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DTSTART;TZID=America/New_York:20260617T170000
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UID:21882-1781715600-1781719200@www.sumairafoundation.org
SUMMARY:CAR-T: What Does This Mean for Rare Neuroimmune Disorders?
DESCRIPTION:You’ve likely heard about CAR-T but do you know what it is and what it means for those living with rare neuroimmune disorders? \nJoin us on June 17th at 5:00 PM EST for an informative and patient-friendly webinar featuring Dr. Michael Levy and Dr. Marcela Maus\, experts from Massachusetts General Hospital/Harvard Medical School\, who will break down this complex treatment approach in a way that’s easy to understand. During this time\, our expert speakers will educate our live audience about what CAR-T is\, how it works and why researchers are hopeful about its potential in conditions like NMOSD\, MOGAD\, and beyond. \nWhether you’re newly diagnosed\, living with a condition\, or supporting a loved one\, this session is designed to empower you with knowledge\, clarity and hope for the future of this breakthrough treatment. \n\nAttendees who join live will also have the opportunity to ask questions directly to the experts during the Q&A portion. This webinar will be recorded and made available for replay on TSF’s YouTube channel. \nThis program was made possible with support from Amgen.
URL:https://www.sumairafoundation.org/event/webinar-car-t-what-does-this-mean-for-rare-neuroimmune-disorders/
LOCATION:Virtual: Global
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/04/Michael-Levy-Marcela-Maus.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260624T200000
DTEND;TZID=America/New_York:20260624T210000
DTSTAMP:20260618T091825
CREATED:20260602T153817Z
LAST-MODIFIED:20260602T154037Z
UID:22230-1782331200-1782334800@www.sumairafoundation.org
SUMMARY:Vivir bien con NMOSD: Cómo manejar los desafíos físicos\, mentales y sociales
DESCRIPTION:Vivir con NMOSD puede afectar muchos aspectos de la vida diaria: física\, emocional y socialmente. \nÚnase a TSF LatAm para un importante seminario web\, “Vivir bien con NMOSD: Cómo manejar los desafíos físicos\, mentales y sociales”\, enfocado en ayudar a pacientes y familias a comprender y afrontar mejor estos desafíos. \nEste programa contará con la participación de la Dra. Adriana Casallas Vanegas (Colombia) y la Dra. Felisa Leguizamón (Argentina)\, y será moderado por Lizzy\, paciente con NMOSD y Embajadora de TSF en México. Juntas\, conversarán sobre estrategias para manejar los síntomas\, cuidar el bienestar mental\, mejorar la calidad de vida y fortalecer las redes de apoyo mientras se vive con NMOSD. \n– 24 de junio de 2026 \n– 7PM COT / 9PM ART \nhttps://us02web.zoom.us/webinar/register/WN_nsxeD-TRRxaMS_YqbHPIRw \nQuienes asistan en vivo tendrán la oportunidad de hacer preguntas directamente a las expertas durante la sesión.
URL:https://www.sumairafoundation.org/event/vivir-bien-con-nmosd-como-manejar-los-desafios-fisicos-mentales-y-sociales/
LOCATION:Virtual: Colombia\, Colombia
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/06/Felisa-Leguizamon-and-Adriana-Casallas-Vanegas.png
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DTSTART;TZID=America/New_York:20260625T200000
DTEND;TZID=America/New_York:20260625T210000
DTSTAMP:20260618T091825
CREATED:20260508T200046Z
LAST-MODIFIED:20260610T145856Z
UID:21994-1782417600-1782421200@www.sumairafoundation.org
SUMMARY:Understanding Step Therapy: How Insurance Decisions Shape Neuroimmune Treatment
DESCRIPTION:Understanding insurance coverage can be overwhelming\, especially when treatment decisions are impacted by policies like step therapy. Join us Thursday\, June 25 at 5:00 PM PT / 8:00 PM ET for an important conversation with Dr. Rosemarie Walch about how insurance requirements can influence access to care for people living with rare neuroimmune disorders. \nIn this webinar\, Understanding Step Therapy: How Insurance Decisions Shape Neuroimmune Treatment\, Dr. Walch will explain what step therapy is\, why it exists\, and how it can affect treatment timelines\, medication access\, and patient outcomes. Attendees will also learn practical strategies for navigating insurance barriers\, advocating for appropriate care\, and working with their healthcare teams throughout the process. \nThose who attend live will have the opportunity to ask questions during the session. \nMade possible with support from Amgen.
URL:https://www.sumairafoundation.org/event/understanding-step-therapy-how-insurance-decisions-shape-neuroimmune-treatment/
LOCATION:Virtual: Global
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/05/Rosemarie-Walch-1.png
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DTSTART;TZID=America/Bogota:20260714T190000
DTEND;TZID=America/Bogota:20260714T200000
DTSTAMP:20260618T091825
CREATED:20260617T123903Z
LAST-MODIFIED:20260617T124021Z
UID:22435-1784055600-1784059200@www.sumairafoundation.org
SUMMARY:Nutrición en Enfermedades Desmielinizantes
DESCRIPTION:Nutrir el cuerpo es fundamental cuando se vive con una enfermedad desmielinizante. \nAcompáñenos con el Dr. Carlos Navas de Colombia\, quien lidera la iniciativa de Inmunonutrición LATAM de LACTRIMS\, para conocer las recomendaciones actuales y consejos prácticos sobre nutrición para las personas que viven con enfermedades desmielinizantes. \n– 14 de julio de 2026 \n– 7:00 p. m. (hora de Bogotá\, Colombia) \nhttps://us02web.zoom.us/webinar/register/WN_FIj640dVRgmhahBQlgNSNw \nLos participantes que se conecten en vivo tendrán la oportunidad de hacer preguntas al Dr. Navas en tiempo real durante una sesión interactiva de preguntas y respuestas. No se pierda esta oportunidad de aprender cómo la nutrición puede apoyar la salud y el bienestar general en el contexto de las enfermedades neuroinmunológicas.
URL:https://www.sumairafoundation.org/event/nutricion-en-enfermedades-desmielinizantes/
LOCATION:Virtual: Colombia\, Colombia
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/06/Carlos-Navas.png
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