The Sumaira Foundation

Coaching Klatch: How to Keep Medical Information Organized & Be Your Best Advocate in Healthcare
2023-10-14 10:00 - 11:00 (America/New_York) | Virtual: United States, United States
“Coaching Klatch: Moving You Forward” is a 3-part program designed to bring patients and caregivers together in a supportive community to:

learn & apply coaching concepts
acquire tools to strengthen self-advocacy
Enhance quality of day-to-day lived experiences
move forward in your life despite living with a rare disease

Led by Dr. Maggie Kang*, this 3-part coaching program is virtual and free of charge to patients and caregivers, no matter where in the world you are or what your diagnosis is!

Join us for our upcoming sessions:

Session 1 | “Pain vs. Suffering” – Saturday, August 5th at 10 AM EST / 4 PM CET / 7:30 PM IST
Session 2 | “A New Way to Think About Change” – Saturday, September 9th at 10 AM EST / 4 PM CET / 7:30 PM IST
Session 3 | “How to Keep Medical Information Organized & Be Your Best Advocate in Healthcare” – Saturday, October 14th at 10 AM EST / 4 PM CET / 7:30 PM IST

To register, visit https://tinyurl.com/TSFCoachingKlatch

*Dr. Maggie Kang is a life coach, speaker, rare disease advocate and physician. Dr. Kang became an advocate for rare diseases after her then 9-year old daughter was diagnosed with neuromyelitis optica spectrum disorder (NMOSD) in 2018.

TSF's Human Collective Project Meetings
2023-10-26 20:00 - 21:00, 2023-11-09 20:00 - 21:00, 2023-11-23 20:00 - 21:00, 2023-12-07 20:00 - 21:00, 2023-12-21 20:00 - 21:00, 2024-02-15 20:00 - 21:00, 2024-03-14 20:00 - 21:00, 2024-04-11 20:00 - 21:00 (America/New_York) and 4 more dates | Virtual: United States, United States
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
Since 2020, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh, cry, vent, share wins, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.

HCP South Africa
2023-10-31 18:00 - 19:00, 2023-11-28 18:00 - 19:00, 2024-02-27 18:00 - 19:00, 2024-04-02 18:00 - 19:00 (Africa/Johannesburg) | Virtual: South Africa, South Africa
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.

TSF Plauderstunde | HCP Germany
2023-11-08 19:30 - 20:30, 2024-02-14 19:30 - 20:30, 2024-03-13 19:30 - 20:30, 2024-04-10 19:30 - 20:30, 2024-08-14 19:30 - 20:30, 2024-09-11 19:30 - 20:30 (Europe/Amsterdam) | Virtual: Germany, Germany
The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
Since launching in 2020, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh, cry, vent, share wins, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world.

TSF's Human Collective Project Meetings | Cannabis
2024-01-04 20:00 - 21:00 (America/New_York) | Virtual: United States, United States
We’re excited to kick off 2024 with a conversation that is of growing importance but a topic many people shy away from discussing publicly… CANNABIS!
Join Sumaira on Thursday, January 4th at 8PM EST for an open and honest discussion about the use of medical cannabis in the setting of rare diseases.
This is a judgment-free safe space where we will learn from each others’ experiences. We invite patients, caregivers, clinicians and researchers to join this important conversation.

TSF’s Human Collective Project | Danmark
2024-02-07 19:00 - 20:00, 2024-03-06 19:00 - 20:00, 2024-04-03 19:00 - 20:00 (Europe/Amsterdam) | Virtual: Danmark, Denmark

Let's Talk About Cannabis: 4/20 Edition
2024-04-20 11:00 - 12:00 (America/New_York) | Virtual: United States, United States
Are you curious to learn about the use of medical marijuana to help manage your symptoms?
You’re invited to TSF’s upcoming webinar – “Let’s Talk About Cannabis: 4/20 Edition” – on Saturday, April 20th at 11 AM EST / 5 PM CET featuring Dr. Aaron Boster, neurologist & MS specialist.
This educational webinar invites patients, caregivers, clinicians, researchers, advocates and/or anyone interested in learning about medical marijuana in the setting of neurological conditions.
Live attendees will have the opportunity to ask Dr. Boster questions in real time. This is a safe space and a zero-judgment zone!
This webinar will be recorded and made available for replay on TSF’s YouTube channel and global website.

PREMIÈRE MONDIALE | La vie c’est tout de suite
2024-04-30 19:00 - 20:00 (Europe/Paris) | Virtual: France, France
Nelly, la quarantaine, vit près de Beauvais en France. Cette professeure en milieu carcéral est une personne très active avec de nombreux amis et passe-temps. Malgré des années d’incertitude jusqu’à ce qu’elle reçoive enfin un diagnostic (MOGAD), elle n’a jamais laissé ses symptômes, pourtant graves, lui ôter sa joie de vivre.
Après 2 ans de travail, nous avons l’honneur de vous inviter à la première mondiale de “La vie, c’est tout suite,” l’histoire de Nelly Campos qui aura lieu le mardi 30 avril à 19h00. (heure de Paris) sur ce lien https://tinyurl.com/TSFNelly

TSF Plauderstunde (HCP) | Deutsch
2024-05-15 19:30 - 20:30 (Europe/Amsterdam) | Virtual: Germany, Germany
