:20240325T192208Z
LAST-MODIFIED:20240325T192208Z
UID:16484-1713610800-1713614400@www.sumairafoundation.org
SUMMARY:Let's Talk About Cannabis: 4/20 Edition
DESCRIPTION:Are you curious to learn about the use of medical marijuana to help manage your symptoms? \nYou’re invited to TSF’s upcoming webinar – “Let’s Talk About Cannabis: 4/20 Edition” – on Saturday\, April 20th at 11 AM EST / 5 PM CET featuring Dr. Aaron Boster\, neurologist & MS specialist. \nThis educational webinar invites patients\, caregivers\, clinicians\, researchers\, advocates and/or anyone interested in learning about medical marijuana in the setting of neurological conditions. \nLive attendees will have the opportunity to ask Dr. Boster questions in real time. This is a safe space and a zero-judgment zone! \nThis webinar will be recorded and made available for replay on TSF’s YouTube channel and global website.
URL:https://www.sumairafoundation.org/event/lets-talk-about-cannabis-4-20-edition/
LOCATION:Virtual: United States\, United States
CATEGORIES:TSF Programming,TSF Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2024/03/1967cdd6-d6ad-4c35-8332-8b9725596873.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20231228T200000
DTEND;TZID=Europe/Paris:20231228T210000
DTSTAMP:20260430T132452
CREATED:20231222T130445Z
LAST-MODIFIED:20231222T130445Z
UID:15716-1703793600-1703797200@www.sumairafoundation.org
SUMMARY:Webinaire: Parler de la maladie à son entourage
DESCRIPTION:Comment parler de la maladie à son entourage? \nRejoignez TSF France pour son dernier webinaire de l’année le 28 décembre avec Emilie Leta\, Psychologue diplômée d’état. \nCe programme d’éducation des patients est rendu possible grâce au soutien d’Alexion Therapeutics.
URL:https://www.sumairafoundation.org/event/webinaire-parler-de-la-maladie-a-son-entourage/
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/12/emilie-LETA-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20230727T170000
DTEND;TZID=Europe/Rome:20230727T180000
DTSTAMP:20260430T132452
CREATED:20230709T160555Z
LAST-MODIFIED:20230709T160555Z
UID:14080-1690477200-1690480800@www.sumairafoundation.org
SUMMARY:NMOSD Sieronegativa
DESCRIPTION:Partecipa al nostro prossimo Webinar dal titolo: NMOSD sieronegativa – giovedì 27 luglio alle 17.00 con la dr. Elia Sechi\, neurologo presso l’Università degli Studi di Sassari. \nChi parteciperà di persona potrà porre le proprie domande alla dr. Sechi. Il webinar verrà registrato e lo troverete sul canale YouTube della Sumaira Foundation (TSF)\, su Facebook e tra i video del sito TSF. \nL’evento è supportato da Horizon Therapeutics.
URL:https://www.sumairafoundation.org/event/nmosd-sieronegativa/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/07/Elia-Sechi.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20230627T170000
DTEND;TZID=Europe/Rome:20230627T180000
DTSTAMP:20260430T132452
CREATED:20230601T144505Z
LAST-MODIFIED:20230601T150637Z
UID:13834-1687885200-1687888800@www.sumairafoundation.org
SUMMARY:Trial clinici per i pazienti con MOGAD ed importanza della partecipazione dei pazienti
DESCRIPTION:Partecipa al nostro prossimo Webinar dal titolo: MOGAD: importanza della partecipazione dei pazienti ai trial clinici – martedì 27 giugno alle 17.00 con la dr.ssa Sara Mariotto\, neurologa presso l’Università di Verona. \nLa dr.ssa Mariotto presenterà le ultime novità in merito ai trial clinici in corso in Italia per i pazienti con MOGAD. Discuteremo l’importanza della partecipazione dei pazienti alla ricerca clinica e la strategia di sviluppo di nuove terapie. \nChi parteciperà di persona potrà porre le proprie domande alla dr. ssa Mariotto. Il webinar verrà registrato e lo troverete sul canale YouTube della Sumaira Foundation (TSF)\, su Facebook e tra i video del sito TSF. \nL’evento è supportato da UCB.
URL:https://www.sumairafoundation.org/event/trial-clinici-per-i-pazienti-con-mogad-ed-importanza-della-partecipazione-dei-pazienti/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:TSF Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2023/06/ITALIAN.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20230425T200000
DTEND;TZID=Europe/Paris:20230425T213000
DTSTAMP:20260430T132452
CREATED:20230414T153146Z
LAST-MODIFIED:20230414T153146Z
UID:13587-1682452800-1682458200@www.sumairafoundation.org
SUMMARY:MOGAD : l'importance de la participation des patients aux essais cliniques
DESCRIPTION:Venez participer à notre prochain webinaire – MOGAD : l’importance de la participation des patients aux essais cliniques – le mardi 25 avril à 20 heures avec le docteur Romain Marignier\, professeur de neurologie et responsable du centre MIRCEM de Lyon. \nIl partagera avec nous les dernières actualités sur les essais cliniques en cours pour les patients vivant avec la MOGAD en direct de l’American Academy of Neurology. Nous discuterons avec lui de l’importance de la participation des patients à la recherche clinique et aux essais de nouvelles thérapies. \nVous pourrez poser des questions au Pr Marignier en direct.\nCe webinaire sera enregistré et pourra être retrouvé sur la chaîne YouTube de The Sumaira Foundation\, la bibliothèque Facebook et la galerie multimédia du site web de TSF. \nCe webinaire est rendu possible grâce au soutien institutionnel du laboratoire UCB.
URL:https://www.sumairafoundation.org/event/mogad-limportance-de-la-participation-des-patients-aux-essais-cliniques/
LOCATION:Virtual: France\, France
CATEGORIES:TSF France,TSF Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2023/04/unnamed.jpg
END:VEVENT
END:VCALENDAR