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X-WR-CALDESC:Events for The Sumaira Foundation
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DTSTART;TZID=America/New_York:20260518T153000
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UID:21794-1779118200-1779121800@www.sumairafoundation.org
SUMMARY:Managing Chronic Pain
DESCRIPTION:Living with chronic pain can feel overwhelming\, but you don’t have to face it alone. You’re invited to a webinar focused on navigating chronic pain with clarity\, support\, and hope. \nOn Monday\, May 18th at 3:30 PM EST\, we’ll be joined by Dr. Anastasia Vishnevetsky\, neuroimmunologist at Mass General Brigham/Harvard Medical School\, who will share practical strategies and insights to help individuals better understand and manage chronic pain in their daily lives. This session is designed with patients and caregivers in mind—offering approachable\, real-world guidance in a supportive and inclusive space. \nTogether\, we’ll explore ways to improve quality of life\, build resilience\, and feel more empowered in your care journey. Attendees who join live will have the opportunity to ask questions and engage directly during the session. \nWe hope you’ll join us for this meaningful conversation and take a step toward feeling more supported and informed. \nThis program is made possible with support from Amgen.
URL:https://www.sumairafoundation.org/event/managing-chronic-pain/
LOCATION:Virtual: Global
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2026/04/Anastasia-Vishnevetsky.jpg
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DTSTART;TZID=America/New_York:20260528T210000
DTEND;TZID=America/New_York:20260528T220000
DTSTAMP:20260507T081135
CREATED:20260504T220909Z
LAST-MODIFIED:20260506T171641Z
UID:21974-1780002000-1780005600@www.sumairafoundation.org
SUMMARY:When to Call Your Neurologist & What to Say: Advice from a Neurologist
DESCRIPTION:Not sure your neurologist needs to hear from you? Or what to say when you reach out? You’re not alone. \nJoin us on Thursday\, May 28 at 6 PM PT / 9 PM ET for a practical\, patient-friendly webinar with Dr. Stacey Clardy\, a leading neurologist\, who will walk through when it’s important to contact your care team\, how to clearly communicate your symptoms\, and how to advocate for the care you deserve. \nWhether you’re newly diagnosed or have been managing your condition for years\, this session will offer guidance to help you feel more confident navigating conversations with your neurologist. \nThose who attend live will have the opportunity to ask questions. \nMade possible with support from Amgen.
URL:https://www.sumairafoundation.org/event/when-to-call-your-neurologist-what-to-say-advice-from-a-neurologist/
LOCATION:Virtual: Global
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/05/Stacey-Clardy.png
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DTSTART;TZID=America/New_York:20260617T170000
DTEND;TZID=America/New_York:20260617T180000
DTSTAMP:20260507T081135
CREATED:20260430T020951Z
LAST-MODIFIED:20260430T155142Z
UID:21882-1781715600-1781719200@www.sumairafoundation.org
SUMMARY:CAR-T: What Does This Mean for Rare Neuroimmune Disorders?
DESCRIPTION:You’ve likely heard about CAR-T but do you know what it is and what it means for those living with rare neuroimmune disorders? \nJoin us on June 17th at 5:00 PM EST for an informative and patient-friendly webinar featuring Dr. Michael Levy and Dr. Marcela Maus\, experts from Massachusetts General Hospital/Harvard Medical School\, who will break down this complex treatment approach in a way that’s easy to understand. During this time\, our expert speakers will educate our live audience about what CAR-T is\, how it works and why researchers are hopeful about its potential in conditions like NMOSD\, MOGAD\, and beyond. \nWhether you’re newly diagnosed\, living with a condition\, or supporting a loved one\, this session is designed to empower you with knowledge\, clarity and hope for the future of this breakthrough treatment. \n\nAttendees who join live will also have the opportunity to ask questions directly to the experts during the Q&A portion. This webinar will be recorded and made available for replay on TSF’s YouTube channel. \nThis program was made possible with support from Amgen.
URL:https://www.sumairafoundation.org/event/webinar-car-t-what-does-this-mean-for-rare-neuroimmune-disorders/
LOCATION:Virtual: Global
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/04/Michael-Levy-Marcela-Maus.png
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