The Sumaira Foundation

Coaching Klatch: Pain vs. Suffering
2023-08-05 10:00 - 11:00 (America/New_York) | Virtual: United States, United States
“Coaching Klatch: Moving You Forward” is a 3-part program designed to bring patients and caregivers together in a supportive community to:

learn & apply coaching concepts
acquire tools to strengthen self-advocacy
Enhance quality of day-to-day lived experiences
move forward in your life despite living with a rare disease

Led by Dr. Maggie Kang*, this 3-part coaching program is virtual and free of charge to patients and caregivers, no matter where in the world you are or what your diagnosis is!

Join us for our upcoming sessions:

Session 1 | “Pain vs. Suffering” – Saturday, August 5th at 10 AM EST / 4 PM CET / 7:30 PM IST
Session 2 | “A New Way to Think About Change” – Saturday, September 9th at 10 AM EST / 4 PM CET / 7:30 PM IST
Session 3 | “How to Keep Medical Information Organized & Be Your Best Advocate in Healthcare” – Saturday, October 14th at 10 AM EST / 4 PM CET / 7:30 PM IST

To register, visit https://tinyurl.com/TSFCoachingKlatch

*Dr. Maggie Kang is a life coach, speaker, rare disease advocate and physician. Dr. Kang became an advocate for rare diseases after her then 9-year old daughter was diagnosed with neuromyelitis optica spectrum disorder (NMOSD) in 2018.

TSF’s Human Collective Project | Danmark
2023-08-17 19:00 - 20:00, 2023-09-20 19:00 - 20:00, 2024-02-07 19:00 - 20:00, 2024-03-06 19:00 - 20:00 (Europe/Amsterdam) | Virtual: Danmark, Denmark
The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
Since launching in 2020, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh, cry, vent, share wins, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world.

TSF's Human Collective Project Meetings
2023-08-17 20:00 - 21:00, 2023-08-31 20:00 - 21:00, 2023-09-14 20:00 - 21:00, 2023-09-28 20:00 - 21:00, 2023-10-12 20:00 - 21:00, 2023-10-26 20:00 - 21:00, 2023-11-09 20:00 - 21:00, 2023-11-23 20:00 - 21:00 (America/New_York) and 4 more dates | Virtual: United States, United States
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
Since 2020, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh, cry, vent, share wins, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.

Cómo Elegimos el Tratamiento de NMOSD en LATAM Considerando el Acceso de los Pacientes
2023-08-25 16:00 - 17:00 (America/Mexico_City)
Está invitado a asistir a la videoconferencia “Cómo Elegimos el Tratamiento de NMOSD en LATAM Considerando el Acceso de los Pacientes” el viernes 25 de agosto a las 7:00 pm hora Argentina // 4:00 pm hora central México, con el Dr. Edgar Carnero Contentti, Neurólogo, Profesor de Neurología de la Universidad de Buenos Aires, Unidad de Neuroinmunología, Departamento de Neurociencias, Hospital Alemán, Buenos Aires, Argentina.
Los asistentes conectados a la videoconferencia tendrán la oportunidad de hacer preguntas en vivo al Dr. Carnero Contentti. Esta conferencia web se grabará y estará disponible para su reproducción, tanto en la biblioteca multimedia, como en el canal de YouTube de The Sumaira Foundation.
Este evento educativo es posible gracias a una subvención para la educación del paciente de Horizon Therapeutics.

HCP South Africa
2023-08-29 18:00 - 19:00, 2023-09-26 18:00 - 19:00, 2023-10-31 18:00 - 19:00, 2023-11-28 18:00 - 19:00, 2024-02-27 18:00 - 19:00, 2024-04-02 18:00 - 19:00 (Africa/Johannesburg) | Virtual: South Africa, South Africa
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.

Coaching Klatch: A New Way to Think About Change
2023-09-09 10:00 - 11:00 (America/New_York) | Virtual: United States, United States

Coaching Klatch: How to Keep Medical Information Organized & Be Your Best Advocate in Healthcare
2023-10-14 10:00 - 11:00 (America/New_York) | Virtual: United States, United States

TSF Plauderstunde | HCP Germany
2023-11-08 19:30 - 20:30, 2024-02-14 19:30 - 20:30, 2024-03-13 19:30 - 20:30 (Europe/Amsterdam) | Virtual: Germany, Germany

TSF's Human Collective Project Meetings | Cannabis
2024-01-04 20:00 - 21:00 (America/New_York) | Virtual: United States, United States
We’re excited to kick off 2024 with a conversation that is of growing importance but a topic many people shy away from discussing publicly… CANNABIS!
Join Sumaira on Thursday, January 4th at 8PM EST for an open and honest discussion about the use of medical cannabis in the setting of rare diseases.
This is a judgment-free safe space where we will learn from each others’ experiences. We invite patients, caregivers, clinicians and researchers to join this important conversation.
