Tratamientos para MOGAD
2025-02-03 18:00 - 19:00 (America/Bogota) | Virtual: Global
Únase a nosotros el 3 de febrero para una presentación en vivo y una discusión sobre las opciones de tratamiento para pacientes de MOGAD en América Latina.

Para registrarse, visite: https://us02web.zoom.us/webinar/register/WN_hLhettqCQQGgi1nt5Lf68A

Los asistentes tendrán la oportunidad de hacer preguntas a los expertos. Este seminario web se grabará y estará disponible para reproducirse en el canal de YouTube de TSF.

Este programa es posible gracias al apoyo de Amgen.

Navigating the Transition from Pediatric to Adult Neuroimmunology Care
2025-03-06 14:00 - 15:30 (America/New_York) | Virtual: United States, United States
We’re calling pediatric patients and their parents/caregivers to join us on March 6th for a special webinar featuring experts from Children’s National Hospital and George Washington University.
This webinar will provide an overview of the transition from pediatric to adult medical care, featuring insights from a pediatric neurologist, social worker, and a neuropsychologist.
Topics will include maintaining continuity of care, managing complex medical conditions, self-advocacy in healthcare settings, and addressing social and emotional considerations. The discussion aims to support patients, families, and caregivers in navigating this important transition effectively.

NMOSD in sub-Saharan Africa
2025-03-17 18:00 - 19:30 (Africa/Bangui) | Virtual: South Africa, South Africa
In honor of NMO Awareness Month 2025, TSF is excited to present “NMOSD in Sub-Saharan Africa,” a live event exploring the landscape of NMOSD and other rare neuroimmunological disorders.
Join us on Monday, March 17th, for an exclusive webinar featuring Dr. Mashina Chomba (Zambia), Dr. Fiifi Duodu (Ghana), Dr. Pearl Thomas (South Africa), and Dr. Cynthia Wendo (Kenya). The experts will provide insights and answer questions about the prevalence and incidence of NMOSD, diagnostics, available treatments, immunizations, clinical trials, and more. We invite patients, caregivers, clinicians, researchers, and advocates from around the world to attend.
Live participants will have the opportunity to ask questions directly to the experts. The webinar will be recorded and made available for replay on TSF’s YouTube channel.
Registration is required.

La gestion de la fatigue dans la NMOSD et la MOGAD
2025-03-24 20:00 - 21:00 (Europe/Paris) | Virtual: France, France
La fatigue et la fatigabilité touchent toutes les personnes souffrant de NMOSD et de MOGAD. Cela reste la première cause de baisse de la qualité de vie mais est assez difficile à gérer. Imprévisible, durable, la fatigue n’est pas gérable avec une pilule miracle. Pour aborder ce sujet nous serons en compagnie du docteur Nathalie Moreau, Cheffe de service de l’unité de Médecine Physique et de Réadaptation de l’Hôpital Léopold Bellan à Paris et de Véronique Carrette, sophrologue et hypnothérapeute. Vous pourrez poser vos questions à nos intervenantes. Ce programme est rendu possible grâce au soutien d’Amgen.

Immunizations for the Immunocompromised
2025-03-25 19:00 - 20:00 (America/New_York) | Virtual: United States, United States
Vaccines play a crucial role in protecting immunocompromised patients, as their weakened immune systems make them more vulnerable to infections. Vaccines also help prevent the spread of contagious diseases to others. For immunocompromised patients, the risk of severe illness or complications from diseases such as flu, pneumonia or COVID-19 is significantly higher, making vaccination a key preventative measure. Join us for an insightful discussion on March 25th about immunizations for the immunocompromised led by Dr. Elias Sotirchos, neuroimmunologist and Assistant Professor of Neurology at The Johns Hopkins University School of Medicine. Attendees joining live will have the opportunity to ask Dr. Sotirchos questions about vaccines and immunizations in real time. This program is made possible with support from Alexion.

Hacer ejercicio con una enfermedad autoimmune
2025-06-19 18:00 - 19:00 (America/Mexico_City) | Virtual: Mexico
¿Sabías que el ejercicio puede ser un aliado poderoso en la gestión de enfermedades autoinmunes? En este webinar, exploraremos cómo el deporte puede ayudar a mejorar la calidad de vida.

Únase a nosotros el 5 de junio para una presentación y discusión con la Dra. Araceli Reyes Cuayahuitl. Haga clic aquí para registrarse: https://us02web.zoom.us/webinar/register/WN_DeOIgA_qTemWu61Y3RWVJg

Temas a cubrir:
• Breve introducción a las enfermedades desmielinizantes
• Síntomas físicos comunes
• Importancia de la actividad física en general
• Evidencia científica del impacto del ejercicio en enfermedades desmielinizantes
• Tipos de ejercicio recomendados

¿Qué esperar en el webinar?
• Información basada en evidencia científica
• Oportunidad para hacer preguntas e interactuar con expertos

Este programa es posible gracias al apoyo de Amgen.

إدارة الأعراض والأمراض المصاحبة مع اضطراب الطيف العصبي البصري
2025-09-09 19:00 - 20:00 (Asia/Kuwait) | Virtual: Global
سيناقش هذا الويبينار أحدث الطرق والرؤى حول إدارة الأعراض الأساسية والاعتلالات المصاحبة لاضطراب الطيف العصبي البصري .(NMOSD)
سيركز المختصون المشاركون على التحديات التي يواجهها المرضى في التعامل مع المرض، وأفضل الممارسات لتحسين جودة الحياة، واستراتيجيات علاجية للتعامل مع الأمراض المصاحبة. سيحظى الحضور أيضًا بفرصة لطرح الأسئلة والنقاش مع الخبراء في هذا المجال

Yoga Para Todos. Yoga y Vida
2025-10-01 18:00 - 19:00 (America/Bogota) | Virtual: Colombia, Colombia
Descubre por que el Yoga es para todos y puede ayudarte. El yoga no es esa idea que se tiene de una disciplina física. El Yoga es mas que físico, es celular, mental, intelectual y espiritual: te afecta en todo tu ser.

Salute femminile e NMOSD/MOGAD: dialogo su gravidanza, allattamento e sessualità
2025-10-15 19:00 - 20:00 (Europe/Paris) | Virtual: Italy, Italy
Siete tutti invitati al webinar – Salute femminile e NMOSD/MOGAD: dialogo su gravidanza, allattamento e sessualità – esclusivo di TSF Italia dedicato alle donne che vivono con NMOSD o MOGAD!

Data: 15 ottobre alle 19:00 CET
Relatrice: Dott.ssa Sara Carta, esperta in Neuroimmunologia presso l’Università di Verona
Temi: Gravidanza, Allattamento e Sessualità – aspetti cruciali per una gestione consapevole della salute.

Partecipando in diretta, avrete l’opportunità di:
– Porre domande in tempo reale alla Dott.ssa Carta
– Condividere esperienze e dubbi in uno *spazio sicuro e accogliente*, libero da pregiudizi
– Connettervi con altre persone della comunità NMOSD e MOGAD italiane

Questo webinar è aperto a pazienti, caregiver e a tutti coloro interessati a comprendere meglio queste condizioni neuroimmunologiche dal punto di vista della salute femminile.

Questo evento è reso possibile grazie al supporto di Alexion.

Iscriviti ora e unisciti a noi per un momento di condivisione e crescita! https://us02web.zoom.us/webinar/register/WN_I2EUzRCMR9Gdtm92DG6WOA

TSF Italia si impegna a promuovere la consapevolezza e il sostegno alle persone affette da malattie neuroimmunologiche rare.

Navigating NMOSD in Canada
2025-11-05 19:00 - 20:00 (America/New_York) | Virtual: Canada, Canada
Calling Canadians impacted by NMOSD: you’re invited for a live patient education webinar about how to navigate life with neuromyelitis optica spectrum disorder in Canada.
Join us on Wednesday, November 5th at 7 PM EST for a live presentation and discussion with Dr. Dalia Rotstein, neurologist at The University of Toronto and a globally-recognized expert in NMOSD, who will share insights on diagnosis, treatment options, access to care and strategies for managing life with NMOSD in the Canadian healthcare system.
Attendees joining live will have the opportunity to ask Dr. Rotstein questions in real time. This webinar will be recorded and made available for replay on TSF’s YouTube channel.
This program is made possible with support from Alexion and Amgen.

Navigating Insurance Barriers as a Rare Disease Patient
2025-12-16 19:00 - 20:00 (America/New_York) | Virtual: United States, United States
Patients living with rare conditions in the US frequently face extra complexities when seeking access to specialized treatments, off-label therapies, or less common care pathways. Prior authorizations may take longer, documentation requirements may be more intensive, and appeals may present additional hurdles.
Join us on December 16th at 7 PM EST for a special webinar curated specifically for the rare disease community to equip you with clarity, practical steps, and confidence to better navigate insurance processes. Our guest speaker, Joe Touschner (Senior Policy Health Advisor, National Association of Insurance Commissioners), will help demystify key aspects of the health insurance system that often present barriers for rare disease patients and also answer questions from our live audience.

What you’ll learn:

The basics of prior authorization
How to navigate health insurance appeals
How insurance rules vary by state and by plan type, and why state insurance department resources matter.
Key tools and resources for patients

Who should attend:

Individuals living with a rare disease and their caregivers
Family members interested in advocacy
Patient advocacy professionals, case managers, and support group leaders
Healthcare professionals who support rare disease patients
