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X-WR-CALNAME:The Sumaira Foundation
X-ORIGINAL-URL:https://www.sumairafoundation.org
X-WR-CALDESC:Events for The Sumaira Foundation
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DTSTART;TZID=America/New_York:20221203T100000
DTEND;TZID=America/New_York:20221203T110000
DTSTAMP:20260525T222337
CREATED:20221212T211443Z
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UID:11864-1670061600-1670065200@www.sumairafoundation.org
SUMMARY:NMOSD/MOGAD Global Support Group Meeting
DESCRIPTION:We are excited to launch TSF’s first-ever global Human Collective Project meeting! Join us on Saturday\, December 3rd at 10 AM EST / 4 PM CET for a support group meeting with NMOSD/MOGAD patients and caregivers from all over the world.\nThis special monthly group will be hosted by\, Candice Galvan\, NMOSD Caregiver\, Colorado Ambassador\, and HCP Program Manager. This meeting will be conducted in English.\nTo register\, visit https://tinyurl.com/TSFHCPglobal
URL:https://www.sumairafoundation.org/event/tsfs-first-ever-global-human-collective-project-meeting/
CATEGORIES:Support Group
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221203T120000
DTEND;TZID=America/New_York:20221203T170000
DTSTAMP:20260525T222337
CREATED:20221212T211210Z
LAST-MODIFIED:20221212T211210Z
UID:11866-1670068800-1670086800@www.sumairafoundation.org
SUMMARY:SRNA Young Adults Group Meeting
DESCRIPTION:Join us for an online social hour hosted by Aidan M. for those in their 20’s and 30’s with ADEM\, AFM\, MOGAD\, NMOSD\, ON\, or TM! Connect with others and discuss what it’s like living with a rare neuroimmune disorder during the transitions of young adulthood. Ask questions\, share your stories\, or just listen – everyone is welcome. \nPlease think of this as a virtual coffee hour\, where we will have informal conversations and create community among younger folks with disorders under the SRNA umbrella. Come connect with others and discuss what it’s like living with a rare neuroimmune disorder. Ask questions\, share your stories\, or just listen – everyone is welcome.
URL:https://www.sumairafoundation.org/event/srna-young-adults-group-meeting/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:Partner Events,Support Group
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DTSTART;TZID=America/New_York:20221222T200000
DTEND;TZID=America/New_York:20221222T210000
DTSTAMP:20260525T222337
CREATED:20221220T140430Z
LAST-MODIFIED:20221220T140430Z
UID:12084-1671739200-1671742800@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOG-AD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOG-AD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOG-AD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:Support Group,TSF Events/Fundraisers
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
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