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X-WR-CALDESC:Events for The Sumaira Foundation
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DTSTART;TZID=America/New_York:20260901T200000
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DTSTAMP:20260814T221935Z
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UID:23218-1788292800-1788296400@www.sumairafoundation.org
SUMMARY:When Autoimmune Diseases Overlap: Understanding Multiple Diagnoses
DESCRIPTION:What happens when one autoimmune or neuroimmune condition isn’t the whole story? For some patients\, receiving multiple diagnoses can bring even more questions and uncertainty. \nJoin Dr. Lilyana Amezcua from USC for an accessible conversation about overlapping autoimmune diseases\, why multiple diagnoses can occur\, and how clinicians approach symptoms that may not fit neatly into a single diagnosis. \nWe’ll explore what it means to live with more than one condition\, how diagnoses are evaluated\, and what patients and caregivers can do to feel more informed and empowered in their care. \nJoin us live on Tuesday\, September 1 at 5 PM PT / 8 PM ET. \nhttps://us02web.zoom.us/webinar/register/WN_-yVXB-6QTsqIMV_NtnpOsg \nThose who attend live will have the opportunity to ask Dr. Amezcua their questions during a live Q&A. \nMade possible by support from Amgen.
URL:https://www.sumairafoundation.org/event/when-autoimmune-diseases-overlap-understanding-multiple-diagnoses/
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/08/Lilyana-Amezcua-4.png
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DTSTART;TZID=America/New_York:20260921T200000
DTEND;TZID=America/New_York:20260921T210000
DTSTAMP:20260814T002352Z
CREATED:20260813T225058Z
LAST-MODIFIED:20260814T002352Z
UID:23212-1790020800-1790024400@www.sumairafoundation.org
SUMMARY:Little Patients\, Big Questions: Understanding Pediatric Neuroimmune Diseases
DESCRIPTION:When your child is living with a neuroimmune disease\, the questions can feel endless. What is happening in their body? What does a diagnosis mean for their future? And how can parents and caregivers feel more confident navigating care? \nJoin Dr. Kristen Fisher of Texas Children’s for an approachable conversation about pediatric neuroimmune diseases. Together\, we’ll explore what makes these conditions unique in children\, what families should know about diagnosis and treatment\, and how parents and caregivers can become informed and empowered partners in their child’s care. \nWhether your child is newly diagnosed\, navigating ongoing symptoms\, or you’re simply looking for a better understanding of pediatric neuroimmune diseases\, this webinar is designed with families in mind. \nMonday\, September 21 | 5:00 PM PT / 8:00 PM ET \nhttps://us02web.zoom.us/webinar/register/WN_ICZaFGZ2TB2koEcKAkfaww \nLive Q&A: Those who attend live will have the opportunity to ask Dr. Fisher their questions directly. \nMade possible with support from Amgen.
URL:https://www.sumairafoundation.org/event/little-patients-big-questions-understanding-pediatric-neuroimmune-diseases/
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/08/Kristen-Fisher-2.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261015T180000
DTEND;TZID=America/New_York:20261015T190000
DTSTAMP:20260723T021136Z
CREATED:20260723T021136Z
LAST-MODIFIED:20260723T021136Z
UID:23008-1792087200-1792090800@www.sumairafoundation.org
SUMMARY:Comprendiendo el anticuerpo AQP4 en NMOSD
DESCRIPTION:¿Usted o un ser querido vive con NMOSD? \nLo invitamos a acompañarnos en un webinar especial titulado **”Comprendiendo el anticuerpo AQP4 en NMOSD”**\, con la Dra. Pilar Perachino\, de Argentina. \nEn esta sesión\, la Dra. Perachino explicará qué es el anticuerpo AQP4\, cuál es su papel en el NMOSD\, cómo contribuye al diagnóstico de la enfermedad y por qué es tan importante para comprender su evolución y tratamiento. \nAdemás\, quienes se conecten en vivo tendrán la oportunidad de hacer sus preguntas a la Dra. Perachino en tiempo real. \n¡Esperamos contar con su participación en esta conversación informativa e interactiva!
URL:https://www.sumairafoundation.org/event/comprendiendo-el-anticuerpo-aqp4-en-nmosd/
LOCATION:Virtual: Global
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/07/Pilar-Perachino.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261104T153000
DTEND;TZID=America/New_York:20261104T163000
DTSTAMP:20260820T221237Z
CREATED:20260820T195043Z
LAST-MODIFIED:20260820T221237Z
UID:23333-1793806200-1793809800@www.sumairafoundation.org
SUMMARY:Understanding Long-Term Side Effects of Steroids
DESCRIPTION:Steroids can be an important part of treatment for many rare neuroimmune conditions\, but what happens when they’re used over a longer period of time? Join Dr. Amy Kunchok for a patient-friendly discussion about the potential long-term side effects of steroids\, what to watch for\, and how patients can work with their healthcare team to manage risks while balancing the benefits of treatment. \nWednesday\, November 4 \n12:30 PM PT / 3:30 PM ET \nhttps://us02web.zoom.us/webinar/register/WN_ad8Zm0X7QMyYdhKQORlrog \nThis webinar is designed for patients and caregivers and will provide practical information to help you better understand your treatment and advocate for your health. Those who attend live will also have the opportunity to ask Dr. Kunchok their questions! Made possible with support from Amgen.
URL:https://www.sumairafoundation.org/event/understanding-long-term-side-effects-of-steroids/
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/08/Amy-Kunchok-3.png
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