BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//The Sumaira Foundation - ECPv6.15.17.1//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:The Sumaira Foundation
X-ORIGINAL-URL:https://www.sumairafoundation.org
X-WR-CALDESC:Events for The Sumaira Foundation
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20210314T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20211107T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20220313T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20221106T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20230312T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20231105T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20240310T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20241103T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:America/Bogota
BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0500
TZNAME:-05
DTSTART:20230101T000000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:Europe/Paris
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20220327T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20221030T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20230326T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20231029T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20240331T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20241027T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20250330T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20251026T010000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:Europe/Warsaw
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20220327T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20221030T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20230326T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20231029T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20240331T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20241027T010000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:Europe/Madrid
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20220327T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20221030T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20230326T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20231029T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20240331T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20241027T010000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:Europe/Rome
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20220327T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20221030T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20230326T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20231029T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20240331T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20241027T010000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:America/Mexico_City
BEGIN:DAYLIGHT
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
TZNAME:CDT
DTSTART:20220403T080000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0600
TZNAME:CST
DTSTART:20221030T070000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:Europe/Brussels
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20220327T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20221030T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20230326T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20231029T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20240331T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20241027T010000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240301T100000
DTEND;TZID=America/New_York:20240301T110000
DTSTAMP:20260515T165922
CREATED:20240220T202321Z
LAST-MODIFIED:20240229T141927Z
UID:16189-1709287200-1709290800@www.sumairafoundation.org
SUMMARY:Myths & Facts - Family Planning Considerations for NMOSD & other rare neurological conditions
DESCRIPTION:To celebrate NMO Awareness Month 2024\, The Sumaira Foundation invites you to join an insightful discussion about an important topic: Family Planning. \nJoin us on March 1st for a live webinar featuring Dr. Ahmed Shatila who will share myths & facts about family planning in people living with NMOSD & other rare neuro-immunological conditions. Dr. Shatila will discuss contraception and other factors that are important for people to plan with their neurologists and obstetricians. He will talk about the implications of a relapse before or during pregnancy and how to approach certain scenarios. Dr Shatila will outline the benefits and risks of several medications and options for treatment scheduling\, symptom management\, and MRI preparation. Finally\, we’ll conclude with discussing the considerations for labor and breastfeeding. \nThis meeting will be conducted in English with Arabic subtitles. Attendees will have the opportunity to ask Dr. Shatila questions in real time. This webinar will be recorded and made available on TSF’s YouTube channel and global website. \nThis program is made possible with support from AstraZeneca.
URL:https://www.sumairafoundation.org/event/myths-facts-family-planning-considerations-for-nmosd-other-rare-neurological-conditions/
LOCATION:Virtual: Global
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2024/02/Ahmed-Shatila.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Bogota:20240208T190000
DTEND;TZID=America/Bogota:20240208T200000
DTSTAMP:20260515T165922
CREATED:20240204T005542Z
LAST-MODIFIED:20240204T005542Z
UID:16103-1707418800-1707422400@www.sumairafoundation.org
SUMMARY:Pautas de rehabilitación después de una recaída de NMOSD
DESCRIPTION:Acompáñanos al primer webinar desde Colombia el próximo jueves 8 de febrero a las 7 pm COT. Jeimi Rodriguez fisioterapeuta y especialista en neuro rehabilitación\, nos contará las pautas\, desde el punto de vista de la fisioterapia\, después de una recaída de NMOSD. \nLos asistentes que se unan al seminario web en vivo tendrán la oportunidad de hacer preguntas. La sesión se grabará y estará disponible para su reproducción en el canal de YouTube y en el sitio web global de TSF. \nEste programa es posible gracias al apoyo de Amgen.
URL:https://www.sumairafoundation.org/event/pautas-de-rehabilitacion-despues-de-una-recaida-de-nmosd/
LOCATION:Virtual: Colombia\, Colombia
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/02/Jeimi-Rodriguez-Fisioterapeuta.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20240202T140000
DTEND;TZID=Europe/Paris:20240202T150000
DTSTAMP:20260515T165922
CREATED:20240122T211206Z
LAST-MODIFIED:20240129T182738Z
UID:16025-1706882400-1706886000@www.sumairafoundation.org
SUMMARY:Les troubles urinaires dans les maladies neurologiques (SEP\, NMOSD\, MOGAD)
DESCRIPTION:Souffrez-vous de symptômes urinaires dus à votre pathologie neurologique? \nNous vous invitons à rejoindre notre prochain webinaire avec le Dr Sarah Gaillet (urologue – Assistance Publique Hôpitaux de Marseille) et Lucile DEVESA (infirmière). \nQuelle prise en charge de ces troubles? Quelles solutions possibles? Discutons – en avec nos spécialistes. \nCet événement est rendu possible grâce au parrainage de l’éducation des patients et au soutien d’Amgen et Alexion Pharmaceuticals.
URL:https://www.sumairafoundation.org/event/les-troubles-urinaires-dans-les-maladies-neurologiques-sep-nmosd-mogad/
LOCATION:Virtual: France\, France
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2024/01/Sarah-Gaillet-Lucile-DEVESA.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20231228T200000
DTEND;TZID=Europe/Paris:20231228T210000
DTSTAMP:20260515T165922
CREATED:20231222T130445Z
LAST-MODIFIED:20231222T130445Z
UID:15716-1703793600-1703797200@www.sumairafoundation.org
SUMMARY:Webinaire: Parler de la maladie à son entourage
DESCRIPTION:Comment parler de la maladie à son entourage? \nRejoignez TSF France pour son dernier webinaire de l’année le 28 décembre avec Emilie Leta\, Psychologue diplômée d’état. \nCe programme d’éducation des patients est rendu possible grâce au soutien d’Alexion Therapeutics.
URL:https://www.sumairafoundation.org/event/webinaire-parler-de-la-maladie-a-son-entourage/
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/12/emilie-LETA-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231201T083000
DTEND;TZID=America/New_York:20231201T093000
DTSTAMP:20260515T165922
CREATED:20231108T183046Z
LAST-MODIFIED:20231108T183046Z
UID:15443-1701419400-1701423000@www.sumairafoundation.org
SUMMARY:Demystifying NMOSD & MOGAD: An Expert Perspective for Patients
DESCRIPTION:Have you or any of your loved ones been diagnosed with NMOSD or MOGAD and you’re looking for answers? \nNMOSD and MOGAD are rare autoimmune diseases involving demyelination or inflammation of the central nervous system. They are often misdiagnosed as multiple sclerosis but are distinct diseases and require different treatment approaches. \nJoin Dr. Lekha Pandit\, internationally recognized expert specializing in these diseases\, as she breaks down NMOSD and MOGAD for patients and answers their questions live. \nThis first-of-its-kind webinar for Indian patients\, is brought to you by The Sumaira Foundation\, and was made possible through a patient education grant by Horizon Therapeutics. \nThis webinar will be recorded and available for replay on TSF’s Multimedia Library and YouTube channel.
URL:https://www.sumairafoundation.org/event/demystifying-nmosd-mogad-an-expert-perspective-for-patients/
LOCATION:Virtual: India\, India
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/11/Lekha-Pandit.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Warsaw:20231026T150000
DTEND;TZID=Europe/Warsaw:20231026T160000
DTSTAMP:20260515T165922
CREATED:20231006T151219Z
LAST-MODIFIED:20231006T151433Z
UID:14929-1698332400-1698336000@www.sumairafoundation.org
SUMMARY:MOGAD - Pytania Pacjentów - Odpowiedzi Specjalisty
DESCRIPTION:Po raz pierwszy w Polsce na pytania pacjentów dotyczące MOGAD odpowie dr hab. Maciej Juryńczyk\, Ordynator Oddziału Neurologicznego w Szpitalu Wolskim w Warszawie\, neurolog specjalizujący się w leczeniu tej rzadkiej choroby neurologicznej. Zapraszamy serdecznie do wysłuchania naszej rozmowy wszystkich zainteresowanych\, a w szczególności osoby borykające się z objawami neurologicznymi i szukające diagnozy. Program ten jest możliwy dzięki wsparciu Horizon Therapeutics.
URL:https://www.sumairafoundation.org/event/mogad-pytania-pacjentow-odpowiedzi-specjalisty/
LOCATION:Virtual: Poland\, Poland
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2023/10/Maciej-Jurynczyk.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Madrid:20231024T180000
DTEND;TZID=Europe/Madrid:20231024T190000
DTSTAMP:20260515T165922
CREATED:20230920T161439Z
LAST-MODIFIED:20230920T161631Z
UID:14774-1698170400-1698174000@www.sumairafoundation.org
SUMMARY:La importancia de un acercamiento multidisciplinar en NMOSD y MOGAD
DESCRIPTION:Está invitado a asistir a la videoconferencia: “La importancia de un acercamiento multidisciplinar en NMOSD y MOGAD”\, el Martes 24 de Octubre a las 18:00 hora en España\, con el Dr. Alvaro Cobo\, Neurológo del Centro de Esclerosis Múltiple de Catalunya (Cemcat)\, Hospital Universitario Vall d’Hebrón\, Barcelona\, España \nTras la presentación inicial de 25 minutos\, se llevará a cabo una serie de preguntas por la paciente afecta de neuromielitis óptica y colaboradora de la fundación Sumaira Foundation Gabriela Pineda- Molina. \nEste seminario web es posible gracias al apoyo de Horizon Therapeutics. El patrocinio de este programa se utilizará únicamente para apoyar los esfuerzos educativos y de investigación de la Fundación Sumaira. El Cemcat participa gratuitamente sin coste ni coste alguno.
URL:https://www.sumairafoundation.org/event/la-importancia-de-un-acercamiento-multidisciplinar-en-nmosd-y-mogad/
LOCATION:Virtual: Spain\, Barcelona\, Spain
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/09/Alvaro-Cobo-Calvo-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20230829T160000
DTEND;TZID=Europe/Rome:20230829T170000
DTSTAMP:20260515T165922
CREATED:20230718T123707Z
LAST-MODIFIED:20230718T123707Z
UID:14185-1693324800-1693328400@www.sumairafoundation.org
SUMMARY:Trattamenti per NMOSD e MOGAD in Italia
DESCRIPTION:Partecipa al nostro prossimo Webinar dal titolo: Trattamenti per NMOSD e MOGAD in Italia – martedì 27 agosto alle 16:00 con il dott. Raffaele Iorio\, neurologo del Policlinico Gemelli. \nChi parteciperà di persona potrà porre le proprie domande alla dr. Iorio. Il webinar verrà registrato e lo troverete sul canale YouTube della Sumaira Foundation (TSF)\, su Facebook e tra i video del sito TSF. \nL’evento è supportato da Horizon Therapeutics.
URL:https://www.sumairafoundation.org/event/trattamenti-per-nmosd-e-mogad-in-italia/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/07/Raffaele-Iorio.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Mexico_City:20230825T160000
DTEND;TZID=America/Mexico_City:20230825T170000
DTSTAMP:20260515T165922
CREATED:20230731T213316Z
LAST-MODIFIED:20230731T213316Z
UID:14267-1692979200-1692982800@www.sumairafoundation.org
SUMMARY:Cómo Elegimos el Tratamiento de NMOSD en LATAM Considerando el Acceso de los Pacientes
DESCRIPTION:Está invitado a asistir a la videoconferencia “Cómo Elegimos el Tratamiento de NMOSD en LATAM Considerando el Acceso de los Pacientes” el viernes 25 de agosto a las 7:00 pm hora Argentina // 4:00 pm hora central México\, con el Dr. Edgar Carnero Contentti\, Neurólogo\, Profesor de Neurología de la Universidad de Buenos Aires\, Unidad de Neuroinmunología\, Departamento de Neurociencias\, Hospital Alemán\, Buenos Aires\, Argentina. \nLos asistentes conectados a la videoconferencia tendrán la oportunidad de hacer preguntas en vivo al Dr. Carnero Contentti. Esta conferencia web se grabará y estará disponible para su reproducción\, tanto en la biblioteca multimedia\, como en el canal de YouTube de The Sumaira Foundation. \nEste evento educativo es posible gracias a una subvención para la educación del paciente de Horizon Therapeutics.
URL:https://www.sumairafoundation.org/event/como-elegimos-el-tratamiento-de-nmosd-en-latam-considerando-el-acceso-de-los-pacientes/
CATEGORIES:From The Experts,TSF Programming
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2023/07/Edgar-Contentti.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20230623T200000
DTEND;TZID=Europe/Paris:20230623T210000
DTSTAMP:20260515T165922
CREATED:20230614T132242Z
LAST-MODIFIED:20230614T150041Z
UID:13870-1687550400-1687554000@www.sumairafoundation.org
SUMMARY:Sports Pour Tous
DESCRIPTION:Rejoignez-nous pour des échanges sur le sport adapté avec Mathieu Jousse\, sportif et professionnel en sports adaptés et Emmanuel Rouchaussée\,mal voyant profond et sportif amateur en sports adaptés \, autour de 3 axes principaux : les différents sports que l’on peut adapter et comment\, les bienfaits de la pratique du sport et les associations et sites de sports adaptés en France et en Belgique. \nRetrouvez-nous le 23 juin 2023 à 20 heures. \nCet événement est soutenu par les subventions d’Horizon Therapeutics et Alexion pour l’éducation des patients.
URL:https://www.sumairafoundation.org/event/sports-pour-tous/
LOCATION:Virtual: France\, France
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2023/06/Sports-Pour-Tous.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230602T150000
DTEND;TZID=America/New_York:20230602T160000
DTSTAMP:20260515T165922
CREATED:20230515T174248Z
LAST-MODIFIED:20230515T174248Z
UID:13740-1685718000-1685721600@www.sumairafoundation.org
SUMMARY:Double sero-negative NMOSD
DESCRIPTION:Do you or your loved one continue to test negative for the AQP4 and MOG antibodies? You are not alone! \n  \nYou’re invited to attend “Double sero-negative NMOSD” on Friday\, June 2nd at 12 PM PST / 3PM EST / 9 PM CET featuring Dr. Eoin Flanagan\, Professor of Neurology\, Chair of the Division of Multiple Sclerosis and Autoimmune Neurology\, Director of the Autoimmune Neurology Fellowship and Consultant in the departments of Neurology and Laboratory Medicine and Pathology at the Mayo Clinic (Rochester\, MN). \n  \nDr. Flanagan will be in conversation with Sumaira\, presenting live from the CMSC 2023 Annual Meeting in Aurora\, CO. Live attendees will have the opportunity to ask Dr. Flanagan questions in real time. This webinar will be recorded and available for replay on TSF’s Multimedia Library and YouTube channel. \n  \nThis educational event is made possible through a patient education grant from Horizon Therapeutics.
URL:https://www.sumairafoundation.org/event/double-sero-negative-nmosd/
LOCATION:Virtual: Global
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/05/Eoin-Flanagan.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230427T160000
DTEND;TZID=America/New_York:20230427T170000
DTSTAMP:20260515T165922
CREATED:20230411T200034Z
LAST-MODIFIED:20230411T204403Z
UID:13541-1682611200-1682614800@www.sumairafoundation.org
SUMMARY:NMOSD y MOGAD\, Perlas en el Diagnóstico y Opciones para el Tratamiento
DESCRIPTION:Está invitado a asistir a la videoconferencia “NMOSD y MOGAD\, Perlas en el Diagnóstico y Opciones para el Tratamiento” el viernes 27 de abril a las 2:00 pm México / 4:00 pm Venezuela / 5:00 pm Argentina. Médicos especialistas de 3 diferentes países de Latinoamérica unen esfuerzos para abordar temas de interés común para todos. \n“Perlas en el Diagnóstico Diferencial (EM\, NMOSD\, MOGAD)”\, Dr. Edgar Carnero Contentti. \n“Tratamiento con Eculizumab\, Satralizumab\, Inebilizumab en NMO”\, Dra. Sarah Vargas. \n“Impactos Socioeconómicos de la Enfermedad y Acceso Entre Fronteras”\, Dr. José Flores Rivera. \nLos asistentes conectados a la videoconferencia tendrán la oportunidad de hacer preguntas a los tres doctores en tiempo real. Esta conferencia web se grabará y estará disponible para su reproducción\, tanto en la biblioteca multimedia\, como en el canal de YouTube de The Sumaira Foundation. \nEste evento educativo es posible gracias a una subvención para la educación del paciente de Horizon Therapeutics.
URL:https://www.sumairafoundation.org/event/nmosd-y-mogad-perlas-en-el-diagnostico-y-opciones-para-el-tratamiento/
LOCATION:Virtual: Global
CATEGORIES:From The Experts,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/04/JFloresEContenttiSVargas.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20230421T200000
DTEND;TZID=Europe/Paris:20230421T213000
DTSTAMP:20260515T165922
CREATED:20230411T203920Z
LAST-MODIFIED:20230411T203920Z
UID:13545-1682107200-1682112600@www.sumairafoundation.org
SUMMARY:NMOSD et MOGAD: échanges autour de la vie intime\, affective et sexuelle
DESCRIPTION:Avec bienveillance\, ouverture d’esprit\, empathie\, venez échanger avec TSF France et Delphine Mutot sur ce qu’est pour vous la vie intime\, affective et sexuelle. Sentez-vous libre de poser toutes les questions que vous souhaitez\, et d’utiliser les mots avec lesquels vous êtes à l’aise. Pas de chichi entre nous! \nRetrouvez-nous le 21 avril 2023 à 20 heures. \nCet événement est soutenu par les subventions d’Horizon Therapeutics et Alexion pour l’éducation des patients.
URL:https://www.sumairafoundation.org/event/nmosd-et-mogad-echanges-autour-de-la-vie-intime-affective-et-sexuelle/
LOCATION:Virtual: France\, France
CATEGORIES:From The Experts,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/04/Delphine-Mutot.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230412T120000
DTEND;TZID=America/New_York:20230412T130000
DTSTAMP:20260515T165922
CREATED:20230327T142954Z
LAST-MODIFIED:20230411T204646Z
UID:13426-1681300800-1681304400@www.sumairafoundation.org
SUMMARY:Pediatric MOGAD & NMOSD
DESCRIPTION:You’re invited to attend “Pediatric MOGAD & NMOSD” on Wednesday\, April 12th at 12:00 PM EDT featuring Dr. Brenda Banwell\, Chief of Child Neurology and Co-Director of the Neuroscience Center at the Children’s Hospital of Philadelphia\, Professor of Neurology and Pediatrics\, and Grace E. Loeb Chair in Neuroscience at the Perelman School of Medicine\, University of Pennsylvania. \nLive attendees will have the opportunity to ask Dr. Banwell questions in real time. This webinar will be recorded and available for replay on TSF’s Multimedia Library and YouTube channel. \nThis educational event is made possible through a patient education grant from Horizon Therapeutics.
URL:https://www.sumairafoundation.org/event/pediatric-mogad-nmosd/
LOCATION:Virtual: United States\, United States
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/03/Brenda-Banwell.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Brussels:20230317T200000
DTEND;TZID=Europe/Brussels:20230317T210000
DTSTAMP:20260515T165922
CREATED:20230228T122223Z
LAST-MODIFIED:20230228T122223Z
UID:13084-1679083200-1679086800@www.sumairafoundation.org
SUMMARY:NMOSD\, MOGAD en MS: Overeenkomsten en Verschillen
DESCRIPTION:Neem vrijdag 17 maart van 20.00-21.00 uur deel aan het allereerste Nederlandstalige webinar “In gesprek met deskundigen” (“From the Experts”). Dit webinar wordt georganiseerd door de Sumaira Foundation.\nDr Barbara Willekens zal spreken over overeenkomsten en verschillen tussen NMOSD\, MOGAD en MS. \nDr. Willekens is als neurologe verbonden aan het UZA\, het Universitair Ziekenhuis Antwerpen. Ze is gespecialiseerd in Multiple Sclerose (MS) en ontstekingsziekten van het zenuwstelsel. \nDeelnemers krijgen tijdens deze LIVE presentatie de mogelijkheid om vragen te stellen aan Dr. Willekens. Het webinar zal worden opgenomen en is later te bekijken via www.sumairafoundation.org en via het YouTubekanaal van de Sumaira Foundation. \nDit gratis webinar wordt mogelijk gemaakt door subsidie van het “patient education grant” programma van Horizon Therapeutics.
URL:https://www.sumairafoundation.org/event/nmosd-mogad-en-ms-overeenkomsten-en-verschillen/
LOCATION:Virtual: Global
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/02/Barbara-Willekens.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20230314T180000
DTEND;TZID=Europe/Paris:20230314T193000
DTSTAMP:20260515T165922
CREATED:20230216T183958Z
LAST-MODIFIED:20230216T183958Z
UID:12936-1678816800-1678822200@www.sumairafoundation.org
SUMMARY:Les MOGAD et NMOSD chez l’enfant et adolescent
DESCRIPTION:Rejoignez-nous le mardi 14 mars pour le prochain webinaire “From the Experts” de TSF en français avec Dr. Kumaran DEIVA\, neuro-pédiatre à Paris\, qui parlera et répondra aux questions sur la NMOSD pédiatrique et la MOGAD. \nLes participants auront la possibilité de poser des questions au Dr Deiva en direct et en français. Le webinaire sera enregistré et disponible pour répondre sur le site Web et la chaîne YouTube de TSF. \nCet événement est soutenu par la subvention d’Horizon Therapeutics pour l’éducation des patients.
URL:https://www.sumairafoundation.org/event/les-mogad-et-nmosd-chez-lenfant-et-adolescent/
LOCATION:Virtual: France\, France
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/02/2023-From-the-Experts-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230213T120000
DTEND;TZID=America/New_York:20230213T133000
DTSTAMP:20260515T165922
CREATED:20230127T163832Z
LAST-MODIFIED:20230213T165205Z
UID:12535-1676289600-1676295000@www.sumairafoundation.org
SUMMARY:NMOSD\, MOGAD und MS: Gemeinsamkeiten und Unterschiede
DESCRIPTION:Herzliche Einladung zum ersten Live-Webinar “NMOSD\, MOGAD und MS: Gemeinsamkeiten und Unterschiede” der Sumaira-Foundation für die deutschsprachige NMOSD & MOGAD Community am Montag\, den 13. Februar\, mit Dr. Joachim Havla\, Neurologe und NMOSD/MOGAD-Spezialist an der Ludwig-Maximilians-Universität München. Dr. Havla wird die Gemeinsamkeiten und Unterschiede zwischen NMOSD\, MOGAD und die Abgrenzung gegenüber der Multiplen Sklerose erläutern. Fragen in Echtzeit sind mehr als willkommen!
URL:https://www.sumairafoundation.org/event/nmosd-mogad-und-ms-gemeinsamkeiten-und-unterschiede/
LOCATION:Virtual: Germany\, Germany
CATEGORIES:From The Experts,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/01/2023-From-the-Experts.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230106T090000
DTEND;TZID=America/New_York:20230106T100000
DTSTAMP:20260515T165922
CREATED:20221221T125746Z
LAST-MODIFIED:20230103T151615Z
UID:12206-1672995600-1672999200@www.sumairafoundation.org
SUMMARY:Understanding Clinical Trials for MOGAD & the Importance of Patient Participation
DESCRIPTION:You’re invited to join TSF’s 1st live webinar of 2023 – Understanding Clinical Trials for MOGAD & the Importance of Patient Participation – on Friday\, January 6th featuring Dr. Michael Levy who will share updates about ongoing clinical trials for patients living with MOGAD. Additionally\, we will discuss the importance and value of patient participation in clinical research and trials for novel therapies. Attendees will have the opportunity to ask Dr. Levy questions in real time. \nThis webinar will be recorded and available for replay on TSF’s Facebook and YouTube libraries. \nThis webinar is sponsored by UCB.
URL:https://www.sumairafoundation.org/event/understanding-clinical-trials-for-mogad-the-importance-of-patient-participation/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2022/12/320019904_674636397736521_7721156511967542261_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221214T120000
DTEND;TZID=America/New_York:20221214T133000
DTSTAMP:20260515T165922
CREATED:20221212T210453Z
LAST-MODIFIED:20221220T142055Z
UID:11827-1671019200-1671024600@www.sumairafoundation.org
SUMMARY:SM\, NMOSD e MOGAD: Somiglianze e Differenze
DESCRIPTION:Unisciti a noi mercoledì 14 dicembre per il 1° webinar italiano della Fondazione Sumaira con la dott.ssa Sara Mariotto\, neurologa ed esperta di NMOSD/MOGAD che discuterà e risponderà alle domande sulle somiglianze e le differenze tra NMOSD e MOGAD. \nI partecipanti avranno l’opportunità di porre domande alla Dr. ssa Mariotto dal vivo ed in italiano. Il webinar sarà registrato e sarà disponibile per essere rivisto sul canale YouTube e Facebook di TSF. \nQuesto evento è reso possibile da una sponsorizzazione per la formazione ed il supporto ai pazienti di Horizon Therapeutics.
URL:https://www.sumairafoundation.org/event/sm-nmosd-e-mogad-somiglianze-e-differenze/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2022/12/315004859_2505543582953404_5586759427257825187_n.jpg
END:VEVENT
END:VCALENDAR