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UID:20827-1765710000-1765713600@www.sumairafoundation.org
SUMMARY:TSF HCP Caregivers
DESCRIPTION:The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation\, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe\, inclusive space for family members\, partners\, siblings\, children\, and loved ones to connect\, share\, and be heard. Led by our dedicated Caregiver Ambassadors\, who bring their own lived experience and empathy to the conversation\, participants can expect heartfelt conversations\, mutual support\, and practical insights into the caregiving journey. Whether you’re navigating the emotional\, physical\, or logistical challenges of caregiving\, this group is designed to uplift and empower you through community\, compassion\, and connection.
URL:https://www.sumairafoundation.org/event/tsf-hcp-caregivers/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2025/12/HCP-Caregiver-Visual.jpg
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DTSTART;TZID=America/Bogota:20251216T190000
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UID:20824-1765911600-1765915200@www.sumairafoundation.org
SUMMARY:Grupo de Apoyo + Charla Enfocado en Salud Mental
DESCRIPTION:En compañía de una psicóloga\, una neurologa (ambas embajadores de TSF) y un psiquiatra\, trataremos temas enfocados en salud mental. Una parte muy importante pero a veces ignorada por pacientes y cuidadores\, del tratamiento integral que necesitan los pacientes de enfermedades neuroinmunes raras.
URL:https://www.sumairafoundation.org/event/grupo-de-apoyo-charla-enfocado-en-salud-mental/
LOCATION:Virtual: Colombia\, Colombia
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/12/2_20251202_103204_0001.png
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DTSTART;TZID=America/New_York:20251229T200000
DTEND;TZID=America/New_York:20251229T210000
DTSTAMP:20260518T094343
CREATED:20251220T000651Z
LAST-MODIFIED:20251220T145820Z
UID:20886-1767038400-1767042000@www.sumairafoundation.org
SUMMARY:Human Collective Project | Mental Health Mondays
DESCRIPTION:The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients\, caregivers\, and loved ones ride the rollercoaster of feelings throughout their daily lives\, from the moment of symptom onset. Often\, getting the proper diagnosis is a journey of its own\, and dealing with life’s difficulties after that can include stressors that only others in your situation may understand. These meetings will offer a safe space for people to come together\, share their stories\, and highlight how they are coping with everyday challenges. We will discuss a range of mental health topics and have occasional special guest speakers join our meetings. So\, whether you are newly diagnosed or a seasoned zebra\, we hope to provide a space to help guide personal growth.
URL:https://www.sumairafoundation.org/event/human-collective-project-mental-health-mondays-2/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group
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