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X-ORIGINAL-URL:https://www.sumairafoundation.org
X-WR-CALDESC:Events for The Sumaira Foundation
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260226T190000
DTEND;TZID=America/New_York:20260226T200000
DTSTAMP:20260514T142216
CREATED:20260128T190035Z
LAST-MODIFIED:20260128T190035Z
UID:21174-1772132400-1772136000@www.sumairafoundation.org
SUMMARY:Meet the Author | Jayne Mattingly\, "This is Body Grief"
DESCRIPTION:In honor of Rare Disease Day 2026\, join us for a special Meet the Author fireside chat on February 26th at 7:00 PM EST. \nWe’re honored to welcome Jayne Mattingly\, author of “This is Body Grief”\, in conversation with Taylor Ann Macey\, NMOSD patient and TSF Ambassador. Their discussion will explore chronic illness\, advocacy and Jayne’s powerful book – an intimate\, lyrical reflection on living in a body shaped by illness\, grief\, resilience and care. \nA thoughtful\, honest conversation you won’t want to miss. Register here: https://us02web.zoom.us/webinar/register/WN_DJvY5tYkTK2TikJiGU2Kag \nTo order Jayne’s book\, visit https://www.amazon.com/This-Body-Grief-Making-Living/dp/0593656792
URL:https://www.sumairafoundation.org/event/meet-the-author-jayne-mattingly-this-is-body-grief/
CATEGORIES:Meet The Author
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/01/Meet-the-Author-Jayne-Mattingly-February-2026.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230429T120000
DTEND;TZID=America/New_York:20230429T130000
DTSTAMP:20260514T142216
CREATED:20230131T163136Z
LAST-MODIFIED:20230424T185651Z
UID:12552-1682769600-1682773200@www.sumairafoundation.org
SUMMARY:Cabaret for A Cause
DESCRIPTION:In celebration of NMOSD & MOGAD Awareness Months\, TSF is pleased to present “Cabaret for a Cause\,” a dance class taught by professional choreographers / show girls from a world-renowned cabaret in Paris\, France. \nEmma Castel and Deborah Lettieri will be teaching the class for both standing and seated attendees! \n100% of proceeds will be donated towards research for neuromyelitis optica spectrum disorder (NMOSD) and myelin oligodendrocyte glycoprotein antibody disorder (MOGAD).
URL:https://www.sumairafoundation.org/event/cabaret-for-a-cause/
LOCATION:Virtual: Global
CATEGORIES:TSF Events/Fundraisers
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/01/2023-Cabaret-for-a-Cause-2.0-Eventbrite-2.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230422T200000
DTEND;TZID=America/New_York:20230422T230000
DTSTAMP:20260514T142216
CREATED:20230118T163153Z
LAST-MODIFIED:20230207T175611Z
UID:12508-1682193600-1682204400@www.sumairafoundation.org
SUMMARY:6th Annual TSF Gala
DESCRIPTION:You are invited to attend The Sumaira Foundation’s \n6th Annual Gala\nSaturday\, April 22\, 2023 at 8 PM at The Newbury Boston\nThis event is black-tie optional. \nWe’ve set an ambitious goal to raise \n$375\,000\nClick here to view the research we’ve been able to fund thanks to you!
URL:https://www.sumairafoundation.org/event/6th-annual-tsf-gala/
LOCATION:The Newbury Boston\, 1 Newbury St\, Boston\, MA\, 02116\, United States
CATEGORIES:TSF Events/Fundraisers
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2023/01/TSF_GALA_POSTER_1620x924_Link.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230412T190000
DTEND;TZID=America/New_York:20230412T203000
DTSTAMP:20260514T142216
CREATED:20230312T140038Z
LAST-MODIFIED:20230316T151900Z
UID:13212-1681326000-1681331400@www.sumairafoundation.org
SUMMARY:Meet the Author | Kyle Bryant\, "Shifting Into High Gear"
DESCRIPTION:TSF is pleased to invite you to an exclusive “Meet the Author” fireside chat between Sumaira and Kyle Bryant\, an author\, athlete\, speaker\, and spokesperson for Friedreich’s Ataxia Research Alliance (FARA). \n“Shifting Into High Gear” charts the course of Kyle’s transformation as he journeys on a recumbent tricycle across the United States in the throes of Friedreich’s ataxia\, a life-shortening and disabling disease. Full of humor and reflection\, it’s a heroic journey of a man driven to reframe the language of disease through action and service. \nAttendees will have the opportunity to ask Kyle questions in real-time. Registration is required.
URL:https://www.sumairafoundation.org/event/meet-the-author-kyle-bryant-shifting-into-high-gear/
LOCATION:Virtual: Global
CATEGORIES:Meet The Author
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/03/Meet-the-Author-March-2023-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20230125T190000
DTEND;TZID=Europe/Amsterdam:20230125T200000
DTSTAMP:20260514T142216
CREATED:20230116T193923Z
LAST-MODIFIED:20230116T193937Z
UID:12434-1674673200-1674676800@www.sumairafoundation.org
SUMMARY:TSF’s Human Collective Project | Danmark
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-danmark/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:Support Group,TSF Events/Fundraisers
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/01/Denmark-The-Human-Collective-Project-Facebook-Cover-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230119T200000
DTEND;TZID=America/New_York:20230119T210000
DTSTAMP:20260514T142216
CREATED:20221220T140602Z
LAST-MODIFIED:20230116T194153Z
UID:12097-1674158400-1674162000@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-3/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:Support Group,TSF Events/Fundraisers
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230114T100000
DTEND;TZID=America/New_York:20230114T110000
DTSTAMP:20260514T142216
CREATED:20230112T225228Z
LAST-MODIFIED:20230112T225228Z
UID:12367-1673690400-1673694000@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Global Meetings
DESCRIPTION:We’re excited to bring NMOSD/MOGAD patients + caregivers from around the globe together for our 1st global support group meeting of 2023! \nThese meetings are a safe space led by the community for the community. No judgment; only love & support. (This meeting will be conducted in English) \nThe Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \n 
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-global-meetings/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:Support Group,TSF Events/Fundraisers
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/01/HCP-Global.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20230111T193000
DTEND;TZID=Europe/Amsterdam:20230111T203000
DTSTAMP:20260514T142216
CREATED:20221220T133906Z
LAST-MODIFIED:20230103T151137Z
UID:12079-1673465400-1673469000@www.sumairafoundation.org
SUMMARY:TSF Plauderstunde | HCP Germany
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOG-AD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOG-AD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOG-AD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/tsf-plauderstunde-hcp-germany/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:Support Group,TSF Events/Fundraisers
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/12/2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230105T200000
DTEND;TZID=America/New_York:20230105T210000
DTSTAMP:20260514T142216
CREATED:20221220T140515Z
LAST-MODIFIED:20221220T140515Z
UID:12094-1672948800-1672952400@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOG-AD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOG-AD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOG-AD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-2/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:Support Group,TSF Events/Fundraisers
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221222T200000
DTEND;TZID=America/New_York:20221222T210000
DTSTAMP:20260514T142216
CREATED:20221220T140430Z
LAST-MODIFIED:20221220T140430Z
UID:12084-1671739200-1671742800@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOG-AD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOG-AD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOG-AD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:Support Group,TSF Events/Fundraisers
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
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