BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//The Sumaira Foundation - ECPv6.15.17.1//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:The Sumaira Foundation
X-ORIGINAL-URL:https://www.sumairafoundation.org
X-WR-CALDESC:Events for The Sumaira Foundation
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:Europe/Rome
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20250330T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20251026T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20260329T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20261025T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20270328T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20271031T010000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20260308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20261101T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20270314T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20271107T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260402T180000
DTEND;TZID=Europe/Rome:20260402T190000
DTSTAMP:20260508T030345
CREATED:20260317T185158Z
LAST-MODIFIED:20260317T185158Z
UID:21499-1775152800-1775156400@www.sumairafoundation.org
SUMMARY:Comprendere l’anticorpo AQP4 nella NMOSD
DESCRIPTION:L’AQP4 (Aquaporina-4) è una proteina presente nel cervello\, nel midollo spinale e nei nervi ottici che aiuta a regolare il movimento dell’acqua dentro e fuori dalle cellule. Nella NMOSD\, il sistema immunitario attacca per errore l’AQP4. Questo attacco può causare infiammazione nel midollo spinale e nei nervi ottici\, portando a sintomi come alterazioni della vista\, debolezza o intorpidimento. \nUnisciti a noi giovedì 2 aprile alle 18:00 (CET) per una presentazione e discussione approfondita sull’AQP4\, guidata dalla Dott.ssa Sara Mariotto\, neuroimmunologa presso l’Università di Verona. \nI partecipanti collegati in diretta avranno l’opportunità di porre domande alla Dott.ssa Mariotto in tempo reale. È richiesta la registrazione. https://us02web.zoom.us/webinar/register/WN_CDm8SEe2Rmea8yjKnZqVGg \nQuesto programma è reso possibile grazie al supporto di Amgen e Alexion.
URL:https://www.sumairafoundation.org/event/comprendere-lanticorpo-aqp4-nella-nmosd/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/03/Sara-Mariotto.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260429T200000
DTEND;TZID=Europe/Rome:20260429T210000
DTSTAMP:20260508T030345
CREATED:20260403T173821Z
LAST-MODIFIED:20260403T173821Z
UID:21645-1777492800-1777496400@www.sumairafoundation.org
SUMMARY:Per orientarsi: cognizione e sviluppo in pazienti pediatrici con MOGAD e NMOSD
DESCRIPTION:Il tuo bambino ha ricevuto una diagnosi di NMOSD o MOGAD? Ti stai chiedendo come la diagnosi potrebbe influire sul suo sviluppo cognitivo? \nUnisciti a noi martedì 29 aprile alle ore 20:00 CET per un webinar speciale con il Dott. Alberto Cossu\, neuropsichiatra infantile presso l’Azienda Ospedaliera Universitaria Integrata di Verona\, che approfondirà il rapporto tra cognizione e malattie neuroimmuni rare nei bambini.  https://us02web.zoom.us/webinar/register/WN_Q8_tN9ruSSCsezuPnDiixQ  \nIl Dott. Cossu condividerà la sua esperienza e sarà disponibile a rispondere alle vostre domande in tempo reale durante la sessione dal vivo. Il webinar sarà moderato da Viviana e Alice\, entrambe mamme di bambini con MOGAD. \nNon perdete questa opportunità di confrontarvi con un esperto e di entrare in contatto con una comunità che comprende il vostro percorso. \nQuesto programma è reso possibile grazie al supporto di Amgen e Alexion
URL:https://www.sumairafoundation.org/event/per-orientarsi-cognizione-e-sviluppo-in-pazienti-pediatrici-con-mogad-e-nmosd/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2026/04/Alberto-Cossu.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260429T200000
DTEND;TZID=America/New_York:20260429T210000
DTSTAMP:20260508T030345
CREATED:20260403T184548Z
LAST-MODIFIED:20260403T184548Z
UID:21648-1777492800-1777496400@www.sumairafoundation.org
SUMMARY:Viviendo con NMOSD en América Latina: Desafíos y barreras en Argentina\, Colombia y México
DESCRIPTION:¿Tú o un ser querido viven con NMOSD en Latinoamérica? Únete al equipo de LatAm de The Sumaira Foundation para un webinar especial dedicado a explorar los desafíos únicos que enfrentan los pacientes con NMOSD en Argentina\, Colombia y México. \nEste webinar en español reunirá a destacados neurólogos de los tres países para analizar la realidad del diagnóstico de NMOSD en la región\, incluyendo las tasas de incidencia en comparación con los datos globales\, el proceso diagnóstico y las barreras que con demasiada frecuencia retrasan un diagnóstico oportuno. \nPonentes Destacados: \n\nDra. Maria Eugenia Balbuena (Argentina)\nDr. Luis Alfonso Zarco (Colombia)\nDr. Jose Flores-Rivera (México)\n\nTambién escucharás un poderoso testimonio de primera mano de una Embajadora de NMOSD de TSF en México\, quien compartirá su experiencia personal en el camino hacia el diagnóstico. El webinar cerrará con una sesión abierta de preguntas y respuestas de 25 minutos\, brindando a los asistentes la oportunidad de hacer preguntas a nuestro panel de expertos en tiempo real. \nFecha: Martes\, 29 de abril de 2025 (90 minutos) \nHorarios Locales: \n\n🇲🇽 México: 7:00 PM CST\n🇨🇴 Colombia: 8:00 PM COT\n🇦🇷 Argentina: 10:00 PM ART\n\nhttps://us02web.zoom.us/webinar/register/WN_ODczM1smTO2YdIBfXGZ7iA  \nYa seas paciente\, cuidador o profesional de la salud\, este webinar es una oportunidad para obtener información valiosa sobre el estado de la atención del NMOSD en Latinoamérica y para conectar con una comunidad que trabaja para derribar barreras y mejorar los resultados para todos.
URL:https://www.sumairafoundation.org/event/viviendo-con-nmosd-en-america-latina-desafios-y-barreras-en-argentina-colombia-y-mexico/
LOCATION:Virtual: Colombia\, Colombia
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2026/04/LatAm_April-2026.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260518T153000
DTEND;TZID=America/New_York:20260518T163000
DTSTAMP:20260508T030345
CREATED:20260424T195529Z
LAST-MODIFIED:20260424T195529Z
UID:21794-1779118200-1779121800@www.sumairafoundation.org
SUMMARY:Managing Chronic Pain
DESCRIPTION:Living with chronic pain can feel overwhelming\, but you don’t have to face it alone. You’re invited to a webinar focused on navigating chronic pain with clarity\, support\, and hope. \nOn Monday\, May 18th at 3:30 PM EST\, we’ll be joined by Dr. Anastasia Vishnevetsky\, neuroimmunologist at Mass General Brigham/Harvard Medical School\, who will share practical strategies and insights to help individuals better understand and manage chronic pain in their daily lives. This session is designed with patients and caregivers in mind—offering approachable\, real-world guidance in a supportive and inclusive space. \nTogether\, we’ll explore ways to improve quality of life\, build resilience\, and feel more empowered in your care journey. Attendees who join live will have the opportunity to ask questions and engage directly during the session. \nWe hope you’ll join us for this meaningful conversation and take a step toward feeling more supported and informed. \nThis program is made possible with support from Amgen.
URL:https://www.sumairafoundation.org/event/managing-chronic-pain/
LOCATION:Virtual: Global
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2026/04/Anastasia-Vishnevetsky.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260528T210000
DTEND;TZID=America/New_York:20260528T220000
DTSTAMP:20260508T030345
CREATED:20260504T220909Z
LAST-MODIFIED:20260506T171641Z
UID:21974-1780002000-1780005600@www.sumairafoundation.org
SUMMARY:When to Call Your Neurologist & What to Say: Advice from a Neurologist
DESCRIPTION:Not sure your neurologist needs to hear from you? Or what to say when you reach out? You’re not alone. \nJoin us on Thursday\, May 28 at 6 PM PT / 9 PM ET for a practical\, patient-friendly webinar with Dr. Stacey Clardy\, a leading neurologist\, who will walk through when it’s important to contact your care team\, how to clearly communicate your symptoms\, and how to advocate for the care you deserve. \nWhether you’re newly diagnosed or have been managing your condition for years\, this session will offer guidance to help you feel more confident navigating conversations with your neurologist. \nThose who attend live will have the opportunity to ask questions. \nMade possible with support from Amgen.
URL:https://www.sumairafoundation.org/event/when-to-call-your-neurologist-what-to-say-advice-from-a-neurologist/
LOCATION:Virtual: Global
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/05/Stacey-Clardy.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260617T170000
DTEND;TZID=America/New_York:20260617T180000
DTSTAMP:20260508T030345
CREATED:20260430T020951Z
LAST-MODIFIED:20260430T155142Z
UID:21882-1781715600-1781719200@www.sumairafoundation.org
SUMMARY:CAR-T: What Does This Mean for Rare Neuroimmune Disorders?
DESCRIPTION:You’ve likely heard about CAR-T but do you know what it is and what it means for those living with rare neuroimmune disorders? \nJoin us on June 17th at 5:00 PM EST for an informative and patient-friendly webinar featuring Dr. Michael Levy and Dr. Marcela Maus\, experts from Massachusetts General Hospital/Harvard Medical School\, who will break down this complex treatment approach in a way that’s easy to understand. During this time\, our expert speakers will educate our live audience about what CAR-T is\, how it works and why researchers are hopeful about its potential in conditions like NMOSD\, MOGAD\, and beyond. \nWhether you’re newly diagnosed\, living with a condition\, or supporting a loved one\, this session is designed to empower you with knowledge\, clarity and hope for the future of this breakthrough treatment. \n\nAttendees who join live will also have the opportunity to ask questions directly to the experts during the Q&A portion. This webinar will be recorded and made available for replay on TSF’s YouTube channel. \nThis program was made possible with support from Amgen.
URL:https://www.sumairafoundation.org/event/webinar-car-t-what-does-this-mean-for-rare-neuroimmune-disorders/
LOCATION:Virtual: Global
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/04/Michael-Levy-Marcela-Maus.png
END:VEVENT
END:VCALENDAR