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X-WR-CALNAME:The Sumaira Foundation
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X-WR-CALDESC:Events for The Sumaira Foundation
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BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20230421T200000
DTEND;TZID=Europe/Paris:20230421T213000
DTSTAMP:20260515T174736
CREATED:20230411T203920Z
LAST-MODIFIED:20230411T203920Z
UID:13545-1682107200-1682112600@www.sumairafoundation.org
SUMMARY:NMOSD et MOGAD: échanges autour de la vie intime\, affective et sexuelle
DESCRIPTION:Avec bienveillance\, ouverture d’esprit\, empathie\, venez échanger avec TSF France et Delphine Mutot sur ce qu’est pour vous la vie intime\, affective et sexuelle. Sentez-vous libre de poser toutes les questions que vous souhaitez\, et d’utiliser les mots avec lesquels vous êtes à l’aise. Pas de chichi entre nous! \nRetrouvez-nous le 21 avril 2023 à 20 heures. \nCet événement est soutenu par les subventions d’Horizon Therapeutics et Alexion pour l’éducation des patients.
URL:https://www.sumairafoundation.org/event/nmosd-et-mogad-echanges-autour-de-la-vie-intime-affective-et-sexuelle/
LOCATION:Virtual: France\, France
CATEGORIES:From The Experts,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/04/Delphine-Mutot.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230412T120000
DTEND;TZID=America/New_York:20230412T130000
DTSTAMP:20260515T174736
CREATED:20230327T142954Z
LAST-MODIFIED:20230411T204646Z
UID:13426-1681300800-1681304400@www.sumairafoundation.org
SUMMARY:Pediatric MOGAD & NMOSD
DESCRIPTION:You’re invited to attend “Pediatric MOGAD & NMOSD” on Wednesday\, April 12th at 12:00 PM EDT featuring Dr. Brenda Banwell\, Chief of Child Neurology and Co-Director of the Neuroscience Center at the Children’s Hospital of Philadelphia\, Professor of Neurology and Pediatrics\, and Grace E. Loeb Chair in Neuroscience at the Perelman School of Medicine\, University of Pennsylvania. \nLive attendees will have the opportunity to ask Dr. Banwell questions in real time. This webinar will be recorded and available for replay on TSF’s Multimedia Library and YouTube channel. \nThis educational event is made possible through a patient education grant from Horizon Therapeutics.
URL:https://www.sumairafoundation.org/event/pediatric-mogad-nmosd/
LOCATION:Virtual: United States\, United States
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/03/Brenda-Banwell.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Brussels:20230317T200000
DTEND;TZID=Europe/Brussels:20230317T210000
DTSTAMP:20260515T174736
CREATED:20230228T122223Z
LAST-MODIFIED:20230228T122223Z
UID:13084-1679083200-1679086800@www.sumairafoundation.org
SUMMARY:NMOSD\, MOGAD en MS: Overeenkomsten en Verschillen
DESCRIPTION:Neem vrijdag 17 maart van 20.00-21.00 uur deel aan het allereerste Nederlandstalige webinar “In gesprek met deskundigen” (“From the Experts”). Dit webinar wordt georganiseerd door de Sumaira Foundation.\nDr Barbara Willekens zal spreken over overeenkomsten en verschillen tussen NMOSD\, MOGAD en MS. \nDr. Willekens is als neurologe verbonden aan het UZA\, het Universitair Ziekenhuis Antwerpen. Ze is gespecialiseerd in Multiple Sclerose (MS) en ontstekingsziekten van het zenuwstelsel. \nDeelnemers krijgen tijdens deze LIVE presentatie de mogelijkheid om vragen te stellen aan Dr. Willekens. Het webinar zal worden opgenomen en is later te bekijken via www.sumairafoundation.org en via het YouTubekanaal van de Sumaira Foundation. \nDit gratis webinar wordt mogelijk gemaakt door subsidie van het “patient education grant” programma van Horizon Therapeutics.
URL:https://www.sumairafoundation.org/event/nmosd-mogad-en-ms-overeenkomsten-en-verschillen/
LOCATION:Virtual: Global
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/02/Barbara-Willekens.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20230314T180000
DTEND;TZID=Europe/Paris:20230314T193000
DTSTAMP:20260515T174736
CREATED:20230216T183958Z
LAST-MODIFIED:20230216T183958Z
UID:12936-1678816800-1678822200@www.sumairafoundation.org
SUMMARY:Les MOGAD et NMOSD chez l’enfant et adolescent
DESCRIPTION:Rejoignez-nous le mardi 14 mars pour le prochain webinaire “From the Experts” de TSF en français avec Dr. Kumaran DEIVA\, neuro-pédiatre à Paris\, qui parlera et répondra aux questions sur la NMOSD pédiatrique et la MOGAD. \nLes participants auront la possibilité de poser des questions au Dr Deiva en direct et en français. Le webinaire sera enregistré et disponible pour répondre sur le site Web et la chaîne YouTube de TSF. \nCet événement est soutenu par la subvention d’Horizon Therapeutics pour l’éducation des patients.
URL:https://www.sumairafoundation.org/event/les-mogad-et-nmosd-chez-lenfant-et-adolescent/
LOCATION:Virtual: France\, France
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/02/2023-From-the-Experts-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230213T120000
DTEND;TZID=America/New_York:20230213T133000
DTSTAMP:20260515T174736
CREATED:20230127T163832Z
LAST-MODIFIED:20230213T165205Z
UID:12535-1676289600-1676295000@www.sumairafoundation.org
SUMMARY:NMOSD\, MOGAD und MS: Gemeinsamkeiten und Unterschiede
DESCRIPTION:Herzliche Einladung zum ersten Live-Webinar “NMOSD\, MOGAD und MS: Gemeinsamkeiten und Unterschiede” der Sumaira-Foundation für die deutschsprachige NMOSD & MOGAD Community am Montag\, den 13. Februar\, mit Dr. Joachim Havla\, Neurologe und NMOSD/MOGAD-Spezialist an der Ludwig-Maximilians-Universität München. Dr. Havla wird die Gemeinsamkeiten und Unterschiede zwischen NMOSD\, MOGAD und die Abgrenzung gegenüber der Multiplen Sklerose erläutern. Fragen in Echtzeit sind mehr als willkommen!
URL:https://www.sumairafoundation.org/event/nmosd-mogad-und-ms-gemeinsamkeiten-und-unterschiede/
LOCATION:Virtual: Germany\, Germany
CATEGORIES:From The Experts,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/01/2023-From-the-Experts.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230106T090000
DTEND;TZID=America/New_York:20230106T100000
DTSTAMP:20260515T174736
CREATED:20221221T125746Z
LAST-MODIFIED:20230103T151615Z
UID:12206-1672995600-1672999200@www.sumairafoundation.org
SUMMARY:Understanding Clinical Trials for MOGAD & the Importance of Patient Participation
DESCRIPTION:You’re invited to join TSF’s 1st live webinar of 2023 – Understanding Clinical Trials for MOGAD & the Importance of Patient Participation – on Friday\, January 6th featuring Dr. Michael Levy who will share updates about ongoing clinical trials for patients living with MOGAD. Additionally\, we will discuss the importance and value of patient participation in clinical research and trials for novel therapies. Attendees will have the opportunity to ask Dr. Levy questions in real time. \nThis webinar will be recorded and available for replay on TSF’s Facebook and YouTube libraries. \nThis webinar is sponsored by UCB.
URL:https://www.sumairafoundation.org/event/understanding-clinical-trials-for-mogad-the-importance-of-patient-participation/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2022/12/320019904_674636397736521_7721156511967542261_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221214T120000
DTEND;TZID=America/New_York:20221214T133000
DTSTAMP:20260515T174736
CREATED:20221212T210453Z
LAST-MODIFIED:20221220T142055Z
UID:11827-1671019200-1671024600@www.sumairafoundation.org
SUMMARY:SM\, NMOSD e MOGAD: Somiglianze e Differenze
DESCRIPTION:Unisciti a noi mercoledì 14 dicembre per il 1° webinar italiano della Fondazione Sumaira con la dott.ssa Sara Mariotto\, neurologa ed esperta di NMOSD/MOGAD che discuterà e risponderà alle domande sulle somiglianze e le differenze tra NMOSD e MOGAD. \nI partecipanti avranno l’opportunità di porre domande alla Dr. ssa Mariotto dal vivo ed in italiano. Il webinar sarà registrato e sarà disponibile per essere rivisto sul canale YouTube e Facebook di TSF. \nQuesto evento è reso possibile da una sponsorizzazione per la formazione ed il supporto ai pazienti di Horizon Therapeutics.
URL:https://www.sumairafoundation.org/event/sm-nmosd-e-mogad-somiglianze-e-differenze/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2022/12/315004859_2505543582953404_5586759427257825187_n.jpg
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