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DTSTART;TZID=America/New_York:20261116T190000
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UID:10000488-1794855600-1794859200@www.sumairafoundation.org
SUMMARY:Steroids and Plasma Exchange in Neuroimmune Disease: Treatment\, Side Effects & Long-Term Considerations
DESCRIPTION:Steroids and plasma exchange (PLEX) can play important roles in treating flares and relapses in many rare neuroimmune conditions. But how do these treatments work\, when are they used\, and what should patients know about their potential side effects and long-term considerations? \nJoin Dr. John Chen from Mayo Clinic in Rochester\, Minnesota\, for a patient-friendly discussion exploring steroids\, plasma exchange\, and their roles in neuroimmune disease management. Learn about the benefits and risks of these treatments\, what patients can expect\, and how to work with your healthcare team to make informed decisions about your care. \nMonday\, November 16 4:00 PM PT / 7:00 PM ET \nRegister here: https://us02web.zoom.us/webinar/register/WN_ad8Zm0X7QMyYdhKQORlrog \nDesigned for patients and caregivers\, this webinar will provide practical information to help you better understand your treatment options and advocate for your health. Those who attend live will also have the opportunity to ask Dr. Chen their questions! \nMade possible with support from Amgen.
URL:https://www.sumairafoundation.org/event/understanding-long-term-side-effects-of-steroids/
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/08/John-Chen.png
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DTSTART;TZID=America/New_York:20261201T190000
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DTSTAMP:20261106T230912Z
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UID:10000506-1796151600-1796155200@www.sumairafoundation.org
SUMMARY:Young People Living with Rare Neurological Disorders
DESCRIPTION:Join us for TSF’s 10th and final U.S. webinar of 2026\, a casual\, candid conversation with young TSF ambassadors about what it’s really like to grow up with a rare neurological disorder. Beyond diagnoses and treatments\, our panelists will share how their condition shows up in everyday life: navigating school\, building a career\, making and keeping friends\, dating\, and everything in between. Whether you’re a young person living with a rare disease\, a parent\, a caregiver\, or a friend\, you’ll come away with real stories\, practical insight\, and the reminder that you’re not alone. \nRegister HERE. \nTuesday\, December 1\, 2026 \n4:00 PM PT / 7:00 PM ET \nModerated by Taylor Macey \nMade possible with support from Amgen and argenx.
URL:https://www.sumairafoundation.org/event/young-people-living-with-rare-neurological-disorders/
CATEGORIES:From The Experts,TSF Programming,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/11/TSF-Youth-3.png
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