BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//The Sumaira Foundation - ECPv6.17.2//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-ORIGINAL-URL:https://www.sumairafoundation.org
X-WR-CALDESC:Events for The Sumaira Foundation
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20260308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20261101T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20270314T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20271107T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260913T090000
DTEND;TZID=America/New_York:20260913T120000
DTSTAMP:20260706T184839Z
CREATED:20260706T184509Z
LAST-MODIFIED:20260706T184839Z
UID:22788-1789290000-1789300800@www.sumairafoundation.org
SUMMARY:TSF 5K For Rare Neuroimmune Disorders
DESCRIPTION:Turning Miles into Medical Progress – Join us on September 13th for TSF’s 2nd 5K to raise money for research! \nLast year’s inaugural 5K helped fund a groundbreaking AI-powered diagnostic initiative with the potential to transform how rare neuroimmune diseases are identified around the world. \nUsing only a smartphone image\, this technology is being developed to rapidly and accurately analyze diagnostic testing\, helping clinicians detect rare neuroimmune conditions earlier – especially in underserved regions where access to specialized care and testing is limited. Earlier diagnosis can lead to faster treatment\, better outcomes and a greater chance of preventing permanent disability\, vision loss and disease progression. \nWhat started as a community race is now helping drive a global solution that could expand access to life-changing care for patients everywhere. By participating in this year’s 5K\, you are not just supporting awareness; you are directly fueling innovation\, earlier diagnosis and hope for the rare disease community worldwide. \nThis is a family-friendly event – all are welcome (including doggos!) https://runsignup.com/Race/MA/Weston/TSF5KForRareNeuroimmuneDisorders \n\nThis event is being organized by Terry Clark\, NMOSD patient and TSF Ambassador of MA: “As many of you may know\, four years ago\, May 2022\, I was diagnosed with a rare autoimmune disease called NMO. This 5k has been something I’ve wanted to do for awhile so I’m excited to continue organizing this annual race.”
URL:https://www.sumairafoundation.org/event/tsf-5k-forr-are-neuroimmune-disorders/
LOCATION:Weston Town Hall\, 11 Town House Rd\, Weston\, 02493\, United States
CATEGORIES:Community Event,TSF Events/Fundraisers
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/07/TSF-5K-2026.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261020T173000
DTEND;TZID=America/New_York:20261021T220000
DTSTAMP:20260803T114531Z
CREATED:20260803T114531Z
LAST-MODIFIED:20260803T114531Z
UID:23092-1792517400-1792620000@www.sumairafoundation.org
SUMMARY:TSF x IPMSSG's Research Update & Networking Evening
DESCRIPTION:Join TSF and IPMSSG on October 20\, 2026\, on the 22nd floor of the SickKids Patient Support Centre for an exclusive evening connecting global leaders in neuroimmunology. Enjoy an inspiring setting above Toronto’s skyline while engaging in meaningful conversations\, collaboration and networking. \nThis special event will feature simultaneous research update sessions focused on adult and pediatric neuroimmunology\, presented by internationally recognized experts. Following the presentations\, attendees will enjoy time to socialize while enjoying a gorgeous view of Toronto. \nCapacity is limited\, and advance registration is required. Food and beverages will be served. https://www.eventbrite.com/e/tsf-x-ipmssgs-research-update-networking-evening-tickets-1994679754842 \n— \nA note about the program format: The adult and pediatric neuroimmunology research updates will run concurrently\, allowing attendees to participate in the session most relevant to their area of interest. Throughout the evening\, both communities will come together during refreshment breaks and the networking reception to foster collaboration\, exchange ideas\, and build connections across the global neuroimmunology community. \nThe Sumaira Foundation’s Research Update & Award Ceremony\nJoin internationally recognized experts for an engaging update on the latest advances in rare neuroimmunology\, including diagnostics\, clinical trials\, patient registries\, industry innovations and global neurology initiatives. We’ll also hear from ECTRIMS-MEDEN Fellows as they present updates on their research projects and emerging work in the field. The program will conclude with the presentation of TSF’s 2026 Global Rare Trailblazer Award\, recognizing an individual whose exceptional contributions have advanced research\, advocacy and care for the rare neuroimmune disease community. \nIPMSSG’s Research Update\nJoin members of the IPMSSG for an interactive session highlighting the latest advances in pediatric neuroimmunology. The program will feature updates from ongoing research studies\, presentation and discussion of survey results introduced at the IPMSSG 2025 Meeting\, and collaborative conversations on future research priorities and goals. Attendees will also have the opportunity to learn about recruitment for new IPMSSG Steering Committee members and contribute to discussions on the future of a stand-alone IPMSSG meeting.
URL:https://www.sumairafoundation.org/event/tsf-x-ipmssgs-research-update-networking-evening/
CATEGORIES:TSF Events/Fundraisers
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/08/2026-TSF-Research-Update.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261021T190000
DTEND;TZID=America/New_York:20261021T210000
DTSTAMP:20260803T115546Z
CREATED:20260803T115546Z
LAST-MODIFIED:20260803T115546Z
UID:23095-1792609200-1792616400@www.sumairafoundation.org
SUMMARY:NMOSD & MOGAD: Global Challenges
DESCRIPTION:Are you a clinician\, researcher\, fellow\, resident or trainee interested in NMOSD\, MOGAD and related neuroimmunological disorders? \n\n\nJoin us for an evening of discussion\, mentorship and networking with leading experts from around the world. Held alongside MSToronto 2026\, this special event will bring together clinicians\, researchers\, trainees and patient advocacy leaders to explore the challenges and opportunities shaping the future of rare neuroimmunology. \nThe evening will begin with a moderated fireside discussion: \nOvercoming Global Challenges in NMOSD and MOGAD Care and Research \nThe conversation will explore emerging therapeutic strategies\, global disparities in diagnosis and treatment\, collaborative research priorities and mentorship for the next generation of neuroimmunology professionals. \nFeatured Speakers\n\nDr. Jacqueline Palace (University of Oxford\, UK)\nDr. Sara Mariotto (University of Verona\, Italy)\nDr. Kazuo Fujihara (Fukushima Medical University\, Japan)\n\nModerator \n\nDr. Dalia Rotstein (University of Toronto\, Canada)\n\nFollowing the discussion\, guests are invited to stay for an informal networking reception designed to foster mentorship\, collaboration and meaningful connections among clinicians\, researchers\, fellows\, residents and trainees working in NMOSD\, MOGAD and related demyelinating disorders. \nThis event offers a unique opportunity to engage with colleagues from across the globe\, exchange ideas\, and strengthen partnerships between academia\, clinical practice\, research and patient advocacy. \nOrganized by\n\nDr. Courtney Casserly (Western University)\nDr. Jonathan Krett (University of Calgary)\nDr. Dalia Rotstein (University of Toronto)\n\nIn partnership with The Sumaira Foundation. \nPresented by\nThe University of Calgary\, The Sumaira Foundation\, University of Toronto\, and Western University. \nPlease note: This independent event is not included in the MSToronto2026 accredited program.
URL:https://www.sumairafoundation.org/event/nmosd-mogad-global-challenges/
CATEGORIES:TSF Events/Fundraisers
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/08/NO-REGISTRATION-INFO.png
END:VEVENT
END:VCALENDAR