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X-WR-CALDESC:Events for The Sumaira Foundation
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DTSTART;VALUE=DATE:20230501
DTEND;VALUE=DATE:20230504
DTSTAMP:20260511T014804
CREATED:20230131T192742Z
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UID:12565-1682899200-1683158399@www.sumairafoundation.org
SUMMARY:Rare Drug Development Symposium 2023: Collaborate: Go Farther\, Together
DESCRIPTION:Join us May 1-3\, 2023 in Philadelphia\, Pennsylvania for the RARE Drug Development Symposium 2023 \n\n\nCollaboration is the foundation of success in rare disease research.  Knowing who to work with\, what strategies to use\, and how to prepare for discussions can help you overcome barriers posed by small populations and limited funding.\n\nAt the Rare Drug Development Symposium (RDDS) 2023\, a partnership between Global Genes and the Orphan Disease Center of the University of Pennsylvania\, you’ll connect to  rare disease advocacy leaders\, researchers\, clinicians\, industry professionals and policy developers who will share their experience and provide you with models to help your community push forward. This 2-day\, in-person only event includes dynamic presentations\, followed by workshops and expert office hours that will enable you to:\nCreate A Comprehensive Research Strategy\nUnderstand the end-to-end process of drug discovery and development for rare disease and participate in a workshop where you’ll analyze your community’s potential and needs. \nLeverage the Power of Data\nWhat makes data valid and reliable? Once you have invested in a registry\, what partnership models can  help you move the needle toward translational research? \nUse AI for Drug Discovery and Repurposing\nFind out how artificial intelligence is being used to transform an often complex\, decades-long-mission into a more efficient process\, reducing the timeline and cost to bring therapies to patients. \nUnderstand Regulatory Considerations\nWhether your organization is local or global\, regulatory guidelines must be taken into account at each step. Learn how to navigate the requirements through case studies and expert advice. \nWho should attend: \n\nPatient Advocacy Group leaders\nPatients\nMembers of the rare disease community who want to learn more about the drug development process\, the unique ways this applies to the development of therapeutics for rare diseases\, and how they can engage with the process\nClinicians and researchers focused on rare disease therapeutic targets\n\nView 2022 Highlights \nTo learn more about the 2022 Symposium\, read the summary report here. We look forward to seeing you at the 2023 Symposium. \nA Year-Long Initiative in Rare Drug Development\nIn addition to activities surrounding the RARE Drug Development Symposium in June\, Global Genes is providing educational resources to help advocates and organizations become better equipped to work with researchers and industry partners throughout the drug development process. This includes: \n \nRare Research Roadmap: This toolkit was designed to help advocates\, individuals\, families\, and organizations better understand some of the potential routes to treatment and some of the key concepts that are part of these processes to work with researchers and industry partners throughout the drug development process. \n\n\n\nDownload Your Copy Of The Rare Research Roadmap And Toolkit\n\nWatch webinars and videos of experts that happened before and after the 2022 RARE Drug Development Symposium. \n\n2022 Webinar 1\n\n\n2022 Webinar 2\n\n\n2022 Webinar 3\n\n\nRDDS 2022: Value Of Collaboration\n\n\nRDDS 2022: Challenges For Rare Disease
URL:https://www.sumairafoundation.org/event/rare-drug-development-symposium-2023-collaborate-go-farther-together/
LOCATION:Sheraton Downtown\, 201 N 17th St\, Philadelphia\, PA\, 19103\, United States
CATEGORIES:Partner Events
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DTSTART;VALUE=DATE:20230504
DTEND;VALUE=DATE:20230508
DTSTAMP:20260511T014804
CREATED:20230131T192051Z
LAST-MODIFIED:20230131T192051Z
UID:12563-1683158400-1683503999@www.sumairafoundation.org
SUMMARY:EMSP Annual Conference 2023
DESCRIPTION:We are glad to invite you to save the date for the EMSP Annual Conference 2023\, to be held under the theme of Social Policies between 4-7 May 2023 in Helsinki\, Finland. \nHeld as an in-person event co-hosted by the Finnish MS Society (Neuroliito)\, the conference will offer the latest MS developments\, expert insights\, and networking with the community. \nIf interested\, please pencil the following dates into your calendar: \nThursday\, 4th May 2023 – EMSP Annual General Meeting\nFriday\, 5th May 2023 – EMSP Annual Conference – Day 1\nSaturday\, 6th May 2023 – Day 2\nSunday\, 7th May 2023 – Young People’s Festival
URL:https://www.sumairafoundation.org/event/emsp-annual-conference-2023/
CATEGORIES:Partner Events
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